1
40
4
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ijcard.2003.06.019" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ijcard.2003.06.019</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Survey of specialized tertiary care facilities for adults with congenital heart disease
Publisher
An entity responsible for making the resource available
International Journal Of Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Adult; Health Care Surveys; Questionnaires; Middle Aged; Treatment Outcome; Program Evaluation; Survival Analysis; Quality of Health Care; adolescent; patient care team; Adolescent Transitions; Hospitalization/statistics & numerical data; Heart Defects; Resource Allocation; Cardiac Care Facilities/organization & administration/utilization; Congenital/diagnosis/mortality/surgery; Europe/epidemiology; North America/epidemiology; Patient Admission/statistics & numerical data; Reoperation/utilization
Creator
An entity primarily responsible for making the resource
Niwa K; Perloff JK; Webb GD; Murphy D; Liberthson R; Warnes CA; Gatzoulis MA
Description
An account of the resource
BACKGROUND: Specialized tertiary care facilities developed in response to the increasing numbers of adults with congenital heart disease (CHD). Because this patient population comprises a relatively new area of specialized cardiovascular interest, the first facilities necessarily evolved without preexisting guidelines or interaction. OBJECTIVES: To characterize the major features of the six original and largest tertiary adults CHD facilities. METHODS: Written questionnaire sent to six participating facilities in North America and Europe. Information was analyzed centrally. RESULTS: All but one facilities was established over 20 years ago, and each cares for over 1500 patients. Hospital admissions ranged from 100 to 660 patients/unit/year. Of the total number of registered patients, 52-81% had undergone one or more reparative surgeries. Reoperations constituted 25-80% of the 50-170 operations/unit/year. Overall mean surgical mortality was 1.9%/year. Inpatient and outpatient care was provided in adult (n = 4) or both adult and pediatric (n = 2) settings. All six facilities enjoyed close collaboration between adult and pediatric cardiologists, cardiac surgeons, nurse specialists and cardiac and non-cardiac consultants. Training and research were pivotal activities. CONCLUSIONS: Provision of comprehensive care by multidisciplinary teams including adult and pediatric cardiologists, cardiac surgeons, specialized nurses and other cardiac and non-cardiac consultants was the unifying feature for all six tertiary care facilities reported here. There were minor differences among them based on available resources, local expertise and national health care policies. There appears to be a significant shortfall in tertiary care provision for the adult with CHD that requires further planning and resource allocation. These data may be useful for new and evolving adult CHD services.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ijcard.2003.06.019" target="_blank" rel="noreferrer">10.1016/j.ijcard.2003.06.019</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Adolescent Transitions
Adult
Backlog
Cardiac Care Facilities/organization & administration/utilization
Congenital/diagnosis/mortality/surgery
Europe/epidemiology
Female
Gatzoulis MA
Health Care Surveys
Heart Defects
Hospitalization/statistics & numerical data
Humans
International Journal Of Cardiology
Journal Article
Liberthson R
Male
Middle Aged
Murphy D
Niwa K
North America/epidemiology
Patient Admission/statistics & numerical data
Patient Care Team
Perloff JK
Program Evaluation
Quality Of Health Care
Questionnaires
Reoperation/utilization
Resource Allocation
Survival Analysis
Treatment Outcome
Warnes CA
Webb GD
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0735-1097(01)01272-4" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0735-1097(01)01272-4</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Task force 1: the changing profile of congenital heart disease in adult life
Publisher
An entity responsible for making the resource available
Journal Of The American College Of Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; infant; Male; Survival Rate; Adult; Prognosis; Aged; Middle Aged; Incidence; adolescent; Preschool; patient care team; infant; Adolescent Transitions; Newborn; United States/epidemiology; Heart Defects; Congenital/mortality/rehabilitation; Great Britain/epidemiology
Creator
An entity primarily responsible for making the resource
Warnes CA; Liberthson R; Danielson GK; Dore A; Harris L; Hoffman JI; Somerville J; Williams RG; Webb GD
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0735-1097(01)01272-4" target="_blank" rel="noreferrer">10.1016/s0735-1097(01)01272-4</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2001
2001
Adolescent
Adolescent Transitions
Adult
Aged
Backlog
Child
Congenital/mortality/rehabilitation
Cross-sectional Studies
Danielson GK
Dore A
Female
Great Britain/epidemiology
Harris L
Heart Defects
Hoffman JI
Humans
Incidence
Infant
Journal Article
Journal of the American College of Cardiology
Liberthson R
Male
Middle Aged
Newborn
Patient Care Team
Preschool
Prognosis
Somerville J
Survival Rate
United States/epidemiology
Warnes CA
Webb GD
Williams RG
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jacc.2008.10.001" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jacc.2008.10.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease). Developed in Collaboration With the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons
Publisher
An entity responsible for making the resource available
Journal Of The American College Of Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; United States; Adult; Adolescent Transitions; Heart Defects; Congenital/therapy; Heart Diseases/congenital/therapy; American Heart Association; Cardiology/methods/standards
Creator
An entity primarily responsible for making the resource
Warnes CA; Williams RG; Bashore TM; Child JS; Connolly HM; Dearani JA; del Nido P; Fasules JW; Graham TP; Hijazi ZM; Hunt SA; King ME; Landzberg MJ; Miner PD; Radford MJ; Walsh EP; Webb GD; Smith SC; Jacobs AK; Adams CD; Anderson JL; Antman EM; Buller CE; Creager MA; Ettinger SM; Halperin JL; Hunt SA; Krumholz HM; Kushner FG; Lytle BW; Nishimura RA; Page RL; Riegel B; Tarkington LG; Yancy CW; American College of Cardiology; American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease); American Society of Echocardiography; Heart Rhythm Society; International Society for Adult Congenital Heart Disease; Society for Cardiovascular Angiography; Interventions; Society of Thoracic Surgeons
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jacc.2008.10.001" target="_blank" rel="noreferrer">10.1016/j.jacc.2008.10.001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Adams CD
Adolescent Transitions
Adult
American College of Cardiology
American Heart Association
American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease)
American Society of Echocardiography
Anderson JL
Antman EM
Backlog
Bashore TM
Buller CE
Cardiology/methods/standards
Child JS
Congenital/therapy
Connolly HM
Creager MA
Dearani JA
del Nido P
Ettinger SM
Fasules JW
Graham TP
Halperin JL
Heart Defects
Heart Diseases/congenital/therapy
Heart Rhythm Society
Hijazi ZM
Humans
Hunt SA
International Society for Adult Congenital Heart Disease
Interventions
Jacobs AK
Journal Article
Journal of the American College of Cardiology
King ME
Krumholz HM
Kushner FG
Landzberg MJ
Lytle BW
Miner PD
Nishimura RA
Page RL
Radford MJ
Riegel B
Smith SC
Society for Cardiovascular Angiography
Society of Thoracic Surgeons
Tarkington LG
United States
Walsh EP
Warnes CA
Webb GD
Williams RG
Yancy CW
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://search.ebscohost.com.ezproxy.library.ubc.ca/login.aspx?direct=true&db=c8h&AN=2009329870&login.asp&site=ehost-live" target="_blank" rel="noreferrer">http://search.ebscohost.com.ezproxy.library.ubc.ca/login.aspx?direct=true&db=c8h&AN=2009329870&login.asp&site=ehost-live</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Report of the National Heart, Lung, and Blood Institute Working Group on research in adult congenital heart disease.
Publisher
An entity responsible for making the resource available
Journal Of The American College Of Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Adult; Risk Factors; Research; Medical; Adolescent Transitions; Heart Defects; Human; Cardiology/education; Cardiology -- Manpower; Congenital -- Diagnosis; Congenital/therapy; Tetralogy of Fallot -- Diagnosis; Tetralogy of Fallot -- Therapy; Transposition of Great Vessels -- Diagnosis; Transposition of Great Vessels -- Therapy
Creator
An entity primarily responsible for making the resource
Williams RG; Pearson GD; Barst RJ; Child JS; del Nido P; Gersony WM; Kuehl KS; Landzberg MJ; Myerson M; Neish SR; Sahn DJ; Verstappen A; Warnes CA; Webb CL
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Adolescent Transitions
Adult
Backlog
Barst RJ
Cardiology -- Manpower
Cardiology/education
Child JS
Congenital -- Diagnosis
Congenital/therapy
del Nido P
Gersony WM
Heart Defects
Human
Journal Article
Journal of the American College of Cardiology
Kuehl KS
Landzberg MJ
Medical
Myerson M
Neish SR
Pearson GD
Research
Risk Factors
Sahn DJ
Tetralogy of Fallot -- Diagnosis
Tetralogy of Fallot -- Therapy
Transposition of Great Vessels -- Diagnosis
Transposition of Great Vessels -- Therapy
Verstappen A
Warnes CA
Webb CL
Williams RG