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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2018 Oncology List
Text
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Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1002/pbc.27455" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1002/pbc.27455</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?
Publisher
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Pediatric Blood and Cancer
Date
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2018
Subject
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oncology; South Africa; grounded theory; basic needs; sibling; conference abstract; financial management; psychosocial care; human; child; female; male; interview; clinical article; awareness; palliative therapy; qualitative research; staff; exploratory research; error
Creator
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Du Plessis J; Stones D; Meiring M
Description
An account of the resource
Background/Objectives: Palliative and supportive care needs of children with cancer and their families are unique and require special attention. Development of appropriate services sensitive to the needs of families and based on observed evidence has become more and more recognized. As an introduction to develop and improve supportive and palliative care services for children with cancer, families were questioned regarding their experiences and suggestions for improvements. Design/Methods: In this exploratory, qualitative study using a grounded theory approach, sixteen family members of children with cancer and treated at Universitas Academic Hospital, Bloemfontein, South Africa were interviewed regarding their children's standard oncology and supportive/palliative care. Their responses were studied and repeating themes were identified. Results: A number of areas of need were identified: erratic psychosocial support, minimal financial support, poor parental access to basic needs and food provision, preventable errors in procedures and lack of sibling support. Staff were also not always sufficiently equipped to attend to palliative care patients. Conclusions: Supportive and palliative care for children with cancer need to be improved. Family members are a valuable resource and the interviews identified a number of themes, valuable to consider in the expansion of a supportive/palliative service. The intension of the study were to create the awareness that by making small and affordable changes the quality of care the children and families receive can be improved.
Identifier
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<a href="http://doi.org/%2010.1002/pbc.27455" target="_blank" rel="noreferrer noopener">10.1002/pbc.27455</a>
2018
Awareness
Basic Needs
Child
Clinical Article
conference abstract
Du Plessis J
error
Exploratory Research
Female
financial management
Grounded Theory
Human
Interview
Male
Meiring M
Oncology
Oncology 2018 List
Palliative Therapy
Pediatric Blood and Cancer
psychosocial care
Qualitative Research
Sibling
South Africa
Staff
Stones D