1 40 1 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Backlog URL Address <a href="http://doi.org/10.1097/00003727-199610000-00010" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003727-199610000-00010</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Families caring for chronically ill children with tuberous sclerosis complex. Publisher An entity responsible for making the resource available Family & Community Health Date A point or period of time associated with an event in the lifecycle of the resource 1996 Subject The topic of the resource Longitudinal Studies; caregivers; Caregivers-Psychological Aspects; Chronically Ill Children-Home Care; Pediatric Neurology; Pediatric Neurology-Care and Treatment; Stress (Psychology); Stress (Psychology)-Care and Treatment; Tuberous Sclerosis; Tuberous Sclerosis-Psychological Aspects Creator An entity primarily responsible for making the resource Parker M Description An account of the resource Families who care for children with tuberous sclerosis complex (TSC) tend to experience severe psychological stress. Families react to TSC with guilt, chronic grief, and a gradual loss of spontaneity. Since TSC is a relatively rare pediatric neurological disorder, families often have difficulty in finding support from formal and informal sources. Many parents of children with TSC prefer greater awareness of this disease in health care professionals. 1996 Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1097/00003727-199610000-00010" target="_blank" rel="noreferrer">10.1097/00003727-199610000-00010</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Type The nature or genre of the resource Journal Article 1996 Backlog Caregivers Caregivers-Psychological Aspects Chronically Ill Children-Home Care Family & Community Health Journal Article Longitudinal Studies Parker M Pediatric Neurology Pediatric Neurology-Care and Treatment Stress (Psychology) Stress (Psychology)-Care and Treatment Tuberous Sclerosis Tuberous Sclerosis-Psychological Aspects