Browse Items (395 total)
- Tags: Terminal Care
End of Life Care for Infants, Children and Young People with Life Limiting Conditions: Summary of Nice Guidance
Patient End-of-life Experiences For Pediatric Trainees: Spanning The Educational Continuum
Impact Of A Palliative Care Program On End-of- Life Care In A Neonatal Intensive Care Unit.
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
STUDY DESIGN:
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
Tags: 2016, Benzodiazepines/therapeutic Use, Brandon D, Cause Of Death, Cotten CM, Female, Goldberg RN, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Male, March 2016 List, Morphine/therapeutic Use, Palliative Care, Resuscitation Orders, Retrospective Studies, Simmons C, Smith PB, Terminal Care, Withholding Treatment/trends, Younge N
Neonatal End Of Life Care In A Tertiary Care Centre In Canada: A Brief Report
To describe the processes followed by a neonatal team engaging parents with respect to end of life care of babies in whom long term survival was negligible or impossible; and to describe feedback from these parents after death of their…
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
"hope For The Best, Prepare For The Worst": A Qualitative Interview Study On Parents' Needs And Fears In Pediatric Advance Care Planning.
Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are respected and thus improve end-of-life care. However, since end-of-life decisions for children…
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Storytelling In The Early Bereavement Period To Reduce Emotional Distress Among Surrogates Involved In A Decision To Limit Life Support In The Icu: A Pilot Feasibility Trial
Surrogate decision makers involved in decisions to limit life support for an incapacitated patient in the ICU have high rates of adverse emotional health outcomes distinct from normal processes of grief and bereavement. Narrative…
Tags: 2016, Arnold RM, Barnato AE, Bereavement, Complicated Grief, Critical Care Medicine, Critical Illness, Critically-ill, Depression, Dew MA, End, Family-members, Intensive Care, Intensive-care-unit, Nunez ER, Posttraumatic-stress-disorder, Reynolds CF, Scale, Schenker Y, Self-regulation, September 2016 List, Surrogate Decision Making, Terminal Care, Tiver G
End Of Life Care In Paediatric Neurodegenerative Disease: A Regional Experience
Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G
Integrating Palliative Care Into School Communities
Tags: 2016, Bereavement, Child, Controlled Study, Cree V, Curriculum, Hospice, Hospices, Human, Human Experiment, Information Processing, Interview, May 2017 List, Model, Murray S, Only Child, Palliative Care, Palliative Medicine, Palliative Therapy, Paul S, Primary School, School Child, Scotland, Skill, Staff, Terminal Care
Neonatal Palliative Care-alice's Journey
Tags: 2016, Bereavement, Bereavement Support, Child, Doctor Patient Relation, Halkett C, Holistic Care, Human, Infant, Infant Newborn, May 2017 List, Medical Staff, Memory, Murdoch E, Newborn, Newborn Intensive Care, Nursing Staff, Palliative Care, Palliative Medicine, Palliative Therapy, Patient Referral, Pilot Projects, Rodger E, Sibling, Terminal Care
Neonatal Death In The Emergency Department: When End-of-life Care Is Needed At The Beginning Of Life
Aspects Of Palliative Care In Child Neurology
Tags: 2016, Bereavement Counseling, Central Nervous System Tumor, Child, Child Care, Chromosome Aberration, Controlled Study, Coordination, Diagnosis, Family Study, Germany, Human, Human Experiment, June 2017 List, Metabolic Disorder, Neurologic Disease, Neurology, Neuropediatrics, Nolte-Buchholtz S, Only Child, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Spiritual Care, Terminal Care, Von Der Hagen M
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Tags: 2017, Balkin E M, Blume E D, Cardiac Surgeon, Cardiologist, Child, Clinical Study, Clinical Trial, Controlled Clinical Trial, Controlled Study, Female, Heart Failure, Human, Intensivist, Kaufman BD, Kirkpatrick J N, Life Expectancy, Male, Medical School, Multicenter Study, Palliative Therapy, Pediatric Cardiology, Pediatric cardiology., September 2017 List, Skill, Sleeper L A, Swetz K M, Terminal Care, Wolfe J
How Do Neonatal Units Support Siblings Following Loss?-a National Survey
Tags: 2017, Archives of Disease in Childhood, Bereavement Support, Counselor, Doctor Patient Relation, England, Henderson R, Hospice, Human, Human Experiment, Minchella S, Model, Neonatal Intensive Care Unit, Newborn, Newborn Death, Nurse, Psychologist, September 2017 List, Sibling, Social Welfare, Terminal Care, Vasudevan C
Specifying Eligibility Criteria In The Referral Process Reduces Delay In Decision Making And Access To Services In A Children's Hospice
End-of-life Conversation Game Increases Confidence For Having End-of-life Conversations For Chaplains-in-training
Quality Of Care Collaborative For Paediatric Palliative Care In Australia (quocca)
Tags: 2017, anxiety, Australia, Baggio S, Burr C, Child, Clinical Trial, Delaney A, Diagnosis, Donovan L, Duc J, Duffield J, Dyspnea, Education, Family Study, Female, Fleming S, Herbert A, Heywood M, Human, Hynson J, Irving H, Johnson S, Major Clinical Study, Male, McLarty A, Momber S, Nausea, Nurse, October 2017 List, Pain, Palliative Therapy, Patient Referral, Pedersen LA, Pediatric Blood and Cancer, Phillips M, Questionnaire, Ryan S, Seizure, Slater P, Staff, Symptom, Telehealth, Terminal Care, Trethewie S
End-of-life And Bereavement Care In Pediatric Intensive Care Units
Tags: 2017, Bereavement Support, Child, Child Death, Clinical Study, Doctor Patient Relation, Family Interaction, Female, Health, Human, Jenkins T L, Male, October 2017 List, Pain, Pediatric Clinics of North America, Pediatric Intensive Care Unit, Sound, Suttle M, Tamburro R F, Terminal Care, United States
Children's End-of-life Health Care Use And Cost
Interactive Palliative And End-of-life Care Modules For Pediatric Residents
Seizure Management In End Of Life Care For Children
Bringing Home To The Hospital: Development Of The Reflection Room And Provider Perspectives
Neonatal Palliative Care
Palliative Care After Neonatal Intensive Care: Contributions Of Leonetti Law And Remaining Challenges
Tags: 2017, April 2017 List, Archives de Pediatrie, Artificial Feeding, Astruc D, Brain Damage, Climate, Clinical Practice, Clinical Study, Cojean N, Decision Making, Dillenseger L, Drug Withdrawal, Dying, Emotion, Escande B, Ethics, Health Promotion, Human, Human Dignity, Hydration, Kuhn P, Life Sustaining Treatment, Medical Decision Making, Medical Ethics, Medical Practice, Neonatology, Newborn, Newborn Intensive Care, Palliative Therapy, Patient Right, Perinatal Care, Perinatal Nursing, Quality Of Life, Short Survey, Survival, Terminal Care, Treatment Withdrawal, Zores C
Paediatric Palliative Care In The Asia Pacific Region: Where Are We Now?
Tags: 2017, April 2017 List, Asia Southeastern, BMJ Supportive & Palliative Care, Child, Child Health Services/standards/statistics & Numerical Data, Chong PH, Far East, Goh C, Hamsah E, Humans, Oceania, Paediatrics, Palliative Care/standards/statistics & Numerical Data, Service Evaluation, Supportive Care, Terminal Care
End-of-life Decisions For Extremely Preterm Infants - A Matter Of Language, Gender And Education?
Tags: 2017, Acta Paediatrica, April 2017 List, Artificial Ventilation, Bührer C, Editorial, Education, Ethical Decision Making, Female, France, Gender, Germany, Human, Human Experiment, Infant, Italy, Language, Male, Physician Attitude, Prematurity, Prematurity/dm [disease Management], Priority Journal, Quality Of Life, Shared Decision-making, Switzerland, Terminal Care
Pediatric End-of-life Care: An 'additional Layer Of Complexity'
Resilience And Death: The Nursing Professional In The Care Of Children And Adolescents With Life-limiting Illnesses
Tags: 2014, Adaptation Psychological, Adolescent, Attitude Of Health Personnel, Attitude To Death, Child, Chronic Disease, Ciência & Saúde Coletiva, dos Santos Rosilene Aparecida, Humans, June 2017 List, Moreira Martha Cristina Nunes, Nurses, Pediatric Nursing, Resilience Psychological, Terminal Care
Key Factors Affecting Dying Children And Their Families
Tags: 2005, Adolescent, Baker J, Bereavement, Child, Communication, Decision Making, Family/px [psychology], Hinds PS, Humans, Journal of Palliative Medicine, May 2017 List, Only Child, Palliative Care/st [standards], Professional-family Relations, Quality Of Health Care, Schum L, Stress Psychological/et [etiology], Terminal Care, Terminal Care/st [standards], Wolfe J
Using Simulation As A Learning Experience In Clinical Teams To Learn About Palliative And End Of Life Care: A Literature Review
Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study
Tags: 2017, August 2017 List, Children, Databases Factual, Delphi Study, Delphi Technique, Devins M, Health Services Needs And Demand, Hospice Care, Humans, International Journal of Palliative Nursing, Ireland, Life-limiting Conditions, Ling J, McCarthy S, O'Reilly M, Palliative Care, Parents, Pediatrics, Quality Of Life, Quinn C, Research, Research Priorities, Siblings, Terminal Care, Twomey M
Seeking the best training model for difficult conversations in neonatology
Tags: 2016, August 2017 List, Bender GJ, Communication, Computer Simulation, Curriculum, Fellowships And Scholarships, Female, Humans, Infant Newborn, Journal Of Perinatal Medicine, Lechner BE, Male, Models Educational, Neonatology/education, Parents, Pregnancy, Professional-patient Relations, Shields R, Terminal Care, Tucker R
Reframing US Maternity Care: Lessons Learned From End-of-Life Care
Tags: 2017, Caughey AB, Death, Decision Making, Delivery Obstetric, Female, Guidelines As Topic, Humans, Infant Newborn, Journal of Midwifery & Women's Health, Lowe NK, Maternal Health Services, Midwifery, November 2017 List, Palliative Care, Parturition, Patient Participation, Patient Safety, Patient-centered Care, Pregnancy, Snowden JM, Terminal Care, Tilden EL, United States
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
Barriers of Palliative Care in Neonatal Intensive Care Units
Tags: 2017, Adult, Ahmadi JS, Azzizadeh Forouzi M, Banazadeh M, Clinical Competence, Cross Sectional Study, December 2017 List, Female, Health Personnel Attitude, Human, Iran, Islam, Male, Middle Aged, Neonatal Intensive Care Unit, Newborn, Nursing Staff, Organization, Organization And Management, Palliative Therapy, Psychology, Razban F, Reproducibility, Socioeconomics, Terminal Care, The American Journal of Hospice & Palliative Care