Browse Items (75 total)
- Tags: Support
Current Grief Support in Pediatric Palliative Care
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino MK, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Funding Source, Health Resource Utilization, Hutchinson R, McCaffery H, Midwestern United States, Parental Attitudes – Evaluation, Patient Preference, Paul TK, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig LK, Shared, Spruit JL, Support, Terminal Care – In Infancy and Childhood
Parental experience of child death in the paediatric intensive care unit: A scoping review
Identifying as a Good Parent: Considering the Communication Theory of Identity for Parents of Children Receiving Palliative Care
Tags: 2021, 2022 Special Edition 2 - Parent Perspectives, Adolescence, Child, Communication, compassion, Conceptual Framework, Coping, Family Centered Care, Hecht ML, Hinds PS, Journal of Palliative Medicine, Kellas JK, Male, Palliative Care, Parental Attitudes, Parenting, Parents, Pediatric Care, Personality, Professional-family Relations, Social Identity, Stress, Support, Theoretical models, Weaver MS
Efficacy of psychotropic drugs for reducing self-injurious behavior in the developmental disabilities
Tags: 1993, Adrenergic beta-Antagonists/tu [Therapeutic Use], Aman MG, Annals Of Clinical Psychiatry : Official Journal Of The American Academy Of Clinical Psychiatrists, Anti-Anxiety Agents/tu [Therapeutic Use], Antidepressive Agents/cl [Classification], Antidepressive Agents/tu [Therapeutic Use], Antipsychotic Agents/ad [Administration & Dosage], Antipsychotic Agents/pd [Pharmacology], Antipsychotic Agents/tu [Therapeutic Use], Backlog, Comparative Study, Dopamine/me [Metabolism], Female, Human, Journal Article, Lithium Carbonate/tu [Therapeutic Use], Male, Mental Retardation/co [Complications], Mental Retardation/di [Diagnosis], Naloxone/tu [Therapeutic Use], Naltrexone/tu [Therapeutic Use], P.H.S., Receptors, Self-Injurious Behavior/co [Complications], Self-Injurious Behavior/dt [Drug Therapy], Support, Treatment Outcome, U.S. Gov't
The Role of Palliative Care in Caring for the Families of Patients With COVID-19
Tags: 2020, American Journal Of Hospice And Palliative Care, Bakar M, Betacoronavirus, Capano E, Child, Child Care, Communication, Coronavirus Infections/*therapy, COVID-19, Decision-making, Distress, Family, Family/psychology, Humans, McIntyre B, Palliative Care/methods, Pandemics, Pastoral Care, Patterson M, Pneumonia, September 2020 List, Social Work, Support, Viral/*therapy, Walsh C J
Comparison of morphine and methadone for prevention of postoperative pain in 3- to 7-year-old children
Tags: 1991, algorithms, Analysis of Variance, Backlog, Berde CB, Beyer JE, Bournaki MC, Child, Comparative Study, Double-Blind Method, Drug Evaluation, Female, Human, Intraoperative Care, Journal Article, Journal of Pediatrics, Levin CR, Male, Methadone/adverse effects/pharmacokinetics/therapeutic use, Morphine/adverse effects/therapeutic use, Non-U.S. Gov't, Pain, Pain Measurement, Postoperative/prevention & control, Preschool, Prospective Studies, Sethna NF, Support
Audit of deaths in general practice: pilot study of the critical incident technique
Tags: 1992, Backlog, Berlin A, Bhopal RS, Cause Of Death, Data Collection, England, Family Practice/standards, Health Services Research/methods, Human, Journal Article, Medical Audit/methods, Non-U.S. Gov't, Pilot Projects, Primary Health Care/standards, Quality In Health Care, Spencer JA, Support, Urban Population, van Zwanenberg TD
An overview of contemporary social work practice in palliative care.
Tags: 2010, 80 And Over, Access To Information, Adolescence, Aged, Backlog, Bosma H, Cadell S, Canada, Collaboration, Commitment, Communities, Decision Making, Education, Evaluation, Female, Goals and Objectives, Health Care Delivery, Hospices, Johnston M, Journal Article, Knowledge, Male, Multidisciplinary Care Team, Palliative Care, Patient Advocacy, Patient Care Plans, PPC Book Chapter 2011 (Kim Widger), Progress In Palliative Care, psychosocial, Reflection, Research, Role, Social Values, Social Work, Support, Wainright W
Helping Families Cope With The Severe Stress Of Dravet Syndrome.
A child with Dravet syndrome shakes family life to the core. Dravet syndrome usually has three phases: (1) up to 1-1½ years: with episodes of febrile status epilepticus but normal development; (2) age 1½ to ~6-10 years: with frequent…
Tags: 2016, Camfield C, Camfield P, Canadian Journal of Neurological Sciences, Dravet Syndrome, Epilepsies, Epilepsies Myoclonic/physiopathology, Epilepsies Myoclonic/psychology, Family, Family Health, Female, Help, Humans, June 2016 List, Male, Management, Myoclonic/nursing, Nolan K, Stress Psychological/etiology, Support, Transition To Adult Care
Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study
Speaking a Different Language: A Qualitative Analysis Comparing Language of Palliative Care and Pediatric Intensive Care Unit Physicians
Tags: 2017, American Journal of Hospice & Palliative Medicine, April 2018 List, Audiorecording, Child, Ciriello AG, Communication, Content Analysis, Critical Care, Descriptive Statistics, Dizon Zoelle B, Female, field notes, Fisher's Exact Test, Funding Source, Human, In Infancy and Childhood, Inpatients, Intensive Care Units, Kappa Statistic, Language, Male, Mann-Whitney U Test, October Tessie W, Palliative Care, Patient-Family Conferences, Pediatric, Physicians, Preschool, psychosocial, Record Review, Retrospective Design, Support
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Tags: 1995, 80 And Over, Adult, Aged, Backlog, Bui F, Cohen SR, Comparative Study, Female, Human, Journal Article, Karnofsky Performance Status, Male, Middle Age, Mount BM, Neoplasms/psychology/therapy, Non-U.S. Gov't, Palliative Care, Palliative Medicine, Predictive Value of Tests, Quality Of Life, Questionnaires, Reproducibility of Results, Strobel MG, Support
Lived Experiences Of Parents Caring For A Child With A Life-limiting Condition In Australia: A Qualitative Study.
Experiential studies in paediatric palliative care are needed to enable an ongoing international agenda which supports the development of responsive family supports.
AIM:
To provide an in-depth exploration of the prevalent lived…
Tags: 2016, Cancer, Caregiver, Caregivers, Collins A, Experiences, Families, Health Care Sciences & Services, Hennessy-Anderson N, Hosking S, Hynson J, Illness, Impact, Journal of Palliative Medicine, Life-limiting Conditions, March 2016 List, Medicine General & Internal, Of-life, Pediatric Palliative Care, Public, Public Environmental & Occupational Health, Qualitative, Remedios C, Services, Support, Thomas K, Threatening Conditions
Massive opioid resistance in an infant with a localized metastasis to the midbrain periaqueductal gray
Tags: 1995, Analgesics, Backlog, Berde CB, Brain Neoplasms/congenital/drug therapy/pathology/secondary, Case Report, Collins J J, Dose-Response Relationship, Drug, Drug Resistance, Grier HE, Human, Hypnotics and Sedatives/therapeutic use, Infant, Journal Article, Kinney HC, Male, Mesencephalon, Morphine/therapeutic Use, Nachmanoff DB, Newborn, Non-U.S. Gov't, Opioid/therapeutic use, Pain, Palliative Care, Periaqueductal Gray, Rhabdoid Tumor/congenital/drug therapy/pathology/secondary, Support
Control of severe pain in children with terminal malignancy
Tags: 1995, Adolescence, Analgesia/methods, Backlog, Berde CB, Child, Collins J J, Female, Grier HE, Human, Infant, Infusions, Journal Article, Journal of Pediatrics, Kinney HC, Male, Morphine/administration & dosage/therapeutic use, Neoplasms/physiopathology, Non-U.S. Gov't, Pain/drug Therapy, Palliative Care/methods, Parenteral, Preschool, Retrospective Studies, Support, Terminal Care
A measure of the quality of dying and death. Initial validation using after-death interviews with family members
Tags: 2002, Aged, Asp C, Attitude To Death, Backlog, Byock I, Cohort Studies, Curtis JR, Death, Engelberg RA, Family, Female, Human, Interviews, Journal Article, Journal of Pain and Symptom Management, Male, Middle Age, Non-U.S. Gov't, Norris K, Patrick DL, Personal Satisfaction, Quality Of Life, Questionnaires/standards, Retrospective Studies, Support, Terminal Care
Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS
Tags: 2002, Acquired Immunodeficiency Syndrome/psychology, Aged, Ambrozy DM, Attitude To Death, Backlog, Carline JD, Chest, Chronic Obstructive/psychology, Clinical Competence, Curtis JR, Ethics, Female, Focus Groups, Human, Journal Article, Male, Medical, Middle Age, Neoplasms/psychology, Non-U.S. Gov't, Physician-patient Relations, Pulmonary Disease, Ramsey PG, Shannon SE, Support, Terminal Care/psychology, Truth Disclosure, Wenrich MD
Research & commentary: parents' experience of inflammatory bowel disease
Loss and meaning: How do people make sense of loss
Gastric antral dysrhythmias in children with chronic idiopathic intestinal pseudoobstruction
Tags: 1992, Adolescence, Backlog, Bisset WM, Child, Devane SP, Electrophysiology, Gastrointestinal Motility/ph [Physiology], Gut, Human, Ileum/pa [Pathology], Infant, Intestinal Pseudo-Obstruction/di [Diagnosis], Intestinal Pseudo-Obstruction/pa [Pathology], Intestinal Pseudo-Obstruction/pp [Physiopathology], Intestine, Journal Article, Lake BD, Large/pa [Pathology], Manometry, Milla PJ, Non-U.S. Gov't, Preschool, Pyloric Antrum/pp [Physiopathology], Ravelli AM, Smith VV, Support
Comparison of different bolus doses of morphine for patient-controlled analgesia in children
Tags: 1994, Adolescence, Analgesia, Appendectomy, Backlog, British Journal Of Anaesthesia, Child, Comparative Study, Doyle E, Female, Human, Journal Article, Male, Marshall C, Morphine/administration & dosage/adverse effects, Morton NS, Mottart KJ, Nausea/chemically induced, Non-U.S. Gov't, Pain, Pain Measurement, Patient-Controlled, Postoperative/prevention & control, Sleep/drug effects, Support, Time Factors, Vomiting/chemically induced
Implementation and evaluation of a quality improvement process to improve pain management in a hospice setting
Tags: 1998, Administration, Alden C, American Journal of Hospice & Palliative Medicine, Backlog, Duggleby W, Hospice Care/standards, Human, Journal Article, Non-U.S. Gov't, Nursing Audit, Outcome and Process Assessment (Health Care)/organization &, Pain/nursing, Program Development, Program Evaluation, Retrospective Studies, Support, Total Quality Management/organization & administration
Trauma to Transformation: the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore
Tags: 2020, Asia, Attitude To Death, Bereavement – Singapore, BMC Palliative Care, Chinese, Chong P H, Choo P Y, Critical Illness – Singapore, Dutta O, Ethnic Groups, Ganapathy S, Grounded Theory, Ho A H Y, Human, India – Ethnology, Interviews, June 2020 List, Life Experiences – Evaluation – Singapore, Low X C, Ng C, Palliative Care – Singapore, Parent-Child Relations – Singapore, Parents – Psychosocial Factors – Singapore, Pediatric Care – Singapore, Posttraumatic Growth, Psychological – Prevention and Control – Singapore, Psychological Well-being, psychosocial, Qualitative Studies, Rituals and Ceremonies, Singapore, Single Parent – Psychosocial Factors, Spouses – Psychosocial Factors, Support, Tan-Ho G
Status epilepticus in children: aetiology, treatment, and outcome
Tags: 1997, Adolescence, Age Distribution, Anesthetics, Anticonvulsants, Backlog, Barbiturates/ad [Administration & Dosage], Chi-Square Distribution, Child, Developmental Medicine & Child Neurology, Diazepam/ad [Administration & Dosage], Drug Administration Schedule, Electroencephalography, Encephalitis/co [Complications], Eriksson KJ, Female, Follow-up Studies, Human, Infant, Intravenous/ad [Administration & Dosage], Journal Article, Koivikko MJ, Male, Meningitis, Nervous System Diseases/ep [Epidemiology], Neuropsychological Tests, Non-U.S. Gov't, Preschool, Prevalence, Retrospective Studies, Risk Factors, Septic/co [Complications], Sex Distribution, Shock, Status Epilepticus/di [Diagnosis], Status Epilepticus/dt [Drug Therapy], Status Epilepticus/ep [Epidemiology], Status Epilepticus/et [Etiology], Streptococcal Infections/co [Complications], Support, Time Factors, Treatment Outcome, Viral/co [Complications]
Supportive care needs of women with lung cancer
An overview of National Hospice Study findings
Tags: 1986, Backlog, Comparative Study, Costs And Cost Analysis, Greer DS, Home Nursing, Hospices/economics, Human, Journal Article, Journal Of Chronic Diseases, Mor V, Non-P.H.S., Non-U.S. Gov't, Palliative Care, Psychological, Public Policy, Quality Of Life, Stress, Support, Terminal Care/economics, U.S. Gov't, United States
An alternative in terminal care: results of the National Hospice Study
Tags: 1986, Adult, Aged, Backlog, Birnbaum H, Cancer Care Facilities, Comparative Study, Costs And Cost Analysis, Female, Greer DS, Health, Health Services Research, home care services, Hospices/classification/economics/organization & administration, Hospitalization, Human, Insurance, Journal Article, Journal Of Chronic Diseases, Kidder D, Male, Medicare/economics, Middle Age, Models, Mor V, Morris JN, Neoplasms/physiopathology/psychology/therapy, Non-P.H.S., Non-U.S. Gov't, Outcome And Process Assessment (health Care), Pain/epidemiology, Quality Of Life, Reimbursement/economics, Sherwood S, Support, Terminal Care/economics/organization & administration, Theoretical, U.S. Gov't, United States
National hospice study analysis plan
Tags: 1983, Backlog, Birnbaum H, Costs And Cost Analysis, Evaluation Studies/methods, Family, Greer DS, Health Services Research/methods, Hospices/economics, Human, Journal Article, Journal Of Chronic Diseases, Models, Mor V, Morris JN, Non-U.S. Gov't, P.H.S., Research Design, Sherwood S, Support, Theoretical, U.S. Gov't, United States
Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review
Tags: 1998, Backlog, Developed Countries, Hearn J, Higginson IJ, Human, Journal Article, Neoplasms/therapy, Non-U.S. Gov't, Outcome Assessment (health Care), Palliative Care/economics/organization & administration/utilization, Palliative Medicine, Patient Care Team, Patient Satisfaction, Psychology, Quality Of Life, Social, Support
Transdermal fentanyl for pain relief in a paediatric palliative care population
Tags: 2001, Administration, Adolescent, Analgesics, Backlog, Child, Cutaneous, Devine T, Female, Fentanyl/administration & dosage, Goldman A, Human, Hunt A, Journal Article, Male, Non-U.S. Gov't, Opioid/administration & dosage, Pain Measurement, Pain/drug Therapy, Palliative Care, Palliative Medicine, Parents, Patient Satisfaction, Phillips M, Preschool, Support, Terminally Ill, Treatment Outcome
Population pharmacokinetics of oral morphine and its glucuronides in children receiving morphine as immediate-release liquid or sustained-release tablets for cancer pain
Tags: 1999, Adolescent, Age Factors, Analgesics, Backlog, Case-Control Studies, Child, Comparative Study, Delayed-Action Preparations, Dick G, Dose-Response Relationship, Drug, Goldman A, Human, Hunt A, Infant, Joel S, Journal Article, Journal of Pediatrics, Linear Models, Morphine Derivatives/administration & dosage/blood/pharmacokinetics, Morphine/administration & dosage/blood/pharmacokinetics, Neoplasms/complications, Non-U.S. Gov't, Nonparametric, Opioid/administration & dosage/blood/pharmacokinetics, Pain/drug therapy/etiology, Preschool, Statistics, Support
Effect of severity of disability on survival in north east England cerebral palsy cohort
Tags: 2000, Archives of Disease in Childhood, Backlog, Birth Weight, Cause Of Death, Cerebral Palsy/mortality, Cohort Studies, Colver AF, Disability Evaluation, England/epidemiology, Female, Human, Hutton JL, Infant, Journal Article, Life Expectancy, Life Style, Mackie PC, Male, Newborn, Non-U.S. Gov't, Prognosis, Risk Factors, Sex Distribution, Support, Survival Rate
Palliative care in the neonatal intensive care unit
Tags: 2020, Health Services Accessibility, Home Health Care, Hospice Care, Intensive Care Units, Jackson C, June 2020 List, Multidisciplinary Care Team, Neonatal, Paediatrics & Child Health, Palliative Care, Pediatricians, Perinatal Care, Perinatal Death – Psychosocial Factors, Prenatal Diagnosis, psychosocial, Support, United Kingdom, Vasudevan C
The WHO objectives for palliative care: to what extent are we achieving them?
Tags: 1995, Abraham C, Backlog, Health Priorities, Health Services Research, Holistic Health, Hospices/standards, Human, Johnston G, Journal Article, Non-U.S. Gov't, Organizational Objectives, Outcome Assessment (health Care), Palliative Care/standards, Palliative Medicine, Pastoral Care, Professional-family Relations, Social Support, Support, Terminal Care/methods, World Health Organization
Reviewing audit: barriers and facilitating factors for effective clinical audit
Tags: 2000, Alder EM, Attitude Of Health Personnel, Backlog, Bibliographic, Comparative Study, Crombie IK, Databases, Davies HT, Evaluation Studies, Family Practice, General, Great Britain, Hospital, Hospitals, Interprofessional Relations, Job Satisfaction, Johnston G, Journal Article, Leadership, Medical Audit/standards, Medical Records/standards, Medical Staff, Medline, Millard A, Non-U.S. Gov't, Nursing Audit, Partnership Practice, Patient Satisfaction, Physician-patient Relations, Physician's Role, Primary Health Care, Quality In Health Care, Quality Of Health Care, Retrospective Studies, Support
Identifying potential need for cancer palliation in Nova Scotia
Tags: 1998, 80 And Over, Adult, Aged, Backlog, Burge FI, Canadian Medical Association Journal, Comprehensive Health Care/utilization, Cummings I, Dewar RA, Female, Gibbons L, Health Services Needs and Demand/statistics & numerical data, Human, Johnston GM, Journal Article, Levy IG, Male, Middle Age, Neoplasms/mortality/radiotherapy, Non-U.S. Gov't, Nova Scotia/epidemiology, Odds Ratio, Palliative Care/utilization, Referral And Consultation/statistics & Numerical Data, Retrospective Studies, Support, Survival Analysis
Bittersweet: a qualitative exploration of mothers' experiences of raising a single surviving twin
Tags: 2018, Bereavement, Conceptual Framework, Facebook, Family Coping, Grief, Human, Jordan A, Maternal Attitudes, Maternal Role, Multiple Offspring, Narratives, Parenting, Psychology, Health & Medicine, psychosocial, Qualitative Studies, Rodham K, Self Concept, September 2018 List, Smith P, Social Identity, Support, surveys, Thematic Analysis, Twins, United Kingdom
Hospital Practices for Parents Following Perinatal Loss
Tags: 2020, Bereavement, Descriptive Statistics, Female, Funding Source, Grief, Hospitals – Turkey, Human, Infant Mortality – Psychosocial Factors – Turkey, Kalanlar B, Male, Midwives, November 2020 List, Nurses, Omega: Journal Of Death & Dying, Parental Attitudes, Physicians, psychosocial, Purposive Sample, Questionnaires, Support, Turkey