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40
19
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Title
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March 2024 List
Text
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March List 2024
URL Address
<a href="http://doi.org/10.1016/j.nepr.2024.103885" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.nepr.2024.103885</a>
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Training perinatal nurses in palliative communication by using scenario-based simulation: A quasi-experimental study
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Nurse Education in Practice
Date
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2024
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interpersonal communication; nurse; palliative therapy; quasi experimental study; simulation; Taiwan; training; article; communication skill; continuing education; controlled study; delivery room; experimental design; female; health care personnel; human; intensive care unit; learning; newborn; purposive sample; registered nurse; structured questionnaire; teaching; terminal disease; therapy
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Chen HW; Cheng SF; Hsiung Y; Chuang YH; Liu TY; Kuo CL
Description
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Aim: This study aimed to assess the impact of two educational modules on enhancing the communication confidence, competence and performance of perinatal nurses in the context of palliative care. Background: Concerns have arisen regarding the preparedness of perinatal nurses in delivering palliative care, especially in terms of deficiencies in communication skills and negative attitudes toward making life-support decisions for parents facing neonates with terminal conditions. Bridging this gap necessitates improved perinatal palliative care education for healthcare providers. Research has shown that simulation-based teaching effectively enhances procedural competence, communication skills and confidence among healthcare professionals. However, comprehensive curricula focusing on perinatal palliative communication remain limited. Design: This study used a quasi-experimental design employing a two-group repeated measure approach. It involved a purposive sample of 79 perinatal nurses from a hospital in northern Taiwan. Methods: A palliative communication course specifically designed for registered nurses in perinatal units was developed. Participants were allocated to either the experimental group (Scenario-Based Simulation, SBS) or the control group (traditional didactic lecture). Communication confidence and competence were assessed before and immediately after the course through structured questionnaires. Learning satisfaction was collected post-intervention and participants underwent performance evaluation by standardized parents one week later. Results: A significant training gap in palliative care exists among nurses in OB/GYN wards, delivery rooms and neonatal critical care units, highlighting the need for continuing education. All 79 participants completed the training course. Following the intervention, nurses in the SBS group (n=39) exhibited significant improvements in self-reported confidence (p <0.05), competence (p <0.01) and performance (p <0.001) in neonatal palliative communication compared with the traditional didactic lecture group (n=40). The SBS group also received higher satisfaction ratings from nurse learners (p <0.001). Conclusions: The research findings support scenario-based simulation as a more effective educational approach compared with traditional didactic lectures for enhancing communication confidence and competence. These results were further reinforced by evaluation from standardized patients, highlighting the value of direct feedback in enhancing nurses' performance. Tailoring SBS designs to diverse nursing contexts and incorporating a flipped approach can further enrich the overall learning experience. Given its high effectiveness and positive reception, we recommend integrating this educational module into palliative care training programs for perinatal nurses.
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<a href="http://doi.org/10.1016/j.nepr.2024.103885" target="_blank" rel="noreferrer noopener">10.1016/j.nepr.2024.103885</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Article
Chen HW
Cheng SF
Chuang YH
Communication Skill
continuing education
Controlled Study
Delivery Room
experimental design
Female
Health Care Personnel
Hsiung Y
Human
Intensive Care Unit
Interpersonal Communication
Kuo CL
Learning
Liu TY
March List 2024
Newborn
Nurse
Nurse Education In Practice
Palliative Therapy
Purposive Sample
quasi experimental study
registered nurse
Simulation
structured questionnaire
Taiwan
Teaching
terminal disease
Therapy
Training
-
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Title
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October 2023 List
Text
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October List 2023
URL Address
<a href="http://doi.org/10.1177/08830738231172539" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/08830738231172539</a>
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Development and Evaluation of a Child Neurology Resident Curriculum for Communication Around Serious Illness
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Journal of Child Neurology
Date
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2023
Subject
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Child; article; human; quality of life; ethics; palliative therapy; physician; clinical article; disability; Only Child; communication skill; resident; human experiment; Neurology; training; neurology; curriculum; evaluation study; residency education
Creator
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Martin JA; Sampey F; Feldman A; Silveira L; Press CA; Messer R; Barry M; Kaul P
Description
An account of the resource
Background: Communication around serious illness is a core competency for all residencies. One-fifth of neurology residencies have no curriculum. Published curricula use didactics or role-play to assess confidence performing this skill without evaluation in clinical settings. The SPIKES mnemonic (Setting, Perception, Invitation, Knowledge, Empathy, Strategy/Summary) outlines 6 evidence-based steps for communication around serious illness. It is unknown whether child neurology residents can incorporate SPIKES into communication around serious illness in clinical settings. Objective(s): To develop and evaluate a curriculum on communication around serious illness using SPIKES for child neurology residents that shows long-term skill retention in clinical settings at a single institution. Method(s): In 2019, we created a pre-post survey and skills checklist based on SPIKES, with 20 total including 10 core skills. Faculty observed residents' (n = 7) communication with families and completed both preintervention and postintervention checklists for comparison. Residents underwent training in SPIKES during a 2-hour session using didactic and coached role-play. Result(s): All (n = 7) residents completed preintervention surveys, 4 of 6 completed postintervention. All (n = 6) participated in the training session. Following the training, 75% of residents reported improved confidence in use of SPIKES, though 50% were still unsure about appropriately responding to emotions. There was improvement in all SPIKES skills, with significant improvement in 6 of 20 skills up to 1 year following training. Conclusion(s): This is the first evaluation of the implementation of a communication around serious illness curriculum for child neurology residents. We identified improved comfort with SPIKES after training. Successful acquisition and utilization of this framework in our program suggests it could be incorporated into any residency program.Copyright © The Author(s) 2023.
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<a href="http://doi.org/10.1177/08830738231172539" target="_blank" rel="noreferrer noopener">10.1177/08830738231172539</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Article
Barry M
Child
Clinical Article
Communication Skill
Curriculum
Disability
Ethics
evaluation study
Feldman A
Human
Human Experiment
Journal of Child Neurology
Kaul P
Martin JA
Messer R
Neurology
October List 2045
Only Child
Palliative Therapy
Physician
Press CA
Quality Of Life
residency education
Resident
Sampey F
Silveira L
Training
-
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Title
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September 2023 List
Text
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September List 2023
URL Address
<a href="http://doi.org/10.3390/healthcare11131971" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/healthcare11131971</a>
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Measuring Knowledge of Healthcare Providers on Pediatric Palliative Care with an Online Questionnaire Based on the National Core Curriculum in Italy
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Healthcare
Date
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2023
Subject
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Palliative Care; pediatric palliative care; Questionnaires; Italy; education; training; pain therapy; questionnaire development
Creator
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Zanello E; Vecchi R; Zamagni G; Biagi MC; Bruno I; Cragnolin E; Danielli E; Paoletti S; Rabusin M; Ronfani L; Pessa Valente E
Description
An account of the resource
There is a lack of highly reliable tools evaluating healthcare professionals' competences on Pediatric Palliative Care (PPC) and Pain Therapy (PT). The aim of this study is to document the development of an online questionnaire to assess Perceived, Wished and Actual Knowledge of healthcare workers on PPC/PT. The tool was built on the basis of the Italian Society for Palliative Care PPC Core Curriculum (CC) for physicians, nurses and psychologists. Face validity, internal consistency and the underlying structure were evaluated after a field testing in a referral hospital, Friuli-Venezia Giulia, Italy. One hundred five respondents completed the questionnaire. High internal consistency for both scales of Perceived and Wished Knowledge was found (α = 0.95 and α = 0.94, respectively). Psychologists reported higher levels of self-Perceived skills on the psychosocial needs of the child and family at the end of life (p = 0.006), mourning (p = 0.003) and ethics and deontology in PT/PC (p = 0.049). Moreover, when Actual Knowledge was tested, they also provided the highest number of correct answers (p = 0.022). No differences were found by profession for Wished Knowledge. The questionnaire showed promising psychometric properties. Our findings suggest the need of continuous training in this field and identify contents to be addressed in future training programs.
Identifier
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<a href="http://doi.org/10.3390/healthcare11131971" target="_blank" rel="noreferrer noopener">10.3390/healthcare11131971</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Biagi MC
Bruno I
Cragnolin E
Danielli E
Education
healthcare
Italy
pain therapy
Palliative Care
Paoletti S
Pediatric Palliative Care
Pessa Valente E
Questionnaire Development
Questionnaires
Rabusin M
Ronfani L
September List 2060
Training
Vecchi R
Zamagni G
Zanello E
-
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September 2023 List
Text
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Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.3389/fped.2023.1215863" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3389/fped.2023.1215863</a>
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Title
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Evaluation of learning transfer after a perinatal/neonatal palliative care virtual training course
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Frontiers in Pediatrics
Date
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2023
Subject
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Palliative Care; training; perinatal palliative care; learning transfer; neonatal comfort care; virtual training
Creator
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Brady S; Parravicini E; Wool C
Description
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BACKGROUND: The success of a training can be determined by the degree of learning transfer. To address a gap in educational offerings during the pandemic, an interdisciplinary team developed and offered a 3-day virtual course, called Next Level Perinatal Palliative Care Training. OBJECTIVE: This study aimed to evaluate the transfer of learning and practice from a virtual training course on perinatal/neonatal palliative care (PNPC) by a range of clinicians. STUDY DESIGN: A descriptive prospective survey design was used to collect data at two time points, immediately following the training course and 6 months later. Frequency and descriptive statistics were used to measure the implementation of PNPC quality indicators, self-reported competence, and clinical facilitators and barriers. A t-test was used to compare participants' anticipated learning transfer to actual learning transfer. Two open-ended items assessed benefits and drawbacks of virtual training. RESULTS: At course completion, participants anticipated opportunities to implement PNPC strategies with means of 84-87, and at the 6-month mark, the reported implementation had means ranging from 71 to 77. At 6 months post training, participants reported feeling competent/highly competent in each variable with frequency scores of 89%-98%. The opportunity to learn key concepts of PNPC and refresh skill sets ranked as the top facilitators, while the top barriers were the lack of opportunity to use PNPC principles and the lack of funding. CONCLUSION: Learning transfer after a virtual training course of PNPC proved to be successful, with a high rate of self-reported actual implementation and competence at 6 months after the training.
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<a href="http://doi.org/10.3389/fped.2023.1215863" target="_blank" rel="noreferrer noopener">10.3389/fped.2023.1215863</a>
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2023
Brady S
Frontiers in Pediatrics
learning transfer
neonatal comfort care
Palliative Care
Parravicini E
Perinatal Palliative Care
September List 2026
Training
virtual training
Wool C
-
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2021 Special Edition 2 - Oncology
Text
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2021 Special Edition - Oncology
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<a href="http://doi.org/10.1007/s13187-021-02094-z" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1007/s13187-021-02094-z</a>
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Palliative Care Training for Pediatric Hematology/Oncology Fellows: a Canadian Perspective
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Journal of Cancer Education
Date
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2021
Subject
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Palliative care; Pediatric; Education; Training; Oncology
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Hasan F; Weingarten K; Cada M; Wilejto M
Description
An account of the resource
Children with cancer experience suffering, particularly at the end of life. Pediatric hematology/oncology (PHO) fellows need dedicated palliative care (PC) training in order to adequately manage this suffering. Our objectives were to understand (1) the PC training needs of Canadian PHO fellows and (2) experiences in providing PC, from the perspectives of fellows and their training program directors (PDs) and to describe (1) our experience in enhancing our institutional PC curriculum and (2) the preliminary evaluation of this curriculum. Electronic surveys were sent to all Canadian PHO fellows and PDs. Fellows participating in our curriculum were also sent post-course surveys. All 9/9 of the PDs and 63% (29/46) of the fellows completed our pre-course surveys. The majority of survey participants agreed that PHO fellows require dedicated PC training. All programs provided some PC education, but 45% of programs offered 3 or fewer hours of training per year. Only 55% (5/9) of the PDs believed that their trainees had adequate PC skills on completion of training. Fellows perceived a range of PC skills to be important but expressed low levels of comfort across these skills. Many fellows had experienced distress as a result of managing PC clinical situations, and many cited a lack of training as contributing to their distress. Despite increasing awareness of the importance of PC education for PHO fellows, this subject does not receive adequate attention in training curricula. The introduction of a Canadian national curriculum may improve the provision of PC training in education programs.
Identifier
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<a href="http://doi.org/10.1007/s13187-021-02094-z" target="_blank" rel="noreferrer noopener">10.1007/s13187-021-02094-z</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2021 Special Edition - Oncology
Cada M
Education
Hasan F
Journal Of Cancer Education
Oncology
Palliative Care
Pediatric
Training
Weingarten K
Wilejto M
-
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Title
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2021 Special Edition 1 - Low Resource Settings
Text
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Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1016/j.arcped.2020.12.002" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.arcped.2020.12.002</a>
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Integrating a Palliative Approach into the Healthcare provided by the French-African Pediatric Oncology Group's Pilot Units. Insights from a 3-year Training Program
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Archives de Pediatrie
Date
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2021
Subject
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Child; Palliative care; Adolescent; Child Preschool; Humans; Infant; Infant Newborn; Pediatrics; France; Palliative Care; Pediatrics/education; International Cooperation; Pain Management; Training; Africa; Oncology; Patient Care Team; Education Medical Continuing/methods/organization & administration; French-speaking Africa; Medical Oncology/education
Creator
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Edan C; Yao AJJ; Hessissen L; Moreira C; Viallard ML; Poulain P; Calmanti S; Thinlot C; Aubier F; Doucot MS; Gagnepain-Lacheteau A; Patte C
Description
An account of the resource
Working alongside local stakeholders, members of the French-African Pediatric Oncology Group developed a 3-year program to train pediatric oncology teams from 15 French-speaking countries in Africa in using analgesics and providing palliative care. This program was rolled out in three phases: initial training, in situ assessment, and advanced training in selected topics. To access this program, multidisciplinary teams had to come up with a project to improve their existing palliative care and pain management practices, and commit themselves to implementing it. All the teams invited agreed to take part in the program, which explicitly broached a subject that is often avoided in oncology teaching. The first phase was rolled out in 2017, with 65 trainees from 19 units attending one of three sessions held in Dakar, Senegal, Abidjan, Cote d'Ivoire, and Rabat, Morocco. The subsequent assessment revealed that only half the teams had started to implement their projects. The advanced training phase was therefore adjusted accordingly. A collective training session held in Marseille was attended by 15 trainees from seven teams whose projects were already underway, while in situ mentoring was provided for six other teams, through French-African twinnings in four cases. The length and openness of the program meant that we were able to identify and share the units' diverse realities, and fine-tune their projects accordingly, as well as plan ways of continuing the training both locally and collectively. Copyright © 2020 French Society of Pediatrics
Identifier
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<a href="http://doi.org/10.1016/j.arcped.2020.12.002" target="_blank" rel="noreferrer noopener">10.1016/j.arcped.2020.12.002</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2021 Special Edition 1 - Low Resource Settings
Adolescent
Africa
Archives de Pediatrie
Aubier F
Calmanti S
Child
Child Preschool
Doucot MS
Edan C
Education Medical Continuing/methods/organization & administration
France
French-speaking Africa
Gagnepain-Lacheteau A
Hessissen L
Humans
Infant
Infant Newborn
International Cooperation
Medical Oncology/education
Moreira C
Oncology
Pain Management
Palliative Care
Patient Care Team
Patte C
Pediatrics
Pediatrics/education
Poulain P
Thinlot C
Training
Viallard ML
Yao AJJ
-
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Title
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February 2023 List
Text
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Citation List Month
February List 2023
URL Address
<a href="http://doi.org/10.3390/children8050321" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children8050321</a>
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Lessons in Stories: Why Narrative Medicine Has a Role in Pediatric Palliative Care Training
Publisher
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Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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narrative medicine; pediatric palliative care; reflection; training
Creator
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Lanocha N
Description
An account of the resource
Narrative medicine is introduced and explored as a potential tool for developing competency in medical training, including reduction of burnout, sustaining empathy, and allowing for reflective practice. Developing cultural humility, communication skills, ethics, community building, and advocacy are also reviewed as domains that may be bolstered by training in narrative. Applications specific to pediatric palliative care are suggested, along with avenues for further research.
Identifier
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<a href="http://doi.org/10.3390/children8050321" target="_blank" rel="noreferrer noopener">10.3390/children8050321</a>
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2021
Children
February List 2023
Lanocha N
narrative medicine
Pediatric Palliative Care
Reflection
Training
-
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Title
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February 2022 List
Text
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Citation List Month
February 2022 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2021.11.017" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2021.11.017</a>
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Education in Palliative and End-of-Life Care-Pediatrics: Curriculum use and dissemination
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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palliative care; education; survey; Pediatric; training; curriculum
Creator
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Postier AC; Wolfe J; Hauser J; Remke SS; Baker JN; Kolste A; Dussel V; Bernadá M; Widger K; Rapoport A; Drake R; Chong PH; Friedrichsdorf SJ
Description
An account of the resource
CONTEXT: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide. OBJECTIVES: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction. METHODS: 2011 - 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses. RESULTS: 172/786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across 6 continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions. CONCLUSION: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2021.11.017" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2021.11.017</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Baker JN
Bernadá M
Chong PH
Curriculum
Drake R
Dussel V
Education
February 2022 List
Friedrichsdorf SJ
Hauser J
Journal of Pain and Symptom Management
Kolste A
Palliative Care
Pediatric
Postier AC
Rapoport A
Remke SS
Survey
Training
Widger K
Wolfe J
-
Dublin Core
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Title
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December 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2021 List
URL Address
<a href="http://doi.org/10.1186/s12909-021-02982-4" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12909-021-02982-4</a>
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Title
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Children's palliative care education and training: developing an education standard framework and audit
Publisher
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BMC Medical Education
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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Child; Children; Clinical Competence; Curriculum; Education; End of life care; Learning; nursing education; Paediatric; Palliative care; Teaching; Training
Creator
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Neilson S; Randall D; McNamara K; Downing J
Description
An account of the resource
BACKGROUND: The need to align the range of guidance and competencies concerning children's palliative care and develop an education framework have been recommended by a UK All-Party Parliament Group and others. In response to these recommendations the need for a revised children's palliative care competency framework was recognized. A Children's Palliative Care Education and Training Action Group, comprising champions in the field, was formed across UK and Ireland in 2019 to take this work forward. Their aim was to agree core principles of practice in order to standardize children's palliative care education and training. METHODS: Over four meetings the Action Group reviewed sources of evidence and guidance including palliative care competency documents and UK and Ireland quality and qualification frameworks. Expected levels of developing knowledge and skills were then agreed and identified competencies mapped to each level. The mapping process led to the development of learning outcomes, local indicative programme content and assessment exemplars. RESULTS: Four sections depicting developing levels of knowledge and skills were identified: Public Health, Universal, Core, Specialist. Each level has four learning outcomes: Communicating effectively, Working with others in and across various settings, Identifying and managing symptoms, Sustaining self-care and supporting the well-being of others. An audit tool template was developed to facilitate quality assurance of programme delivery. The framework and audit tool repository is on the International Children's Palliative Care Network website for ease of international access. CONCLUSIONS: The framework has received interest at UK, Ireland and International launches. While there are education programmes in children's palliative care this is the first international attempt to coordinate education, to address lay carer education and to include public health.
Identifier
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<a href="http://doi.org/10.1186/s12909-021-02982-4" target="_blank" rel="noreferrer noopener">10.1186/s12909-021-02982-4</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
BMC medical education
Child
Children
Clinical Competence
Curriculum
December 2021 List
Downing J
Education
End Of Life Care
Learning
McNamara K
Neilson S
nursing education
Paediatric
Palliative Care
Randall D
Teaching
Training
-
Dublin Core
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Title
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September 2020 List
Text
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Citation List Month
September 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.06.036" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.06.036</a>
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Title
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Investigation of Modifiable Variables to Increase Hospice Nurse Comfort With Care Provision to Children and Families in the Community: A Population-Level Study Across Tennessee, Mississippi, and Arkansas
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
community; education; hospice; palliative care; pediatric; training
Creator
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Kaye E C; Gattas M; Kiefer A; Reynolds J; Zalud K; Li C; Lu Z; Baker J N
Description
An account of the resource
Context: Most hospice nurses across Tennessee, Arkansas, and Mississippi report significant discomfort with provision of pediatric palliative and hospice care (PPHC). How best to target and modify variables to increase nurse comfort levels is not well understood. Objective(s): To determine whether modifiable variables are associated with increased hospice nurse comfort with PPHC provision in the community. Method(s): A cross-sectional survey was developed, pilot tested, and distributed to hospice nurses across a tristate region to assess nurse training experiences and comfort with PPHC provision. Targeted subanalyses were conducted to investigate associations between nurse comfort level and clinical, training, and patient frequency variables. Result(s): A total of 551 respondents representing 71 hospices across Tennessee, Arkansas, and Mississippi completed surveys. Hospice nurse comfort with provision of care to children was statistically significantly associated with exposure to prior PPHC clinical experiences (P < 0.001), receipt of formal pediatric PPHC training (P < 0.001), and higher hospice-level (P = 0.01) and individual-level frequency of PPHC provision (P < 0.001). PPHC clinical experience was the most impactful variable with respect to comfort with overall and end-of-life PPHC provision; formal training was the most impactful variable with respect to comfort with management of severe symptoms at the end of life. Conclusion(s): Modifiable variables exist that are readily targetable to improve hospice nurse comfort with PPHC provision. These findings should inform the development and investigation of clinical and educational interventions to empower both nurses and hospices to optimize the provision of quality care to children with serious illness and their families in the community. Copyright © 2020 American Academy of Hospice and Palliative Medicine
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.06.036" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.06.036</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Baker J N
Community
Education
Gattas M
Hospice
Journal of Pain and Symptom Management
Kaye E C
Kiefer A
Li C
Lu Z
Palliative Care
Pediatric
Reynolds J
September 2020 List
Training
Zalud K
-
Dublin Core
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Title
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August 2020 List
Text
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August 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.085" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.04.085</a>
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Title
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"We Feel Like We Are in the Dark": A Population Level Qualitative Study of the Training and Support Needs of Hospice Nurses Caring for Children and Families in the Community (RP417)
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
qualitative study; training; support needs; hospice nurses
Creator
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Porter A; Kiefer A; Gattas M; Baker J; Kaye E
Description
An account of the resource
Objectives: * Describe the evidence from a growing body of literature demonstrating the dearth of pediatric-focused training and resources for community hospice nurses, as well as the lack of comfort of community hospice nurses with providing pediatric care. * Characterize the pediatric-specific training and support needs of hospice nurses who provide care to children and families in the community. * Describe the innovative ideas proposed by study participants for development of pediatric-specific resources and training opportunities for community hospice nurses. Importance: Approximately 500,000 children suffer from serious illness annually, with 50,000 children dying each year. Many of these children and families are eligible for provision of community-based hospice care, yet few organizations offer formal pediatric services. Recent population level data demonstrate that hospice nurses lack training, experience, and comfort in provision of care to children in the community; however, the specific educational preferences and supportive needs of hospice nurses is not well understood. Objective(s): To investigate and describe the pediatric-specific training and support needs of hospice nurses providing care to children and families in the community. Method(s): From a population-level cohort of 551 hospice nurses who completed a comprehensive quantitative survey, an exploratory cohort of 40 hospice nurses were selected using purposive sampling to stratify participants into sub-cohorts based on prior self-reported levels of comfort with pediatric hospice provision. Semi-structured interviews were conducted, with subsequent inductive codebook development. Constant comparative analysis was performed across transcripts using MAXQDA software. Result(s): The majority of hospice nurses described insufficient training to care for children with serious illness. Nurses imagine an ideal training experience to involve in-person learning with prioritization of specific topics, including symptom management, medications/dosing, pediatric-specific equipment, concurrent care, anticipatory guidance on disease trajectories and end of life, supporting families, and staff resilience. Barriers to realizing training experiences include lack of awareness of available resources, training opportunities, and mentorship/networking across the pediatric palliative care landscape, as well as stigma against pediatric hospice and palliative care. Conclusion(s): Community hospice nurses express an urgent need for improvements in pediatric-specific resources and training opportunities. Importantly, they offer robust visions for improving training paradigms and available resources. Impact: These data offer opportunities for collaborative development and investigation of educational programs and policies to improve the provision of community-based pediatric hospice for children, families, and nurses. Copyright © 2020
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.085" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.04.085</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
August 2020 List
Baker J
Gattas M
hospice nurses
Journal of Pain and Symptom Management
Kaye E
Kiefer A
Porter A
Qualitative Study
support needs
Training
-
Dublin Core
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Title
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2019 Developing World List
Text
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Citation List Month
Developing World 2019 List
URL Address
<a href="http://doi.org/10.1200/jgo.18.36900" target="_blank" rel="noreferrer noopener">http://doi.org/10.1200/jgo.18.36900</a>
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Title
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The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Publisher
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Journal of Global Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
analgesia; capacity building; caregiver; child; conference abstract; Congo; Congolese (Kinshasa); doctor nurse relation; female; field study; home care; human; leadership; major clinical study; male; organization; palliative therapy; practice guideline; primary health care; sensitization; training; Uganda; volunteer
Creator
An entity primarily responsible for making the resource
Mubeneshayi Kananga A
Description
An account of the resource
Background and context: In DR Congo, many cancer patients in the terminal phase of their condition have minimal access to palliative care. There is a combined effect of poverty, the deteriorationofthe health system and the absenceof a well-defined national policyonpalliative care. Patients are for the most part abandoned to the care of inexperienced family members. Driven by the fact that the number of palliative patients has been increasing steadily over the past five years, the Palliafamilli association and its partners have taken leadership in the fight for palliative care. The major issue that blocks palliative care in RD Congo is the lack of knowledge about palliative care both in the population and even in health professionals. Most patients are treated at home with strong family involvement in many aspects of care. Aim(s): To promote good health practices at the community level and equip them with the knowledge and means to prevent their health problems, with a focus on palliative care and to contribute to the implementation of the Strategy for Strengthening the Health SystemofDRCongo by facilitating a program of access to palliative care for the entire Congolese population. Strategy/Tactics: During the last7years,wehave organized conferences, congresses, various training sessions on pain management, sensitization activities, capacity building courses and advocacy activities within the Ministry of Health for national palliative care guidelines. Program/Policy process: The organization of two International Congress of Palliative Care in Kinshasa in April 2013 (550 participants) and September 2015 (700 participants) Training of 3 health professionals on the palliative approach in Uganda (2013) Participation at the Second Francophone Palliative Care Congress in Montreal 2013 A palliative care training course at the University of Kinshasa in 2015 (115 participants) The organization of the International Colloquium of Pediatric Palliative Care in Kinshasa in 2015 Participation in the 4th International Francophone Congress of Palliative Care in Geneva (2017) Participating in the drafting of national guidelines for palliative care within the Ministry of Health (2017) Capacity building for two members of PalliaFamilli thanks to the scholarship offered by the UICC. What was learned: In DR Congo, palliative care and pain relief require a cross-cutting approach, as resources are limited, many people are in need of care, and there are few nurses and doctors empowered to provide care. An effective approach is to involve community or volunteer caregivers supervised by health professionals, and Palliafamilli is successful due in its mul-tidisciplinary and multisectoral approach, with adaptation to cultural, social and economic specificities and its integration with existing health systems, focusing on primary health care and community and home care.
Identifier
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<a href="http://doi.org/10.1200/jgo.18.36900" target="_blank" rel="noreferrer noopener">10.1200/jgo.18.36900</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Analgesia
capacity building
Caregiver
Child
conference abstract
Congo
Congolese (Kinshasa)
Developing World 2019 List
doctor nurse relation
Female
field study
Home Care
Human
Journal of Global Oncology
Leadership
Major Clinical Study
Male
Mubeneshayi Kananga A
Organization
Palliative Therapy
Practice Guideline
Primary Health Care
sensitization
Training
uganda
Volunteer
-
Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1007/s10882-010-9207-z" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s10882-010-9207-z</a>
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Title
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The Increase of Attention in Rett Syndrome: A Pre-Test/Post-Test Research Design
Publisher
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Journal of Developmental and Physical Disabilities
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
intervention; children; technology; Rehabilitation; girls; Attention process; Psycho-educational; Rett Syndrome; Training; trial; alertness; tone and motor problems; physiological intervention; selective attention training; selective attention
Creator
An entity primarily responsible for making the resource
Fabio R A; Giannatiempo S; Oliva P; Murdaca A M
Description
An account of the resource
Rett Syndrome (RS) is a neuro-developmental disorder, predominantly affecting females, resulting in severe mental retardation and neuro-behavioral disability. Some RS theoreticians hypothesize that behaviors that are neurologically driven are not open to modification. Despite these claims, the aim of this study is to show that girls with RS can increase high attention abilities through well structured procedures. Twelve girls with RS are involved in training based on the improvement of the attention process and reduction of help needed. The procedure was carried out in five phases with a pre-test/post-test design for clinical research. Results point out that girls with RS show an improvement in selective attention and a decrease in the amount of help needed during the training. This intervention demonstrated that individuals with RS could be promoted and motivated to learn when they were appropriately and therapeutically stimulated.
Identifier
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<a href="http://doi.org/10.1007/s10882-010-9207-z" target="_blank" rel="noreferrer noopener">10.1007/s10882-010-9207-z</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
alertness
Attention process
Children
Fabio R A
Giannatiempo S
girls
Intervention
Journal of Developmental and Physical Disabilities
Murdaca A M
Oliva P
physiological intervention
Psycho-educational
Rehabilitation
Rett syndrome
SELECTIVE ATTENTION
selective attention training
Technology
tone and motor problems
Training
trial
-
Dublin Core
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Title
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October 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1016/j.nedt.2019.08.003" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.nedt.2019.08.003</a>
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Title
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Perinatal palliative care education: An integrative review
Publisher
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Nurse Education Today
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Education; Health care professionals; Integrative review; Perinatal palliative care; Training
Creator
An entity primarily responsible for making the resource
Ratislavova K; Buzgova R; Vejvodova J
Description
An account of the resource
OBJECTIVES: The aim of this review was to analyze the effectiveness of teaching healthcare professionals in perinatal palliative care, methods of evaluating the teaching, and the teaching strategies used. DESIGN: An integrative review. METHODS: A systematic search was conducted for English language peer reviewed publications of any research design via SCOPUS, Medline/PubMed, EBSCOhost, Science Direct, ERIC, Web of Science, Wiley, Nursing Ovid, and ProQuest databases. Fourteen research papers published between 2002 and 2017 that met the selection criteria were included in the review. FINDINGS: All 14 studies considered perinatal bereavement education to be effective. Eight studies reported statistical improvements in knowledge, security/comfort in providing end-of-life care, or increased perceptions of the emotional care needs of bereaved families, after attending an educational program. Questionnaires or interviews were used to evaluate the educational programs. Innovative teaching strategies, in particular, were evaluated positively (e.g., simulation, discussion, and arts-based methods). CONCLUSION: Perinatal palliative care education is essential in pregradual education for midwives and neonatal nurses. Other research is vital for finding out the effectiveness of this education for pregraduate nursing students. Perinatal palliative care education programs need to be available in postgraduate education for professionals who encounter perinatal death and bereaved families in hospital and community care.
Identifier
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<a href="http://doi.org/10.1016/j.nedt.2019.08.003" target="_blank" rel="noreferrer noopener">10.1016/j.nedt.2019.08.003</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Buzgova R
Education
Health care professionals
Integrative Review
Nurse Education Today
October 2019 List
Perinatal Palliative Care
Ratislavova K
Training
Vejvodova J
-
Dublin Core
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Title
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October 2019 List
Text
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Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.08.011" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.08.011</a>
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Title
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Challenges and Priorities for Pediatric Palliative Care Research in the United States and Similar Practice Settings: Report from a Pediatric Palliative Care Research Network Workshop
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
palliative care; decision-making; funding; pediatric; family; infrastructure; methodology; research; symptoms; training
Creator
An entity primarily responsible for making the resource
Feudtner C; Rosenberg A R; Boss R D; Wiener L; Lyon M E; Hinds P S; Bluebond-Langner M; Wolfe J
Description
An account of the resource
CONTEXT: In order to dramatically advance the evidence base for pediatric palliative care (PPC) interventions, practices, and programs in the United States and similar practice settings, the field needs to better understand the challenges and opportunities for rigorous scholarship. OBJECTIVES: The Pediatric Palliative Care Research Network conducted a workshop to clarify challenges and identify key priorities. METHODS: The workshop focused on PPC research topics and methods, including: outcomes measurement, qualitative inquiry, analyses of "big data," prospective collection of research data, case series and cohort studies, and intervention trials, with synthesizing summary and follow-up discussions. All attendees reviewed and approved the final report. RESULTS: Five common challenges were identified: patient diversity and small population size; interdependencies and dynamic interactions between child, family members, and disease processes over time; outcomes and measurement; workforce and infrastructure limitations; and presumed burden of PPC research upon participants. Seven priorities emerged: bolster training and development of PPC investigators; develop core resources; advance symptom measurement (and measurements of other exposures and outcomes); improve symptom management and quality of life interventions; improve communication, elicitation of goals of care, and decision-making; understand family impact and facilitate or improve family adaptation and coping; and analyze and improve systems of care, policy, and education. CONCLUSION: These challenges and priorities identify key research areas that can guide individual investigators and research funders to advance the field.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2019.08.011" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.08.011</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Bluebond-Langner M
Boss R D
Decision-making
Family
Feudtner C
Funding
Hinds P S
infrastructure
Journal of Pain and Symptom Management
Lyon M E
Methodology
October 2019 List
Palliative Care
Pediatric
Research
Rosenberg A R
Symptoms
Training
Wiener L
Wolfe J
-
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Title
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February 2019 List
Text
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Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.2147/amep.s180526" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.2147/amep.s180526</a>
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Evaluating the impact of national education in pediatric palliative care: the Quality of Care Collaborative Australia
Publisher
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Advances in Medical Education and Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
training; confidence; health care; education dosage; evaluation
Creator
An entity primarily responsible for making the resource
Slater PJ; Herbert AR; Baggio SJ; Donovan LA; McLarty AM; Duffield J A; Pedersen LC; Duc JK; Delaney AM; Johnson SA; Heywood MG; Burr CA
Description
An account of the resource
Purpose: The Quality of Care Collaborative Australia (QuoCCA) provided pediatric palliative care education across Australia with the aim of improving the quality of services. The education was delivered through a collaboration of six tertiary pediatric palliative care services, through funding for Nurse Educators, Medical Fellows, a National Allied Health Educator, and national project staff. Methods: Pre- and post-education surveys were completed by participants immediately following the education, and confidence and knowledge were measured along nine domains related to the care of the child and family, including managing a new referral, symptom management, medications, preparing the family, and using local agencies. Results: Education was provided to over 5,500 health and human service professionals in 337 education sessions across Australia between May 2015 and June 2017. Paired pre- and post-surveys were completed by 969 participants and showed a significant improvement in all the domains measured. Those with no experience in caring for children receiving palliative care showed greater improvement following QuoCCA education compared to those with experience, although the latter had higher scores both before and after education. Similarly, those with no previous education showed greater improvement, but those with previous education showed higher scores overall. Participants in full-day and half-day sessions showed greater improvement than those in short day sessions. Thus, the dosage of education in the length of the sessions and prior attendance impacted knowledge and confidence. Topics requested by the participants were analyzed. Educator learnings were that education was more effective when tailored to the needs of the audience, was interactive, and included story-telling, case studies, and parent experiences. Conclusion: These results encouraged the continuation of the provision of education to novice and experienced professionals who care for children with a life-limiting condition, leading to higher levels of confidence and knowledge. The learnings from this evaluation will be transferred into the second round of funding for the national QuoCCA education project. The next stage will focus on developing simulation and interactive training, accessible training modules, and videos on a national website.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2147/amep.s180526" target="_blank" rel="noreferrer noopener">10.2147/amep.s180526</a>
2018
Advances in Medical Education and Practice
Baggio SJ
Burr CA
Confidence
Delaney AM
Donovan LA
Duc JK
Duffield J A
education dosage
Evaluation
February 2019 List
Health Care
Herbert AR
Heywood MG
Johnson SA
McLarty AM
Pedersen LC
Slater PJ
Training
-
Dublin Core
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Title
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December 2018 List
Text
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Citation List Month
December 2018 List
URL Address
<a href="http://doi.org/%2010.1016/j.jpainsymman.2018.10.509" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/ 10.1016/j.jpainsymman.2018.10.509</a>
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Title
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Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice Nurses
Publisher
An entity responsible for making the resource available
Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
pediatric; hospice; palliative care; training; community
Creator
An entity primarily responsible for making the resource
Kaye EC; Gattas M; Kiefer A; Reynolds J; Zalud K; Li Chen; Lu Z; Baker Justin N
Description
An account of the resource
Context Approximately 500,000 children in the United States suffer from life-limiting illnesses each year, many of whom are hospice eligible each year. Few hospice agencies, however, offer formal pediatric programs. Objective To determine the levels of experience and comfort of hospice nurses who provide care to children and families in the community. Methods A cross-sectional survey was developed to assess hospice nurse experience/comfort across the domains of symptom management, end-of-life care, goals of care, family-centered care, and bereavement. The survey was pilot-tested and distributed to hospice nurses across a tristate region. Results A total of 551 respondents across 71 hospices completed surveys. The majority of nurses reported no training in pediatric palliative or hospice care (89.8%), with approximately half reporting < 5 years of hospice experience (53.7%) and no pediatric hospice experience (49.4%). Those with pediatric hospice experience reported limited opportunities to maintain or build their skills, with the majority providing care to children several times a year or less (85.7%). Nurses reported feeling somewhat or very uncomfortable providing services to children during the illness trajectory and at the end of life across all domains. Conclusion Children with serious illness who receive care from local hospices often interface with nurses who lack training, experience, and comfort in the provision of palliative and hospice care to pediatric patients. These findings should inform future development and investigation of educational resources, training programs, and child- and family-centered policies to improve the delivery of palliative and hospice care to children in the community.
Identifier
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<a href="http://doi.org/10.1111/dmcn.14070" target="_blank" rel="noreferrer noopener">10.1111/dmcn.14070</a>
2018
Baker Justin N
Community
December 2018 List
Gattas M
Hospice
Journal of Pain and Symptom Management
Kaye EC
Kiefer A
Li Chen
Lu Z
Palliative Care
Pediatric
Reynolds J
Training
Zalud K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Oncology
Text
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Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1002/pon.4353" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.4353</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative communication skills training for pediatric nurse practitioners: A novel program with booster sessions
Publisher
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Psycho-oncology
Date
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2017
Subject
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Communication Skill; Pediatric Nurse Practitioner; Child; Childhood Cancer; Clinical Article; Consensus; Family; Funding; Human; Needs Assessment; Palliative Therapy; Patient Assessment; Pediatrics; Role Playing; Self Evaluation; Training
Creator
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Kearney J
Description
An account of the resource
Communication between pediatric providers, patients, and their families is a key component of for children with serious illness, with broad implications for patient and family outcomes. Recommendations for effective and compassionate palliative communication in pediatrics are unique because of the 3-way relationship between providers, parents, and growing children, whose emerging autonomy requires special consideration. Memorial Sloan Kettering (MSK) has over 40 pediatric nurse practitioners (PNPs) providing primary oncologic care across outpatient and inpatient oncology settings. MSK's Comskil training program had a decade of experience training pediatric oncology MD fellows, but no program yet existed for the NPs so a needs assessment survey was conducted and a program was developed from 2012 to 2016. Methods: An anonymous, online survey was conducted of the MSK NPs (n = 42) that indicated high interest in training and low-overall confidence in particular targeted palliative care skills in pediatrics. A full training day including didactics, small group role play with feedback from expert facilitator, and peers was developed and conducted for all 42 NPs in 2013. A booster training was developed using novel role play methods to increase engagement, training relevance, and skills uptake based on course evaluations from this training. Results: Booster trainings have been recommended to improve uptake of skills through practice; however, little consensus exists on how and when to do boosters. On the basis of the theory of "active engagement," we designed boosters with custom role play scenarios based on PNP's clinical experiences, then used these in small group role play, after reviewing skills taught at the initial training. Standardized patient assessments, course evaluations and self-assessments pretraining, 2 weeks posttraining, and 6 months posttraining were conducted. Conclusions: Pediatric NPs working with children with serious illness benefit from palliative communication focused, pediatric-specific communication skills training. Nurse practitioner preferences, selfassessment, and skills' uptake outcomes will be discussed. Funding: Kanarek Family Foundation.
Identifier
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<a href="http://doi.org/10.1002/pon.4353" target="_blank" rel="noreferrer">10.1002/pon.4353</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Child
Childhood Cancer
Clinical Article
Communication Skill
Consensus
Family
Funding
Human
Kearney J
Needs Assessment
Oncology 2017 List
Palliative Therapy
Patient Assessment
Pediatric Nurse Practitioner
Pediatrics
Psycho-Oncology
Role Playing
Self Evaluation
Training
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parental Involvement In Neonatal Critical Care Decision-making.
Publisher
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Sociology Of Health & Illness
Date
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2016
Subject
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Sociology; Life; Interrogatives; Consultation; Social Sciences; Biomedical; Decision Making; Shared Decision; Recommendations; Medical Authority; Communication; Conversation; End Of Life Care; Public; Public Environmental & Occupational Health; End; Resistance; Training; Cooperation; Communication; Palliative Care; Decision Making; Intensive Care; Participation; Ethics; Medicine; Physicians; Parents; Conversational Analysis; Decisions; Infant; Palliative Treatment; Parenting; Infants (newborn); Decision Making; Parent And Child; Analysis
Conversation Analysis; Decision-making; End Of Life; Ethics; Neonatal; Parental Involvement
Creator
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Shaw C; Stokoe E; Gallagher K; Aladangady N; Marlow N
Description
An account of the resource
The article analyses the decision-making process between doctors and parents of babies in neonatal intensive care. In particular, it focuses on cases in which the decision concerns the redirection of care from full intensive care to palliative care at the end of life. Thirty one families were recruited from a neonatal intensive care unit in England and their formal interactions with the doctor recorded. The conversations were transcribed and analysed using conversation analysis. Analysis focused on sequences in which decisions about the redirection of care were initiated and progressed. Two distinct communicative approaches to decision-making were used by doctors: 'making recommendations' and 'providing options'. Different trajectories for parental involvement in decision-making were afforded by each design, as well as differences in terms of the alignments, or conflicts, between doctors and parents. 'Making recommendations' led to misalignment and reduced opportunities for questions and collaboration; 'providing options' led to an aligned approach with opportunities for questions and fuller participation in the decision-making process. The findings are discussed in the context of clinical uncertainty, moral responsibility and the implications for medical communication training and guidance.
Identifier
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DOI: 10.1111/1467-9566.12455
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Aladangady N
Analysis
Biomedical
Communication
Consultation
Conversation
Conversation Analysis
Conversational Analysis
Cooperation
Decision Making
Decision-making
Decisions
End
End Of Life
End Of Life Care
Ethics
Gallagher K
Infant
Infants (newborn)
Intensive Care
Interrogatives
Life
Marlow N
Medical Authority
Medicine
Neonatal
Palliative Care
Palliative Treatment
Parent And Child
Parental Involvement
Parenting
Parents
Participation
Physicians
Public
Public Environmental & Occupational Health
Recommendations
Resistance
September 2016 List
Shared Decision
Shaw C
Social Sciences
Sociology
Sociology of Health & Illness
Stokoe E
Training