The evolution of pediatric palliative medicine and its integration with anesthesia
Child; Humans; Pediatrics; Program Evaluation; PedPal Lit; Palliative Care/organization & administration; Anesthesia; Pediatric Nursing/organization & administration
2006
Weidner NJ
International Anesthesiology Clinics
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
Developing an interdisciplinary palliative care plan for the patient with muscular dystrophy
PedPal Lit
The care of children with MD presents many complex issues. An interdisciplinary team, focused on patient and family outcome, that incorporates palliative care initiatives can best outline and meet the goals of family-centered care. The early introduction of a palliative team allows for a relationship of trust to develop, serving as the foundation for the many interventions necessary to fill the gaps in care that arise during the care of a child with a chronic, life-threatening illness such as MD.
2005
Weidner NJ
Pediatric Annals
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.3928/0090-4481-20050701-12" target="_blank" rel="noreferrer">10.3928/0090-4481-20050701-12</a>
Ethical Considerations in the Management of Analgesia in Terminally Ill Pediatric Patients
parental authority for decision making for a minor; parental refusal of treatment in a minor; Right to pain relief
Research has demonstrated the significant symptom burden present at the end of life of terminally ill children. Medicine has always viewed the relief of pain and suffering as a fundamental human right and a moral and ethical obligation. At the end of life, pain and dyspnea are symptoms commonly experienced by both adults and children. Opioids are the mainstay in treating the suffering associated with pain and dyspnea; however, there exist several barriers to the use of opioids. We describe a case in which parents prevent a young patient from receiving adequate pain management during the course of a terminal illness. We discuss the importance of recognizing the barriers to opioid use and the ethical ramifications of failing to find common ground with the family. We highlight parental responsibilities and limitations of parental authority in decision making for their child.
2014-11
Weidner NJ; Plantz DM
Journal Of Pain And Symptom Management
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.jpainsymman.2013.12.233" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2013.12.233</a>
Developing Competencies for Pediatric Hospice and Palliative Medicine
milestones; competencies; fellowship training; hospice and palliative medicine
In 2006, hospice and palliative medicine (HPM) became an officially recognized subspecialty. This designation helped initiate the Accreditation Council of Graduate Medical Education Outcomes Project in HPM. As part of this process, a group of expert clinician–educators in HPM defined the initial competency-based outcomes for HPM fellows (General HPM Competencies). Concurrently, these experts recognized and acknowledged that additional expertise in pediatric HPM would ensure that the competencies for pediatric HPM were optimally represented. To fill this gap, a group of pediatric HPM experts used a product development method to define specific Pediatric HPM Competencies. This article describes the development process. With the ongoing evolution of HPM, these competencies will evolve. As part of the Next Accreditation System, the Accreditation Council of Graduate Medical Education uses milestones as a framework to better define competency-based, measurable outcomes for trainees. Currently, there are no milestones specific to HPM, although the field is designing curricular milestones with multispecialty involvement, including pediatrics. These competencies are the conceptual framework for the pediatric content in the HPM milestones. They are specific to the pediatric HPM subspecialist and should be integrated into the training of pediatric HPM subspecialists. They will serve a foundational role in HPM and should inform a wide range of emerging innovations, including the next evolution of HPM Competencies, development of HPM curricular milestones, and training of adult HPM and other pediatric subspecialists. They may also inform pediatric HPM outcome measures, as well as standards of practice and performance for pediatric HPM interdisciplinary teams.
2014-11
Klick J; Friebert SE; Hutton N; Osenga K; Pituch K; Vesel T; Weidner NJ; Block SD; Morrison LJ
Pediatrics
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1542/peds.2014-0748" target="_blank" rel="noreferrer">10.1542/peds.2014-0748</a>