1
40
6
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Text
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URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2008.02.010" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2008.02.010</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Trends in the use of opioids at the end of life and the expected effects on hastening death
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Survival Rate; Analgesics; Attitude of Health Personnel; Questionnaires; Euthanasia; Survival Analysis; Risk Assessment; Risk Factors; decision making; Administration; Oral; Opioid/administration & dosage; Terminal Care/statistics & numerical data; Active/statistics & numerical data/trends; Netherlands/epidemiology; Pain/mortality/prevention & control; Physician's Practice Patterns/statistics & numerical data/trends; Physicians/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Rurup ML; Borgsteede SD; van der Heide A; van der Maas PJ; Onwuteaka-Philipsen BD
Description
An account of the resource
The aim of our study was to describe trends in opioid use and perceptions of having hastened the end of life of a patient. In 2005, a questionnaire was sent to 6860 physicians in The Netherlands who had attended a death. The response rate was 78%. In 1995 and 2001 similar studies were done. Physicians less often administered opioids with the intention to hasten death in 2005 (3.1% of the non-sudden deaths) than in 2001 and in 1995 (7% and 10%, respectively). Physicians gave similar dosages of opioids in 2005, 2001, and 1995, but physicians in 2005 less often thought that life was actually shortened than in 2001 and 1995 (37% in 2005, 50% in 2001, and 53% in 1995). Of the physicians in 2005 who did think that the life of the patient was shortened by opioids, 94% did not give higher dosages than were, in their own opinion, required for pain and symptom management. Physicians in 2005 more often took hastening death into account when they gave higher dosages of opioids when the patient experienced more severe symptoms and with female patients. In older patients (>or=80 years), physicians took the hastening of death into account more often, but the actual dosages of opioids were lower. These data indicate that physicians in The Netherlands less often thought that death was hastened by opioids and less often gave opioids, with the intention to hasten death in 2005 than in 2001 and 1995.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2008.02.010" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2008.02.010</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Active/statistics & numerical data/trends
Administration
Analgesics
Attitude Of Health Personnel
Backlog
Borgsteede SD
Decision Making
Euthanasia
Humans
Journal Article
Journal of Pain and Symptom Management
Netherlands/epidemiology
Onwuteaka-Philipsen BD
Opioid/administration & dosage
Oral
Pain/mortality/prevention & control
Physician's Practice Patterns/statistics & numerical data/trends
Physicians/statistics & numerical data
Questionnaires
Risk Assessment
Risk Factors
Rurup ML
Survival Analysis
Survival Rate
Terminal Care/statistics & Numerical Data
van der Heide A
van der Maas PJ
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.091876" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.091876</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physician-assisted deaths under the euthanasia law in Belgium: a population-based survey
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Female; Humans; Male; Prevalence; Questionnaires; Aged; Middle Aged; Euthanasia; Age Factors; Sex Factors; Time Factors; Suicide; 80 and over; cause of death; Active; Neoplasms/therapy; Terminal Care/statistics & numerical data; Assisted/legislation & jurisprudence/statistics & numerical data; Home Care Services/statistics & numerical data; Belgium/epidemiology; Euthanasia/legislation & jurisprudence/statistics & numerical data; Voluntary/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Chambaere K; Bilsen J; Cohen J; Onwuteaka-Philipsen BD; Mortier F; Deliens L
Description
An account of the resource
BACKGROUND: Legalization of euthanasia and physician-assisted suicide has been heavily debated in many countries. To help inform this debate, we describe the practices of euthanasia and assisted suicide, and the use of life-ending drugs without an explicit request from the patient, in Flanders, Belgium, where euthanasia is legal. METHODS: We mailed a questionnaire regarding the use of life-ending drugs with or without explicit patient request to physicians who certified a representative sample (n = 6927) of death certificates of patients who died in Flanders between June and November 2007. RESULTS: The response rate was 58.4%. Overall, 208 deaths involving the use of life-ending drugs were reported: 142 (weighted prevalence 2.0%) were with an explicit patient request (euthanasia or assisted suicide) and 66 (weighted prevalence 1.8%) were without an explicit request. Euthanasia and assisted suicide mostly involved patients less than 80 years of age, those with cancer and those dying at home. Use of life-ending drugs without an explicit request mostly involved patients 80 years of older, those with a disease other than cancer and those in hospital. Of the deaths without an explicit request, the decision was not discussed with the patient in 77.9% of cases. Compared with assisted deaths with the patient's explicit request, those without an explicit request were more likely to have a shorter length of treatment of the terminal illness, to have cure as a goal of treatment in the last week, to have a shorter estimated time by which life was shortened and to involve the administration of opioids. INTERPRETATION: Physician-assisted deaths with an explicit patient request (euthanasia and assisted suicide) and without an explicit request occurred in different patient groups and under different circumstances. Cases without an explicit request often involved patients whose diseases had unpredictable end-of-life trajectories. Although opioids were used in most of these cases, misconceptions seem to persist about their actual life-shortening effects.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.091876" target="_blank" rel="noreferrer">10.1503/cmaj.091876</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
80 And Over
Active
Age Factors
Aged
Assisted/legislation & jurisprudence/statistics & numerical data
Backlog
Belgium/epidemiology
Bilsen J
Canadian Medical Association Journal
Cause Of Death
Chambaere K
Cohen J
Deliens L
Euthanasia
Euthanasia/legislation & jurisprudence/statistics & numerical data
Female
Home Care Services/statistics & Numerical Data
Humans
Journal Article
Male
Middle Aged
Mortier F
Neoplasms/therapy
Onwuteaka-Philipsen BD
Prevalence
Questionnaires
Sex Factors
Suicide
Terminal Care/statistics & Numerical Data
Time Factors
Voluntary/statistics & numerical data
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2004.01.013" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2004.01.013</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Frequency and perceived competence in providing palliative care to terminally ill patients: a survey of primary care physicians
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Physician-Patient Relations; Data Collection; Physician's Practice Patterns/statistics & numerical data; United States/epidemiology; Palliative Care/statistics & numerical data; Terminally Ill/statistics & numerical data; Quality Assurance; Professional Competence/statistics & numerical data; Health Care/methods; Primary Health Care/statistics & numerical data; Terminal Care/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Farber NJ; Urban SY; Collier VU; Metzger M; Weiner J; Boyer EG
Description
An account of the resource
We surveyed primary care physicians about their involvement and perceived skills in palliative care. A survey instrument asked how frequently internal medicine and family practice physicians performed 10 palliative care items. Subjects rated their skills in each area. A majority of physicians always or frequently performed all 10 palliative care items, but fewer than 50% of respondents adequately attended to the spiritual needs and economic problems of patients. Interest in palliative care was associated with an increased frequency in performing palliative care items (P = 0.036), while training in palliative care was associated with better perceived performance (P = 0.05). Only 36% of respondents had received training in palliative care. Internists and family practitioners provide palliative care to patients, but feel their skills are lacking in certain areas. Training may improve care to patients at the end of life.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2004.01.013" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2004.01.013</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Boyer EG
Collier VU
Data Collection
Farber NJ
Health Care/methods
Humans
Journal Article
Journal of Pain and Symptom Management
Metzger M
Palliative Care/statistics & Numerical Data
Physician-patient Relations
Physician's Practice Patterns/statistics & numerical data
Primary Health Care/statistics & numerical data
Professional Competence/statistics & numerical data
Quality Assurance
Terminal Care/statistics & Numerical Data
Terminally Ill/statistics & numerical data
United States/epidemiology
Urban SY
Weiner J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11324184" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11324184</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care on the net: an online survey of health care professionals
Publisher
An entity responsible for making the resource available
Journal Of Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Female; Male; Adult; Questionnaires; Aged; Middle Aged; Computer Communication Networks; Practice; Attitudes; Health Knowledge; Human; Databases; Periodicals; Attitude of Health Personnel; Attitude to Computers; Factual/utilization; Health Personnel/psychology/statistics & numerical data; Information Services/utilization; Internet/utilization; Nurses/psychology/statistics & numerical data; Online Systems/utilization; Pharmacists/psychology/statistics & numerical data; Physicians/psychology/statistics & numerical data; Terminal Care/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Pereira J; Bruera E; Quan H
Description
An account of the resource
A survey was conducted to explore Internet use by palliative care health professionals (HCP). The survey was placed on the World Wide Web with an underlying database, and palliative care HCP were invited to participate via a palliative-care-related website, listserv, and newsletter. A total of 417 evaluable responses were received over a four-month period. Of these, 36% indicated they were from physicians and 30% from nurses, a third of respondents were practicing palliative care full time. Although 63% of respondents were from North America, regions from all over the world were represented. Eighty-eight percent of respondents were searching the Internet for clinical information, 80% were using email, 69% were accessing online medical journals, and 59% were subscribers to a palliative-care-related listserv or newsgroup. This survey illustrates the global outreach of the Internet and draws attention to the growing interest in the use of the Internet for education, research, and clinical use. Further development of online resources should address the needs of users. Evaluation of these resources is called for.
2001
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adult
Aged
Attitude Of Health Personnel
Attitude to Computers
Attitudes
Backlog
Bruera E
Computer Communication Networks
Databases
Factual/utilization
Female
Health Knowledge
Health Personnel/psychology/statistics & numerical data
Human
Information Services/utilization
Internet/utilization
Journal Article
Journal Of Palliative Care
Male
Middle Aged
Nurses/psychology/statistics & numerical data
Online Systems/utilization
Pereira J
Periodicals
Pharmacists/psychology/statistics & numerical data
Physicians/psychology/statistics & numerical data
Practice
Quan H
Questionnaires
Terminal Care/statistics & Numerical Data
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-life Practices Among Tertiary Care Picus In The United States: A Multicenter Study
Publisher
An entity responsible for making the resource available
Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Adolescent;Cause Of Death;Child;Child Preschool;Female;Hospital Mortality;Humans;Infant;Intensive Care Units Pediatric;Length Of Stay;Male;Practice Patterns Physicians';Prospective Studies;Terminal Care/methods;Terminal Care/statistics & Numerical Data;Tertiary Healthcare;Tissue And Organ Procurement/statistics & Numerical Data;United States
Creator
An entity primarily responsible for making the resource
Meert KL; Keele L; Morrison W; Berg RA; Dalton H; Newth CJL; Harrison R; Wessel DL; Shanley T; Carcillo J; Clark A; Holubkov R; Jenkins T L; Doctor A; Dean JM; Pollack M
Description
An account of the resource
OBJECTIVE: To describe variability in end-of-life practices among tertiary care PICUs in the United States. DESIGN: Secondary analysis of data prospectively collected from a random sample of patients (n = 10,078) admitted to PICUs affiliated with the Collaborative Pediatric Critical Care Research Network between December 4, 2011, and April 7, 2013. SETTING: Seven clinical centers affiliated with the Collaborative Pediatric Critical Care Research Network. PATIENTS: Patients included in the primary study were less than 18 years old, admitted to a PICU, and not moribund on PICU admission. Patients included in the secondary analysis were those who died during their hospital stay. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: Two hundred and seventy-five (2.7%; range across sites, 1.3-5.0%) patients died during their hospital stay; of these, 252 (92%; 76-100%) died in a PICU. Discussions with families about limitation or withdrawal of support occurred during the initial PICU stay for 173 patients (63%; 47-76%; p = 0.27) who died. Of these, palliative care was consulted for 67 (39%; 12-46%); pain service for 11 (6%; 10 of which were at a single site); and ethics committee for six (3%, from three sites). Mode of death was withdrawal of support for 141 (51%; 42-59%), failed cardiopulmonary resuscitation for 53 (19%; 12-28%), limitation of support for 46 (17%; 7-24%), and brain death for 35 (13%; 8-20%); mode of death did not differ across sites (p = 0.58). Organ donation was requested from 101 families (37%; 17-88%; p < 0.001). Of these, 20 donated (20%; 0-64%). Sixty-two deaths (23%; 10-53%; p < 0.001) were medical examiner cases. Of nonmedical examiner cases (n = 213), autopsy was requested for 79 (37%; 17-75%; p < 0.001). Of autopsies requested, 53 (67%; 50-100%) were performed. CONCLUSIONS: Most deaths in Collaborative Pediatric Critical Care Research Network-affiliated PICUs occur after life support has been limited or withdrawn. Wide practice variation exists in requests for organ donation and autopsy.
Identifier
An unambiguous reference to the resource within a given context
10.1097/PCC.0000000000000520
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Adolescent
Berg RA
Carcillo J
Cause Of Death
Child
Child Preschool
Clark A
Dalton H
Dean JM
Doctor A
Female
Harrison R
Holubkov R
Hospital Mortality
Humans
Infant
Intensive Care Units Pediatric
Jenkins T L
July 2017 List
Keele L
Length Of Stay
Male
Meert KL
Morrison W
Newth CJL
Pediatric Critical Care Medicine
Pollack M
Practice Patterns Physicians'
Prospective Studies
Shanley T
Terminal Care/methods
Terminal Care/statistics & Numerical Data
Tertiary Healthcare
Tissue And Organ Procurement/statistics & Numerical Data
United States
Wessel DL
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Experiences In Palliative Home Care Of Infants With Life-limiting Conditions.
Publisher
An entity responsible for making the resource available
European Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Caregivers; Female; Germany; Home Care Services/statistics & Numerical Data; Hospitals Pediatric; Humans; Infant; Infant Mortality; Infant Newborn; Male; Palliative Care/statistics & Numerical Data; Patient Comfort/statistics & Numerical Data; Terminal Care/statistics & Numerical Data
Home Care; Infants; Life-limiting Conditions; Neonates; Palliative Care
Creator
An entity primarily responsible for making the resource
Kuhlen M; Höll J; Sabir H; Borkhardt A; Jansen G
Description
An account of the resource
Abstract
The aim of this study was to determine the distinct issues neonates/infants with life-limiting conditions and their families face during palliative home care and to enable physicians/caregivers to carefully address their needs. Data on home-based palliative care of all neonates and infants, who were being taken care of by our paediatric palliative care team between 2007 and 2014, was analysed. A total of 31 patients (pts) were analysed. The majority of patients (n = 17) were diagnosed with congenital malformations or chromosomal abnormalities. Twenty pts died, five of them in hospital. A high percentage of pts presented with swallowing incoordination (83.9%) and was fed either by nasogastric tube or percutaneous endoscopic gastrostomy. Of the pts, 71.0% were treated with analgesics, 45.2% were oxygen dependent, and 9.7% required mechanical ventilation. Highest mortality was seen in pts with perinatal complications (75%). In four (12.9%) pts, palliative home care could come to an end as their conditions substantially improved.
CONCLUSIONS:
Palliative treatment of neonates/very young infants with terminal conditions at home seems to be similar to that of older children and feasible in children even with unstable conditions. The spectrum of diagnoses, signs and symptoms varies from older children with swallowing incoordination and artificial nutrition being of particular importance.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1007/s00431-015-2637-y
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Borkhardt A
Caregivers
December 2016 List
European Journal of Pediatrics
Female
Germany
Höll J
Home Care
Home Care Services/statistics & Numerical Data
Hospitals Pediatric
Humans
Infant
Infant Mortality
Infant Newborn
Infants
Jansen G
Kuhlen M
Life-limiting Conditions
Male
Neonates
Palliative Care
Palliative Care/statistics & Numerical Data
Patient Comfort/statistics & Numerical Data
Sabir H
Terminal Care/statistics & Numerical Data