Subject
PedPal Lit; Nursing Models; Pediatric Humans Infant; Abnormalities/diagnosis/nursing Abortion; Newborn Medical Futility/psychology Minnesota Models; Nursing Prenatal Diagnosis Referral and Consultation Social Work/organization & administration; Organizational Neonatal Nursing/organization & administration Parents/education/psychology Patient Care Planning Perinatal Care/organization & administration Philosophy; Psychological Attitude to Death Attitude to Health Female Grief Hospice Care/organization & administration Hospitals; Therapeutic Adaptation
Description
Perinatal hospice is a newly developing model of hospice care, offered to the family in the prenatal period, which provides support, guidance and comfort to families who make the difficult choice to continue a pregnancy after the diagnosis of a fatal fetal anomaly. The model is based on the hospice philosophy of living life fully and enjoying each moment. This article describes a perinatal hospice programme that is currently in place at a hospice home care programme of a children's hospital in the USA. It includes a case example of one family's experience of this programme.
2005