1
40
25
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2007.0257" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2007.0257</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Volunteer Program in a Children's Hospice
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Creator
An entity primarily responsible for making the resource
Duggal S; Straatman L; Farah P; Dickson S; Freeman L
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2007.0257" target="_blank" rel="noreferrer">10.1089/jpm.2007.0257</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Backlog
Dickson S
Duggal S
Farah P
Freeman L
Journal Article
Journal of Palliative Medicine
Straatman L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/tp.0b013e318169bf43" target="_blank" rel="noreferrer">http://doi.org/10.1097/tp.0b013e318169bf43</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Benefit of Neoral C2 monitoring in de novo cardiac transplant recipients receiving basiliximab induction.
Publisher
An entity responsible for making the resource available
Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Creator
An entity primarily responsible for making the resource
Cantarovich M; Ross H; Arizon JM; Gomez MA; Straatman L; Orus J; Alonso-Pulpon L; Molina BD; Wang S; Lage E; Crespo MG; Manito N; Howlett J; Haddad H
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/tp.0b013e318169bf43" target="_blank" rel="noreferrer">10.1097/tp.0b013e318169bf43</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008-04
2008
Alonso-Pulpon L
Arizon JM
Backlog
Cantarovich M
Crespo MG
Gomez MA
Haddad H
Howlett J
Journal Article
Lage E
Manito N
Molina BD
Orus J
Ross H
Straatman L
Transplantation
Wang S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1524-4733.2008.00445.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1524-4733.2008.00445.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The cost of change: Direct medical costs of solid organ transplantation in British Columbia, Canada, 1995-2003.
Publisher
An entity responsible for making the resource available
Value In Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Creator
An entity primarily responsible for making the resource
Levi A; Sobolev B; James D; Barrable W; Clarke-Richardson P; Sullivan S; Keown P; Chung S; Straatman L; Levy R
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1524-4733.2008.00445.x" target="_blank" rel="noreferrer">10.1111/j.1524-4733.2008.00445.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2009
2009
Backlog
Barrable W
Chung S
Clarke-Richardson P
James D
Journal Article
Keown P
Levi A
Levy R
Sobolev B
Straatman L
Sullivan S
Value In Health
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216308096527" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216308096527</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Report On Location of Death in Paediatric Palliative Care Between Home, Hospice and Hospital
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; Palliative Care; Terminal Care; Great Britain; Canada; Attitude to Death; Choice Behavior; Australia; Patient Satisfaction; retrospective studies; Residence Characteristics/statistics & numerical data; NET CV
Creator
An entity primarily responsible for making the resource
Siden H; Miller M; Straatman L; Omesi L; Tucker T; Collins JJ
Description
An account of the resource
This retrospective study analysed data for 703 children who died from 2000 to 2006 to examine where children with a broad range of progressive, life-limiting illnesses actually die when families are able to access hospital, paediatric hospice facility and care at home. There was an overall even distribution for location of death in which 35.1% of children died at home, 32.1% died in a paediatric hospice facility, 31.9% in hospital and 0.9% at another location. Previous research suggests a preference for home as the location of death, but these studies have primarily focused on adults, children with cancer or settings without paediatric hospice facilities available as an option. Our results suggest that the choice of families for end-of-life care is equally divided amongst all three options. Given the increasing numbers of children's hospices worldwide, these findings are important for clinicians, care managers and researchers who plan, provide and evaluate the care of children with life-limiting illness.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216308096527" target="_blank" rel="noreferrer noopener">10.1177/0269216308096527</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Attitude To Death
Australia
Backlog
Canada
Child
Choice Behavior
Collins JJ
Great Britain
Humans
Journal Article
Miller M
NET CV
Omesi L
Palliative Care
Palliative Medicine
Patient Satisfaction
Residence Characteristics/statistics & numerical data
Retrospective Studies
Siden H
Straatman L
Terminal Care
Tucker T
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2431-10-67" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/1471-2431-10-67</a>
Dublin Core
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Title
A name given to the resource
Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory
Publisher
An entity responsible for making the resource available
BMC Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; Canada; Longitudinal Studies; Mental Disorders; Biomedical Research; PEDI Study; Metabolic Diseases; Genetic Diseases; Inborn; Biomedical Research/methods; Canada; Child; Genetic Diseases Inborn/therapy; Humans; Longitudinal Studies/methods; Mental Disorders/therapy; Metabolic Diseases/therapy
Creator
An entity primarily responsible for making the resource
Siden H; Steele R; Brant R; Cadell S; Davies B; Straatman L; Widger K; Andrews GS
Description
An account of the resource
BACKGROUND: Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the condition progresses along an uncertain trajectory towards death. Much is known about the genetics and pathophysiology of these diseases, but very little has been documented about the trajectory of symptoms for children with these conditions or the associated experience of their families. A longitudinal study design will help to close this gap in knowledge. METHODS/DESIGN: Charting the Territory is a longitudinal descriptive, correlational study currently underway with children 0-19 years who are diagnosed with progressive neurological, metabolic, or chromosomal conditions and their families. The purpose of the study is to determine and document the clinical progression of the condition and the associated bio-psychosocial-spiritual experiences of the parents and siblings age 7-18 years. Approximately 300 families, both newly diagnosed children and those with established conditions, are being recruited in six Canadian cities. Children and their families are being followed for a minimum of 18 months, depending on when they enroll in the study. Family data collection will continue after the child's death if the child dies during the study period. Data collection includes monthly parental assessment of the child's symptoms; an annual functional assessment of the child; and completion of established instruments every 6 months by parents to assess family functioning, marital satisfaction, health status, anxiety, depression, stress, burden, grief, spirituality, and growth, and by siblings to assess coping and health. Impact of participation on parents is assessed after 1 year and at the end of the study. Chart reviews are conducted at enrollment and at the conclusion of the study or at the time of the child's death. DISCUSSION: Knowledge developed from this study will provide some of the first-ever detailed descriptions of the clinical symptom trajectory of these non-curable progressive conditions and the bio-psychosocial-spiritual aspects for families, from diagnosis through bereavement. Information about developing and implementing this study may be useful to other researchers who are interested in designing a longitudinal study.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2431-10-67" target="_blank" rel="noreferrer noopener">10.1186/1471-2431-10-67</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Andrews GS
Backlog
Biomedical Research
Bmc Pediatrics
Brant R
Cadell S
Canada
Child
Davies B
Genetic Diseases
Humans
inborn
Journal Article
Longitudinal Studies
Mental Disorders
Metabolic Diseases
PEDI Study
Siden H
Steele R
Straatman L
Widger K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2008.14.5.29492" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2008.14.5.29492</a>
Dublin Core
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Title
A name given to the resource
Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; Palliative Care; Pediatrics; Canada; Health Planning; Health Services Needs and Demand; Pilot Projects; NET CV; Hospices/organization & administration
Creator
An entity primarily responsible for making the resource
Steele R; Derman S; Cadell S; Davies B; Siden H; Straatman L
Description
An account of the resource
This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate around the term 'hospice' versus 'palliative care'; the different and unique needs of children requiring a palliative approach compared with adult hospice patients; and information about planning and beginning the study, including the rationale for a pilot, details about the study site, recruitment and procedures, and data collection and analysis. The results from the pilot study, as well as implications for practice and research are reported in part two.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2008.14.5.29492" target="_blank" rel="noreferrer">10.12968/ijpn.2008.14.5.29492</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Backlog
Cadell S
Canada
Child
Davies B
Derman S
Health Planning
Health Services Needs And Demand
Hospices/organization & administration
Humans
International Journal of Palliative Nursing
Journal Article
NET CV
Palliative Care
Pediatrics
Pilot Projects
Siden H
Steele R
Straatman L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2008.14.6.30024" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2008.14.6.30024</a>
Dublin Core
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Title
A name given to the resource
Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Canada; Pilot Projects; Patient Acceptance of Health Care; Research Design; Feasibility Studies; Hospices; Hospitals; Respite Care; Pediatric; adolescent; Preschool; infant; Parents/psychology; NET CV; Health Services Research/methods; Catastrophic Illness
Creator
An entity primarily responsible for making the resource
Steele R; Derman S; Cadell S; Davies B; Siden H; Straatman L
Description
An account of the resource
The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada. The perspectives of non-hospice health care professionals (n=4) involved in the child's care are explored. Data were gathered through audio-taped, semi-structured interviews. Initially, parents and health professionals were unaware that the hospice provided more than just end-of-life services. Parents began to consider hospice care when something changed in their lives that forced them to see things differently. This became the impetus for recognizing that CPCH might be a resource for their family. The prospect of respite care was usually the deciding factor in applying to the hospice. Parents reported benefits of hospice respite for themselves and the whole family. Recommendations for practice and future research are offered, including discussion about the feasibility of the study procedures.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2008.14.6.30024" target="_blank" rel="noreferrer">10.12968/ijpn.2008.14.6.30024</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Backlog
Cadell S
Canada
Catastrophic Illness
Child
Davies B
Derman S
Feasibility Studies
Female
Health Services Research/methods
Hospices
Hospitals
Humans
Infant
International Journal of Palliative Nursing
Journal Article
Male
NET CV
Parents/psychology
Patient Acceptance of Health Care
Pediatric
Pilot Projects
Preschool
Research Design
Respite Care
Siden H
Steele R
Straatman L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.healun.2004.07.016" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.healun.2004.07.016</a>
Dublin Core
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Title
A name given to the resource
Safety and efficacy of rosuvastatin therapy for the prevention of hyperlipidemia in adult cardiac transplant recipients
Publisher
An entity responsible for making the resource available
The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Survival Rate; Cohort Studies; Follow-Up Studies; Prospective Studies; Aged; Middle Aged; Treatment Outcome; Risk Assessment; Drug Administration Schedule; 80 and over; Comparative Study; Dose-Response Relationship; Drug; Graft Survival; control; dosage; Fluorobenzenes/administration &; Graft Rejection; Heart Transplantation/adverse effects/methods; Hyperlipidemia/drug therapy/prevention &; Postoperative Complications/prevention &; Pyrimidines/administration &; Sulfonamides/administration &
Creator
An entity primarily responsible for making the resource
Samman A; Imai C; Straatman L; Frolich J; Humphries K; Ignaszewski A
Description
An account of the resource
BACKGROUND: Hyperlipidemia after orthotopic heart transplantation (OHT) is associated with immunosuppression. Many OHT patients have increased lipid levels above published guidelines despite treatment with high doses of statins. Treatment with rosuvastatin (ROS) in OHT patients has not yet been evaluated. Therefore, we assessed its efficacy and safety in an OHT population. METHODS: Twenty-one OHT recipients, median age 66 years, whose lipid levels were sub-optimal on the highest tolerated doses of statins, received ROS in addition to standard immunosuppression. Total cholesterol (TC), low-density lipoprotein (LDL-C) and high-density lipoprotein cholesterol (HDL-C), triglycerides (TG), liver transaminases (AST) and creatinine kinase (CK) were measured before and during treatment with ROS. RESULTS: After 6 weeks on an average ROS dose of 10 mg/day, a TC:HDL-C ratio of <4 was reached in 76% of patients, and 70% of patients reached an LDL-C level of <2.5 mmol/liter (100 mg/dl). TC decreased to <5.2 mmol/liter (200 mg/dl) in 80% of patients and TG decreased to <2 mmol/liter (175 mg/dl) in 61% of patients. Except for the HDL-C increase, all changes were statistically significant. The decrease in the median TC:HDL-C ratio between baseline and 6 weeks was also statistically significant (p = 0.001). There were no significant changes in CK or AST levels, and no clinical evidence of myositis. One patient developed myalgia and 2 were withdrawn from the study because of mild elevation of CK (<3-fold upper limit of normal [ULN]). CONCLUSIONS: In the setting of tertiary referral centers, ROS appears to be safe and effective in lowering LDL-C in OHT recipients in whom treatment with other statins failed to achieve target LDL-C. No evidence of liver or muscle dysfunction was noted. Long-term studies are needed to ascertain the effect of ROS therapy on incidence of coronary artery disease (CAD) in this population.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.healun.2004.07.016" target="_blank" rel="noreferrer">10.1016/j.healun.2004.07.016</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
80 And Over
Aged
Backlog
Cohort Studies
Comparative Study
Control
dosage
Dose-Response Relationship
Drug
Drug Administration Schedule
Female
Fluorobenzenes/administration &
Follow-up Studies
Frolich J
Graft Rejection
Graft Survival
Heart Transplantation/adverse effects/methods
Humans
Humphries K
Hyperlipidemia/drug therapy/prevention &
Ignaszewski A
Imai C
Journal Article
Male
Middle Aged
Postoperative Complications/prevention &
Prospective Studies
Pyrimidines/administration &
Risk Assessment
Samman A
Straatman L
Sulfonamides/administration &
Survival Rate
The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0828-282x(06)70908-4" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0828-282x(06)70908-4</a>
Dublin Core
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Title
A name given to the resource
Nonheart failure-associated elevation of amino terminal pro-brain natriuretic peptide in the setting of sepsis
Publisher
An entity responsible for making the resource available
The Canadian Journal Of Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Female; Humans; Male; Aged; Fatal Outcome; Heart Failure; 80 and over; Biological Markers/blood; Brain/blood; Congestive/blood/drug therapy; Natriuretic Peptide; Peptide Fragments/blood; Protein Precursors/blood; Sepsis/blood/drug therapy; Telemeres
Creator
An entity primarily responsible for making the resource
Bar SL; Swiggum E; Straatman L; Ignaszewski A
Description
An account of the resource
In addition to its importance in clinical assessment, N-terminal pro-brain natriuretic peptide (NT pro-BNP) is a valuable marker for evaluation of treatment and prognosis of heart failure. However, there are situations where NT pro-BNP is not related to myocardial dysfunction. Two cases of sepsis with markedly elevated NT pro-BNP levels that are not indicative of depressed myocardial function are described.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0828-282x(06)70908-4" target="_blank" rel="noreferrer">10.1016/s0828-282x(06)70908-4</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
80 And Over
Aged
Backlog
Bar SL
Biological Markers/blood
Brain/blood
Congestive/blood/drug therapy
Fatal Outcome
Female
Heart Failure
Humans
Ignaszewski A
Journal Article
Male
Natriuretic Peptide
Peptide Fragments/blood
Protein Precursors/blood
Sepsis/blood/drug therapy
Straatman L
Swiggum E
Telemeres
The Canadian Journal Of Cardiology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0828-282x(06)70965-5" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0828-282x(06)70965-5</a>
Dublin Core
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Title
A name given to the resource
Eosinophilic myocarditis: case series and review of literature
Publisher
An entity responsible for making the resource available
Canadian Journal Of Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Eosinophilia; Myocarditis
Creator
An entity primarily responsible for making the resource
Ignaszewski A; Straatman L
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0828-282x(06)70965-5" target="_blank" rel="noreferrer">10.1016/s0828-282x(06)70965-5</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Backlog
Canadian Journal Of Cardiology
Eosinophilia
Ignaszewski A
Journal Article
Myocarditis
Straatman L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
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Backlog
URL Address
<a href="http://doi.org/10.2310/6650.2005.x0004.373" target="_blank" rel="noreferrer">http://doi.org/10.2310/6650.2005.x0004.373</a>
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Title
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Nutritional failure and cachexia in a pediatric palliative care population.
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Journal Of Investigative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
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Longitudinal Studies; NET CV
Creator
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Siden H; Soon G; Cox K; Straatman L
Identifier
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<a href="http://doi.org/10.2310/6650.2005.x0004.373" target="_blank" rel="noreferrer">10.2310/6650.2005.x0004.373</a>
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Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Backlog
Cox K
Journal Article
Journal Of Investigative Medicine
Longitudinal Studies
NET CV
Siden H
Soon G
Straatman L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.healun.2003.09.015" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.healun.2003.09.015</a>
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Title
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Cardiac transplantation: a temporary solution for Friedreich's ataxia-induced dilated cardiomyopathy
Publisher
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The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Male; Adult; Time Factors; Cardiomyopathy; Dilated/etiology/surgery; Friedreich Ataxia/complications; Heart transplantation
Creator
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Sedlak TL; Chandavimol M; Straatman L
Description
An account of the resource
Friedreich's ataxia is an autosomal recessive neurodegenerative disease. We report the case of a 34-year-old man with Friedreich's ataxia and dilated cardiomyopathy who underwent successful cardiac transplantation. To our knowledge, this is the first reported case of a heart transplantation for Friedreich's ataxia dilated cardiomyopathy.
2004
Identifier
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<a href="http://doi.org/10.1016/j.healun.2003.09.015" target="_blank" rel="noreferrer">10.1016/j.healun.2003.09.015</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2004
Adult
Backlog
Cardiomyopathy
Chandavimol M
Dilated/etiology/surgery
Friedreich Ataxia/complications
Heart transplantation
Humans
Journal Article
Male
Sedlak TL
Straatman L
The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s1053-2498(02)00930-0" target="_blank" rel="noreferrer">http://doi.org/10.1016/s1053-2498(02)00930-0</a>
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Title
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Effects of differing calcineurin based immune therapies on homocysteine levels in cardiac transplant patients
Publisher
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The Journal Of Heart And Lung Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
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Heart transplantation; Calcineurin; Homocysteine
Creator
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Fedoruk L; Ding L; Cook R; Straatman L
Identifier
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<a href="http://doi.org/10.1016/s1053-2498(02)00930-0" target="_blank" rel="noreferrer">10.1016/s1053-2498(02)00930-0</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2003
2003
Backlog
Calcineurin
Cook R
Ding L
Fedoruk L
Heart transplantation
Homocysteine
Journal Article
Straatman L
The Journal of Heart and Lung Transplantation
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00007890-199904150-00405" target="_blank" rel="noreferrer">http://doi.org/10.1097/00007890-199904150-00405</a>
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Title
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Sexual dysfunction in male cardiac transplant recipients
Publisher
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Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
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Male; Heart transplantation; Cardiac Transplant; Heart Transplant; Sex disorders; Sexual Dysfunction; Transplant; Transplant Recipient
Creator
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Cohen E; Abbey S; Ross H; Straatman L
Description
An account of the resource
Sexual dysfunction in male cardiac transplant recipients has received little systematic study. Problems reported in the literature include impotence, ejaculation problems, decreased libido and avoidance of sexual opportunities. PURPOSE: Investigate the prevalence and factors associated with sexual dysfunction in male cardiac transplant recipients using valid, reliable psychometric instruments, chart review and testosterone blood samples.
1999
Identifier
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<a href="http://doi.org/10.1097/00007890-199904150-00405" target="_blank" rel="noreferrer">10.1097/00007890-199904150-00405</a>
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Type
The nature or genre of the resource
Journal Article
1999
Abbey S
Backlog
Cardiac Transplant
Cohen E
Heart Transplant
Heart transplantation
Journal Article
Male
Ross H
Sex disorders
Sexual Dysfunction
Straatman L
Transplant
Transplant Recipient
Transplantation
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2011.01318.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2011.01318.x</a>
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Title
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Healthcare transitions for adolescents with chronic life-threatening conditions using a Delphi method to identify research priorities for clinicians and academics in Canada
Publisher
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Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Fletcher-Johnston M; Marshall SK; Straatman L
Description
An account of the resource
Purpose Research has only begun to examine the complexity of transition to adulthood under illness conditions. A Delphi method may be utilized to identify pertinent research priorities for academics and clinicians in adolescent healthcare transitions and prioritize a framework for an ongoing programme of research. Methods Through a comprehensive recruitment strategy throughout Canada, 114 clinicians and academics were invited to participate in this national study. Three phases were conducted until consensus could be achieved for the five most pressing research priorities. Results Thirty-eight respondents completed at least one of the three phases of the process. All responses were analysed, and five questions in phase 3 achieving a level of consensus ranging 64-80% were identified as the top five research priorities. These questions included: skills and knowledge adolescents require for the transition process, how to measure success, the factors that influence a successful transition and whether good transitions improve health outcomes. Conclusions The results of this study can inform and prioritize a framework for an ongoing programme of research in Canada. The inclusion of clinicians and academics ensures that the research agenda incorporates perspectives from the front-line work of individuals providing care to this population as well as individuals from the academic community with important knowledge and skills related to research approaches and methods.
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<a href="http://doi.org/10.1111/j.1365-2214.2011.01318.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2011.01318.x</a>
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Type
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Journal Article
2011
Backlog
Child: Care, Health and Development
Fletcher-Johnston M
Journal Article
Marshall SK
Straatman L
-
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
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Citation List Month
n/a
URL Address
<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2603510/" target="_blank" rel="noreferrer">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2603510/</a>
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Title
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Paediatric palliative care research in Canada: Development and progress of a new emerging team
Publisher
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Paediatrics & Child Health
Date
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2008
Creator
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Straatman L; Cadell S; Davies B; Siden H; Steele R
Description
An account of the resource
Paediatric palliative care is a field distinct from adult palliative care, although there are many overlaps in language, approach and philosophy. Several features, however, distinguish paediatric palliative care. The illnesses that affect children are different from those that are most predominant in the adult population. In addition, the role and involvement of the family, while always important in palliative care generally, is heightened in paediatric palliative care. In this new and growing interdisciplinary specialty, paediatric palliative care professionals recognize that children exist within a family system, with individual members making up the components (1). These distinguishing characteristics mean that we cannot simply translate general or adult palliative care research to the paediatric arena. Canada has been a leader in the development of clinical paediatric palliative care, with programs in the major Canadian geographical centres, as well as North America’s first free-standing children’s hospice, Canuck Place Children’s Hospice (Vancouver, British Columbia). At the same time, there is widespread acknowledgement that not enough research has been undertaken within paediatric palliative care to provide an adequate evidence base for practice. To increase research capacity in Canada, in 2004, the Canadian Institutes of Health Research funded a research program entitled ‘Transitions in Pediatric Palliative and End-of-Life Care’ through a New Emerging Team grant.
Identifier
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<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2603510/" target="_blank" rel="noreferrer">PMC2603510</a>
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2008
Cadell S
Davies B
Paediatrics & Child Health
Siden H
Steele R
Straatman L
-
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Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
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Citation List Month
n/a
URL Address
<a href="https://doi.org/10.12968/ijpn.2008.14.5.29492" target="_blank" rel="noreferrer">https://doi.org/10.12968/ijpn.2008.14.5.29492</a>
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Title
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Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study
Publisher
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International Journal Of Palliative Nursing
Date
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2008
Subject
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Canada; Child; Health Planning; Health Services Needs and Demand; Hospices/organization & administration; Humans; Palliative Care; Pediatrics; Pilot Projects
Creator
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Steele R; Derman S; Cadell S; Davies B; Siden H; Straatman L
Description
An account of the resource
This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate around the term 'hospice' versus 'palliative care'; the different and unique needs of children requiring a palliative approach compared with adult hospice patients; and information about planning and beginning the study, including the rationale for a pilot, details about the study site, recruitment and procedures, and data collection and analysis. The results from the pilot study, as well as implications for practice and research are reported in part two.
Identifier
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<a href="https://doi.org/10.12968/ijpn.2008.14.5.29492" target="_blank" rel="noreferrer">10.12968/ijpn.2008.14.5.29492</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2008
Cadell S
Canada
Child
Davies B
Derman S
Health Planning
Health Services Needs And Demand
Hospices/organization & administration
Humans
International Journal of Palliative Nursing
Palliative Care
Pediatrics
Pilot Projects
Siden H
Steele R
Straatman L
-
Dublin Core
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Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://scholars.wlu.ca/scwk_faculty/12/" target="_blank" rel="noreferrer">http://scholars.wlu.ca/scwk_faculty/12/</a>
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Title
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Research priorities in pediatric palliative care: a delphi study
Publisher
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Journal Of Palliative Care
Date
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2007
Subject
The topic of the resource
Attitude of Health Personnel; Attitude to Health; Benchmarking; bereavement; Canada; Child; Consensus; Delphi Technique; Evidence-Based Practice; Family/psychology; Humans; Needs Assessment/organization & administration; Pain/prevention & control; Palliative Care/organization & administration; Pediatrics/organization & administration; Practice Guidelines as Topic; Psychological/prevention & control; Questionnaires; Research Design; Research/organization & administration; Stress
Creator
An entity primarily responsible for making the resource
Steele R; Fletcher JM; Bosma H; Siden H; Straatman L; Fleming C; Cadell S; Davies B
Description
An account of the resource
Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. Objectives: The goal of the project was to achieve consensus among palliative care practitioners and researchers regarding the identification of pertinents lines of research. Method: A Delphi technique was used with an interdisciplinary panel (n=14–16) of researchers and frontline clinicians in pediatric palliative care in Canada. Results: Four priority research questions were identified: What matters most for patients and parents receiving pediatric palliative services? What are the bereavement needs of families in pediatric palliative care? What are the best practice standards in pain and symptom management? What are effective strategies to alleviate suffering at the end of life? Conclusions: These identified priorities will provide guidance and direction for research efforts in Canada, and may prove useful in providing optimal care to patients and families in pediatric palliative care.
Identifier
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<a href="http://scholars.wlu.ca/scwk_faculty/12/" target="_blank" rel="noreferrer">scwk_faculty/12</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2007
Attitude Of Health Personnel
Attitude To Health
Benchmarking
Bereavement
Bosma H
Cadell S
Canada
Child
Consensus
Davies B
Delphi Technique
Evidence-based Practice
Family/psychology
Fleming C
Fletcher JM
Humans
Journal Of Palliative Care
Needs Assessment/organization & administration
Pain/prevention & control
Palliative Care/organization & Administration
Pediatrics/organization & Administration
Practice Guidelines As Topic
Psychological/prevention & control
Questionnaires
Research Design
Research/organization & administration
Siden H
Steele R
Straatman L
Stress
-
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Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://books.google.ca/books?id=rAZiOwTY7uUC&pg=PA96&lpg=PA96&dq=Research+considerations+in+pediatric+palliative+care&source=bl&ots=_2LYGGhnZ4&sig=MgUIcBYf0kZ0cA6V0dlzn3L--6w&hl=en&sa=X&ved=0ahUKEwjdsK2d56bRAhUG8GMKHZqtB9AQ6AEIRTAH#v=onepage&q=Research%20considerations%20in%20pediatric%20palliative%20care&f=false" target="_blank" rel="noreferrer">https://books.google.ca/books?id=rAZiOwTY7uUC&pg=PA96&lpg=PA96&dq=Research+considerations+in+pediatric+palliative+care&source=bl&ots=_2LYGGhnZ4&sig=MgUIcBYf0kZ0cA6V0dlzn3L--6w&hl=en&sa=X&ved=0ahUKEwjdsK2d56bRAhUG8GMKHZqtB9AQ6AEIRTAH#v=onepage&q=Research%20considerations%20in%20pediatric%20palliative%20care&f=false</a>
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Title
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Research considerations in pediatric palliative care
Creator
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Davies B; Widger K; Steele R; Cadell S; Siden H; Straatman L
Publisher
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New York: Elsevier
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Source
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In Wolff J, Sourkes B, & Hinds P (Eds.) Textbook of Interdisciplinary Pediatric Palliative Care, First Edition. New York: Elsevier, 96-103.
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Cadell S
Davies B
Siden H
Steele R
Straatman L
Widger K
-
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Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
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URL Address
<a href="https://doi.org/10.1136/bmjspcare-2011-000058" target="_blank" rel="noreferrer">https://doi.org/10.1136/bmjspcare-2011-000058</a>
Notes
<p>2045-4368<br />Straatman, Lynn<br />Miller, Tanice<br />Journal Article<br />Research Support, Non-U.S. Gov't<br />England<br />BMJ Support Palliat Care. 2013 Sep;3(3):366-71. doi: 10.1136/bmjspcare-2011-000058. Epub 2012 Jun 1.</p>
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Date
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2013
Title
A name given to the resource
Paediatric Palliative Care: A Survey Of Paediatricians And Family Practitioners
Publisher
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Bmj Supportive & Palliative Care
Subject
The topic of the resource
Adaptation Psychological; Adult; Aged; British Columbia; Curriculum; Data Collection; Education Medical Continuing; Female; Humans; Male; Middle Aged; Palliative Care/ Psychology; Pediatrics/ Education; Physicians Family/ Education/ Psychology; Self Care/psychology; Surveys And Questionnaires
Creator
An entity primarily responsible for making the resource
Straatman L; Miller T
Description
An account of the resource
BACKGROUND: Paediatric palliative care focuses on the enhancement of the quality of life for a child and family through a combination of active and compassionate therapies intended to comfort and support the child and family who are living with a life-threatening illness. The purpose of this study was to assess the experience with and confidence in providing paediatric palliative care of practicing family/general practitioners (GPs) and paediatricians. In addition, the learning needs, modes of learning and their methods of coping/self-care were questioned. METHODS: Two hundred paediatricians and GPs in the province of British Columbia were randomly selected to participate in a mailed survey. The survey consisted of three categories: demographic information, experience and knowledge of paediatric palliative care, educational needs and preferences for learning and provision of their own self-care. RESULTS: The response rate of completed surveys was 56.5%. Only 40.1% of respondents felt their knowledge and experience were adequate. Overall, 73.5% of the respondents reported that they would like to learn more about paediatric palliative care. Over 53% of those surveyed preferred that learning be offered remotely through either internet or correspondence. Seventy-four per cent of respondents expressed they had adequate or very adequate self-care strategies to meet their own needs of well-being. CONCLUSIONS: The results of the survey will guide the paediatric palliative care community to design programmes that will better educate practicing physicians and future physicians about paediatric palliative and end of life care, healthcare services and family communication and support.
Identifier
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<a href="https://doi.org/10.1136/bmjspcare-2011-000058" target="_blank" rel="noreferrer">10.1136/bmjspcare-2011-000058</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2013
Adaptation Psychological
Adult
Aged
BMJ Supportive & Palliative Care
British Columbia
Curriculum
Data Collection
Education Medical Continuing
Female
Humans
Male
Middle Aged
Miller T
Paediatric Palliative Care: A Survey Of Paediatricians And Family Practitioners
Palliative Care/ Psychology
Pediatrics/ Education
Physicians Family/ Education/ Psychology
Self Care/psychology
Straatman L
Surveys And Questionnaires
-
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Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://www.ncbi.nlm.nih.gov/pubmed/19824283" target="_blank" rel="noreferrer">https://www.ncbi.nlm.nih.gov/pubmed/19824283</a>
Notes
<p>Siden, Harold<br />Tucker, Tara<br />Derman, Sarah<br />Cox, Kelly<br />Soon, Gordon S<br />Hartnett, Carol<br />Straatman, Lynn<br />Journal Article<br />United States<br />J Palliat Care. 2009 Autumn;25(3):213-7.</p>
Dublin Core
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Date
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2009
Title
A name given to the resource
Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?
Publisher
An entity responsible for making the resource available
Journal Of Palliative Care
Subject
The topic of the resource
Child; Child Preschool; Enteral Nutrition/ Adverse Effects; Female; Humans; Infant; Male; Prognosis; Terminal Care/ Methods
Creator
An entity primarily responsible for making the resource
Siden H; Tucker T; Derman S; Cox K; Soon GS; Hartnett C; Straatman L
Identifier
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<a href="https://www.ncbi.nlm.nih.gov/pubmed/19824283" target="_blank" rel="noreferrer">19824283</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2009
Child
Child Preschool
Cox K
Derman S
Enteral Nutrition/ Adverse Effects
Female
Hartnett C
Humans
Infant
Journal Of Palliative Care
Male
Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?
Prognosis
Siden H
Soon GS
Straatman L
Terminal Care/ Methods
Tucker T
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2735380/" target="_blank" rel="noreferrer">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2735380/</a>
Notes
<p>1918-1485<br />Siden, Harold<br />Straatman, Lynn<br />Miller, Tanice<br />Ham, Jennifer<br />Journal Article<br />Canada<br />Paediatr Child Health. 2009 Jul;14(6):379-84.</p>
Dublin Core
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Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Title
A name given to the resource
The Madison Clinic: Evaluation Of A Collaborative Outpatient Paediatric Palliative Care Clinic
Publisher
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Paediatrics & Child Health
Subject
The topic of the resource
Ambulatory Care Facilities; Continuity Of Patient Care; Paediatrics; Palliative Care
Creator
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Siden H; Straatman L; Miller T; Ham J
Description
An account of the resource
BACKGROUND: A multidisciplinary outpatient clinic at a tertiary care children's hospital supported and staffed by a children's hospice was created to enhance and expand the inpatient palliative care services available to families of children with life-limiting conditions. This clinic was created with input from clinicians, program leaders and families in developing the goals and format. METHOD: The clinic was evaluated with indicators that included program data from palliative care consultations. This information was collected and recorded on a prospective basis. RESULTS: In the first 29 months of operation, 43 clinics were held, 39 individual patients were seen and there were 59 visits. The majority of visits were for pain and symptom management (75%), while 20% were for assessment for the hospice program. The hospice-palliative care team also provided telephone support, videoconference support and inpatient consultations. Patients reported overall satisfaction with their experiences at the clinic. DISCUSSION: A major benefit of this outpatient palliative care clinic is its ability to offer continuity of care for patients and their families. It also serves as a preliminary introduction to palliative care, particularly significant for families who are not yet ready to learn about or engage in the full hospice program.
Identifier
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<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2735380/" target="_blank" rel="noreferrer">PMC2735380</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2009
Ambulatory Care Facilities
Continuity Of Patient Care
Ham J
Miller T
Paediatrics
Paediatrics & Child Health
Palliative Care
Siden H
Straatman L
The Madison Clinic: Evaluation Of A Collaborative Outpatient Paediatric Palliative Care Clinic
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://doi.org/10.1177/0883073812439345" target="_blank" rel="noreferrer">https://doi.org/10.1177/0883073812439345</a>
Notes
<p>1708-8283<br />Ho, Charles<br />Straatman, Lynn<br />Journal Article<br />United States<br />J Child Neurol. 2013 Jan;28(1):40-4. doi: 10.1177/0883073812439345. Epub 2012 Mar 23.</p>
Dublin Core
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Date
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2012
Title
A name given to the resource
A Review Of Pediatric Palliative Care Service Utilization In Children With A Progressive Neuromuscular Disease Who Died On A Palliative Care Program
Publisher
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Journal Of Child Neurology
Subject
The topic of the resource
Pediatrics; Adolescent; Child; Child Preschool; Female; Humans; Infant; Male; Neuromuscular Diseases/ Mortality/ Nursing; Palliative Care/ Methods/ Utilization; Retrospective Studies; Terminal Care
Creator
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Ho C; Straatman L
Description
An account of the resource
Recent studies and consensus statements have expressed the need to involve palliative care services in the care of children with progressive neuromuscular diseases (PMD), yet there have been no reviews of the utilization of palliative care services by children who died on a palliative care program. We conducted a retrospective chart review of all children who had a PMD who died on a single-center palliative care program. Twenty cases were identified. Services utilized by these patients included respite care, transition services, pain and symptom management, and end-of-life care. Prominent symptoms in the last 24 hours of life included respiratory distress, pain, nausea/vomiting, and anxiety; however, symptom management was very good. Utilization of services differed depending on the disease trajectory, with respite playing a critical role in the care of children with PMD. Good symptom management can be achieved.
Identifier
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<a href="https://doi.org/10.1177/0883073812439345" target="_blank" rel="noreferrer">10.1177/0883073812439345</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2012
A Review Of Pediatric Palliative Care Service Utilization In Children With A Progressive Neuromuscular Disease Who Died On A Palliative Care Program
Adolescent
Child
Child Preschool
Female
Ho C
Humans
Infant
Journal of Child Neurology
Male
Neuromuscular Diseases/ Mortality/ Nursing
Palliative Care/ Methods/ Utilization
Pediatrics
Retrospective Studies
Straatman L
Terminal Care
-
Dublin Core
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Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
Dublin Core
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Title
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Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.
Publisher
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The American Journal Of Orthopsychiatry
Date
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2014
Subject
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Human Development; Adult; Aged; Caregivers/psychology; Child; Disabled Children/psychology; Humans; Male; Middle Aged; Models Psychological; Palliative Care/psychology; Parents/psychology; Young Adult
Creator
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Cadell S; Hemsworth D; Smit QT; Steele R; Davies E; Liben S; Straatman L; Siden H
Description
An account of the resource
When parents first meet their child, they take on the entwined joys and burdens of caring for another person. Providing care for their child becomes the basic expectation, during health and illness, through the developmental milestones, into adulthood and beyond. For those parents who have a child who is born with or is later diagnosed with a life-limiting illness, parents also become caregivers in ways that parents of predominantly well children do not. While the circumstances are undisputedly stressful, for some parents benefits can co-occur along with the negative outcomes. This article tests two structural equation models of possible factors that allow these parent caregivers to experience growth in the circumstances. The diagnosis and illness of a child in the context of pediatric palliative care is a very complex experience for parents. The stresses are numerous and life-changing and yet the parents in this research demonstrated growth as measured by the Post Traumatic Growth Inventory. It appears that particular personal resources reflected in personal well-being are a precursor to the process of positive meaning making, which then, in turn, contributes to growth. The path to posttraumatic growth is not a simple one, but this research contributes to further elucidating it.
Identifier
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<a href="http://doi.org/10.1037/h0099384" target="_blank" rel="noreferrer">10.1037/h0099384</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2014
Adult
Aged
Cadell S
Caregivers/psychology
Child
Davies E
Disabled Children/psychology
Hemsworth D
Human Development
Humans
Liben S
Male
Middle Aged
Models Psychological
Palliative Care/psychology
Parents/psychology
Siden H
Smit QT
Steele R
Straatman L
The American Journal Of Orthopsychiatry
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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An integrative approach to music therapy in pediatric palliative care.
Publisher
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Journal Of Palliative Care
Date
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2014
Subject
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Hospices; Music Therapy; Palliative Care; Adolescent; British Columbia; Child; Child Preschool; Female; Humans; Infant; Male; Program Development; Program Evaluation; Young Adult
Creator
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Clark BA; Siden H; Straatman L
Identifier
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<a href="https://www.ncbi.nlm.nih.gov/pubmed/25265742" target="_blank" rel="noreferrer">25265742</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2014
Adolescent
British Columbia
Child
Child Preschool
Clark BA
Female
Hospices
Humans
Infant
Journal Of Palliative Care
Male
Music Therapy
Palliative Care
Program Development
Program Evaluation
Siden H
Straatman L
Young Adult