Browse Items (203 total)
- Tags: United States
Community-based Pediatric Palliative Care For Health Related Quality Of Life, Hospital Utilization And Costs Lessons Learned From A Pilot Study
Children with chronic complex-medical conditions comprise a small minority of children who require substantial healthcare with major implications for hospital utilization and costs in pediatrics. Community-Based Pediatric Palliative Care…
Tags: 2016, August 2016 List, BMC Palliative Care, Chronic Disease, Cost-effectiveness, Generic Core Scales, Health Care Sciences & Services, Health Policy & Services, Health Related Quality Of Life, Home, Hospital Utilization, Illness, Impact, J Goldhagen, Medical Complexity, Pediatric Palliative Care, Pedsql(tm), Pilot Study, Reliability, United States, Validity, Vulnerable Children
Development And Evaluation Of A Palliative Care Curriculum For Cystic Fibrosis Healthcare Providers.
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Tags:
2016, Altstein
LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Compassionate Deactivation Of Ventricular Assist Devices In Pediatric Patients.
Tags: 2016, Advanced Heart-disease, Axelrod DM, Bernstein D, Cardiac & Cardiovascular Systems, Cohen H, Destination Therapy, End Of Life Care, Expert Consensus Statement, Hollander SA, Implantable Electronic Devices, Kaufman BD, Magnus D, May 2016 List, Mechanical Circulatory Support, Mechanical Support, Palliative Care, Patients Nearing End, Pediatrics, Quality Of Life, Reddy S, Requesting Withdrawal, Respiratory System, Rosenthal DN, Sourkes B, Surgery, Sustaining Treatment, The Journal of Heart and Lung Transplantation, Transplantation, United States, Ventricular Assist
Acceptability Of Family-centered Advanced Care Planning For Adolescents With Hiv
Tags: 2016, Adolescent, Adolescent Health Services/sn [statistics & Numerical Data], Adolescent Palliative Care Consortium, Advance Care Planning, Cheng Y I, Dallas R H, Family Nursing, Family/px [psychology], Female, Garcia A, Hiv Infections/px [psychology], Hiv Infections/th [therapy], Humans, Kimmel A, Lyon M, Male, Patient Acceptance Of Health Care/sn [statistics & Numerical Data], Pediatrics, Prospective Studies, Rana S, September 2017 List, Surveys And Questionnaires, United States, Wang J, Wilkins M L, Young Adult
Neonatal Death In The Emergency Department: When End-of-life Care Is Needed At The Beginning Of Life
End-of-life And Bereavement Care In Pediatric Intensive Care Units
Tags: 2017, Bereavement Support, Child, Child Death, Clinical Study, Doctor Patient Relation, Family Interaction, Female, Health, Human, Jenkins T L, Male, October 2017 List, Pain, Pediatric Clinics of North America, Pediatric Intensive Care Unit, Sound, Suttle M, Tamburro R F, Terminal Care, United States
Multiple Complex Chronic Conditions And Pediatric Hospice Utilization Among California Medicaid Beneficiaries, 2007-2010
Children With Intellectual Disability And Hospice Utilization
Tags: 2017, Child, Colman MB, Comorbidity, Disclose., Hospice Care, Hospice Enrollment, Hospice Length Of Stay, Hospices, Intellectual Disability, Journal of Hospice and Palliative Nursing, Length Of Stay, Lindley LC, May 2017 List, Meadows JTJr, Medicaid, Only Child, Pediatric Hospice Utilization, United States
Bringing Home To The Hospital: Development Of The Reflection Room And Provider Perspectives
The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care
Tags: 2015, Delivery of Health Care, End-of-life Care, Female, Fetal Death, Fornehed Mary Lou, Hospice And Palliative Care Nursing, Hospice Organisation, Hospices/statistics & Numerical Data, Humans, Infant, International Journal of Palliative Nursing, Lindley L, May 2017 List, Mixer Sandra J, Nursing Administration, Nursing Leadership, Nursing Staff, Perinatal Care, Perinatal Death, Pregnancy, Retrospective Studies, Surveys And Questionnaires, Transcultural Nursing, United States, Wallace Heather, Wool Charlotte, Workplace
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
End- Of- Life Decisions And Minors: Do Minors Have The Right To Refuse Life Preserving Medical Treatment? A Comparative Study
Tags: 2009, Adolescent, Canada, Child, Decision Making, Europe, Humans, Informed Consent/lj [legislation & Jurisprudence], Lemmens C, May 2017 List, Medicine & Law, Minors/lj [legislation & Jurisprudence], Terminally Ill/lj [legislation & Jurisprudence], Treatment Refusal, Treatment Refusal/lj [legislation & Jurisprudence], United States
End-of-life Practices Among Tertiary Care Picus In The United States: A Multicenter Study
Tags: 2015, Adolescent, Berg RA, Carcillo J, Cause Of Death, Child, Child Preschool, Clark A, Dalton H, Dean JM, Doctor A, Female, Harrison R, Holubkov R, Hospital Mortality, Humans, Infant, Intensive Care Units Pediatric, Jenkins T L, July 2017 List, Keele L, Length Of Stay, Male, Meert KL, Morrison W, Newth CJL, Pediatric Critical Care Medicine, Pollack M, Practice Patterns Physicians', Prospective Studies, Shanley T, Terminal Care/methods, Terminal Care/statistics & Numerical Data, Tertiary Healthcare, Tissue And Organ Procurement/statistics & Numerical Data, United States, Wessel DL
The Impact of Mortality on Total Costs Within the ICU
Tags: 2017, Adolescent, Adult, Age Factors, Aged, Aged 80 And Over, Bed Occupancy/economics, Critical Care Medicine, Dasta JF, Female, Hospital Costs/ Statistics & Numerical Data, Hospital Mortality, Humans, Intensive Care Units/ Economics, Kane-Gill SL, Kramer AA, Length Of Stay/economics, Male, Middle Aged, November 2017 List, Patient Discharge/economics, Respiration Artificial/economics, Retrospective Studies, Severity Of Illness Index, Sex Factors, United States, Young Adult
Reframing US Maternity Care: Lessons Learned From End-of-Life Care
Tags: 2017, Caughey AB, Death, Decision Making, Delivery Obstetric, Female, Guidelines As Topic, Humans, Infant Newborn, Journal of Midwifery & Women's Health, Lowe NK, Maternal Health Services, Midwifery, November 2017 List, Palliative Care, Parturition, Patient Participation, Patient Safety, Patient-centered Care, Pregnancy, Snowden JM, Terminal Care, Tilden EL, United States
Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Tags: 2016, Adaptation Psychological, Adult, Bereavement, Christian BJ, Currie ER, Day S, Decision Making, Female, Hinds PS, Humans, Infant Newborn, Intensive Care Neonatal/st [standards], Intensive Care Neonatal/td [trends], Intensive Care Units Neonatal, Interviews As Topic, Journal of Pediatric Nursing, Male, Meneses K, November 2017 List, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Perception, Perna SJ, Professional-family Relations, Qualitative Research, Robinson C, Stress Psychological, Terminal Care/mt [methods], Terminal Care/px [psychology], United States
When Technology Fails: Community-Based Pediatric Hospice
Tags: 2016, Biomedical Technology, Butler S, Child, Child Health Services/og [organization & Administration], Child Preschool, Female, Haas K, Health Care Reform, Hospice And Palliative Care Nursing/og [organization & Administration], Hospice Care/og [organization & Administration], Hospices/og [organization & Administration], Humans, Journal of Pediatric Nursing, Kramer N, Male, November 2017 List, Pediatrics, Quality Assurance Health Care, Residence Characteristics, Risk Assessment, Ryan JG, United States, Vizzachero N, Waechtler E
Trisomy 18: A survey of opinions, attitudes, and practices of neonatologists
Tags: 2016, Adult, American Journal of Medical Genetics Part A, Article, Attitude Of Health Personnel, Attitude To Abortion, Biggio JR, Caucasian, Christian, Chromosomes Human Pair 18, Clinical Practice, Correlation Analysis, December 2017 List, Demography, Disease Management, Disease Severity, Edwards RK, Family, Female, Fetus Malformation, Health Care Surveys, Human, Humans, Intellectual Impairment, Jacobs AP, Male, Marriage, Medical Decision Making, Medical Society, Neonatologist, Neonatologists/px [psychology], Newborn Care, Normal Human, Outcome Assessment (health Care), Palliative Care, Palliative Therapy, Parental Attitude, Philips JB 3rd, Physician Attitude, Practice Patterns Physicians', Prenatal Diagnosis, Priority Journal, Race Difference, Resuscitation, Robin NH, Subramaniam A, Survival Rate, Tang Y, Trisomy 18, Trisomy/di [diagnosis], United States
Changes In Parents After The Death Of A Child From Cancer
Tags: 2012, Adaptation Psychological, Adult, Barrera M, Bereavement, Canada, Changes In Parents After The Death Of A Child From Cancer, Child, Davies B, Death, Dietrich MS, Emotions, Fairclough DL, Family/ Psychology, Female, Foster TL, Gerhardt CA, Gilmer MJ, Grollman J, Humans, Journal of Pain and Symptom Management, Male, Parents/ Psychology, Siblings/psychology, United States, Vannatta K
Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps
Tags: 2016, Adult, American Cancer Society/organization & Administration, And Medicine (u.S.) Health And, Ca: A Cancer Journal For Clinicians, Child, Education/ Organization & Administration, Engineering, Family, Feudtner C, Humans, Kirch R, Medical Oncology, Medicine Division/organization & Administration, National Academies Of Science, Neoplasms/rehabilitation/ Therapy, Oncology 2017 List, Palliative Care, Psychosocial Support Systems, Quality Of Life, Reaman G, Schwartz LA, Sung L, United States, Wiener L, Wolfe J
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
Tags: 2009, Adolescent, African Continental Ancestry Group, Althoff J, Baker JN, Burghen EA, Cancer Care Facilities, Child, Decision Making, European Continental Ancestry Group, Female, Funk A, Gattuso JS, Hinds PS, Humans, Infant, Journal of Palliative Medicine, Kane JR, Liu W, Male, Medical Audit, Oncology 2017 List, Pediatrics, Preschool, Rai S, Resuscitation Orders, Srivastava K, Terminal Care, United States, West N, Zawistowski CA
Healthcare Utilization and Spending for Constipation in Children With Versus Without Complex Chronic Conditions
Tags: 2017, Adolescent, Ambulatory Care/ economics/utilization, Berry JG, Child, Child Preschool, Chronic Disease, Constipation/economics/ therapy, DeJong N, Delivery of Health Care/ economics, Emergency Service Hospital/utilization, Female, Hall M, Health Care Costs, Hospitalization/economics, Humans, Infant, January 2018 List, Journal Of Pediatric Gastroenterology And Nutrition, Male, Medicaid, Multiple Chronic Conditions, Patient Acceptance of Health Care, Prevalence, Retrospective Studies, Richardson T, Rodean J, Steiner MJ, Stephens JR, United States
Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States
Barriers to conducting advance care discussions for children with life-threatening conditions.
Tags: 2012, Adult, Advance Care Planning/og [Organization & Administration], Attitude Of Health Personnel, Attitudes, Backlog, Child, Communication Barriers, Critical Illness/th [therapy], DNAR, DNAR Outcomes, Durall A, Female, Health Knowledge, Hospital/es [Ethics], Hospital/px [Psychology], Hospital/st [Standards], Hospitals, Humans, Journal Article, Male, Medical Staff, Palliative Care/st [standards], Pediatric, Pediatrics, Practice, Questionnaires, United States, Wolfe J, Zurakowski D
Half of older Americans seen in emergency department in last month of life; most admitted to hospital, and many die there
Tags: 2012, 80 And Over, Aged, Backlog, Boscardin J, Cenzer IS, Covinsky K, Emergency Service, Female, Fisher J, Health Affairs, Hospital, Hospital Mortality, Hospitalization, Humans, Insurance Claim Review, Journal Article, Male, McCarthy E, Smith AK, Terminal Care, Terminally Ill, United States, Weber E
Communication and advanced care planning in palliative and end-of-life care.
Pediatric end-of-life decisions when abuse is suspected
Tags: 2012, Arias JJ, Backlog, Brain Injuries, Child Abuse, Emergency Medical Services, Female, Humans, Infant, Journal Article, Life Support Care, Medical Futility, Parental Consent, Referral And Consultation, Skull Fractures, Terminal Care, The Virtual Mentor: Vm, United States, Weise KL, Withholding Treatment
The retreat from advanced care planning
Tags: 2012, Advance Care Planning/economics/trends, Advance Directives, Backlog, Centers for Medicare and Medicaid Services (U.S.), Decision Making, Humans, Insurance Coverage/legislation & jurisprudence, JAMA, Journal Article, Journal of Palliative Medicine Briefings, Medicare/economics, Patient Protection and Affordable Care Act, Patient-centered Care, Physician-patient Relations, Terminal Care/economics/standards, Tinetti ME, United States
Factors important to patients' quality of life at the end of life
Tags: 2012, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Caregivers, Drug Therapy, Female, Follow-up Studies, Humans, Journal Article, Male, Meditation, Middle Aged, Models, Neoplasms, Nilsson ME, Pastoral Care, Physician-patient Relations, Prigerson HG, Prospective Studies, Quality Of Life, statistical, Terminal Care, Terminally Ill, United States, Zhang B
Pediatric palliative care patients: a prospective multicenter cohort study
Tags: 2011, Adolescent, Backlog, Child, Chronic Disease, Chronic Disease/epidemiology/therapy, Dussel V, Eligibility Determination, Eligibility Determination/methods, Female, Feudtner C, Follow-up Studies, Friebert SE, Friedrichsdorf SJ, Hays Ross M, Hexem KR, Hospitalization, Hospitalization/trends, Humans, Infant, Journal Article, Kang T, Male, Medical Audit, Medical Audit/organization & administration, Newborn, Osenga K, Palliative Care, Palliative Care/organization & Administration, PEDI Study, Pediatrics, Preschool, Prevalence, Prospective Studies, Siden H, United States, United States/epidemiology, Wolfe J, Young Adult
Annual summary of vital statistics: 2008
Tags: 2011, Adolescent, Adult, Age Distribution, Backlog, Birth Rate/trends, Child, Female, Guyer B, Humans, Infant, Infant Mortality/trends, Journal Article, Male, Maternal Age, Mathews TJ, Minino AM, Mortality/trends, Newborn, Osterman MJ, Pediatrics, Preschool, Strobino DM, United States, Vital Statistics, Young Adult
End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making.
Tags: 2011, Active, Adult, Advance Directives, Aged, Assisted/lj [Legislation & Jurisprudence], Backlog, Bioethical Issues, Bioethics, Canada, Child, Decision Making, Deep Sedation, DNAR, Downie Jocelyn, Europe, Euthanasia, Humans, Journal Article, McLean SAM, Palliative Care, Public Opinion, Schuklenk U, Suicide, Terminal Care, United States, Upshur R, van Delden JJM, Voluntary, Weinstock D, Withholding Treatment
Putting drug use in context. Life-lines of African American women who smoke crack.
Tags: 1998, Adolescent Transitions, Adult, African Americans/psychology, Backlog, Boyd CJ, Child, Child Abuse, Crack Cocaine, Depressive Disorder/psychology, Female, Hill E, Holmes C, Humans, Incest/psychology, Journal Article, Journal Of Substance Abuse Treatment, Middle Aged, Psychological/psychology, Purnell R, Rape/psychology, Sexual/psychology, Socioeconomic Factors, Stress, Substance-Related Disorders/psychology, United States
Sibling bereavement: a concept analysis.
Responding to intractable terminal suffering: the role of terminal sedation and voluntary refusal of food and fluids.
Tags: 2000, Aged, Annals Of Internal Medicine, Assisted, Backlog, Byock IR, Consensus, Death and Euthanasia, Double Effect, Ethics, Fluid Therapy, Food, Humans, Hypnotics and Sedatives/administration & dosage, Intention, Journal Article, Male, Morals, Non-U.S. Gov't, Palliative Care/legislation & jurisprudence/methods, Panel ACP-ASIMEnd-of-Life Care Consensus, Patient Care Team, Professional Patient Relationship, Psychological, Quill TE, Research Support, Stress, Suicide, Treatment Refusal, United States