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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Developing World List
Text
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Citation List Month
Developing World 2019 List
URL Address
<a href="http://doi.org/10.1016/j.ejon.2018.11.005" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.ejon.2018.11.005</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Symptoms and management of children with incurable cancer in mainland China
Publisher
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European Journal of Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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Dnr; End-of-life care; Incurable tumor; Palliative care; Pediatric oncology; Retrospective; Terminal cancer
Creator
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Ye Z J; Zhang Z; Liang M Z; Liu X X; Sun Z; Zhao J J; Hu G Y; Yu Y L
Description
An account of the resource
PURPOSE: This study was designed to report information regarding symptomology of incurable pediatric cancer to promote proactive medicine and support for children and their families in the palliative phase in Mainland China. METHOD: A multi-center retrospective cohort study including 205 children who died from incurable cancer between June 2008 and September 2013 were analyzed. RESULTS: An incurable diagnosis was confirmed between 0 and 1726 (median, 279) days from initial diagnosis with death occurring between 1 and 239(median, 83) days. The most frequent symptoms were fatigue (93.7%), pain (87.3%), and poor appetite (76.1%). The earliest symptoms were pain and fatigue. Children with leukemia and lymphoma also complained early of nausea/vomiting, and children with solid tumors complained early of disturbed sleep. Later in the palliative phase, altered consciousness and seizures were found in children with central nervous system tumors and solid tumors, while children with leukemia and lymphoma were found to have fever, diarrhea, and bleeding. However, these symptoms only persisted for a short time. DNR discussions were held in 89 cases (43.4%) at a median of 37 (range, 4-178) days before death. A total of 154 patients (75.1%) died at home and 51 patients (24.9%) in the hospital. CONCLUSIONS: This study provides new knowledge about symptomology to health care professionals and parents of children in Mainland China. Given our results, an improved alternative care plan should be developed and implemented earlier to facilitate end-of-life planning.
Identifier
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<a href="http://doi.org/10.1016/j.ejon.2018.11.005" target="_blank" rel="noreferrer noopener">10.1016/j.ejon.2018.11.005</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Developing World 2019 List
Dnr
End-of-life Care
European Journal Of Oncology Nursing
Hu G Y
Incurable tumor
Liang M Z
Liu X X
Palliative Care
Pediatric Oncology
Retrospective
Sun Z
Terminal Cancer
Ye Z J
Yu Y L
Zhang Z
Zhao J J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/13576270310001659436" target="_blank" rel="noreferrer">http://doi.org/10.1080/13576270310001659436</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The importance of place of death in young adults with terminal cancer
Publisher
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Mortality
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
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Death; Neoplasms; cancer; location of death; Young adults; dying; Home Death; Place of Death; Terminal Cancer; Terminal Illness
Creator
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Grinyer A; Thomas C
Description
An account of the resource
This paper addresses issues relating to place of death in young adults with terminal cancer, through the perspectives of their parents. Evidence suggests that the majority of terminally ill cancer patients would prefer the option of a home death, but little is known about preferences among young adult cancer patients and their families. Through retrospective reflection by bereaved parents of young adults with cancer, this paper aims to understand the importance of place of death to this age group. The empirical data drawn on in this paper consist of accounts written by the parents of 13 young adults who died of cancer. A death at home is reported as a strongly held preference of the majority of young adults, and was supported by their parents. Eight of the 13 young adults were able to die at home, another wished to do so but died in a hospice. However, narratives describing death in places other than home signal that home may now always be the preferred or 'best' place to die. Life-stage factors do appear to play a role in determining both preference for, and the actual achievement of, a death at home, but if life stage issues are understood and respected a 'good' death can take place in other environments.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/13576270310001659436" target="_blank" rel="noreferrer">10.1080/13576270310001659436</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Cancer
Death
Dying
Grinyer A
Home Death
Journal Article
Location Of Death
Mortality
Neoplasms
Place Of Death
Terminal Cancer
Terminal Illness
Thomas C
Young Adults