1
40
1
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2012.0494" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2012.0494</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Promoting resilience among parents and caregivers of children with cancer
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; bereavement; Neoplasms; Terminal Care; Adult; Parents; Aged; Middle Aged; caregivers; Qualitative Research; Hospitals; Washington; Preschool; Psychological; Parent caregivers; Resilience; Urban
Creator
An entity primarily responsible for making the resource
Rosenberg AR; Baker KS; Syrjala KL; Back AL; Wolfe J
Description
An account of the resource
BACKGROUND: Promoting resilience is an aspect of psychosocial care that affects patient and whole-family well-being. There is little consensus about how to define or promote resilience during and after pediatric cancer. OBJECTIVES: The aims of this study were (1) to review the resilience literature in pediatric cancer settings; (2) to qualitatively ascertain caregiver-reported perceptions of resilience; and (3) to develop an integrative model of fixed and mutable factors of resilience among family members of children with cancer, with the goal of enabling better study and promotion of resilience among pediatric cancer families. METHODS: The study entailed qualitative analysis of small group interviews with eighteen bereaved parents and family members of children with cancer treated at Seattle Children's Hospital. Small-group interviews were conducted with members of each bereaved family. Participant statements were coded for thematic analysis. An integrative, comprehensive framework was then developed. RESULTS: Caregivers' personal appraisals of the cancer experience and their child's legacy shape their definitions of resilience. Described factors of resilience include baseline characteristics (i.e., inherent traits, prior expectations of cancer), processes that evolve over time (i.e., coping strategies, social support, provider interactions), and psychosocial outcomes (i.e., post-traumatic growth and lack of psychological distress). These elements were used to develop a testable model of resilience among family members of children with cancer. CONCLUSIONS: Resilience is a complex construct that may be modifiable. Once validated, the proposed framework will not only serve as a model for clinicians, but may also facilitate the development of interventions aimed at promoting resilience in family members of children with cancer.
2013-06
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2012.0494" target="_blank" rel="noreferrer">10.1089/jpm.2012.0494</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Adult
Aged
Back AL
Backlog
Baker KS
Bereavement
Caregivers
Child
Female
Hospitals
Humans
Journal Article
Journal of Palliative Medicine
Male
Middle Aged
Neoplasms
Parent caregivers
Parents
Preschool
Psychological
Qualitative Research
Resilience
Rosenberg AR
Syrjala KL
Terminal Care
Urban
Washington
Wolfe J
Young Adult