1
40
9
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August List 2023
URL Address
<a href="http://doi.org/10.1097/anc.0000000000001068" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/anc.0000000000001068</a>
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Title
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Assessing HeartSong as a Neonatal Music Therapy Intervention: A Qualitative Study on Personal and Professional Caregivers' Perspectives
Publisher
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Advances in Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Infant, Newborn; Child; Bereavement; Intensive Care Units, Neonatal; Interpersonal Relations; Attitude of Health Personnel; Qualitative Studies; Human; Support, Psychosocial; Music Therapy; Heart Rate; Telephone; Parental Attitudes; Memory; Thematic Analysis; Parental Role; Caregiver Attitudes; Semi-Structured Interview; In Infancy and Childhood; Attitude to Medical Treatment; Extended Family; Singing
Creator
An entity primarily responsible for making the resource
van Dokkum NH; Fagan LJ; Cullen M; Loewy JV
Description
An account of the resource
Abstract Background: The music therapy HeartSong intervention pairs newborn infant heartbeats with parents' Song of Kin. Formal evidence on professional and personal caregiver perspectives of this intervention is lacking. Purpose: This survey study evaluates the HeartSong music therapy intervention from parent and staff perspectives. Methods: A qualitative study assessing inclusion of HeartSong for family neonatal intensive care unit (NICU) care surveyed 10 professional caregivers comprising medical and psychosocial NICU teams anonymously reflecting their impressions of the intervention. Digital survey of parents/guardians contacted through semistructured phone interviews relayed impressions of recordings: subsequent setup, Song of Kin selection, and use of HeartSong, including thoughts/feelings about it as an intervention. Results: Professional and personal caregivers valued the HeartSong intervention for bereavement support, family support, including parental, extended family/infant support, and to enhance bonding. Emergent themes: memory-making, connectedness/closeness, support of parent role, processing mental health needs of stressful NICU days, and subsequent plans for lifelong HeartSong use. Therapeutic experience was named as a crucial intervention aspect and participants recommended the HeartSong as a viable, accessible NICU intervention. Implications for practice and research: HeartSong's use showed efficacy as a clinical NICU music therapy intervention for families of critically ill and extremely preterm infants, when provided by trained, specialized, board-certified music therapists. Future research focusing on HeartSong in other NICU populations might benefit infants with cardiac disease, parental stress, and anxiety attending to parent-infant bonding. Costs and time benefits related to investment are needed before implementation is considered.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/anc.0000000000001068" target="_blank" rel="noreferrer noopener">10.1097/anc.0000000000001068</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Advances in Neonatal Care
Attitude Of Health Personnel
Attitude to Medical Treatment
August List 2050
Bereavement
Caregiver Attitudes
Child
Cullen M
extended family
Fagan LJ
Heart Rate
Human
In Infancy and Childhood
Infant, Newborn
Intensive Care Units, Neonatal
Interpersonal Relations
Loewy JV
Memory
Music Therapy
Parental Attitudes
Parental Role
Qualitative Studies
Semi-Structured Interview
singing
Support, Psychosocial
Telephone
Thematic Analysis
van Dokkum NH
-
Dublin Core
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Title
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2020 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1089/jpm.2019.0163" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2019.0163</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program
Publisher
An entity responsible for making the resource available
Journal of palliative medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
child; human; palliative therapy; preschool child; controlled study; hospice; article; child parent relation; adolescent; Self Concept; anxiety; depression; distress syndrome; skill; metastasis; nurse; advanced cancer; feasibility study; disease course; telephone; program impact; psychological adjustment; tumor-related gene
Creator
An entity primarily responsible for making the resource
Lewis F M; Loggers E T; Phillips F; Palacios R; Tercyak K P; Griffith K A; Shands M E; Zahlis E H; Alzawad Z; Almulla H A
Description
An account of the resource
Background: In 2018, >75,000 children were newly affected by the diagnosis of advanced cancer in a parent. Unfortunately, few programs exist to help parents and their children manage the impact of advanced disease together as a family. The Enhancing Connections-Palliative Care (EC-PC) parenting program was developed in response to this gap.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2019.0163" target="_blank" rel="noreferrer noopener">10.1089/jpm.2019.0163</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adolescent
Advanced Cancer
Almulla H A
Alzawad Z
anxiety
Article
Child
Child Parent Relation
Controlled Study
Depression
Disease Course
Distress Syndrome
Feasibility Study
Griffith K A
Hospice
Human
Journal of Palliative Medicine
Lewis F M
Loggers E T
Metastasis
Nurse
Oncology 2020 List
Palacios R
Palliative Therapy
Phillips F
Preschool Child
program impact
psychological adjustment
Self Concept
Shands M E
Skill
Telephone
Tercyak K P
tumor-related gene
Zahlis E H
-
Dublin Core
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Title
A name given to the resource
November 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2019 List
URL Address
<a href="http://doi.org/10.7748/ncyp.2019.e1199" target="_blank" rel="noreferrer noopener">http://doi.org/10.7748/ncyp.2019.e1199</a>
Dublin Core
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Title
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Approaches to community-based palliative care provision by children's hospices in the UK
Publisher
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Nursing children and young people.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
advance care planning; child health; palliative nursing; article; child; controlled study; female; human; human experiment; Internet; major clinical study; male; out-of-hours care; prescription; questionnaire; registered nurse; telephone; workforce
Creator
An entity primarily responsible for making the resource
Tatterton MJ
Description
An account of the resource
The number of children in the UK with life-limiting conditions and the demand for home-based palliative care is increasing. Children's hospices remain a dominant provider of palliative care. This study aimed to determine the approaches taken by children's hospices across the UK in meeting the planned and unplanned health needs of children and their families who receive palliative care at home. In addition, the survey aimed to identify the professional composition of community teams and the number of children and families supported by each service. An internet-based questionnaire survey was sent to all children's hospices in the UK, comprising ten questions exploring the size of the team, geographical areas covered, workforce composition, services offered and approaches to managing unplanned, out of hours care. Responses were received from 14 (26%) of the hospices. A total of 1,618 children and their families were being cared for by these hospices, of whom 825 received care at home. Registered nurses constituted the greatest proportion of staff and were employed by all teams. Care provided at home was broadly split into two categories: planned short breaks and responsive palliative nursing. The latter comprised advance care planning, anticipatory prescribing and active symptom control. Out of hours care was usually offered in the form of telephone support. Models of community-based care are evolving to include nurses practising at specialist and advanced levels, allowing more children with increasingly complex conditions to be cared for at home.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7748/ncyp.2019.e1199" target="_blank" rel="noreferrer noopener">10.7748/ncyp.2019.e1199</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Advance Care Planning
Article
Child
Child Health
Controlled Study
Female
Human
Human Experiment
Internet
Major Clinical Study
Male
November 2019 List
Nursing children and young people.
out-of-hours care
palliative nursing
prescription
Questionnaire
registered nurse
Tatterton MJ
Telephone
workforce
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2018 List
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2018 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2018-rcpch.421" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2018-rcpch.421</a>
Dublin Core
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Title
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Development of symptom assessment service at a children's hospice
Publisher
An entity responsible for making the resource available
Archives of Disease in Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
hospice; symptom assessment; central nervous system; child; clinical article; conference abstract; disability; female; health care personnel; human; male; medical assessment; medical record review; molecular recognition; nursing; patient referral; retrospective study; staff; telephone
Creator
An entity primarily responsible for making the resource
Balfe JM; Cassidy M; Booth A
Description
An account of the resource
Background and aims High symptom burden has been recognised in children with life-limiting conditions (LLC) and symptom assessment and management is a core component of children's palliative care (CPC). A previous audit highlighted a high prevalence of problematic symptoms in children accessing the hospice service prompting the development a symptom management team led by a paedi-atric consultant and CNS in CPC in spring 2016. All children in the earlier audited were in ACT category 3 and 4 and had diagnoses of severe disability with associated complex medical needs. This report aims to describe the development of the service and provide data from the first year's activity. Methods A record of all referrals to the team has been main-tained since its inception. A retrospective chart review was performed and data was collected and recorded on an excel spreadsheet. Data recorded included description of problematic symptoms, team members involved and intervention required. Results Referrals to the team are accepted from nursing and healthcare staff involved in the care of the child. A care pathway, symptom assessment tools and symptoms management plans have been developed. To date 39 children have received support from the team, 7 of the children have died since referral. The CNS, wider nursing and multi-disciplinary team have supported all children referred. Medical assessment has been provided to 30 children. 25 children were offered a short break in the hospice to allow careful evaluation of symptoms using formal symptom assessment tools. All children were provided with a symptom management plan and on-going support, at home, in the hospice or by telephone, individualised according to identified need. Parental and healthcare professional feedback has been positive. Conclusion This report describes the initial establishment of a symptom assessment service in a children's hospice. The service has been developed in recognition of the high burden of problematic symptoms in children with severe disability and complex medical needs. It is anticipated that the service will continue to develop to meet the increasing needs of children with LLCs.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2018-rcpch.421" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2018-rcpch.421</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Archives of Disease in Childhood
Balfe JM
Booth A
Cassidy M
Central Nervous System
Child
Clinical Article
conference abstract
Disability
Female
Health Care Personnel
Hospice
Human
June 2018 List
Male
medical assessment
Medical Record Review
molecular recognition
Nursing
Patient Referral
Retrospective Study
Staff
Symptom Assessment
Telephone
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2009.0295" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2009.0295</a>
Dublin Core
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Title
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Family support in pediatric palliative care: how are families impacted by their children's illnesses?
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; Young Adult; Adult; Health Care Surveys; Parent-Child Relations; Professional-Family Relations; Program Evaluation; Multivariate Analysis; Psychometrics; Florida; Regression Analysis; quality of life; adolescent; Preschool; Adaptation; Psychological; Palliative Care/organization & administration; infant; social support; Pediatrics/organization & administration; Telephone
Creator
An entity primarily responsible for making the resource
Knapp CA; Madden VL; Curtis CM; Sloyer P; Shenkman EA
Description
An account of the resource
CONTEXT: Palliative care programs have the opportunity to intercede and provide supportive care to parents whose families have been impacted by their children's illnesses. By understanding how families are impacted, programs can refine their service provision and investigate unmet needs. OBJECTIVE: To determine how families are impacted and what factors are associated with greater impact. DESIGN: 2008 cross-sectional telephone survey. SETTING: Florida. PATIENTS: Eighty-five parents whose children had life-limiting illnesses and were enrolled in Florida's publicly funded pediatric palliative care program. MAIN OUTCOME MEASURE: The Impact on Family (IOF) Scale. RESULTS: The majority of parents who responded to the survey are white non-Hispanic (56%), married (54%), had graduated from college (33%), and live in a two-parent household (60%). For 11 of the 15 IOF questions, the results showed that 50% or more of parents agreed with items on the IOF. For example, 71% of parents indicated that their family had to give things up as a result of their children's illnesses. Multivariate analysis showed that having depressive symptoms was associated with greater impact on the family. CONCLUSION: Our findings stress the importance of considering the needs of all family members when providing care to children and understanding and attempting to address family member's needs that may not be covered by pediatric palliative care services. Particular attention should be paid to parents with depressive symptoms, because they can receive supportive care in their children's pediatric palliative care programs.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2009.0295" target="_blank" rel="noreferrer">10.1089/jpm.2009.0295</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adaptation
Adolescent
Adult
Backlog
Child
Cross-sectional Studies
Curtis CM
Female
Florida
Health Care Surveys
Humans
Infant
Journal Article
Journal of Palliative Medicine
Knapp CA
Madden VL
Male
Multivariate Analysis
Palliative Care/organization & Administration
Parent-child Relations
Pediatrics/organization & Administration
Preschool
Professional-family Relations
Program Evaluation
Psychological
Psychometrics
Quality Of Life
Regression Analysis
Shenkman EA
Sloyer P
Social Support
Telephone
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1155/2007/185863" target="_blank" rel="noreferrer">http://doi.org/10.1155/2007/185863</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Data equivalency of an interactive voice response system for home assessment of back pain and function
Publisher
An entity responsible for making the resource available
Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; Adult; Longitudinal Studies; Disability Evaluation; Telephone; Data Collection/methods; Automation; Back Pain/physiopathology; Evaluation Studies as Topic
Creator
An entity primarily responsible for making the resource
Shaw WS; Verma SK
Description
An account of the resource
BACKGROUND: Interactive voice response (IVR) systems that collect survey data using automated, push-button telephone responses may be useful to monitor patients' pain and function at home; however, its equivalency to other data collection methods has not been studied. OBJECTIVES: To study the data equivalency of IVR measurement of pain and function to live telephone interviewing. METHODS: In a prospective cohort study, 547 working adults (66% male) with acute back pain were recruited at an initial outpatient visit and completed telephone assessments one month later to track outcomes of pain, function, treatment helpfulness and return to work. An IVR system was introduced partway through the study (after the first 227 participants) to reduce the staff time necessary to contact participants by telephone during nonworking hours. RESULTS: Of 368 participants who were subsequently recruited and offered the IVR option, 131 (36%) used IVR, 189 (51%) were contacted by a telephone interviewer after no IVR attempt was made within five days, and 48 (13%) were lost to follow-up. Those with lower income were more likely to use IVR. Analysis of outcome measures showed that IVR respondents reported comparatively lower levels of function and less effective treatment, but not after controlling for differences due to the delay in reaching non-IVR users by telephone (mean: 35.4 versus 29.2 days). CONCLUSIONS: The results provided no evidence of information or selection bias associated with IVR use; however, IVR must be supplemented with other data collection options to maintain high response rates.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1155/2007/185863" target="_blank" rel="noreferrer">10.1155/2007/185863</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adult
Automation
Back Pain/physiopathology
Backlog
Data Collection/methods
Disability Evaluation
Evaluation Studies as Topic
Female
Humans
Journal Article
Longitudinal Studies
Male
Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur
Shaw WS
Telephone
Verma SK
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2004.09.002" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2004.09.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A comparison between telephone and bedside consultations given by palliative care consultation teams in the Netherlands: results from a two-year nationwide registration
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
patient care team; Adolescent Adult Aged Aged; PedPal Lit; methods; 80 and over Child Child; methods Male Middle Aged Netherlands Palliative Care/; Preschool Comparative Study Female Humans Interviews/; Referral and Consultation Registries; Telephone
Creator
An entity primarily responsible for making the resource
Schrijnemaekers V; Courtens A; Kuin A; van der Linden B; Vernooij-Dassen M; van Zuylen L; van den Beuken M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2004.09.002" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2004.09.002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
80 and over Child Child
Adolescent Adult Aged Aged
Backlog
Courtens A
Journal Article
Journal of Pain and Symptom Management
Kuin A
Methods
methods Male Middle Aged Netherlands Palliative Care/
Patient Care Team
PedPal Lit
Preschool Comparative Study Female Humans Interviews/
Referral and Consultation Registries
Schrijnemaekers V
Telephone
van den Beuken M
van der Linden B
van Zuylen L
Vernooij-Dassen M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1440-1754.2002.00766.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1440-1754.2002.00766.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Telephone reminders improve adolescent clinic attendance: a randomized controlled trial
Publisher
An entity responsible for making the resource available
Journal Of Paediatrics And Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Victoria; adolescent; Adolescent Transitions; Telephone; Ambulatory Care Facilities/statistics & numerical data/utilization; Appointments and Schedules; Reminder Systems
Creator
An entity primarily responsible for making the resource
Sawyer SM; Zalan A; Bond LM
Description
An account of the resource
OBJECTIVES: To measure the effect of telephone reminders on adolescent clinic attendance. METHODS: Clinic bookings of adolescents were randomly assigned to either a telephone reminder one day prior to their appointment, or a routine booking (no reminder). The setting was four general adolescent health clinics within a tertiary public adolescent health care service at the Centre for Adolescent Health. The main outcome measures were clinic non-attendance, reason for non-attendance, and satisfaction with the booking system. RESULTS: One hundred and seventy one adolescent appointments were studied. Of these, 51.5% were female, and 25% of bookings were for new, rather than review appointments. One hundred and one adolescents were randomly allocated to the reminder group, of whom 87% were contacted. The use of reminders (intention to treat analysis) significantly reduced the non-attendance rate from 20% to 8% (odds ratio 0.35; P = 0.03). Non-attendance was three times more likely for a new appointment than for review appointments. 'Forgetting' was the most common explanation given by patients (35%) who did not attend. Seventy-nine per cent of parents reported telephone reminders were helpful at prompting attendance. CONCLUSION: Telephone reminders greatly improved attendance at these adolescent clinics. The background non-attendance rate and the proportion of high-risk patients for non-attendance (new appointments in this setting) will determine whether reminders are more efficiently targeted at specific bookings than used routinely.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1440-1754.2002.00766.x" target="_blank" rel="noreferrer">10.1046/j.1440-1754.2002.00766.x</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adolescent
Adolescent Transitions
Ambulatory Care Facilities/statistics & numerical data/utilization
Appointments and Schedules
Backlog
Bond LM
Female
Humans
Journal Article
Journal of Paediatrics and Child Health
Male
Reminder Systems
Sawyer SM
Telephone
Victoria
Zalan A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.1002/pbc.26591" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.26591</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric palliative care (PPC) access in Chile: Private practice health insurance law implementation
Publisher
An entity responsible for making the resource available
Pediatric Blood And Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Chile;health Insurance;palliative Therapy;private Practice; Analgesia; Central Nervous System Tumor; Child; Clinical Article; Counseling; Diagnosis; Doctor Patient Relation; Female; Home Visit; Human; Leukemia; Nurse; Outpatient; Overall Survival; Psychologist; School Child; Telephone
Creator
An entity primarily responsible for making the resource
Rojas N; Rosas A; Araya E; Varela J; Lopez P; Gallastegui A
Description
An account of the resource
Background: There are 600 new pediatric cancer cases in Chile in a year, with an overall survival of 70% and there are two systems that guarantee the access for patients to health providers: The public system, or national health fund (FONASA), and the private one, supported by insurance health institutions (ISAPRES), both financed by employees or contributors. Today in Chile the distribution of the population between both systems is 75% and 25% respectively. In 2004, in Chile, was enacted the law number 19.966 of explicit health guarantees (GES), that forces health systems to provide contributors the access, along with many other pathologies, to palliative care and pain relief for oncologic patients, despite the age. PPC is well developed and provided in the public system, but no precedents have being settled in the private area. Objectives: To show the results of the first PPC team focused on the private practice in Chile. Design/Method: According to data published by Chilean ministry of health pain relief and palliative care program, extrapolating the patient distribution in the private practice area, and assuming a similar overall survival, the estimated number of patients that could be beneficiated by this program should be between 20 and 25 per year. We count on an interdisciplinary team (nurses, kinesiologist, psychologist and physicians) able to offer care according to each patient needs: Home visit, outpatient consultation, telephone assistance, treating teams counseling, supplies provision, etc. Demographics and charateristics of our group are presented. Results: In the first 13 months of functioning, 21 cases have been evaluated (including 2 non oncologic patients) and 14 of them have been admitted to the program. Aveerage age of 8.6 years old. 8 female. Time fromadmission to program of 5 months (range 0.2-20) central nervous system tumors and relapsed leukemias are the main diagnoses. Conclusion: Chilean law guarantees a benefit to patients but their access is not properly assured. The mission of our team is to provide integral care to this patients and to become a reference team for the health insurance institions and their affiliated.
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<a href="http://doi.org/10.1002/pbc.26591" target="_blank" rel="noreferrer">10.1002/pbc.26591</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Analgesia
Araya E
Central Nervous System Tumor
Child
Chile
Clinical Article
Counseling
Diagnosis
Doctor Patient Relation
Female
Gallastegui A
health Insurance
Home Visit
Human
Leukemia
Lopez P
Nurse
Outpatient
Overall Survival
Palliative Therapy
Pediatric Blood and Cancer
private Practice
Psychologist
Rojas N
Rosas A
School Child
Telephone
Varela J