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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.12968/bjom.2023.31.7.368%5C"> http://doi.org/10.12968/bjom.2023.31.7.368\</a>"
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Max's legacy: an evaluation of the impacts of baby loss on staff and families
Publisher
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British Journal of Midwifery
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Female; Descriptive Research; Human; Thematic Analysis; Bereavement; Family Attitudes; Semi-Structured Interview; Abortion, Spontaneous; After Care; Attitude of Health Personnel; Focus Groups; Multimethod Studies; Pregnancy Trimester, First; Pregnancy; Safety; United Kingdom
Creator
An entity primarily responsible for making the resource
Whitehouse C; Crane R; Rostron H; Cater K
Description
An account of the resource
Background/Aims There is a paucity of literature on the impact of baby loss experiences on family and staff. This study aimed to explore existing support available to families and staff in a UK hospital for first trimester miscarriage, as well as experiences of baby loss, and make recommendations for future care. Methods A mixed-methods service evaluation was conducted. Data were gathered from healthcare professionals (surveys, phase 1; interviews, phase 2) and service users who had experienced baby loss (focus group discussions, phase 3). Qualitative data were analysed thematically, alongside descriptive quantitative results. Results Communication, support, recognition of loss and environment were key contributors to positive and negative experiences for staff and families. Peer support enhanced communication, reduced isolation and increased ability to function on a daily basis following loss. Conclusions Formal, resourced maternity bereavement aftercare services are essential to the support the experiences, outcomes and safety of staff and families experiencing baby loss and miscarriage.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/bjom.2023.31.7.368%5C">10.12968/bjom.2023.31.7.368\</a>"
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Abortion, Spontaneous
After Care
Attitude Of Health Personnel
Bereavement
British Journal of Midwifery
Cater K
Crane R
Descriptive Research
Family Attitudes
Female
Focus Groups
Human
Multimethod Studies
Pregnancy
Pregnancy Trimester, First
Rostron H
Safety
Semi-Structured Interview
September List 2058
Thematic Analysis
United Kingdom
Whitehouse C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s10545-006-0384-7" target="_blank" rel="noreferrer">http://doi.org/10.1007/s10545-006-0384-7</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The natural history of Niemann-Pick disease type C in the UK
Publisher
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Journal Of Inherited Metabolic Disease
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Great Britain; Adult; Middle Aged; adolescent; Preschool; infant; Models; Q3 Literature Search; Newborn; Genetic; Lipid Metabolism Disorders/diagnosis/metabolism; Lipids/chemistry; Niemann-Pick Disease; Type C/diagnosis/epidemiology
Creator
An entity primarily responsible for making the resource
Imrie J; Dasgupta S; Besley GT; Harris C; Heptinstall L; Knight S; Vanier MT; Fensom AH; Ward C; Jacklin E; Whitehouse C; Wraith JE
Description
An account of the resource
Niemann-Pick disease type C (NPC) is an autosomal recessive, neurovisceral lipid storage disorder. Mutations in two genes (NPC1 and NPC2) produce indistinguishable clinical phenotypes by biochemical mechanisms that have not yet been entirely clarified. The wide spectrum of clinical presentations of NPC includes hepatic and pulmonary disease as well as a range of neuropsychiatric disorders. Late-onset disease has been increasingly recognized as the biochemical diagnosis of NPC has been more widely applied in adult neurology clinics. The clinical presentation and follow-up of 94 patients with NPC is described, 58 of whom were still alive at the time this report was prepared. The age at diagnosis ranged from the prenatal period (with hydrops fetalis) up to 51 years. This review of NPC patients in the UK confirms the phenotypic variability of this inherited lipid storage disorder reported elsewhere. Although a non-neuronopathic variant has been described, most patients in this series who survived childhood inevitably suffered neurological and in some cases neuropsychiatric deterioration. While symptomatic treatment, such as anticholinergic and antiepileptic drugs, can alleviate some aspects of the disease, there is a clear need to develop a specific treatment for this progressively debilitating neurodegenerative disorder.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s10545-006-0384-7" target="_blank" rel="noreferrer">10.1007/s10545-006-0384-7</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Adult
Backlog
Besley GT
Child
Dasgupta S
Female
Fensom AH
Genetic
Great Britain
Harris C
Heptinstall L
Humans
Imrie J
Infant
Jacklin E
Journal Article
Journal Of Inherited Metabolic Disease
Knight S
Lipid Metabolism Disorders/diagnosis/metabolism
Lipids/chemistry
Male
Middle Aged
Models
Newborn
Niemann-Pick Disease
Preschool
Q3 Scoping Review Results
Type C/diagnosis/epidemiology
Vanier MT
Ward C
Whitehouse C
Wraith JE