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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2020 List
URL Address
<a href="http://doi.org/10.1542/peds.2019-1925" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/peds.2019-1925</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Techniques to Communicate Better With Parents During End-of-Life Scenarios in Neonatology
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
communication; neonatology; parental perspectives; parents; resuscitation
Creator
An entity primarily responsible for making the resource
Lizotte M H; Barrington K J; Sultan S; Pennaforte T; Moussa A; Lachance C; Sureau M; Zao Y; Janvier A
Description
An account of the resource
BACKGROUND AND OBJECTIVES: Clinicians are urged to optimize communication with families, generally without empirical practical recommendations. The objective of this study was to identify core behaviors associated with good communication during and after an unsuccessful resuscitation, including parental perspectives. METHODS: Clinicians from different backgrounds participated in a standardized, videotaped, simulated neonatal resuscitation in the presence of parent actors. The infant remained pulseless; participants communicated with the parent actors before, during, and after discontinuing resuscitation. Twenty-one evaluators with varying expertise (including 6 bereaved parents) viewed the videos. They were asked to score clinician-parent communication and identify the top communicators. In open-ended questions, they were asked to describe 3 aspects that were well done and 3 that were not. Answers to open-ended questions were coded for easily reproducible behaviors. All the videos were then independently reviewed to evaluate whether these behaviors were present. RESULTS: Thirty-one participants' videos were examined by 21 evaluators (651 evaluations). Parents and actors agreed with clinicians 81% of the time about what constituted optimal communication. Good communicators were more likely to introduce themselves, use the infant's name, acknowledge parental presence, prepare the parents (for the resuscitation, then death), stop resuscitation without asking parents, clearly mention death, provide or enable proximity (clinician-parent, infant-parent, clinician-infant, mother-father), sit down, decrease guilt, permit silence, and have knowledge about procedures after death. Consistently, clinicians who displayed such behaviors had evaluations >9 out of 10 and were all ranked top 10 communicators. CONCLUSIONS: During a neonatal end-of-life scenario, many simple behaviors, identified by parents and providers, can optimize clinician-parent communication.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2019-1925" target="_blank" rel="noreferrer noopener">10.1542/peds.2019-1925</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Barrington K J
Communication
Janvier A
Lachance C
Lizotte M H
March 2020 List
Moussa A
Neonatology
Parental Perspectives
Parents
Pediatrics
Pennaforte T
Resuscitation
Sultan S
Sureau M
Zao Y
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.286" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2018.10.286</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
52315-07-8 (cypermethrin); 65731-84-2 (cypermethrin); 66841-24-5 (cypermethrin); 67375-30-8 (cypermethrin); bereavement support; child; clinical article; clinician; conference abstract; confidentiality; content analysis; controlled study; cypermethrin; death; evaluation research; female; filter; follow up; human; information center; intensive care; interview; male; neonatology; nesting; palliative therapy; pediatrics; psycho-oncology; questionnaire; research ethics; writing
Creator
An entity primarily responsible for making the resource
Bourque C J; Cardinal G; Dumont E; Sultan S
Description
An account of the resource
Objectives: 1) Fill the knowledge gaps about best practices related to collaboration with bereaved families in projects related to end-of-life practices, palliative care and parental bereavement in paediatrics. 2) Identify best practices for establishing safe partnership communication with bereaved families.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.286" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2018.10.286</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
52315-07-8 (cypermethrin)
65731-84-2 (cypermethrin)
66841-24-5 (cypermethrin)
67375-30-8 (cypermethrin)
Bereavement Support
Bourque C J
Cardinal G
Child
Clinical Article
Clinician
conference abstract
Confidentiality
Content Analysis
Controlled Study
cypermethrin
Death
Dumont E
evaluation research
Female
filter
Follow Up
Human
information center
Intensive Care
Interview
Journal of Pain and Symptom Management
Male
Neonatology
nesting
Oncology 2019 List
Palliative Therapy
Pediatrics
Psycho-Oncology
Questionnaire
research ethics
Sultan S
writing
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.418" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2018.10.418</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Quality of Life of Children with Advanced Cancer: The Perspective of Children and Parents
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
advanced cancer; child; conference abstract; human; interdisciplinary communication; oncology; palliative therapy; physical well-being; pleasure; qualitative research; quality of life assessment; semi structured interview; thematic analysis
Creator
An entity primarily responsible for making the resource
Avoine-Blondin J; Fasse L; Lopez C; Daoust L; Humbert N; Duval M; Sultan S
Description
An account of the resource
Objective: Quality of Life (QoL) is the core of pediatric palliative care (PPC). The evaluation of QoL allows the adjustment of patient care. However, it remains difficult for clinicians to measure it in this population because there is very little empirical data on this topic. In order to identify dimensions of QoL in this context, we have, in a previous study, interviewed professionals who accompanied children with advanced cancer. The results highlighted the traditional dimensions of physical, psychological and social well-being, as well as original dimensions such as pleasure and the present moment. However, to provide an effective understanding of QoL, it is essential to capture the perspective of children and parents. This study aims to describe the QoL in the context of PPC in oncology according to children's and parents' the representations.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2018.10.418" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2018.10.418</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Advanced Cancer
Avoine-Blondin J
Child
conference abstract
Daoust L
Duval M
Fasse L
Human
Humbert N
Interdisciplinary Communication
Journal of Pain and Symptom Management
Lopez C
Oncology
Oncology 2019 List
Palliative Therapy
physical well-being
pleasure
Qualitative Research
quality of life assessment
Semi Structured Interview
Sultan S
Thematic Analysis
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1017/S1478951516001048" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1017/S1478951516001048</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Identifying domains of quality of life in children with cancer undergoing palliative care: A qualitative study with professionals
Publisher
An entity responsible for making the resource available
Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Adaptation Psychological; Middle Aged; Male; Humans; Palliative Care/mt [Methods]; Adult; Qualitative Research; Neoplasms/px [Psychology]; Female; Quality of Life/px [Psychology]; Palliative Care/px [Psychology]; Quebec; Pediatrics/st [Standards]; Health Personnel/px [Psychology]; Perception; Pediatrics/ma [Manpower]
Creator
An entity primarily responsible for making the resource
Avoine-Blondin J; Parent V; Lahaye M; Humbert N; Duval M; Sultan S
Description
An account of the resource
OBJECTIVE: The goal of pediatric palliative care (PPC) is to maintain the quality of life (QoL) of children whose lives are threatened. However, there are sparse scientific data on the domains of QoL in this particular context, and no measurement strategies are available. The present study aims to describe the domains of QoL in the context of PPC in oncology, according to the perceptions of professional caregivers. METHOD: Semistructured interviews were conducted with a random sample of 20 professional caregivers from the Division of Hematology/Oncology at Le Centre Hospitalier Universitaire Sainte-Justine (Montreal, Canada). The caregivers were asked about their perceptions about the QoL of the children they have cared for in this context. The data were analyzed using inductive thematic content analysis. RESULTS: The analysis allowed us to identify seven domains of QoL: "physical comfort," "alleviation of psychological suffering," "fun and the present moment," "sense of control," "feeling valued and appreciated," "feeling that life goes on," and "meaningful social relationships." SIGNIFICANCE OF RESULTS: Caregivers recount the regard that should be accorded to maintaining well-being and a sense of fun, as well as fostering the child's abilities, taking account of the progression of the disease, and to fulfilling his or her needs, especially social ones. Our results also demonstrate that all domains were positively referred to by professional caregivers. The data from our study will lead to better assessment of QoL according to the trajectory of a child with advanced cancer while undergoing PPC.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/%2010.1017/S1478951516001048" target="_blank" rel="noreferrer noopener">10.1017/S1478951516001048</a>
2017
Adaptation Psychological
Adult
Avoine-Blondin J
Duval M
Female
Health Personnel/px [psychology]
Humans
Humbert N
Lahaye M
Male
Middle Aged
Neoplasms/px [psychology]
Oncology 2018 List
Palliative & Supportive Care
Palliative Care/mt [methods]
Palliative Care/px [psychology]
Parent V
Pediatrics/ma [Manpower]
Pediatrics/st [standards]
Perception
Qualitative Research
Quality Of Life/px [psychology]
Quebec
Sultan S