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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Physician Communication In Pediatric End-of-life Care: A Simulation Study
Publisher
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American Journal Of Hospice And Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
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2016; End-of-life Communication; Palliative Care; Pediatric End-of-life Care; Pediatrics; Physician–parent Communication; Qualitative Methods; Simulation; Therapeutic Processes
Creator
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Bateman LB; Tofil Nancy M; White Marjorie Lee; Dure Leon S; Clair Jeffrey Michael; Needham Belinda L
Description
An account of the resource
Objective: The objective of this exploratory study is to describe communication between physicians and the actor parent of a standardized 8-year-old patient in respiratory distress who was nearing the end of life. Methods: Thirteen pediatric emergency medicine and pediatric critical care fellows and attendings participated in a high-fidelity simulation to assess physician communication with an actor-parent. Results: Fifteen percent of the participants decided not to initiate life-sustaining technology (intubation), and 23% of participants offered alternatives to life-sustaining care, such as comfort measures. Although 92% of the participants initiated an end-of-life conversation, the quality of that discussion varied widely. Conclusion: Findings indicate that effective physician–parent communication may not consistently occur in cases involving the treatment of pediatric patients at the end of life in emergency and critical care units. Practice Implications: The findings in this study, particularly that physician–parent end-of-life communication is often unclear and that alternatives to life-sustaining technology are often not offered, suggest that physicians need more training in both communication and end-of-life care. (PsycINFO Database Record (c) 2016 APA, all rights reserved)
Identifier
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10.1177/1049909115595022
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
American Journal of Hospice and Palliative Medicine
Bateman LB
Clair Jeffrey Michael
Dure Leon S
End-of-life Communication
January 2017 List
Needham Belinda L
Palliative Care
Pediatric End-of-life Care
Pediatrics
Physician–parent Communication
Qualitative Methods
Simulation
Therapeutic Processes
Tofil Nancy M
White Marjorie Lee
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parent Experience Of Neonatal Encephalopathy: The Need For Family-centered Outcomes
Publisher
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Journal Of Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
2017; Anoxia; Hypoxic-ischemic Encephalopathy; Infant; Infant Newborn; Ischemia; Neonatal Development; Neonatal Encephalopathy; Parent; Therapeutic Hypothermia; Therapeutic Processes
Creator
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Lemmon M E; Donohue PK; Parkinson C; Northington FJ; Boss RD
Description
An account of the resource
We aimed to characterize the parent experience of caring for an infant with neonatal encephalopathy. In this mixed-methods study, we performed semistructured interviews with parents whose infants were enrolled in an existing longitudinal cohort study of therapeutic hypothermia between 2011 and 2014. Thematic saturation was achieved after 20 interviews. Parent experience of caring for a child with neonatal encephalopathy was characterized by 3 principal themes. Theme 1: Many families described cumulative loss and grief throughout the perinatal crisis, critical neonatal course, and subsequent missed developmental milestones. Theme 2: Families experienced entangled infant and broader family interests. Theme 3: Parents evolved into and found meaning in their role as an advocate. These data offer insight into the lived experience of parenting an infant with neonatal encephalopathy. Primary data from parents can serve as a useful framework to guide the development and interpretation of parent-centered outcomes. (PsycINFO Database Record (c) 2017 APA, all rights reserved)
Identifier
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10.1177/0883073816680747
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Anoxia
Boss RD
Donohue PK
Hypoxic-ischemic Encephalopathy
Infant
Infant Newborn
Ischemia
Journal of Child Neurology
Lemmon M E
May 2017 List
Neonatal Development
Neonatal Encephalopathy
Northington FJ
Parent
Parkinson C
Therapeutic Hypothermia
Therapeutic Processes
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2010.0450" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0450</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Care goals and decisions for children referred to a pediatric palliative care program
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Young Adult; Palliative Care; Pediatrics; Goals; Health Status; quality of life; adolescent; Preschool; decision making; infant; referral and consultation; Newborn; care goals; Life-limiting conditions; Therapeutic Processes; treatment decision making
Creator
An entity primarily responsible for making the resource
Tamburro R F; Shaffer ML; Hahnlen NC; Felker P; Ceneviva GD
Description
An account of the resource
OBJECTIVE: To describe goals of care for children with complex, life-limiting conditions and to assess the variables that may influence these goals. METHODS: Goals of care were elicited from the parents and children with complex, life-limiting conditions during initial palliative care consultation. Data abstracted included: diagnoses, demographics, time from diagnosis until initial palliative care consult, spirituality status, resuscitative status, and disposition at discharge. Goals of care were categorized into one of four quality-of-life domains: 1) physical health and independence, 2) psychological and spiritual, 3) social, and 4) environment. Summary statistics were prepared and comparisons were made between the four categories of goals. Descriptive statistics were utilized to explore potential associations with a decision to pursue full medical support. RESULTS: One hundred and forty goals of care were obtained from 50 patients/parents. The median patient age was 4.6 years. Thirty-seven patients had significant cognitive delay/impairment. Neuromuscular disorders accounted for more than half of the diagnoses. Forty-nine patients identified at least one goal pertaining to physical health and independence. This was significantly more than any other category (p < 0.0001). Thirty-three of the 50 patients (66%) opted for full medical support at the time of initial consult. CONCLUSIONS: Children with complex, life-limiting conditions and their families referred to a palliative care service commonly verbalize goals related to health maintenance and independence. Anticipating this expectation may foster communication and improve patient care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2010.0450" target="_blank" rel="noreferrer">10.1089/jpm.2010.0450</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
care goals
Ceneviva GD
Child
Decision Making
Felker P
Female
Goals
Hahnlen NC
Health Status
Humans
Infant
Journal Article
Journal of Palliative Medicine
Life-limiting Conditions
Male
Newborn
Palliative Care
Pediatrics
Preschool
Quality Of Life
Referral And Consultation
Shaffer ML
Tamburro R F
Therapeutic Processes
treatment decision making
Young Adult