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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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July 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2020 List
URL Address
<a href="http://doi.org/10.1542/peds.2019-2771" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/peds.2019-2771</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Bereaved Parents, Hope, and Realism
Publisher
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Pediatrics
Date
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2020
Subject
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Bereavement; Collaboration; Conceptual Framework; Family; Grief; Hope; Life Experiences; Palliative Care; Parents
Creator
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Kaye E C; Kiefer A; Blazin L; Spraker-Perlman H; Clark L; Baker J N
Description
An account of the resource
The article presents a discussion between bereaved parents on the Quality of Life Steering Council at a large academic pediatric cancer center and interdisciplinary pediatric palliative care clinicians about the coexistence of hope and realism. Topics covered include collaborative development of a novel conceptual model, historical frameworks for hope, and definitions and infrastructure of hope.
Identifier
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<a href="http://doi.org/10.1542/peds.2019-2771" target="_blank" rel="noreferrer noopener">10.1542/peds.2019-2771</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Baker J N
Bereavement
Blazin L
Clark L
Collaboration
Conceptual Framework
Family
Grief
Hope
July 2020 List
Kaye E C
Kiefer A
Life Experiences
Palliative Care
Parents
Pediatrics
Spraker-Perlman H
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2018 List
URL Address
<a href="http://doi.org/10.1177/1049909118786875" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1177/1049909118786875</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Incorporating Bereaved Parents as Faculty Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care.
Publisher
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The American journal of hospice & palliative care
Date
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2018
Subject
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bereavement; communication training; end of life; palliative care education; pediatric oncology; pediatric palliative care
Creator
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Snaman JM; Kaye EC; Spraker-Perlman H; Levine D; Clark L; Wilcox R; Barnett B; Sykes April; Lu Z; Cunningham MJ; Baker JN
Description
An account of the resource
BACKGROUND: Education and training for interdisciplinary pediatric providers requires training in principles of palliative and end-of-life (EOL) care. The experiences of bereaved parents can inform and enhance palliative care educational curricula in uniquely powerful and valuable ways. The objective of this study is to present an innovative palliative care educational program facilitated by trained bereaved parents who serve as volunteer educators in local and national palliative care educational forums and to describe how incorporation of bereaved parents in these educational forums affects participant comfort with communication and management of children at the EOL. METHODS: Parent educators underwent both general and session-specific training and participated in debriefings following each session. Survey tools were developed or adapted to determine how bereaved parent educators affected participant experiences in 3 different educational forums. Pre- and postsession surveys with incorporation of retrospective preprogram assessment items to control for response shift were used in the evaluation of institutional seminars on pediatric palliative and EOL care and role-play-based communication training sessions. Results from feedback surveys sent to attendees were used to appraise the participants' experience at the international oncology symposium. RESULTS: Involvement of trained parent educators across diverse, interdisciplinary educational forums improved attendee comfort in communicating with, and caring for, patients and families with serious illness. Importantly, parent educators also derive benefit from involvement in educational sessions with interdisciplinary clinicians. CONCLUSIONS: Integration of bereaved parents into palliative and EOL care education is an innovative and effective model that benefits both interdisciplinary clinicians and bereaved parents.
Identifier
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<a href="http://doi.org/10.1177/1049909118786875" target="_blank" rel="noreferrer noopener">10.1177/1049909118786875</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Baker JN
Barnett B
Bereavement
Clark L
communication training
Cunningham MJ
End Of Life
Kaye EC
Levine D
Lu Z
Palliative Care Education
Pediatric Oncology
Pediatric Palliative Care
September 2018 List
Snaman JM
Spraker-Perlman H
Sykes April
The American Journal of Hospice & Palliative Care
Wilcox R