1
40
5
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10474691" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10474691</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Lessons learned and not learned from the SUPPORT project
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Hospitalization; Adult; Euthanasia; Health Care Costs; quality of life; Randomized Controlled Trials; Human; decision making; Terminally Ill; Passive
Creator
An entity primarily responsible for making the resource
Teno JM
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1999
1999
Adult
Backlog
Decision Making
Euthanasia
Health Care Costs
Hospitalization
Human
Journal Article
Palliative Medicine
Passive
Quality Of Life
Randomized Controlled Trials
Teno JM
Terminally Ill
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0885-3924(98)00133-x" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0885-3924(98)00133-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Methodological challenges for measuring quality of care at the end of life
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Humans; Research Design; Quality of Life/psychology; Quality Assurance; Terminal Care/standards; Health Care/methods; Health Care/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Fowler FJ; Coppola KM; Teno JM
Description
An account of the resource
Measurement is a fundamental step in improving the quality of care for dying patients and their families. Yet, there are important methodological challenges to be addressed. In conducting surveys about the patient and family experience, research is needed regarding the relative merits and cost-effectiveness of prospective or retrospective surveys after the patient’s death. Proxies are an important source of information given that the majority of patients can not be interviewed in the last week of life. Research is needed to understand who is best able to serve as a proxy and the validity of their reports. The cost-effectiveness and comparability of alternative data collection strategies need to be examined. These and other important issues need to be addressed in designing reliable, valid, and clinically manageable measures.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0885-3924(98)00133-x" target="_blank" rel="noreferrer">10.1016/s0885-3924(98)00133-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Backlog
Coppola KM
Fowler FJ
Health Care/methods
Health Care/statistics & numerical data
Humans
Journal Article
Journal of Pain and Symptom Management
Quality Assurance
Quality Of Life/psychology
Research Design
Teno JM
Terminal Care/standards
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/0742-969x.1999.11882936" target="_blank" rel="noreferrer">http://doi.org/10.1080/0742-969x.1999.11882936</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Putting patient and family voice back into measuring quality care for the dying
Publisher
An entity responsible for making the resource available
The Hospice Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Creator
An entity primarily responsible for making the resource
Teno JM
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/0742-969x.1999.11882936" target="_blank" rel="noreferrer">10.1080/0742-969x.1999.11882936</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1999
1999
Backlog
Journal Article
Teno JM
The Hospice Journal
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.2009.109" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.2009.109</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Referring a patient and family to high-quality palliative care at the close of life: "We met a new personality... with this level of compassion and empathy"
Publisher
An entity responsible for making the resource available
Journal Of The American Medical Association
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Male; Middle Aged; Family Relations; Hospices; Quality of Health Care; Primary Health Care; patient care team; referral and consultation; empathy; Neoplasms; Palliative Care/standards; social support
Creator
An entity primarily responsible for making the resource
Teno JM; Connor SR
Description
An account of the resource
Palliative care services are increasingly available to primary care physicians for both expert consultations and services to seriously ill patients. The United States now has more than 1400 hospital-based palliative care teams and more than 4700 hospice programs. We use an illustrative case of a palliative care hospitalization and intervention for a middle-aged man with severe pain from spinal metastases to discuss 4 key questions that a primary care physician faces in caring for the seriously ill patient with difficult symptom management: (1) Should I refer a patient to a hospital-based palliative care team or to hospice services for difficult symptom management? (2) If the patient is referred to a hospital-based palliative care team, what should I, as the primary care physician, expect? (3) When should I refer to hospice services a patient initially referred to a hospital-based palliative care team? and (4) How can I choose a hospice program that will provide competent, coordinated, and compassionate patient- and family-centered care? Primary care physicians now may choose among hospice programs, and the programs may vary in their quality of care. Validated tools to measure patient and family perceptions of the quality of hospice care are now available but progress in defining and measuring the quality of hospice care is still needed before actionable information will be available to guide the choice of hospice programs for physicians and consumers.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.2009.109" target="_blank" rel="noreferrer">10.1001/jama.2009.109</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Backlog
Connor SR
Empathy
Family Relations
Hospices
Humans
Journal Article
Journal Of The American Medical Association
Male
Middle Aged
Neoplasms
Palliative Care/standards
Patient Care Team
Primary Health Care
Quality Of Health Care
Referral And Consultation
Social Support
Teno JM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0885-3924(98)00134-1" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0885-3924(98)00134-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Palliative Care; Terminal Care; Terminally Ill; Patients; Research Design; Quality of Health Care; quality of life
Creator
An entity primarily responsible for making the resource
Teno JM; Byock I; Field MJ
Description
An account of the resource
Despite the universality of dying, research has not focused on developing conceptual models and measurement tools for examining the quality of care and quality of life of dying patients and their loved ones. We present here a vision and research agenda for the development of a Tool Kit of Instruments to Measure End of Life Care (TIME). Instruments for inclusion in the eventual "Tool Kit" should be patient-focused and family-centered, clinically meaningful, administratively manageable, and psychometrically sound. Prioritizing domains to measure quality of care should be based on consumer input and synergistic with ongoing efforts to formulate guidelines and standards of care. For this vulnerable population, research is needed regarding the timing and sources of data collection. In order to achieve maximal benefit, ultimately measurement tools must be incorporated into existing measurement systems and consideration be given to generating informative reports which leads to institutional action to improve the quality of care. [References: 29]
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0885-3924(98)00134-1" target="_blank" rel="noreferrer">10.1016/s0885-3924(98)00134-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Backlog
Byock I
Field MJ
Journal Article
Journal of Pain and Symptom Management
Palliative Care
Patients
Quality Of Health Care
Quality Of Life
Research Design
Teno JM
Terminal Care
Terminally Ill