1
40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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May 2021 List
URL Address
<a href="http://doi.org/10.1016/j.pedn.2021.03.013" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.pedn.2021.03.013</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Being a Parent: Findings from a Grounded Theory of Memory-Making in Neonatal End-Of-Life Care
Publisher
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Journal of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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Infant; Bereavement; Photography; Parent; Newborn; Memory-making
Creator
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Thornton R; Nicholson P; Harms L
Description
An account of the resource
PURPOSE: Neonatal palliative care guidelines increasingly recommend that parents be encouraged to provide care for their dying baby and to spend time with the before and after death. However, little is currently known about how parents perceive such memory-making interventions. This study explored the significance of memory-making for bereaved parents and the impact of memory-making on parents' experience of neonatal end-of-life care. DESIGN AND METHODS: We conducted extended interviews with 18 parents who had experienced neonatal loss. Corbin and Strauss' grounded theory method was used throughout sampling, data collection and data analysis. A constant comparative approach was utilised throughout each stage of the data collection/data analysis process, resulting in the development of a grounded theory titled "Affirmed Parenthood". RESULTS: The core category of "Affirmed parenthood" was underpinned by three primary categories: 'Creating Evidence', 'Needing Guidance' and 'Being a parent'. Opportunities to parent the baby by having contact with them, engaging with them, and providing care were central to parent's experiences of memory-making in the context of neonatal bereavement. CONCLUSIONS: 'Being a Parent' provided important affirmation of the baby's identity and importance, and affirmed the role of the parents. 'Being a Parent' was a critical element of memory-making and had a significant impact on parents' experience of loss. PRACTICE IMPLICATIONS: Parents should be supported to have unrestricted contact with their baby, to engage with them, and to provide care throughout the baby's brief life and after their baby's death.
Identifier
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<a href="http://doi.org/10.1016/j.pedn.2021.03.013" target="_blank" rel="noreferrer noopener">10.1016/j.pedn.2021.03.013</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Bereavement
Harms L
Infant
Journal of Pediatric Nursing
May 2021 List
Memory-making
Newborn
Nicholson P
Parent
Photography
Thornton R
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jogn.2019.02.001" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jogn.2019.02.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn
Publisher
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Journal of Obstetric, Gynecologic, & Neonatal Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
bereavement; infant; grief; parents; memory; memento; photography
Creator
An entity primarily responsible for making the resource
Thornton R; Nicholson P; Harms L
Description
An account of the resource
OBJECTIVE: To summarize and synthesize extant literature on memory making in bereavement care for parents who experience the death of a newborn and to identify opportunities for future research. DATA SOURCES: We conducted a systematic search of four health-related databases (MEDLINE Complete, CINAHL Complete, Embase, and PsychINFO) for original research in January 2019. We then conducted a manual search of the reference lists of all included articles and a citation search via Scopus. STUDY SELECTION: Selection criteria initially included all original research articles available in English that related to parents' perceptions of perinatal or neonatal palliative care or bereavement care for parents after the death of a newborn. These criteria were refined as we developed familiarity with the available literature. Our initial screening of article titles and abstracts yielded 287 articles for full-text review. After full-text analysis, we included all 25 qualitative or mixed method research articles that met selection criteria. DATA EXTRACTION: We used a spreadsheet modeled on the Joanna Briggs Institute Review Guidelines (2015) for data extraction. DATA SYNTHESIS: Available research was focused primarily on parents' perceptions of care during and after the death of their newborns. Memory making interventions emerged as significant elements of the experiences of bereaved parent. Several researchers examined parents' perceptions of specific memory making interventions, such as bereavement photography. Contact with the newborn, opportunities for caregiving, bereavement photography, and the collection or creation of mementos emerged as important elements of memory making. Parents also identified a need for guidance about each of these key strategies for memory making. CONCLUSION: We identified few studies focused entirely on memory making as an intervention in the context of bereavement care for parents. However, memory making emerged as a recurring theme throughout qualitative and mixed method studies on parents' perceptions of perinatal or neonatal end-of-life care. Further research is required to provide evidence to guide memory making interventions for bereaved parents who experience the death of a newborn.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jogn.2019.02.001" target="_blank" rel="noreferrer noopener">10.1016/j.jogn.2019.02.001</a>
2019
Bereavement
Grief
Harms L
Infant
Journal of Obstetric, Gynecologic, & Neonatal Nursing
June 2019 List
memento
Memory
Nicholson P
Parents
Photography
Thornton R
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.281" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1016/j.jpainsymman.2018.10.281</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Memory-Making in Neonatal End-of-Life Care
Publisher
An entity responsible for making the resource available
Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
infant; death; newborn; grounded theory; neonatal intensive care unit; conference abstract; human; controlled study; terminal care; interview; staff; memory; health practitioner
Creator
An entity primarily responsible for making the resource
Thornton R; Harms L; Nicholson P
Description
An account of the resource
Background: The loss of a child in the first hours or days of life is a profoundly distressing event for parents. Provision of appropriate psycho-social care for bereaved parents is critical. Current perinatal and neonatal palliative care guidelines recommend supporting parents to create memories with their baby. However, little is currently known about the impact of these activities on parents' experience of loss.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.281" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2018.10.281</a>
2018
conference abstract
Controlled Study
Death
February 2019 List
Grounded Theory
Harms L
health practitioner
Human
Infant
Interview
Journal of Pain and Symptom Management
Memory
Neonatal Intensive Care Unit
Newborn
Nicholson P
Staff
Terminal Care
Thornton R