Navigating a child's best interest: the essential role of palliative care
Child; Palliative Care; child; human; palliative therapy; Only Child; note
In June, 2023, BBC One aired Jack Thorne's highly anticipated series Best Interests, the fictional story of Marnie (played by Niamh Moriarty), a teenager with a rare form of muscular dystrophy, whose rapid health deterioration forces her family to face the complexity of reaching a decision regarding what next steps are in her best interest. The medical team feel that withdrawing ventilation, to allow Marnie to die, is the best (and only) course of action but her mother Nicci (Sharon Horgan) disagrees, prompting a legal hearing.
Craig F
The Lancet Child and Adolescent Health
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1016/S2352-4642%2823%2900198-0" target="_blank" rel="noreferrer noopener">10.1016/S2352-4642%2823%2900198-0</a>
Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions
Childhood Cancer; Bereavement; Cancer Prognosis; Child; Controlled Study; Ethnic Group; Human; Palliative Therapy; Personal Experience; Prevalence; Prognosis; Quality Of Life; Randomized Controlled Trial(topic); Sibling; Voice
Paediatric palliative care (PPC) endeavours to alleviate the suffering and improve the quality of life of children with serious illnesses and their families. In the past two decades since WHO defined PPC and called for its inclusion in paediatric oncology care, rigorous investigation has provided important insights. For example, the first decade of research focused on end-of-life experiences of the child and the family, underscoring the high prevalence of symptom burden, the barriers to parent-provider concordance with regards to prognosis, as well as the need for bereavement supports. The second decade expanded PPC oncology investigation to include the entire cancer continuum and the voices of patients. Other studies identified the need for support of parents, siblings, and racial and ethnic minority groups. Promising interventions designed to improve outcomes were tested in randomised clinical trials. Future research will build on these findings and pose novel questions about how to continue to reduce the burdens of paediatric cancer.
Rosenberg AR; Wolfe J
The Lancet Child And Adolescent Health
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1016/S2352-4642%252817%252930014-7" target="_blank" rel="noreferrer">10.1016/S2352-4642%252817%252930014-7</a>