1 40 2 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Backlog URL Address <a href="http://doi.org/10.1542/peds.2012-2990" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2012-2990</a> <a href="http://pediatrics.aappublications.org/content/132/3/e727" target="_blank" rel="noreferrer">http://pediatrics.aappublications.org/content/132/3/e727</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Outcomes of Children With Severe Bronchopulmonary Dysplasia Who Were Ventilator Dependent at Home Publisher An entity responsible for making the resource available Pediatrics Date A point or period of time associated with an event in the lifecycle of the resource 2013 Subject The topic of the resource bronchopulmonary dysplasia; outcome; home; positive pressure ventilation; Tracheostomy Creator An entity primarily responsible for making the resource Cristea AI; Carroll AE; Davis SD; Swigonski NL; Ackerman VL Description An account of the resource OBJECTIVE: To describe the incidence and outcomes of children with chronic respiratory failure secondary to severe bronchopulmonary dysplasia (BPD) on chronic positive pressure ventilation (PPV) via tracheostomy at home. METHODS: We retrospectively reviewed medical charts of patients with severe BPD who were PPV dependent at home and who were enrolled in a university-affiliated home ventilator program between 1984 and 2010. We excluded patients with other comorbidities that could contribute to the development of chronic respiratory failure. We reported the incidence of these children in Indiana and cumulative incidences of survival, liberation from PPV, and decannulation. RESULTS: Over 27 years, 628 children were cared for in our home ventilator program. Of these, 102 patients met inclusion criteria: 83 (81.4%) were alive and 19 (18.6%) were deceased. Sixty-nine patients (67.6%) were liberated from PPV, and 97.1% of them were weaned before their fifth birthday, with a median age at liberation of 24 months (interquartile range, 19–33). Similarly, 60 patients (58.8%) were decannulated, of which 96.7% completed this process before their sixth birthday, with a median age at decannulation of 37.5 months (interquartile range, 31.5–45). The incidence of children with chronic respiratory failure secondary to BPD who were PPV-dependent at home in Indiana was 1.23 per 100 000 live births in 1984 and increased to 4.77 per 100 000 live births in 2010. CONCLUSIONS: Although extreme prematurity associated with severe BPD necessitating PPV at home carries significant risks of morbidity and mortality, successful liberation from mechanical ventilation and decannulation are likely to occur. 2013-09 Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1542/peds.2012-2990" target="_blank" rel="noreferrer">10.1542/peds.2012-2990</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Type The nature or genre of the resource Journal Article 2013 Ackerman VL Backlog Bronchopulmonary Dysplasia Carroll AE Cristea AI Davis SD Home Journal Article Outcome Pediatrics positive pressure ventilation Swigonski NL Tracheostomy Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Backlog URL Address <a href="http://doi.org/10.1542/peds.113.3.e159" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.113.3.e159</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Transition to adulthood: the important role of the pediatrician Publisher An entity responsible for making the resource available Pediatrics Date A point or period of time associated with an event in the lifecycle of the resource 2004 Subject The topic of the resource Child; Humans; Pediatrics; Physician's Role; Developmental Disabilities; Child Development; adolescent; Preschool; infant; Adolescent Transitions; Chronic disease; Adolescent Development; disabled children Creator An entity primarily responsible for making the resource Olsen DG; Swigonski NL Description An account of the resource This article, written by a parent of 2 youths with special health care needs and a pediatrician, builds on the Medical Home framework to give concrete examples of what physicians and families can and should do to prepare families for transition(s). The article consists of 3 parts. The first part is an introduction giving an overview of the importance of transition. "Developing a Life (not Illness) Plan: Begin With the End in Mind," emphasizes that no matter how challenging the disability or compromising the chronic illness, we owe it to our children to take the risk of thinking about the future and beginning to help them to develop a life (not illness) plan. The third part, "With a Little Help from My Friends," looks at how linking families with other parents, young adults, and adults living with disabilities and serious chronic illness can be a source of information to both families and physicians as they plan for the future. 2004 Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1542/peds.113.3.e159" target="_blank" rel="noreferrer">10.1542/peds.113.3.e159</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Type The nature or genre of the resource Journal Article 2004 Adolescent Adolescent Development Adolescent Transitions Backlog Child Child Development Chronic Disease Developmental Disabilities Disabled Children Humans Infant Journal Article Olsen DG Pediatrics Physician's Role Preschool Swigonski NL