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Text
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Citation List Month
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URL Address
<a href="http://doi.org/10.1542/peds.2007-2875" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2007-2875</a>
Dublin Core
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Title
A name given to the resource
Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Interdisciplinary Communication; Models; Adolescent Transitions; United States/epidemiology; Genetic; Genetic Diseases; Comprehensive Health Care/methods; Inborn/diagnosis/epidemiology/therapy
Creator
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Grosse SD; Schechter MS; Kulkarni R; Lloyd-Puryear MA; Strickland B; Trevathan E
Description
An account of the resource
Approaches to providing comprehensive coordinated care for individuals with complex diseases include the medical home approach, the chronic care model in primary care, and disease-specific, multidisciplinary specialty clinics. There is uneven availability and utilization of multidisciplinary specialty clinics for different genetic diseases. For 2 disorders (ie, hemophilia and cystic fibrosis), effective national networks of specialty clinics exist and reach large proportions of the target populations. For other disorders, notably, sickle cell disease, fewer such centers are available, centers are less likely to be networked, and centers are used less widely. Models of comanagement are essential for promoting ongoing communication and coordination between primary care and subspecialty services, particularly during the transition from pediatric care to adult care. Evaluation of the effectiveness of different models in improving outcomes for individuals with genetic diseases is essential.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2007-2875" target="_blank" rel="noreferrer">10.1542/peds.2007-2875</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent Transitions
Backlog
Comprehensive Health Care/methods
Genetic
Genetic Diseases
Grosse SD
Humans
Inborn/diagnosis/epidemiology/therapy
Interdisciplinary Communication
Journal Article
Kulkarni R
Lloyd-Puryear MA
Models
Pediatrics
Schechter MS
Strickland B
Trevathan E
United States/epidemiology