Families who care for children with tuberous sclerosis complex (TSC) tend to experience severe psychological stress. Families react to TSC with guilt, chronic grief, and a gradual loss of spontaneity. Since TSC is a relatively rare pediatric…
When general ward registered nurses (RN) receive patients from an intensive care unit (ICU) they report that much of their time in the initial phases revolves around meeting family needs (Farvis, 2002). Families experience anxiety when leaving the…
