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Dublin Core
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Title
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November 2023 List
Text
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November List 2023
URL Address
<a href="http://doi.org/10.31557/apjcp.2023.24.9.3275" target="_blank" rel="noreferrer noopener"> http://doi.org/10.31557/apjcp.2023.24.9.3275</a>
Dublin Core
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Title
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Pediatric Nurses' Perceived Competencies toward Palliative Care for Terminally Ill Children
Publisher
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Asian Pacific Journal of Cancer Prevention
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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palliative care; Terminal Care; Pediatric Nursing; Terminally Ill; Terminally ill children; Nurses' competency
Creator
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Farrag JM; Ibrahim AM; Anwr DB; Ibrahim Ibrahim NM; Saadoon MM
Description
An account of the resource
INTRODUCTION: Paediatric palliative care involves the physical, psychological, and spiritual well-being of terminally ill children and their families. Competency in palliative care centred on personal traits and attributes, key abilities to satisfy professional duty through practise, and knowledge of palliative care. OBJECTIVE: Is to identify paediatric nurses' perceived Competencies toward Palliative Care for Terminally Ill Children. METHOD: Used was a descriptive research design. The sample included 72 nurses who worked at neonatal, pediatric intensive care units ( NICU, PICU) in four hospitals affiliated to Universal Health Insurance (UHI) in Port Said City, namely ( El Nasr, El Salam, El Hayah, and pain outpatient clinic at El Tadamon) hospital. The structured questionnaire and the nursing palliative care quiz are the first tools used to evaluate sociodemographic characteristics. Data were gathered using a second tool, the Nurses' Core Competencies in Palliative Care questionnaire. RESULTS: Based on the study, 56.9% of nurses had adequate knowledge, and 47.2% of paediatric nurses agreed that they had some extendable palliative care competences.It can be summarized that more than sighlty half of the studied sample have adequate knowledge while the rest of the studied sample have inadequate knowledge,with statistically significant relationship between nurses' overall perceived competence and overall knowledge. CONCLUSION: The relationship between nurses' overall perceived competence and overall knowledge was very statistically significant. The Recommendation study's findings highlight the urgent need of creating an evidence-based programme for competency training in palliative care, which should be available in every hospital and adhered to all paediatric nurses.
Identifier
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<a href="http://doi.org/10.31557/apjcp.2023.24.9.3275" target="_blank" rel="noreferrer noopener">10.31557/apjcp.2023.24.9.3275</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Anwr DB
Asian Pac J Cancer Prev
Farrag JM
Ibrahim AM
Ibrahim Ibrahim NM
November List 2036
Nurses' competency
Palliative Care
Pediatric Nursing
Saadoon MM
Terminal Care
Terminally Ill
Terminally Ill Children
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.1186/s12904-023-01206-4" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1186/s12904-023-01206-4</a>
Dublin Core
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Title
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The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
Publisher
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BMC Palliative Care
Date
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2023
Subject
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Humans; Parents; Child; Palliative Care; Adult; Qualitative Research; Health Personnel; Palliative Care; Terminally Ill; Terminally Ill; Terminally ill children; Dignity; Mainland China; Pediatric Palliative care; Respect
Creator
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Cai S; Guo Q; Lin J; Deng C; Li H; Zhou X
Description
An account of the resource
BACKGROUND: The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. METHODS: This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children's hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. RESULTS: The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. CONCLUSIONS: This is the first study on Dignity Model for terminal children. Knowledge of children's dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families' sense of dignity at end of life.
Identifier
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<a href="http://doi.org/10.1186/s12904-023-01206-4" target="_blank" rel="noreferrer noopener">10.1186/s12904-023-01206-4</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adult
BMC Palliative Care
Cai S
Child
Deng C
Dignity
Guo Q
Health Personnel
Humans
Li H
Lin J
Mainland China
Palliative Care
Parents
Pediatric Palliative Care
Qualitative Research
Respect
September List 2028
Terminally Ill
Terminally Ill Children
Zhou X
-
Dublin Core
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Title
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Special Edition #2 2022 List
Text
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Special Edition #2
URL Address
<a href="http://doi.org/10.1177/0825859719885947" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0825859719885947</a>
Dublin Core
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Title
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Caregiver Decision-Making for Terminally Ill Children: A Qualitative Study
Publisher
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Journal of Palliative Care
Date
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2019
Subject
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decision-making; end of life; goals of care; parental coping; pediatrics; terminally ill children
Creator
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Pinto TE; Doolittle B
Description
An account of the resource
INTRODUCTION: Many children are born with life-limiting illnesses. Medical decision-making for these children by caregivers is complex and causes significant psychosocial distress, which can be partially alleviated by effective communication with medical providers. In order for providers to support caregivers, this study explores how caregivers make decisions regarding the medical care of their terminally ill children. METHODS: Semistructured interviews were conducted among caregivers of terminally ill children. Participation was voluntary and confidential. The institutional review board approved the protocol. Transcripts were read and coded by 2 authors using inductive, concurrent analysis to reach thematic saturation and generate common themes. RESULTS: Nine interviews were completed, discussing the care of 10 children. Caregivers described decision-making as impacted by their relationships with medical providers of 2 distinct types-trusting and nontrusting. Trusting relationships were notable for a longitudinal relationship with medical staff who empowered caregivers and treated the patient primarily as a child. Nontrusting relationships were noted when the medical team objectified their child as a "patient" and appeared to withhold information. Also, nontrusting relationships occurred when caregivers felt frustration with needing to educate health-care providers about their child's illness. CONCLUSION: Decision-making by caregivers of terminally ill children is complex, and supporting families in this process is a critical role of all medical providers. A trusting relationship with medical team members was identified as an effective tool for well-supported decision-making, which can potentially alleviate the suffering of the child and distress of the caregivers during this emotionally charged time.
Identifier
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<a href="http://doi.org/10.1177/0825859719885947" target="_blank" rel="noreferrer noopener">10.1177/0825859719885947</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
2022 Special Edition 2 - Parent Perspectives
Decision-making
Doolittle B
End Of Life
Goals Of Care
Journal Of Palliative Care
parental coping
Pediatrics
Pinto TE
Terminally Ill Children
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Physician-assisted Dying For Children Is Conceivable For Most Dutch Paediatricians, Irrespective Of The Patient's Age Or Competence To Decide
Publisher
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Acta Paediatrica
Date
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2017
Subject
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Dutch Euthanasia Law; Euthanasia; Life Expectancy; Physician-assisted Dying; Suffering; Terminally Ill Children
Creator
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Bolt Eva Elizabeth; Flens Eva Quirien; Pasman HRoeline Willemijn; Willems Dick; Onwuteaka-Philipsen Bregje Dorien
Description
An account of the resource
Aim: Paediatricians caring for severely ill children may receive requests for physician-assisted dying (PAD). Dutch euthanasia law only applies to patients over 12 who make well-considered requests. These limitations have been widely debated, but little is known about paediatricians' positions on PAD. We explored the situations in which paediatricians found PAD conceivable and described the roles of the patient and parents, the patient's age and their life expectancy.Methods: We sent a questionnaire to a national sample of 276 Dutch paediatricians and carried out semi-structured interviews with eight paediatricians.Results: The response rate was 62%. Most paediatricians said performing PAD on request was conceivable (81%), conceivability was independent of the patient's age and whether the patient or parent(s) requested it. The paediatricians interviewed felt a duty to relieve suffering, irrespective of the patient's age or competency to decide. When this was not possible through palliative care, PAD was seen as an option for all patients who were suffering unbearably, although some paediatricians saw parental agreement and reduced life expectancy as prerequisites.Conclusion: Most Dutch paediatricians felt PAD was conceivable, even under the age of 12 if requested by the parents. They seemed driven by a sense of duty to relieve suffering.
Identifier
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10.1111/apa.13620
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Acta Paediatrica
Bolt Eva Elizabeth
Dutch Euthanasia Law
Euthanasia
Flens Eva Quirien
Life Expectancy
May 2017 List
Onwuteaka-Philipsen Bregje Dorien
Pasman HRoeline Willemijn
Physician-assisted Dying
Suffering
Terminally Ill Children
Willems Dick