1
40
4
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.102.1.137" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.102.1.137</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A new definition of children with special health care needs
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
McPherson M; Arango P; Fox H; Lauver C; McManus M; Newacheck P; Perrin JM; Shonkoff JP; Strickland B
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.102.1.137" target="_blank" rel="noreferrer">10.1542/peds.102.1.137</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1998
1998
Arango P
Backlog
Cohen 2006 BMC HSR Refs
Fox H
Journal Article
Lauver C
McManus M
McPherson M
Newacheck P
Pediatrics
Perrin JM
Shonkoff JP
Strickland B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2004-1262" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2004-1262</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Female; Humans; Male; Questionnaires; Socioeconomic Factors; California; Sampling Studies; Family Characteristics; Case Management; Aging; adolescent; Adolescent Transitions; Health Surveys; Continuity of Patient Care/organization & administration; Needs Assessment/statistics & numerical data; Health Services Needs and Demand/trends; African Americans/statistics & numerical data; European Continental Ancestry Group/statistics & numerical data; Hispanic Americans/sn [Statistics & Numerical Data]; Insurance Coverage/statistics & numerical data; Exceptional
Creator
An entity primarily responsible for making the resource
Lotstein DS; McPherson M; Strickland B; Newacheck P
Description
An account of the resource
OBJECTIVE: To describe the proportion of youth with special health care needs (YSHCN) who are receiving services for medical transitions and to describe which sociodemographic and health care-related factors are associated with receiving transition services. METHODS: We analyzed responses to questions about medical transitions from the 2001 National Survey of Children With Special Health Care Needs (NS-CSHCN). Parents or guardians of youth aged 13 to 17 years who screened positive for the survey were asked (1) whether they had discussed with health care providers how their child's health care needs might change in adulthood, (2) if they had a plan to address these changing needs, and (3) if their child's health care providers had discussed having their child eventually see a doctor who treats adults. Bivariate and multivariate associations were estimated to identify sociodemographic and health care factors related to receiving medical-transition services. RESULTS: Overall, 50% of respondents had discussed their child's changing health care needs with their physicians, although significantly fewer Hispanic youth compared with other youth reported these discussions. Youth who met criteria for a medical home were more likely to have discussed changing needs and to have a plan addressing these needs. Of those who had discussed changing needs, 59% had a plan to address these needs and approximately 42% had reported discussing shifting care to adult-oriented providers. Younger teens and non-Hispanic black children were less likely to have discussed changing providers. Fifteen percent of YSHCN met the Maternal and Child Health Bureau's core outcome for medical transitions. A multivariate logistic-regression model found that older age and having a medical home were significantly associated with increased odds of meeting the outcome measure. CONCLUSION: The proportion of YSHCN meeting the medical-transition outcome measure is quite low, particularly for youth from ethnic minorities. Higher rates are seen for older teens and those receiving care within a medical home. Significant efforts will be required to meet the proposed goal of all YSHCN receiving the services necessary to transition to adult health care.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2004-1262" target="_blank" rel="noreferrer">10.1542/peds.2004-1262</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Adolescent Transitions
African Americans/statistics & numerical data
Aging
Backlog
California
Case Management
Child
Continuity Of Patient Care/organization & Administration
European Continental Ancestry Group/statistics & numerical data
Exceptional
Family Characteristics
Female
Health Services Needs and Demand/trends
Health Surveys
Hispanic Americans/sn [Statistics & Numerical Data]
Humans
Insurance Coverage/statistics & numerical data
Journal Article
Lotstein DS
Male
McPherson M
Needs Assessment/statistics & numerical data
Newacheck P
Pediatrics
Questionnaires
Sampling Studies
Socioeconomic Factors
Strickland B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2008-1298" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2008-1298</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Planning for health care transitions: results from the 2005-2006 National Survey of Children With Special Health Care Needs
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; adolescent; Adolescent Transitions; United States/epidemiology; disabled children; Child Health Services/standards/trends; Delivery of Health Care/methods/standards/trends; Health Care Surveys/methods/standards/trends; Health Planning/methods/standards/trends; Health Services Needs and Demand/standards/trends; Needs Assessment/standards/trends
Creator
An entity primarily responsible for making the resource
Lotstein DS; Ghandour R; Cash A; McGuire E; Strickland B; Newacheck P
Description
An account of the resource
OBJECTIVES: Many youth with special health care needs have difficulties transferring to adult medical care. To address this, the Maternal and Child Health Bureau has made receipt of transition services a core performance outcome for community-based systems of care for youth with special health care needs. In this article we describe the results for the transition core outcome from the 2005-2006 National Survey of Children With Special Health Care Needs. We also describe changes in the measurement strategy for this outcome since the first National Survey of Children With Special Health Care Needs in 2001. METHODS: In the nationally representative, cross-sectional 2005-2006 National Survey of Children With Special Health Care Needs, parent or guardian respondents of 18198 youth with special health care needs (aged 12-17) were asked if they have had discussions with their child's health care providers about (1) future adult providers, (2) future adult health care needs, (3) changes in health insurance, and (4) encouraging their child to take responsibility for his or her care. All 4 components had to be met for the youth to meet the overall transition core outcome. Those who had not had transition discussions reported if such discussions would have been helpful. RESULTS: Overall, 41% of youth with special health care needs met the core performance outcome for transition. Forty-two percent had discussed shifting care to an adult provider, 62% discussed their child's adult health care needs, and 34% discussed upcoming changes in health insurance. Most (78%) respondents said that providers usually or always encourage their child to take responsibility for his or her health. Non-Hispanic black or Hispanic race/ethnicity, lower income level, not speaking English, and not having a medical home reduced the odds of meeting the transition core outcome. CONCLUSIONS: Current performance on the transition core outcome leaves much room for improvement. Many parents feel that having transition-related discussions with their health care providers would be helpful. Future clinical and policy-level research should be directed at identifying barriers to, and recommending content for, health transition discussions.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2008-1298" target="_blank" rel="noreferrer">10.1542/peds.2008-1298</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Adolescent Transitions
Backlog
Cash A
Child
Child Health Services/standards/trends
Cross-sectional Studies
Delivery of Health Care/methods/standards/trends
Disabled Children
Female
Ghandour R
Health Care Surveys/methods/standards/trends
Health Planning/methods/standards/trends
Health Services Needs and Demand/standards/trends
Humans
Journal Article
Lotstein DS
Male
McGuire E
Needs Assessment/standards/trends
Newacheck P
Pediatrics
Strickland B
United States/epidemiology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2007-2875" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2007-2875</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Interdisciplinary Communication; Models; Adolescent Transitions; United States/epidemiology; Genetic; Genetic Diseases; Comprehensive Health Care/methods; Inborn/diagnosis/epidemiology/therapy
Creator
An entity primarily responsible for making the resource
Grosse SD; Schechter MS; Kulkarni R; Lloyd-Puryear MA; Strickland B; Trevathan E
Description
An account of the resource
Approaches to providing comprehensive coordinated care for individuals with complex diseases include the medical home approach, the chronic care model in primary care, and disease-specific, multidisciplinary specialty clinics. There is uneven availability and utilization of multidisciplinary specialty clinics for different genetic diseases. For 2 disorders (ie, hemophilia and cystic fibrosis), effective national networks of specialty clinics exist and reach large proportions of the target populations. For other disorders, notably, sickle cell disease, fewer such centers are available, centers are less likely to be networked, and centers are used less widely. Models of comanagement are essential for promoting ongoing communication and coordination between primary care and subspecialty services, particularly during the transition from pediatric care to adult care. Evaluation of the effectiveness of different models in improving outcomes for individuals with genetic diseases is essential.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2007-2875" target="_blank" rel="noreferrer">10.1542/peds.2007-2875</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent Transitions
Backlog
Comprehensive Health Care/methods
Genetic
Genetic Diseases
Grosse SD
Humans
Inborn/diagnosis/epidemiology/therapy
Interdisciplinary Communication
Journal Article
Kulkarni R
Lloyd-Puryear MA
Models
Pediatrics
Schechter MS
Strickland B
Trevathan E
United States/epidemiology