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Dublin Core
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Title
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May 2020 List
Text
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Citation List Month
May 2020 List
URL Address
<a href="http://doi.org/10.1177/1049909120912674" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909120912674</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Inter-Rater Reliability of the Phase of Illness Tool in Pediatric Palliative Care
Publisher
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The American journal of hospice & palliative care.
Date
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2020
Subject
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adult; article; child; cohort analysis; controlled study; feasibility study; female; human; interrater reliability; major clinical study; male; Palliative therapy; pediatric patient; prospective study; reproducibility; uncertainty
Creator
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Burke K; Coombes L H; Petruckevitch A; Anderson A K
Description
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BACKGROUND: Phase of Illness is used to describe the stages of a patient's illness in the palliative care setting. Categorization is based on individual needs, family circumstances, and the adequacy of a care plan. Substantial (κ = .67) and moderate (κ = .52) inter-rater reliability is demonstrated when categorizing adults; however, there is a lack of similar studies in pediatrics. OBJECTIVE: To test the inter-rater reliability of health-care professionals when assigning pediatric palliative care patients to a Phase of Illness. Furthermore, to obtain user views on phase definitions, ease of assignment, feasibility and acceptability of use. METHOD: A prospective cohort study in which up to 9 health-care professionals' independently allocated 80 pediatric patients to a Phase of Illness and reported on their experiences. This study took place between June and November 2017. RESULTS: Professionals achieved a moderate level of agreement (κ = 0.50). Kappa values per phase were as follows: stable = 0.63 (substantial), unstable = 0.26 (fair), deteriorating = 0.45 (moderate), and dying = 0.43 (moderate). For the majority of allocations, professionals report that the phase definitions described patients very well (76.1%), and they found it easy to assign patients (73.5%). However, the unstable phase caused the most uncertainty. CONCLUSION: The results of this study suggest Phase of Illness is a moderately reliable, acceptable, and feasible tool for use in pediatric palliative care. Current results are similar to those found in some adult studies. However, in a quarter of cases, users report some uncertainty in the application of the tool, and further study is warranted to explore whether suggested refinements improve its psychometric properties.
Identifier
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<a href="http://doi.org/10.1177/1049909120912674" target="_blank" rel="noreferrer noopener">10.1177/1049909120912674</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adult
Anderson A K
Article
Burke K
Child
Cohort Analysis
Controlled Study
Coombes L H
Feasibility Study
Female
Human
interrater reliability
Major Clinical Study
Male
May 2020 List
Palliative Therapy
pediatric patient
Petruckevitch A
Prospective Study
Reproducibility
The American journal of hospice & palliative care.
Uncertainty