1 40 3 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2024 Special Edition 3 - Oncology Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month 2025 SE1 - Oncology URL Address <a href="http://doi.org/10.1002/cncr.35432" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1002/cncr.35432</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Household material hardship and distress among parents of children with advanced cancer: A report from the PediQUEST Response trial Publisher An entity responsible for making the resource available Cancer Date A point or period of time associated with an event in the lifecycle of the resource 2024 Subject The topic of the resource Humans; Child; palliative care; Child Preschool; Female; Male; Adolescent; Middle Aged; Adult; Family Characteristics; Depression/epidemiology; poverty; Anxiety/epidemiology; Parents/psychology; Psychological Distress; Neoplasms/psychology/epidemiology; children with advanced cancer; household material hardship (HMH); Housing; parent depression; parent state anxiety; Stress Psychological/epidemiology Creator An entity primarily responsible for making the resource Eche-Ugwu IJ; Orellana L; Becker D; Bona K; Avery M; Feudtner C; Freedman JL; Kang TI; Rosenberg AR; Waldman ED; Ullrich CK; Dussel V; Wolfe J Description An account of the resource BACKGROUND: The prevalence and characteristics of household material hardship (HMH) in families of children with advanced cancer and its association with parent distress are unknown and herein described. METHODS: Parents of children aged ≥2 years with advanced cancer at five cancer centers completed baseline surveys as part of the PediQUEST Response trial. HMH (housing, energy, and food) was operationalized as binary (≥1 HMH domains), ordinal (zero, one, or two or more HMH domains), and housing based (none, nonhousing [food and/or energy], only housing, or housing + other). Associations between HMH and parent distress measured by the State-Trait Anxiety Inventory-State and the 10-item Center for Epidemiologic Studies Depression Scale were estimated via linear models adjusting for confounders. RESULTS: Among 150 parents, 41% reported ≥1 HMH (housing, 28% [only housing, 8%; housing + other, 20%]; energy, 19%; food, 27%). HMH was more prevalent among Hispanic, other non-White race, Spanish-speaking, and single parents and those with lower education (associate degree or less) or who were uninsured/Medicaid-only insured. Parents endorsing HMH reported higher anxiety (mean difference [MD], 9.2 [95% CI, 3.7-14.7]) and depression (MD, 4.1 [95% CI, 1.7-6.5]) scores compared to those without HMH. Distress increased with the number of hardships, particularly housing insecurity. Specifically, parents experiencing housing hardship, alone or combined, reported higher distress (housing only: anxiety: MD, 10.2 [95% CI, 1.8-18.5]; depression: MD, 4.9 [95% CI, 1.3-8.6]; housing + other HMH: anxiety: MD, 12.0 [95% CI, 5.2-18.9]; depression: MD, 4.8 [95% CI, 1.8-7.8]). CONCLUSIONS: HMH is highly prevalent in pediatric advanced cancer, especially among historically marginalized families. Future research should investigate whether interventions targeting HMH, particularly housing stabilization efforts, can mitigate parent distress. PLAIN LANGUAGE SUMMARY: In our cohort of parents of children with advanced cancer, household material hardship (HMH) was highly prevalent and significantly associated with higher parent distress. Housing hardship was the primary driver of this association. Families of children with advanced cancer may benefit from systematic HMH screening as well as targeted HMH interventions, especially stabilizing housing. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1002/cncr.35432" target="_blank" rel="noreferrer noopener">10.1002/cncr.35432</a> 2024 2025 SE1 - Oncology Adolescent Adult Anxiety/epidemiology Avery M Becker D Bona K Cancer Child Child Preschool children with advanced cancer Depression/epidemiology Dussel V Eche-Ugwu IJ Family Characteristics Female Feudtner C Freedman JL household material hardship (HMH) housing Humans Kang TI Male Middle Aged Neoplasms/psychology/epidemiology Orellana L Palliative Care parent depression parent state anxiety Parents/psychology Poverty Psychological Distress Rosenberg AR Stress Psychological/epidemiology Ullrich CK Waldman ED Wolfe J Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource September 2021 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month September 2021 List URL Address <a href="http://doi.org/10.21037/apm-20-2370" target="_blank" rel="noreferrer noopener">http://doi.org/​10.21037/apm-20-2370</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Pediatric palliative care and surgery Publisher An entity responsible for making the resource available Annals of Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource pediatric palliative care; pediatric surgery; Chronic illness; surgical palliative care Creator An entity primarily responsible for making the resource Ott KC; Vente TM; Lautz TB; Waldman ED Description An account of the resource Care for pediatric patients with serious or potentially life-limiting illness involves the interplay of multiple medical and surgical teams within the hospital. Pediatric surgeons are capable of performing procedures that can improve the quality of life for children facing serious illness, but which also carry the potential for significant risk and burden. Patients and families are often faced with decisions about invasive surgical procedures and interventions, stressing the need for seamless collaboration between palliative care and surgical providers. Equally important is the need for clear and open-ended communication with patients and families by all medical teams to determine if potential surgical procedures and interventions align with their goals and to ensure that the perceived benefits of interventions outweigh any risks. Over the last two decades, pediatric palliative care has grown into a thriving medical subspecialty Despite the importance of collaborative care, there is lack of literature on the interaction of pediatric surgery and palliative care and the role of pediatric surgeons in providing primary palliative care. This review defines surgical pediatric palliative care, and provides an in-depth discussion of the unique complexities involved in caring for children with serious and potentially life-limiting illness, while highlighting specific challenges through detailed case presentations. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.21037/apm-20-2370" target="_blank" rel="noreferrer noopener">10.21037/apm-20-2370</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 Annals Of Palliative Medicine Chronic Illness Lautz TB Ott KC Pediatric Palliative Care pediatric surgery September 2021 List surgical palliative care Vente TM Waldman ED Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource April 2018 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month April 2018 List URL Address <a href="http://doi.org/10.1017/s1478951517001237" target="_blank" rel="noreferrer noopener">http://doi.org/10.1017/s1478951517001237</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource A cross-sectional pilot study of compassion fatigue (CF), burnout (BO), and compassion satisfaction (CS) in pediatric palliative care (PPC) providers in the United States Publisher An entity responsible for making the resource available Palliative and Supportive Care Date A point or period of time associated with an event in the lifecycle of the resource 2018 Subject The topic of the resource Fatigue; Palliative Care; Pilot Projects; United States; burnout; pediatric palliative care; Cesarean Section; Compassion fatigue; compassion satisfaction Creator An entity primarily responsible for making the resource Kase SM; Waldman ED; Weintraub AS Description An account of the resource OBJECTIVE: Compassion fatigue (CF) is secondary traumatic distress experienced by providers from contact with patients' suffering. Burnout (BO) is job-related distress resulting from uncontrollable workplace factors that manifest in career dissatisfaction. Compassion satisfaction (CS) is emotional fulfillment derived from caring for others. The literature on BO in healthcare providers is extensive, whereas CF and CS have not been comprehensively studied. Because of ongoing exposure to patient and family distress, pediatric palliative care (PPC) providers may be at particular risk for CF. We conducted a cross-sectional pilot study of CF, BO, and CS among PPC providers across the United States. METHOD: The Compassion Fatigue and Satisfaction Self-Test for Helpers and a questionnaire of professional and personal characteristics were distributed electronically and anonymously to PPC physicians and nurses. Logistic and linear regression models for CF, BO, and CS as a function of potential risk factors were constructed. RESULTS: The survey response rate was 39%, primarily consisting of female, Caucasian providers. The prevalence of CF, BO, and CS was 18%, 12%, and 25%, respectively. Distress about a "clinical situation," physical exhaustion, and personal loss were identified as significant determinants of CF. Distress about "coworkers," emotional depletion, social isolation, and "recent involvement in a clinical situation in which life-prolonging activities were not introduced" were significant determinants of BO. Physical exhaustion, personal history of trauma, "recent involvement in a clinical situation in which life-prolonging activities were not introduced," and not discussing distressing issues were significant predictors of lower CS scores. Significance of results CF and BO directly influence the well-being and professional performance of PPC providers. To provide effective compassionate care to patients, PPC providers must be attentive to predictors of these phenomena. Further work is needed to explore additional causes of CF, BO, and CS in PPC providers as well as potential interventions. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1017/s1478951517001237" target="_blank" rel="noreferrer noopener">10.1017/s1478951517001237</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2018 April 2018 List Burnout Cesarean Section Compassion Fatigue compassion satisfaction Fatigue Kase SM Palliative And Supportive Care Palliative Care Pediatric Palliative Care Pilot Projects United States Waldman ED Weintraub AS