1
40
1
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Notes
<p>Using Smart Source Parsing ( (pp Date of Publication: 01 Sep 2015</p>
URL Address
<a href="https://doi.org/10.1177/1367493513510630">https://doi.org/10.1177/136749351351063</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
'Why Does It Happen Like This?' Consulting With Users and Providers Prior to an Evaluation of Services for Children with Life Limiting Conditions and their Families
Publisher
An entity responsible for making the resource available
Journal Of Child Health Care : For Professionals Working With Children In The Hospital And Community
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Family; Patient Referral; Rehabilitation; Supply And Distribution; Adolescent; Child; Child Health Care; Handicapped Child; Health Service; Health Services Research; Human; Information Processing; Interview
Creator
An entity primarily responsible for making the resource
Hunt A; Brown E; Coad J; Staniszewska S; Hacking S; Chesworth B; Chambers L
Description
An account of the resource
Children with life limiting conditions and their families have complex needs. Evaluations must consider their views and perspectives to ensure care is relevant, appropriate and acceptable. We consulted with children, young people, their parents and local professionals to gain a more informed picture of issues affecting them prior to preparing a bid to evaluate services in the area. Multiple methods included focus groups, face-to-face and telephone interviews and participatory activities. Recordings and products from activities were analysed for content to identify areas of relevance and concern. An overarching theme from parents was 'Why does it happen like this?' Services did not seem designed to meet their needs. Whilst children and young people expressed ideas related to quality of environment, services and social life, professionals focused on ways of meeting the families' needs. The theme that linked families' concerns with those of professionals was 'assessing individual needs'. Two questions to be addressed by the evaluation are (1) to what extent are services designed to meet the needs of children and families and (2) to what extent are children, young people and their families consulted about what they need? Consultations with families and service providers encouraged us to continue their involvement as partners in the evaluation.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1177/136749351351063">10.1177/1367493513510630</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Adolescent
Brown E
Chambers L
Chesworth B
Child
Child Health Care
Coad J
Family
Hacking S
Handicapped Child
Health Service
Health Services Research
Human
Hunt A
Information Processing
Interview
Journal of child health care : for professionals working with children in the hospital and community
Patient Referral
Rehabilitation
September 2017 List
Staniszewska S
Supply And Distribution