Validation of the German version of the Pediatric Quality of Life Inventory (PedsQL) in childhood cancer patients off treatment and children with epilepsy
PedPal Lit; Adolescent Child Child; physiopathology; methods Psychometrics; psychology Germany; psychology Parents Pediatrics; psychology Self Assessment (Psychology)Sickness Impact Profile Translating United States; and test the usefulness of the instrument in other clinical populations and healthy children.; epidemiology Humans Neoplasms; instrumentation Quality of Life; Preschool Comparative Study Epilepsy; score distributions tended to be skewed toward higher HRQL; sensitivity and responsiveness; the German PedsQL seems to be equivalent to the original version. Future methodologic research should evaluate construct validity
2004
Felder-Puig R; Frey E; Proksch K; Varni JW; Gadner H; Topf R
Quality of Life Research
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1023/b:qure.0000015305.44181.e3" target="_blank" rel="noreferrer">10.1023/b:qure.0000015305.44181.e3</a>
Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology
Child; Female; Male; Parent-Child Relations; Attitude to Death; Professional-Family Relations; Professional-Patient Relations; Family Health; Counseling; quality of life; Preschool; bereavement; social support; Human; Palliative Care; Anxiety/prevention & control; Terminal Care; Pain/prevention & control; Neoplasms/psychology/therapy; Child Care; Fear/psychology
This, the sixth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, develops another important and especially difficult topic: assistance for terminally ill children with cancer. This is provided for the pediatric oncology community as a useful set of guidelines. It should be always possible for a declining child to die without unnecessary physical pain, fear, or anxiety. It is essential that he or she receive adequate medical, spiritual, and psychological support, and that the child at no point feels abandoned. Palliative care, in the terminal phase of cancer, should be tailored to the different needs and desires of the child and the family, with the goal of providing the best possible quality of life for the days that remain.
1999
Masera G; Spinetta J; Jankovic M; Ablin AR; D'Angio GJ; Van Dongen-Melman J; Eden T; Martins AG; Mulhern RK; Oppenheim D; Topf R; Chesler MA
Medical & Pediatric Oncology
1999
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article