Browse Items (55 total)
- Tags: The Journal Of Pediatrics
Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions.
Shared Decision Making among Children with Medical Complexity: Results from a Population-Based Survey.
Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions
Tags: 2017, Balkin Emily M, brain disease, central nervous system disease, Child, Chromosome Disorder, Comfort, Death, DeCourcey DD, Drug Withdrawal, Female, Human, Intensive Care Unit, January 2018 List, Life Sustaining Treatment, Lung Disease, Major Clinical Study, Male, Medical Record, Oladunjoye A, Palliative Therapy, Resuscitation, Silverman M, Study Design, Terminal Care, The Journal Of Pediatrics, Wolfe J, Young Adult
Whom are we comforting? An analysis of comfort medications delivered to dying neonates
Tags: 2011, Analgesics/administration & dosage, Andrews B, Attitude Of Health Personnel, Backlog, Bos Arend, Cardiopulmonary Resuscitation/methods, Decision Making/ethics, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Lane L, Leuthner SR, Meadow W, Medical Futility, Neonatal, Neuromuscular Blocking Agents/administration & dosage, Newborn, Nicu, Pain/drug Therapy, Palliative Care/methods, Physician Assisted Dying PAD, Prognosis, Psychological/drug therapy, Retrospective Studies, Stress, The Journal Of Pediatrics, Verhagen AAE
Efficacy and optimal dose of daily polyethylene glycol 3350 for treatment of constipation and encopresis in children
Tags: 2001, Backlog, Bishop WP, Cathartics/therapeutic use, Child, Chronic Disease, Constipation/drug therapy, Defecation/drug effects, Encopresis/drug therapy, Female, Humans, Infant, Journal Article, Male, Non-U.S. Gov't, Pashankar DS, Patient Satisfaction, Polyethylene Glycols/therapeutic use, Preschool, Research Support, The Journal Of Pediatrics
Measuring pain accurately in children with cognitive impairments: refinement of a caregiver scale
Tags: 2001, Backlog, Breau LM, Camfield C, Caregivers, Child, Cognition Disorders, Female, Finley G A, Humans, Journal Article, Logistic Models, Male, McGrath PJ, Non-U.S. Gov't, Odds Ratio, Pain Measurement/methods, Prospective Studies, RDF Project, Research Support, Rosmus C, Sensitivity and Specificity, The Journal Of Pediatrics
Osteoporosis pseudoglioma syndrome: treatment of spinal osteoporosis with intravenous bisphosphonates
Tags: 2000, Analgesics, Backlog, Bone Density/physiology, Bone/complications/physiopathology, Child, Clodronate, Clodronic Acid/administration & dosage, Cundy T, Diphosphonates/administration & dosage, Female, Fractures, Growth, Humans, Infusions, Intravenous, Journal Article, Male, Non-Narcotic/administration & dosage, Non-U.S. Gov't, Osteoporosis/complications/drug therapy/physiopathology, Pain/prevention & control, Research Support, Spine/physiopathology, Syndrome, The Journal Of Pediatrics, Vision Disorders/complications, Zacharin M
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics
Long-chain 3-hydroxyacyl-coenzyme A dehydrogenase deficiency with the G1528C mutation: clinical presentation of thirteen patients
Tags: 1997, 3-Hydroxyacyl CoA Dehydrogenases/deficiency, Backlog, Cardiomyopathies/etiology, Fatal Outcome, Female, Humans, Hypoglycemia/etiology, Inborn Errors/complications/diet therapy/genetics, Infant, Jackson S, Journal Article, Lipid Metabolism, Liver Diseases/etiology, Male, Muscle Hypotonia/etiology, Mutation, Newborn, Palotie A, Pihko H, Q3 Scoping Review Results, Retinal Diseases/etiology, Salo MK, The Journal Of Pediatrics, Tyni T, Valanne L, Venizelos N, Viinikka L, von Dobeln U, Wanders R
Patient-controlled analgesia for mucositis pain in children: a three-period crossover study comparing morphine and hydromorphone
Tags: 1996, Adolescent, Analgesia, Analgesics, Analysis of Variance, Backlog, Berde CB, Child, Collins J J, Comparative Study, Cross-Over Studies, Double-Blind Method, Geake J, Grier HE, Houck CS, Humans, Hydromorphone/adverse effects/pharmacokinetics/therapeutic use, Inflammation/complications, Journal Article, Morphine/adverse effects/pharmacokinetics/therapeutic use, Mucous Membrane, Non-U.S. Gov't, Opioid/adverse effects/pharmacokinetics/therapeutic use, Pain Measurement, Pain/drug therapy/etiology, Patient-Controlled, Research Support, Thaler HT, The Journal Of Pediatrics, Therapeutic Equivalency, Treatment Outcome, Twum-Danso NY, Weinstein HJ
Neonatal-onset propionic acidemia: neurologic and developmental profiles, and implications for management
Tags: 1995, Backlog, Brazelton TB, Carboxy-Lyases/deficiency, Child, Cognition Disorders/etiology, Developmental Disabilities/etiology, Enteral Nutrition, Female, Gastrostomy, Gopal YR, Humans, Infant, Journal Article, Korson MS, Male, Methylmalonyl-CoA Decarboxylase, Muscle Tonus, North KN, Nutritional Status, Preschool, Propionic Acids/blood, Prospective Studies, Q3 Scoping Review Results, Rohr FJ, The Journal Of Pediatrics, Waisbren SE, Warman ML
Toxicity of local anesthetics in infants and children
Recurrent metabolic decompensation in profound carnitine palmitoyltransferase II deficiency
Tags: 1993, Backlog, Branski D, Carnitine O-Palmitoyltransferase/deficiency/metabolism, Child, Christensen E, Creatine Kinase/metabolism, Demaugre F, Elpeleg ON, Energy Intake, Fatty Acids/metabolism, Gutman A, Holme E, Humans, Joseph A, Journal Article, Liver/enzymology, Lymphocytes/metabolism, Male, Preschool, Q3 Scoping Review Results, Recurrence, Saudubray JM, The Journal Of Pediatrics, Transaminases/metabolism
Niemann-Pick disease type C: diagnosis and outcome in children, with particular reference to liver disease
Tags: 1993, Age Factors, Backlog, Biopsy, Child, Developmental Disabilities/etiology, Female, Humans, Infant, Journal Article, Kelly DA, Kupffer Cells/pathology, Lake BD, Liver Diseases/diagnosis/etiology/mortality, Liver Function Tests, Liver/pathology, Male, Mowat AP, Niemann-Pick Diseases/complications/diagnosis/mortality, Portmann B, Preschool, Prognosis, Q3 Scoping Review Results, Retrospective Studies, Sherlock S, Splenomegaly/etiology, The Journal Of Pediatrics
Use of analgesic agents for invasive medical procedures in pediatric and neonatal intensive care units
Liver involvement in Alpers disease
Tags: 1991, Backlog, Beckwith B, Biopsy, Brain/pathology, Child, Diffuse Cerebral Sclerosis of Schilder/diagnosis/metabolism/pathology, Female, Humans, Infant, Journal Article, Liver Function Tests, Liver/metabolism/pathology, Male, Narkewicz MR, Preschool, Q3 Scoping Review Results, Silverman A, Sokol RJ, Sondheimer J, Status Epilepticus/diagnosis/metabolism/pathology, Syndrome, The Journal Of Pediatrics
Use of colonic manometry to differentiate causes of intractable constipation in children
Tags: 1992, Backlog, Child, Colon/physiopathology, Colonic Diseases/complications/diagnosis, Constipation/etiology/psychology, Di Lorenzo C, Female, Flores AF, Food, Gastrointestinal Motility/physiology, Humans, Hyman PE, Journal Article, Male, Manometry, Nervous System Diseases/complications/diagnosis, Preschool, Q3 Scoping Review Results, Reddy SN, The Journal Of Pediatrics
Risk of secondary bacterial infection in infants hospitalized with respiratory syncytial viral infection
Tags: 1988, Anti-Bacterial Agents/therapeutic use, Backlog, Bacterial Infections/etiology, Child, Gala CL, Hall CB, Humans, Infant, Journal Article, Pincus PH, Pneumonia/etiology, Powell KR, Preschool, Prospective Studies, Respiratory Syncytial Viruses, Respiratory Tract Infections/complications/drug therapy, Respirovirus Infections/complications/drug therapy, Risk Factors, Schnabel KC, The Journal Of Pediatrics
After the child dies
A prospective comparative study of 2540 infants and children with newly diagnosed idiopathic thrombocytopenic purpura (ITP) from the Intercontinental Childhood ITP Study Group
Tags: 2003, Adolescent, Age Distribution, Anti-Inflammatory Agents/therapeutic use, Backlog, Berchtold W, Buchanan GR, Child, Female, Follow-up Studies, Humans, Idiopathic/drug therapy/epidemiology, Imbach P, Immunoglobulins, Incidence, Infant, Intercontinental Childhood ITP Study Group, Intravenous/administration & dosage/therapeutic use, Journal Article, Kohan R, Kuhne T, Male, Michaels LA, Prospective Studies, Purpura, Questionnaires, The Journal Of Pediatrics, Thrombocytopenic, Zimmerman S
A community-based intervention for siblings and parents of children with chronic illness or disability: The ISEE study
Duration and morbidity of newly diagnosed idiopathic thrombocytopenic purpura in children: A prospective Nordic study of an unselected cohort
Tags: 2003, Adolescent, Backlog, Child, Cohort Studies, Elinder G, Female, Hedlund-Treutiger I, Hemorrhage/diagnosis/etiology/therapy, Henter JI, Humans, Idiopathic/complications/diagnosis/therapy, Infant, Jonsson OG, Journal Article, Male, Newborn, NOPHOITP Working Group, Platelet Count, Preschool, Prospective Studies, Purpura, Rajantie J, Risk Assessment, Rosthoj S, Scandinavia, Severity Of Illness Index, The Journal Of Pediatrics, Thrombocytopenic, Time Factors, Wesenberg F, Zeller B
Pain, anxiety, distress, and suffering: interrelated, but not interchangeable
Tags: 2003, Acute Disease, Age Factors, Analgesics/administration & dosage/therapeutic use, Anxiety/drug therapy/etiology/psychology, Backlog, Berde C, Catheterization, Central Venous/adverse effects/psychology, Child, Chronic Disease, Humans, Journal Article, Neoplasms/complications/drug therapy/psychology, Pain/complications/drug therapy/psychology, Psychological/drug therapy/etiology/psychology, Severity Of Illness Index, Stress, The Journal Of Pediatrics, Wolfe J
Induced sputum inflammatory measures correlate with lung function in children with cystic fibrosis
Tags: 2002, Accurso FJ, Adolescent, Backlog, Cell Count, Child, Cystic Fibrosis/diagnosis/metabolism, Female, Forced Expiratory Volume, Humans, Interleukin-8 - analysis, Journal Article, Kapsner RK, Leukocyte Elastase/metabolism, Lung/physiopathology, Male, Non-U.S. Gov't, Osberg I, P.H.S., Research Support, Sagel SD, Sontag MK, Spirometry, Sputum/chemistry/cytology, The Journal Of Pediatrics, U.S. Gov't, Wagener JS
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Physical therapy and cognitive-behavioral treatment for complex regional pain syndromes
Tags: 2002, Adolescent, Backlog, Berde CB, Child, Cognitive Therapy, Complex Regional Pain Syndromes/psychology/rehabilitation, Female, Humans, Journal Article, Lee BH, Male, Masek BJ, McCarthy CF, Meier P, Nonparametric, P.H.S., Physical Therapy Modalities, Prospective Studies, Research Support, Scharff L, Scott-Sutherland J, Sethna NF, Shea AM, Statistics, Sullivan P, The Journal Of Pediatrics, U.S. Gov't, Zurakowski D
Short-term safety assessment in the use of intravenous zoledronic acid in children
Tags: 2004, Adolescent, Ambler G, Backlog, Bone Resorption/metabolism/prevention & control, Calcium/blood, Child, Clodronate, Cowell CT, Creatinine/blood, Diphosphonates/administration & dosage/adverse effects, Female, Fever/chemically induced, Follow-up Studies, Hogler W, Humans, Imidazoles/administration & dosage/adverse effects, Infusions, Intravenous, Journal Article, Little D, Male, McQuade M, Nausea/chemically induced, Pain/chemically induced, Phosphorus/blood, Preschool, Retrospective Studies, The Journal Of Pediatrics, Time Factors, Urea/blood, Vomiting/chemically induced, Yap F
Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children
Tags: 2004, Acree M, Adult, Backlog, Caregivers/economics/psychology, Child, Cost Of Illness, Depression/etiology, Enteral Nutrition/economics/psychology, Female, Ferrando S, Folkman S, Gastrostomy/economics/psychology, Harmatz P, Heyman MB, Home Nursing/economics/psychology, Humans, Journal Article, Moskowitz JT, Mothers/psychology, Quality Of Life, Socioeconomic Factors, The Journal Of Pediatrics, Wilson L
The natural history of medium-chain acyl CoA dehydrogenase deficiency in the Netherlands: clinical presentation and outcome
Tags: 2006, Acyl-CoA Dehydrogenase/deficiency/genetics, Adolescent, Adult, Backlog, Child, Cohort Studies, Derks TG, Disease Progression, Gerver WJ, Humans, Inborn Errors/complications/diagnosis/genetics, Infant, Journal Article, Longitudinal Studies, Metabolism, Middle Aged, Mutation/genetics, Netherlands, Newborn, Preschool, Prognosis, Reijngoud DJ, Retrospective Studies, Sauer PJ, Severity Of Illness Index, Smit GP, The Journal Of Pediatrics, van den Berg MP, Waterham HR
A retrospective, multinational, multicenter study on the natural history of infantile-onset Pompe disease
Tags: 2006, Artificial, Backlog, Cohort Studies, Corzo D, Disease Progression, Europe/epidemiology, Female, Glycogen Storage Disease Type II/complications/epidemiology/therapy, Humans, Hwu WL, Infant, Infantile-Onset Pompe Disease Natural History Study Group, Israel/epidemiology, Journal Article, Kishnani PS, Longitudinal Studies, Male, Mandel H, Newborn, Nicolino M, North America/epidemiology, Respiration, Retrospective Studies, Survival Rate, Taiwan/epidemiology, The Journal Of Pediatrics, Yong F
Decisions in diagnosing and managing chronic gastroesophageal reflux disease in children
Gastric sensory and motor dysfunction in adolescents with functional dyspepsia
Tags: 2005, Adolescent, Backlog, Breath Tests, Burton D, Camilleri M, Chitkara DK, Dyspepsia/physiopathology, El-Youssef M, Emission-Computed, Female, Freese D, Gastric Emptying, Humans, Journal Article, Male, Non-U.S. Gov't, P.H.S., Receptors, Research Support, Sensory/physiopathology, Single-Photon, Stephens D, Stomach/physiopathology, The Journal Of Pediatrics, Tomography, U.S. Gov't, Walker L, Zinsmeister AR
Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review
Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands.
Tags: 2010, Andrews B, Artificial, Backlog, Bos AF, Canada, Cross-cultural Comparison, Decision Making, Diseases/mortality, Female, Gestational Age, Humans, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Leuthner SR, Male, Meadow W, Neonatal, Netherlands, Newborn, Physician Assisted Dying PAD, Respiration, Terminal Care, The Journal Of Pediatrics, United States, Verhagen AAE, Withholding Treatment/statistics & Numerical Data
Opioid use in palliative care of children and young people with cancer
Tags: 2008, Administration, Adolescent, Adult, Analgesics, Backlog, Child, Childs M, Collins GS, Drug/statistics & numerical data, Female, Fentanyl/therapeutic use, Goldman A, Great Britain, Hain R, Heroin/therapeutic use, Hewitt M, Humans, Infant, Infusions, Injections, Intravenous, Journal Article, Longitudinal Studies, Male, Morphine/therapeutic Use, Neoplasms/complications, Opioid/administration & dosage/therapeutic use, Oral, Pain/drug therapy/etiology, Palliative Care/methods, Preschool, Prescriptions, Prospective Studies, Questionnaires, Rectal, Research Design, Subcutaneous, The Journal Of Pediatrics, Therapeutic Equivalency