1 40 2 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Oncology Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Oncology 2017 List URL Address <a href="http://doi.org/10.1089/jayao.2015.0009" target="_blank" rel="noreferrer">http://doi.org/10.1089/jayao.2015.0009</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer Publisher An entity responsible for making the resource available Journal Of Adolescent And Young Adult Oncology Date A point or period of time associated with an event in the lifecycle of the resource 2016 Creator An entity primarily responsible for making the resource Kaal SEJ; Kuijken NMJ; Verhagen CAHHVM; Jansen R; Servaes P; Van Der Graaf WTA Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1089/jayao.2015.0009" target="_blank" rel="noreferrer">10.1089/jayao.2015.0009</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2016 Jansen R Journal Of Adolescent And Young Adult Oncology Kaal SEJ Kuijken NMJ Oncology 2017 List Servaes P Van Der Graaf WTA Verhagen CAHHVM Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2021 Special Edition 2 - Oncology Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month 2021 Special Edition - Oncology URL Address <a href="http://doi.org/10.6004/jnccn.2020.7696" target="_blank" rel="noreferrer noopener"> http://doi.org/10.6004/jnccn.2020.7696</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Adolescents and Young Adults Living With an Uncertain or Poor Cancer Prognosis: The "New" Lost Tribe Publisher An entity responsible for making the resource available Journal of the National Comprehensive Cancer Network Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource Oncology Creator An entity primarily responsible for making the resource Burgers VWG; van der Graaf WTA; van der Meer DJ; McCabe MG; Rijneveld AW; van den Bent MJ; Husson O Description An account of the resource Historically, adolescent and young adult (AYA) patients with cancer, diagnosed for the first time at age 15 through 39 years, have often been identified as a "lost tribe" without a medical "home"; neither pediatric nor adult oncology services were able to provide age-appropriate care to this specific group. Internationally, AYA care programs are being established to bridge the gap between the age-defined healthcare worlds and to address the specific needs of AYAs with cancer. However, AYA care programs mostly focus on improving cure rates and addressing survivorship issues, and direct less attention to the unique needs of those living with an uncertain and/or poor cancer prognosis. Additionally, palliative care services are typically poorly equipped to address the age-specific needs of this group. Given that increasingly more AYAs with an uncertain and/or poor cancer prognosis are gaining life years because of novel treatments, and sometimes even face the prospect of long-term disease control, AYA care programs should address the unique palliative care needs of this "new" lost tribe within AYA oncology. This report provides a definition and description of the AYA population living with an uncertain and/or poor cancer prognosis in terms of epidemiologic, clinical, and psychosocial characteristics and challenges, and provides perspectives for future research and care initiatives. It also highlights the need to comprehensively examine the experience of AYAs who are living with uncertain and/or poor cancer prognosis to adjust best care practices for this unique group. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.6004/jnccn.2020.7696" target="_blank" rel="noreferrer noopener">10.6004/jnccn.2020.7696</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 2021 Special Edition - Oncology Burgers VWG Husson O Journal Of The National Comprehensive Cancer Network McCabe MG Oncology Rijneveld AW van den Bent MJ Van Der Graaf WTA van der Meer DJ