1
40
10
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1177/1049909109360410" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909109360410</a>
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Title
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Pediatric palliative care: feedback from the pediatric intensivist community
Publisher
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The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; United States; Intensive Care Units; Attitude of Health Personnel; Questionnaires; Attitude to Death; Professional-Family Relations; Professional Competence; Palliative Care/organization & administration; Continuity of Patient Care/organization & administration; Pediatrics/organization & administration; Pediatric/organization & administration; Terminal Care/organization & administration
Creator
An entity primarily responsible for making the resource
Jones PM; Carter BS
Description
An account of the resource
With the emergence of a more formalized field of pediatric palliative care (PPC), it is important for individuals and organizations involved in PPC to gather input from patients with life-threatening/life-limiting conditions, their families, and their health care providers. We report the results of a survey completed in late 2007 of the Section on Critical Care of the American Academy of Pediatrics (AAP). The 102 respondents provided information regarding their clinical and educational experiences, perceived barriers to the provision of palliative care in the intensive care environment, currently available PPC resources, and the usefulness of palliative care specialization in the pediatric intensive care unit.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909109360410" target="_blank" rel="noreferrer">10.1177/1049909109360410</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Attitude Of Health Personnel
Attitude To Death
Backlog
Carter BS
Child
Continuity Of Patient Care/organization & Administration
Humans
Intensive Care Units
Jones PM
Journal Article
Palliative Care/organization & Administration
Pediatric/organization & Administration
Pediatrics/organization & Administration
Professional Competence
Professional-family Relations
Questionnaires
Terminal Care/organization & Administration
The American Journal of Hospice & Palliative Care
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.prrv.2006.04.001" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.prrv.2006.04.001</a>
Dublin Core
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Title
A name given to the resource
Palliative care and paediatric respiratory medicine
Publisher
An entity responsible for making the resource available
Paediatric Respiratory Reviews
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Palliative Care/organization & administration; Respiratory Tract Diseases/complications/psychology/therapy; Terminal Care/organization & administration
Creator
An entity primarily responsible for making the resource
Collins JJ; Fitzgerald DA
Description
An account of the resource
Progressive respiratory failure is a common modality of death in children with a terminal illness. The management of respiratory failure, and in particular symptoms of dyspnoea and musculoskeletal chest pain in children receiving palliative care, remains challenging. The emergence of palliative care paediatricians and the application of non-invasive ventilation to children with progressive respiratory failure are the two major advances in the care of children with respiratory complaints in the palliative care setting. This article outlines current approaches to palliative care in children with progressive respiratory symptoms.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.prrv.2006.04.001" target="_blank" rel="noreferrer">10.1016/j.prrv.2006.04.001</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Backlog
Child
Collins JJ
Fitzgerald DA
Humans
Journal Article
Paediatric Respiratory Reviews
Palliative Care/organization & Administration
Respiratory Tract Diseases/complications/psychology/therapy
Terminal Care/organization & Administration
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j457v01n01_02" target="_blank" rel="noreferrer">http://doi.org/10.1300/j457v01n01_02</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Setting an agenda for social work in end-of-life and palliative care: an overview of leadership and organizational initiatives
Publisher
An entity responsible for making the resource available
Journal of Social Work in End-of-Life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Leadership; Cooperative Behavior; Interdisciplinary Communication; Organizational Innovation; Palliative Care/organization & administration; Terminal Care/organization & administration; Social Work/organization & administration
Creator
An entity primarily responsible for making the resource
Christ GH; Blacker S
Description
An account of the resource
This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in America, Open Society Institute's Social Work Leadership Development Award Program, and the 2002 Social Work Leadership Summit on End-of-Life and Palliative Care are reviewed.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j457v01n01_02" target="_blank" rel="noreferrer">10.1300/j457v01n01_02</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Backlog
Blacker S
Christ GH
Cooperative Behavior
Humans
Interdisciplinary Communication
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Leadership
Organizational Innovation
Palliative Care/organization & Administration
Social Work/organization & administration
Terminal Care/organization & Administration
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j457v01n02_05" target="_blank" rel="noreferrer">http://doi.org/10.1300/j457v01n02_05</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Social work and end-of-life care: reviewing the past and moving forward
Publisher
An entity responsible for making the resource available
Journal of Social Work in End-of-Life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Health Services Accessibility; Interdisciplinary Communication; Clinical Competence; Altruism; Practice; Attitudes; Health Knowledge; Terminal Care/organization & administration; Social Work/education/organization & administration
Creator
An entity primarily responsible for making the resource
Brandsen CK
Description
An account of the resource
This paper reviews the professional literature with respect to the social work profession's involvement in end-of-life care. The search process was conducted by entering key words in various combinations to electronic databases. Eligible articles were required to address one of the following: roles and activities of social workers in providing end-of-life care; core principles valued by social workers in the provision of end-of-life care; and barriers to provision of effective end-of-life care. The literature from 1990 through July 2004 was searched most rigorously. Based on this review, suggestions for where the profession of social work should focus its energies are offered. These key areas include focusing on generating empirically-based knowledge for practice and policy analysis and developing a system of social work education that addresses the unique knowledge and skills needed to participate in end-of-life practice as competent and informed professional practitioners. Current initiatives with regard to critical areas are summarized.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j457v01n02_05" target="_blank" rel="noreferrer">10.1300/j457v01n02_05</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Altruism
Attitudes
Backlog
Brandsen CK
Clinical Competence
Health Knowledge
Health Services Accessibility
Humans
Interdisciplinary Communication
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Practice
Social Work/education/organization & administration
Terminal Care/organization & Administration
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j457v01n04_04" target="_blank" rel="noreferrer">http://doi.org/10.1300/j457v01n04_04</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric palliative and end-of-life care: the role of social work in pediatric oncology
Publisher
An entity responsible for making the resource available
Journal of Social Work in End-of-Life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Pediatrics; Professional Role; Interdisciplinary Communication; Communication; Medical Oncology; Palliative Care/organization & administration; Family/psychology; Pain/drug therapy; Terminal Care/organization & administration; Patient Care Team/organization & administration; Social Work/organization & administration
Creator
An entity primarily responsible for making the resource
Jones BL
Description
An account of the resource
Pediatric oncology social workers are often engaged in the psychosocial care of dying children and their families. Despite their participation on the interdisciplinary team, the role for social work in pediatric palliative and end-of-life care has not been clearly defined. This survey of 131 pediatric oncology social workers identified current and best social work practices for care of children and their families at the end of life. Implications for practice, education, and research are discussed.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j457v01n04_04" target="_blank" rel="noreferrer">10.1300/j457v01n04_04</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Backlog
Communication
Family/psychology
Humans
Interdisciplinary Communication
Jones BL
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Medical Oncology
Pain/drug Therapy
Palliative Care/organization & Administration
Patient Care Team/organization & administration
Pediatrics
Professional Role
Social Work/organization & administration
Terminal Care/organization & Administration
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11969153" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11969153</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Paediatric respite care: A literature review from New Zealand
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Health Planning; Family Health; New Zealand; adolescent; Human; Quality of Health Care/standards; Terminal Care/organization & administration; Palliative Care/organization & administration; Respite Care/organization & administration
Creator
An entity primarily responsible for making the resource
Horsburgh M; Trenholme A; Huckle T
Description
An account of the resource
This paper reviews relevant international and New Zealand literature, policy documents and reports on respite provision for children who are dying and their families. The literature describes why respite care for children is necessary, and evaluates present respite services in accord with recent reports and literature. The service provisions needed for dying children and their families are explored, including suggestions for the improvement of services and future research. The literature reveals that, although respite care for terminally ill children and their families is necessary, service provisions are uncoordinated, not always culturally sensitive and very limited for children and their families. Improvement in paediatric respite services is necessary and research needs to be conducted in this area to facilitate the development of more appropriate respite services for children and their families.
2002
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adolescent
Backlog
Child
Family Health
Health Planning
Horsburgh M
Huckle T
Human
Journal Article
New Zealand
Palliative Care/organization & Administration
Palliative Medicine
Quality of Health Care/standards
Respite Care/organization & administration
Terminal Care/organization & Administration
Trenholme A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11702496" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11702496</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-life population study methods
Publisher
An entity responsible for making the resource available
Canadian Journal Of Public Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Canada; Registries; Human; Nova Scotia/epidemiology; Neoplasms/epidemiology; Vital Statistics; Community Health Planning/statistics & numerical data; Palliative Care/organization & administration; Population Surveillance/methods; Terminal Care/organization & administration
Creator
An entity primarily responsible for making the resource
Johnston GM; Burge FI; Boyd CJ; MacIntyre M
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2001
2001
Backlog
Boyd CJ
Burge FI
Canada
Canadian Journal Of Public Health
Community Health Planning/statistics & numerical data
Human
Johnston GM
Journal Article
MacIntyre M
Neoplasms/epidemiology
Nova Scotia/epidemiology
Palliative Care/organization & Administration
Population Surveillance/methods
Registries
Terminal Care/organization & Administration
Vital Statistics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11886054" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11886054</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Unique aspects of caring for dying children and their families
Publisher
An entity responsible for making the resource available
American Journal Of Hospice & Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Child; Program Evaluation; Hospitals; Family Health; Human; Home Care Services/organization & administration; Ohio; Terminal Care/organization & administration; Hospices/organization & administration; Pediatric/organization & administration
Creator
An entity primarily responsible for making the resource
Zwerdling T; Davies S; Lazar L; Crawford B; Tucker L; Boughner A; Richter-Beck L
Description
An account of the resource
Pediatric hospice has become an important service for children and their families in the past decade. In this article we present unique aspects of StarShine, the hospice of Children's Hospital Medical Center in Cincinnati, Ohio. Length-of-service data demonstrate the need to find innovative ways of encouraging earlier referral to hospice. Several specialized aspects of care, such as long-term bereavement, pet visitation and social services for the family are presented. The initiation of a novel in-home pain management program is described. StarShine has not followed an adult hospice model, and as such, we discuss those unique aspects of dying pediatric patients and suggest specific solutions and interventions designed for children.
2000
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
American Journal of Hospice & Palliative Medicine
Backlog
Boughner A
Child
Crawford B
Davies S
Family Health
Home Care Services/organization & administration
Hospices/organization & administration
Hospitals
Human
Journal Article
Lazar L
Ohio
Pediatric/organization & Administration
Program Evaluation
Richter-Beck L
Terminal Care/organization & Administration
Tucker L
Zwerdling T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Needs Of Children With Life-limiting Conditions: A Healthcare-provider-based Model
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Attitude Of Health Personnel; Child; Child Advocacy; Cluster Analysis; Decision Making; Family/psychology; Feasibility Studies; Health Services Accessibility/organization & Administration; Health Services Needs And Demand/organization & Administration; Humans; Medical Futility; Models Organizational; New York; Pain/prevention & Control; Patient Care Team/organization & Administration; Patient-centered Care/organization & Administration; Pediatrics/organization & Administration; Psychology Child; Qualitative Research; Quality Assurance Health Care; Quality Of Life; Right To Die; Spirituality; Terminal Care/organization & Administration
Creator
An entity primarily responsible for making the resource
Donnelly James P; Huff Susan M; Lindsey Michael L; McMahon Kathy A; Schumacher JDonald
Description
An account of the resource
Pediatric hospice and palliative care has progressed in recent years with the development of new programs and models of care. Missing from the empirical literature, however is a model of the needs of children. The purpose of the present study was to develop an empirically based conceptual model of the needs of children with life-limiting conditions. Recognizing the value of both qualitative and quantitative data, concept mapping methodology was selected as an effective way to obtain data that reflected both the "big picture" and subtleties of pediatric end-of-life needs. The seven-cluster concept map appeared best in terms of both interpretability and parsimony. This model includes the following clusters of needs: 1) pain, 2) decision making, 3) medical system access and quality, 4) dignity and respect, 5) family-oriented care, 6) spirituality, and 7) psychosocial issues. We believe that the development of a comprehensive model of the needs of such children is a step toward concrete, measurable, and effective support for children and their families.
Identifier
An unambiguous reference to the resource within a given context
10.1177/104990910502200406
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2005
Attitude Of Health Personnel
Child
Child Advocacy
Cluster Analysis
Decision Making
Donnelly James P
Family/psychology
Feasibility Studies
Health Services Accessibility/organization & administration
Health Services Needs And Demand/organization & Administration
Huff Susan M
Humans
Lindsey Michael L
May 2017 List
McMahon Kathy A
Medical Futility
Models Organizational
New York
Pain/prevention & control
Patient Care Team/organization & administration
Patient-Centered Care/organization & administration
Pediatrics/organization & Administration
Psychology Child
Qualitative Research
Quality Assurance Health Care
Quality Of Life
Right to Die
Schumacher JDonald
Spirituality
Terminal Care/organization & Administration
The American Journal of Hospice & Palliative Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Understanding Death With Limited Experience In Life: Dying Children's And Adolescents' Understanding Of Their Own Terminal Illness And Death
Publisher
An entity responsible for making the resource available
Current Opinion In Supportive And Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Adolescent; Attitude To Death; Child; Communication; Fear; Humans; Palliative Care/organization & Administration; Palliative Care/psychology; Professional-family Relations; Prognosis; Terminal Care/organization & Administration; Terminal Care/psychology; Terminally Ill/legislation & Jurisprudence; Terminally Ill/psychology; Time Factors
Creator
An entity primarily responsible for making the resource
Bates Alan T; Kearney Julia A
Description
An account of the resource
PURPOSE OF REVIEW: An up-to-date summary of the literature on children's and adolescents' understanding of their own terminal illness and death. RECENT FINDINGS: Clinicians still find it difficult to speak with pediatric patients about death even though guidelines for facilitating communication on the topic exist. As a result, pediatric patients are less likely to develop a clear understanding of their illness and there is a disconnect between clinicians and parents about prognosis, even when clinicians have concluded there is no longer possibility for cure. Insufficient communication and poor understanding may increase the risk of patients feeling isolated, mistrustful and anxious, and deprive them of a role model who can communicate about painful issues or share difficult feelings. Despite these complexities, young people often show remarkable resiliency in the face of death and want to get the most out of the remaining time they have. SUMMARY: In addition to these most recent findings, this review examines the challenges in researching this topic, obstacles to patients receiving information about prognosis, and how physical symptoms affect patients' ability to develop an understanding. It also reviews sources of insight into pediatric patients' understanding including the development of concepts of death, fears about their own death, legal interpretations of what patients understand, and how terminally ill young people continue to treasure life. It concludes by addressing ways clinicians can use the knowledge we have to communicate well with dying children and adolescents and their families.
Identifier
An unambiguous reference to the resource within a given context
10.1097/SPC.0000000000000118
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Adolescent
Attitude To Death
Bates Alan T
Child
Communication
Current Opinion in Supportive and Palliative Care
Fear
Humans
Kearney Julia A
May 2017 List
Palliative Care/organization & Administration
Palliative Care/psychology
Professional-family Relations
Prognosis
Terminal Care/organization & Administration
Terminal Care/psychology
Terminally Ill/legislation & jurisprudence
Terminally Ill/psychology
Time Factors