1 40 4 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource February 2019 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month February 2019 List URL Address <a href="http://doi.org/10.1177/1074840718816808" target="_blank" rel="noreferrer noopener"> http://doi.o rg/10.1177/1074840718816808</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource How Grandparents Experience the Death of a Grandchild With a Life-Limiting Condition Publisher An entity responsible for making the resource available Journal of family nursing Date A point or period of time associated with an event in the lifecycle of the resource 2018 Subject The topic of the resource bereavement; palliative care; hospice care; grief; child; family nursing; grandparents Creator An entity primarily responsible for making the resource Tatterton MJ; Walshe C Description An account of the resource Traditionally, family-focused care extends to parents and siblings of children with life-limiting conditions. Only a few studies have focused on the needs of grandparents, who play an important role in the families of children with illness and with life-limiting conditions, in particular. Interpretative phenomenological analysis was used as the methodological framework for the study. Seven bereaved grandparents participated in this study. Semistructured, individual, face-to-face interviews were conducted. A number of contextual factors affected the experience of bereaved grandparents, including intergenerational bonds and perceived changes in role following the death of their grandchild. The primary motivation of grandparents stemmed from their role as a parent, not a grandparent. The breadth of pain experienced by grandparents was complicated by the multigenerational positions grandparents occupy within the family. Transition from before to after the death of a grandchild exacerbated the experience of pain. These findings about the unique footprint of grandparent grief suggest the development of family nursing practice to better understand and support grandparents during the illness of a grandchild, in addition to bereavement support. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/1074840718816808" target="_blank" rel="noreferrer noopener">10.1177/1074840718816808</a> 2018 Bereavement Child Family Nursing February 2019 List Grandparents Grief Hospice Care Journal Of Family Nursing Palliative Care Tatterton MJ Walshe C Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource February 2019 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month February 2019 List URL Address <a href="http://doi.org/10.1111/jan.13927" target="_blank" rel="noreferrer noopener"> http://doi.o rg/10.1111/jan.13927</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Understanding the bereavement experience of grandparents following the death of a grandchild from a life-limiting condition: a meta-ethnography Publisher An entity responsible for making the resource available Journal of advanced nursing Date A point or period of time associated with an event in the lifecycle of the resource 2018 Creator An entity primarily responsible for making the resource Tatterton MJ; Walshe C Description An account of the resource AIM: To increase understanding of grandparental grief following the death of a grandchild from a life-limiting condition. DESIGN: META-ETHNOGRAPHY: DATA SOURCES: Academic Search Complete (2015, updated 2018), CINHAL, Embase, psycINFO, PubMed and Web of Science, supplemented by manual search strategies. REVIEW METHODS: Studies were appraised and synthesised using the principles of meta-ethnography. FINDINGS: Three superordinate themes were identified: 'influence of the relationship with their grandchild', 'influence of the relationship with the grandchild's family' and 'pain'. The simultaneous, multi-generational position of grandparents meant individuals experience emotional pain from witnessing the experience of family members. CONCLUSION: Many factors that contribute to the bereavement experience of grandparents are outside of their control. The roles, positions and support needs of grandparents need to be acknowledged to better meet their needs as parents, grandparents and individuals who have experienced a child death. This article is protected by copyright. All rights reserved. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1111/jan.13927" target="_blank" rel="noreferrer noopener">10.1111/jan.13927</a> 2018 February 2019 List Journal Of Advanced Nursing Tatterton MJ Walshe C Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource September 2021 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month September 2021 List URL Address <a href="http://doi.org/10.1177/02692163211027700" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1177/02692163211027700</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource A good death in the child with life shortening illness: A qualitative multiple-case study Publisher An entity responsible for making the resource available Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource Child; terminal care; palliative care; death; delivery of health care; caregivers; qualitative research Creator An entity primarily responsible for making the resource Chong PH; Walshe C; Hughes S Description An account of the resource BACKGROUND: Understanding what makes a 'good death' in the child with life shortening illness is important, as it informs appropriate and effective end-of-life care. Above play, peer contact and opportunities for assent, prior literature review found meeting needs and managing control were critical. The influence of disease types, location of death and palliative care support remains unclear. AIM: Explore how a good death for children can occur in the real-world context and identify factors influencing it. DESIGN: A qualitative multiple-case study. The case was defined as family and professional caregivers of children who died, stratified across disease categories (cancer or non-cancer) and palliative care contact. Data collection included (1) interviews, (2) artefacts, (3) clinical notes. Framework Analysis facilitated in-depth within and cross-case analysis. SETTING/PARTICIPANTS: Singapore health-care context. Respondents included bereaved parents, health and social care providers from hospital, and a community palliative care service. RESULTS: Five cases were constituted, with eight parents and 14 professionals as respondents. Eight common themes were identified, sub-categorised under three domains and interpreted theoretically: (1) Antecedents: Letting go, Acknowledging the child, Closure (2) Determinants: Suffering, Control, Systems and processes (3) Attributes: Comfort, Dying not prolonged. These factors were consistent across all cases, regardless of individual diagnoses, place of care and palliative care access. CONCLUSIONS: Elements that universally influence a good death are revealed within an ecologically sound and holistic conceptual framework. The impact of attitudes among healthcare professionals, and service delivery at systems level highlighted in this study have immediate applications in practice and policy. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/02692163211027700" target="_blank" rel="noreferrer noopener">10.1177/02692163211027700</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 Caregivers Child Chong PH Death Delivery of Health Care Hughes S Palliative Care Palliative Medicine Qualitative Research September 2021 List Terminal Care Walshe C Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2024 Special Edition 3 - Oncology Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month 2025 SE1 - Oncology URL Address <a href="http://doi.org/10.1177/08258597241277725" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/08258597241277725</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource The Lived Experiences of Hospice Healthcare Workers Caring for Adolescents and Young Adults With Advanced Cancer: An Interpretative Phenomenological Analysis Publisher An entity responsible for making the resource available Journal of Palliative Care Date A point or period of time associated with an event in the lifecycle of the resource 2024 Subject The topic of the resource palliative care; pediatric palliative care; hospice care; adolescent and young adult cancer Creator An entity primarily responsible for making the resource Persaud N; Brearley S; Walshe C Description An account of the resource Objective: To understand the lived experience of healthcare workers who provide palliative care to adolescents and young adults living with advanced cancer. Methods: Interpretative phenomenological analysis was the design of this study. Hospice healthcare workers from four pediatric hospices across Canada were recruited through purposive sampling. Semistructured in-person interviews were conducted. Results: Eighteen hospice healthcare workers participated. Two superordinate themes were identified. First, balancing on the tightrope of uncertainty wherein hospice healthcare workers strive to do their best while aiming to take the path of least regret. This theme was underscored by a notion of doing for the adolescents and young adults. Second, acting as a proxy revolves around the importance of fostering relationships with adolescents and young adults through honesty and transparency. The cycle of protection between adolescents and young adults, families, and healthcare providers was emphasized. Conclusions: An action-focused orientation when supporting adolescents and young adults was shared by the healthcare workers. The need to do for adolescents and young adults and the need to protect not only the people they care for but also themselves. More exploration is needed on how healthcare workers who care for adolescents and young adults can be supported while better understanding coping mechanisms. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/08258597241277725" target="_blank" rel="noreferrer noopener">10.1177/08258597241277725</a> 2024 2025 SE1 - Oncology adolescent and young adult cancer Brearley S Hospice Care Journal Of Palliative Care Palliative Care Pediatric Palliative Care Persaud N Walshe C