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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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<a href="http://doi.org/10.1111/j.1365-2214.2006.00699.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2006.00699.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Development and preliminary validation of the 'Mind the Gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Cohort Studies; Great Britain; Adult; Parents; Questionnaires; Aged; Middle Aged; Patient Satisfaction; Sickness Impact Profile; quality of life; adolescent; Arthritis; Adolescent Transitions; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Chronic Disease/psychology; Juvenile Rheumatoid/psychology/rehabilitation; Self Care/methods
Creator
An entity primarily responsible for making the resource
Shaw KL; Southwood TR; McDonagh JE; British Society of Paediatric; Adolescent Rheumatology
Description
An account of the resource
BACKGROUND: To develop a scale to assess satisfaction with transitional health care among adolescents with a chronic illness and their parents. METHODS: The 'Mind the Gap' scale was developed using evidence from a previous needs assessment, in three stages: (1) definition of the construct; (2) design of the scale items, response options and instructions; (3) full administration of the scale, item analysis and dimensionality analysis. The scale was administered to 308 adolescents with juvenile idiopathic arthritis (JIA) and 303 parents/guardians, prior to and 12 months after the implementation of an evaluation of a structured and co-ordinated programme of transitional care. The patient population involved adolescents with JIA and their parents recruited from 10 major UK rheumatology centres. RESULTS: A total of 301 (97.7%) adolescents and 286 (95.0%) parents chose to complete the questionnaire, with median item completion rates of 100.0% (0-100%) for both adolescents and parents thus confirming feasibility. Face and content validity were confirmed. Factor analyses revealed a three-factor structure which explained 49.5% and 56.1% of the variation in adolescent and parent scores respectively. The internal consistency of each subscale ('management of environment', 'provider characteristics' and 'process issues') was indicated by Cronbach's alphas of 0.71, 0.89 and 0.89 for adolescents, respectively, and 0.83, 0.91 and 0.92 for parents respectively. Cronbach's alphas for the entire scales were 0.91 and 0.94 for the adolescent and parent forms respectively. CONCLUSION: These preliminary results report the potential of the 'Mind the Gap' scale in evaluating transitional care for adolescents with JIA. In view of the generic nature of transitional care reflected in the scale, this scale has wider potential for use with adolescents with other chronic illness in view of the generic nature of transition. This development is particularly timely in the context of transitional care developments in the UK and further validation of the scale is in progress.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2006.00699.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2006.00699.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Adolescent Health Services/organization & administration
Adolescent Rheumatology
Adolescent Transitions
Adult
Aged
Arthritis
Backlog
British Society of Paediatric
Child
Child: Care, Health and Development
Chronic Disease/psychology
Cohort Studies
Continuity Of Patient Care/organization & Administration
Great Britain
Humans
Journal Article
Juvenile Rheumatoid/psychology/rehabilitation
McDonagh JE
Middle Aged
Parents
Patient Satisfaction
Quality Of Life
Questionnaires
Self Care/methods
Shaw KL
Sickness Impact Profile
Southwood TR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2006.00698.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2006.00698.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Young people's satisfaction of transitional care in adolescent rheumatology in the UK
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Female; Humans; Male; Cohort Studies; Great Britain; Adult; Parents; Questionnaires; Program Development; Patient Satisfaction; Sickness Impact Profile; quality of life; adolescent; Arthritis; Adolescent Transitions; Chronic disease; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Juvenile Rheumatoid/psychology/rehabilitation; Self Care/methods
Creator
An entity primarily responsible for making the resource
Shaw KL; Southwood TR; McDonagh JE; British Society of Paediatric; Adolescent Rheumatology
Description
An account of the resource
BACKGROUND: To examine the quality of transitional health care from the perspectives of young people with juvenile idiopathic arthritis (JIA) and their parents. METHODS: Adolescents with JIA and their parents were recruited from 10 major UK rheumatology centres. Satisfaction with health-care delivery was measured prior to, and 12 months after, the implementation of a structured and co-ordinated programme of transitional care using self-completed questionnaires designed for this study. RESULTS: Of 359 families invited to participate, 308 (86%) adolescents with JIA and 303 (84%) parents/guardians accepted. A fifth of adolescents had persistent oligoarthritis. Median age was 14.2 (11-18) years with median disease duration of 5.7 (0-16) years. Young people and their parents rated provider characteristics more important than aspects of the physical environment or process issues. Staff honesty and knowledge were rated as the most essential aspects of best practice. Prior to implementing the programme of transitional care, parents rated service delivery for all items significantly worse than best practice. Overall satisfaction improved 12 months after entering the programme. However, while parent satisfaction improved for 70.4% of items, significant improvements were only observed for three (13.6%) items rated by adolescents. CONCLUSION: The perceived quality of health care for young people with JIA and their parents was significantly lower than what they would like. Satisfaction with many aspects of care during transition from paediatric to adult services can be improved through the implementation of a structured, co-ordinated programme of transitional care.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2006.00698.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2006.00698.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Adolescent Health Services/organization & administration
Adolescent Rheumatology
Adolescent Transitions
Adult
Arthritis
Backlog
British Society of Paediatric
Child
Child: Care, Health and Development
Chronic Disease
Cohort Studies
Continuity Of Patient Care/organization & Administration
Female
Great Britain
Humans
Journal Article
Juvenile Rheumatoid/psychology/rehabilitation
Male
McDonagh JE
Parents
Patient Satisfaction
Program Development
Quality Of Life
Questionnaires
Self Care/methods
Shaw KL
Sickness Impact Profile
Southwood TR