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40
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Dublin Core
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Title
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June 2020 List
Text
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June 2020 List
URL Address
<a href="http://doi.org/10.1016/j.aucc.2017.09.004" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.aucc.2017.09.004</a>
Dublin Core
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Title
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Welcoming expertise: Bereaved parents' perceptions of the parent-healthcare provider relationship when a critically ill child is admitted to the paediatric intensive care unit
Publisher
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Australian Critical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Adult; Bereavement; Child; child and family wishes; Critical Illness -- Singapore; Death; Female; Grounded theory; Grounded Theory; health personnel attitude; Hospital Mortality; Hospitalized; Humans; Intensive care unit-paediatric; Intensive care units pediatric; Interviews as Topic; Male; Nurse; Parents; Parents/*psychology; Pediatric; Professional-Family Relations; Victoria
Creator
An entity primarily responsible for making the resource
Butler A E; Copnell B; Hall H
Description
An account of the resource
BACKGROUND: Entering the paediatric intensive care unit with a critically ill child is a stressful experience for parents. In addition to fearing for their child's well-being, parents must navigate both a challenging environment and numerous new relationships with healthcare staff. How parents form relationships with staff and how they perceive both their own and the healthcare providers' roles in this early stage of their paediatric intensive care journey is currently unknown. PURPOSE: This paper explores bereaved parents' perceptions of their role and their relationships with healthcare providers when their child is admitted to the intensive care unit, as part of a larger study exploring their experiences when their child dies in intensive care. METHODS: A constructivist grounded theory approach was utilised to recruit 26 bereaved parents from 4 Australian intensive care units. Parents participated in audio-recorded, semi-structured interviews lasting 90-150min. All data were analysed using the constant comparative analysis processes, supported by theoretical memos. RESULTS: Upon admission, parents viewed healthcare providers as experts, both of their child's medical care and of the hospital system. This expertise was welcomed, with the parent-healthcare provider relationship developing around the child's need for medical care. Parents engaged in 2 key behaviours in their relationships with staff: prioritising survival, and learning 'the system'. Within each of these behaviours are several subcategories, including 'Stepping back', 'Accepting restrictions' and 'Deferring to medical advice'. CONCLUSIONS: The relationships between parents and staff shift and change across the child's admission and subsequent death in the paediatric intensive care unit. However, upon admission, this relationship centres around the child's potential survival and their need for medical care, and the parent's recognition of the healthcare staff as experts of both the child's care and the hospital system.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.aucc.2017.09.004" target="_blank" rel="noreferrer noopener">10.1016/j.aucc.2017.09.004</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adult
Australian Critical Care
Bereavement
Butler A E
Child
child and family wishes
Copnell B
Critical Illness -- Singapore
Death
Female
Grounded Theory
Hall H
Health Personnel Attitude
Hospital Mortality
Hospitalized
Humans
Intensive care unit-paediatric
Intensive Care Units Pediatric
Interviews As Topic
June 2020 List
Male
Nurse
Parents
Parents/*psychology
Pediatric
Professional-family Relations
Victoria
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1440-1754.2002.00766.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1440-1754.2002.00766.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Telephone reminders improve adolescent clinic attendance: a randomized controlled trial
Publisher
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Journal Of Paediatrics And Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Victoria; adolescent; Adolescent Transitions; Telephone; Ambulatory Care Facilities/statistics & numerical data/utilization; Appointments and Schedules; Reminder Systems
Creator
An entity primarily responsible for making the resource
Sawyer SM; Zalan A; Bond LM
Description
An account of the resource
OBJECTIVES: To measure the effect of telephone reminders on adolescent clinic attendance. METHODS: Clinic bookings of adolescents were randomly assigned to either a telephone reminder one day prior to their appointment, or a routine booking (no reminder). The setting was four general adolescent health clinics within a tertiary public adolescent health care service at the Centre for Adolescent Health. The main outcome measures were clinic non-attendance, reason for non-attendance, and satisfaction with the booking system. RESULTS: One hundred and seventy one adolescent appointments were studied. Of these, 51.5% were female, and 25% of bookings were for new, rather than review appointments. One hundred and one adolescents were randomly allocated to the reminder group, of whom 87% were contacted. The use of reminders (intention to treat analysis) significantly reduced the non-attendance rate from 20% to 8% (odds ratio 0.35; P = 0.03). Non-attendance was three times more likely for a new appointment than for review appointments. 'Forgetting' was the most common explanation given by patients (35%) who did not attend. Seventy-nine per cent of parents reported telephone reminders were helpful at prompting attendance. CONCLUSION: Telephone reminders greatly improved attendance at these adolescent clinics. The background non-attendance rate and the proportion of high-risk patients for non-attendance (new appointments in this setting) will determine whether reminders are more efficiently targeted at specific bookings than used routinely.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1440-1754.2002.00766.x" target="_blank" rel="noreferrer">10.1046/j.1440-1754.2002.00766.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adolescent
Adolescent Transitions
Ambulatory Care Facilities/statistics & numerical data/utilization
Appointments and Schedules
Backlog
Bond LM
Female
Humans
Journal Article
Journal of Paediatrics and Child Health
Male
Reminder Systems
Sawyer SM
Telephone
Victoria
Zalan A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2648.2011.05892.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2648.2011.05892.x</a>
Dublin Core
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Title
A name given to the resource
Is an advance care planning model feasible in community palliative care? A multi-site action research approach.
Publisher
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Journal Of Advanced Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Female; Humans; Male; Advance Directives; Adult; Victoria; Aged; Middle Aged; Program Evaluation; Urban Population; 80 and over; DNAR; Organizational; Palliative Care/og [Organization & Administration]; Terminal Care/og [Organization & Administration]; Advance Care Planning/og [Organization & Administration]; Models; Community Health Services/og [Organization & Administration]; Rural Population
Creator
An entity primarily responsible for making the resource
Blackford J; Street A
Description
An account of the resource
AIM: This article reports a study to determine the feasibility of an advance care planning model developed with Australian community palliative care services., BACKGROUND: An effective advance care planning programme involves an organizational wide commitment and preparedness for health service reform to embed advance care planning into routine practice. Internationally, such programmes have been implemented predominantly in aged and acute care with more recent work in primary care., METHODS: A multi-site action research was conducted over a 16-month period in 2007-2009 with three Victorian community palliative care services. Using mixed method data collection strategies to assess feasibility, we conducted a baseline audit of staff and clients; analysed relevant documents (client records, policies, procedures and quality improvement strategies) pre-implementation and post-implementation and conducted key informant interviews (n = 9)., SETTINGS AND PARTICIPANTS: Three community palliative care services: one regional and two metropolitan services in Victoria, Australia., RESULTS: The services demonstrated that it was feasible to embed the Model into their organizational structures. Advance care planning conversations and involvement of family was an important outcome measure rather than completion rate of advance care planning documents in community settings. Services adapted and applied their own concept of community, which widened the impact of the model. Changes to quality audit processes were essential to consolidate the model into routine palliative care practice., CONCLUSION: An advance care planning model is feasible for community palliative care services. Quality audit processes are an essential component of the Model with documentation of advance care planning discussion established as an important outcome measure.Copyright © 2011 Blackwell Publishing Ltd.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2648.2011.05892.x" target="_blank" rel="noreferrer">10.1111/j.1365-2648.2011.05892.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
80 And Over
Adult
Advance Care Planning/og [Organization & Administration]
Advance Directives
Aged
Backlog
Blackford J
Community Health Services/og [Organization & Administration]
DNAR
Female
Humans
Journal Article
Journal Of Advanced Nursing
Male
Middle Aged
Models
Organizational
Palliative Care/og [Organization & Administration]
Program Evaluation
Rural Population
Street A
Terminal Care/og [organization & Administration]
Urban Population
Victoria
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2012.04179.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2012.04179.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Tracking the route to sustainability: a service evaluation tool for an advance care planning model developed for community palliative care services.
Publisher
An entity responsible for making the resource available
Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Humans; Terminal Care; Advance Directives; Victoria; Qualitative Research; Health Services Research; Nursing Staff; advance care planning; DNAR; Palliative Care; Organizational; Models; Community Health Services; Program Evaluation/mt [Methods]; Community Health Services/og [Organization & Administration]
Creator
An entity primarily responsible for making the resource
Blackford J; Street A
Description
An account of the resource
AIMS AND OBJECTIVES: The study aim was to develop a service evaluation tool for an advance care planning model implemented in community palliative care., BACKGROUND: Internationally, advance care planning programmes usually measure success by completion rate of advance directives or plans. This outcome measure provides little information to assist nurse managers to embed advance care planning into usual care and measure their performance and quality over time. An evaluation tool was developed to address this need in Australian community palliative care services., DESIGN: Multisite action research approach., METHODS: Three community palliative care services located in Victoria, Australia, participated. Qualitative and quantitative data collection strategies were used to develop the Advance Care Planning-Service Evaluation Tool., RESULTS: The Advance Care Planning-Service Evaluation Tool identified advance care planning progress over time across three stages of Establishment, Consolidation and Sustainability within previously established Model domains of governance, documentation, practice, education, quality improvement and community engagement. The tool was used by nurses either as a peer-assessment or self-assessment tool that assisted services to track their implementation progress as well as plan further change strategies., CONCLUSION: The Advance Care Planning-Service Evaluation Tool was useful to nurse managers in community palliative care. It provided a clear outline of service progress, level of achievement and provided clear direction for planning future changes., RELEVANCE TO CLINICAL PRACTICE: The Advance Care Planning-Service Evaluation Tool enables nurses in community palliative care to monitor, evaluate and plan quality improvement of their advance care planning model to improve end-of-life care. As the tool describes generic healthcare processes, there is potential transferability of the tool to other types of services.Copyright © 2012 Blackwell Publishing Ltd.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2702.2012.04179.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2012.04179.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Advance Care Planning
Advance Directives
Backlog
Blackford J
Community Health Services
Community Health Services/og [Organization & Administration]
DNAR
Health Services Research
Humans
Journal Article
Journal of Clinical Nursing
Models
Nursing Staff
Organizational
Palliative Care
Program Evaluation/mt [Methods]
Qualitative Research
Street A
Terminal Care
Victoria