1
40
7
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Title
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December 2022 List
Text
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December List 2022
URL Address
<a href="http://doi.org/10.1097/NJH.0000000000000908" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/NJH.0000000000000908</a>
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Title
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Content Analysis of Multifaceted Needs for Improving the Quality of Pediatric Palliative Care Among Parents of Children With Life-threatening Conditions
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Journal of Hospice and Palliative Nursing
Date
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2022
Subject
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South Korea; advance care planning; article; bereavement; bereavement support; care behavior; child; clinical article; content analysis; controlled study; diagnosis related group; female; human; male; palliative therapy; qualitative research; semi structured interview; spiritual care
Creator
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Cho-Hee K; Min-Sun K; Yi-Ji M; Hee-Young S; Myung-Nam L; Kyung-Ah K
Description
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This study aimed to identify parental needs for pediatric palliative care and obtain their opinions on developing pediatric palliative care in South Korea. This qualitative research design used inductive and deductive methods. The data were collected through semistructured interviews. A total of 6 parents actively caring for a child with life-threatening conditions and 7 bereaved parents participated in this study. A total of 707 significant statements, 43 subthemes, and 16 themes according to 6 structured matrices (advance care planning and symptom control, psychological and spiritual care, supporting everyday lives, end-of-life care and bereavement support, delivery model of pediatric palliative care, and unmet needs within current services) on the care and bereavement experiences of parents of children with life-threatening conditions were derived. Palliative care for children is a multidisciplinary approach to evaluate, prevent, and manage multifaceted symptoms and to support children with life-threatening conditions and their families. Our findings suggest that parents of children with life-threatening conditions in South Korea present multidimensional needs across the diagnostic groups and the illness trajectories and inform policy makers and health care professionals to design a pediatric palliative care delivery model. Further studies examining the unmet needs are required to enhance the quality of pediatric palliative care. Copyright © 2022 by The Hospice and Palliative Nurses Association. All rights reserved.
Identifier
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<a href="http://doi.org/10.1097/NJH.0000000000000908" target="_blank" rel="noreferrer noopener">10.1097/NJH.0000000000000908</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Advance Care Planning
Article
Bereavement
Bereavement Support
care behavior
Child
Cho-Hee K
Clinical Article
Content Analysis
Controlled Study
December List 2022
diagnosis related group
Female
Hee-Young S
Human
Journal of Hospice and Palliative Nursing
Kyung-Ah K
Male
Min-Sun K
Myung-Nam L
Palliative Therapy
Qualitative Research
Semi Structured Interview
South Korea
Spiritual Care
Yi-Ji M
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2022 List
URL Address
<a href="http://doi.org/10.1089/jpm.2021.0394" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2021.0394</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Experience of Pediatric Patient Death, Moral Distress, and Turnover Intention among Pediatric Nurses at a Tertiary Hospital in South Korea: A Cross-Sectional Study
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Cross-sectional studies; Death; Moral distress; Pediatric; Pediatric nurses; South Korea; Turnover intention
Creator
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Jang SG; Min A; Kim S
Description
An account of the resource
Background: Pediatric nurses are particularly vulnerable to moral distress and turnover due to frequent experiences with patient death combined with limited pediatric palliative resources and related support. Objective(s): This study examined pediatric nurses' experiences of pediatric patient death, moral distress, and turnover intention and identified the correlations between them as well as the mediating role of moral distress. Method(s): This cross-sectional study conducted an online survey with 161 pediatric nurses working in a tertiary hospital in Seoul, South Korea. The survey comprised questions to assess nurses' experience of pediatric patient death and turnover intention and a validated instrument to measure their moral distress. Logistic regression was used to examine the relationships between study variables, and structural equation modeling was performed to determine the mediating effect of moral distress. Result(s): Pediatric nurses (N=161) reported high levels of moral distress with a mean score of 101.06 (standard deviation=70.528) on the pediatric version of the Moral Distress Scale. Turnover intention increased 1.01 times for every 1U increase in moral distress. Moral distress fully mediated the relationship between the experience of pediatric patient death and turnover intention. Conclusion(s): Pediatric patient death had an indirect effect on turnover intention through moral distress among pediatric nurses. Reducing pediatric nurses' moral distress caused from experiencing patient death may help minimize their turnover intention.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2021.0394" target="_blank" rel="noreferrer noopener">10.1089/jpm.2021.0394</a>
2022
April 2022 List
Cross-sectional Studies
Death
Jang SG
Journal of Palliative Medicine
Kim S
Min A
Moral Distress
Pediatric
Pediatric nurses
South Korea
Turnover intention
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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January 2020 List
URL Address
<a href="http://doi.org/10.1016/j.apnr.2019.151204" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.apnr.2019.151204</a>
Dublin Core
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Title
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Nurses' roles and challenges in providing end-of-life care in neonatal intensive care units in South Korea
Publisher
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Applied Nursing Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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End-of-life care; Neonates; Nicu; Nursing role; South Korea
Creator
An entity primarily responsible for making the resource
Kim S; Savage T A; Song M K; Vincent C; Park C G; Ferrans C E; Kavanaugh K
Description
An account of the resource
BACKGROUND: Neonatal Intensive Care Unit (NICU) nurses in Korea often experience challenges in providing care for dying infants and their families. However, there is limited understanding about what contributes to the challenges related to end-of-life care. PURPOSE: To describe NICU nurses' perceived roles and challenges faced while providing end-of-life care in South Korea. METHODS: A qualitative descriptive study was conducted with 20 NICU nurses in South Korea using semi-structured interviews. Participants were recruited from two NICUs in Seoul, where infant mortality is the highest in South Korea. Transcribed interviews were coded by two research personnel, and subsequently, a developed coding book was translated by three research personnel. The codes developed were categorized and peer-reviewed to develop themes using conventional content analysis. RESULTS: Nurses' roles during end-of-life care were grouped into four categories: providing information and support, enhancing attachment between the parents and infants, providing direct care to the infant, and completing documentation. Nurses' perceived challenges during end-of-life care included providing end-of-life care without adequate experience and knowledge, environmental constraints on end-of-life care, and conflicted situations during end-of-life care. CONCLUSION: Although the nurses provided the best care they could, their end-of-life care practice was hindered for various reasons. To enhance NICU nurses' ability to provide and make them more capable of providing high quality EOL care, hospitals need to support nurse education and improve staffing level, and create in NICUs an environment that is favorable for providing EOL care.
Identifier
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<a href="http://doi.org/10.1016/j.apnr.2019.151204" target="_blank" rel="noreferrer noopener">10.1016/j.apnr.2019.151204</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Applied Nursing Research
End-of-life Care
Ferrans C E
January 2020 List
Kavanaugh K
Kim S
Neonates
Nicu
nursing role
Park C G
Savage T A
Song M K
South Korea
Vincent C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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December 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2019 List
URL Address
<a href="http://doi.org/10.1089/jpm.2018.0584" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2018.0584</a>
Dublin Core
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Title
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Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Publisher
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Journal of palliative medicine
Date
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2019
Subject
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article; care behavior; caregiver; child; controlled study; decision making; education; human; multicenter study; oncologist; palliative therapy; pediatric patient; perception; prognosis; quality of life; questionnaire; South Korea; terminal care; tertiary care center; workforce
Creator
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Yu J; Song IG; Kim CH; Moon YJ; Shin HY; Kim MS
Description
An account of the resource
Background: Despite advances in medical technology, resources for pediatric palliative care (PPC) for children with serious illnesses are limited in South Korea. Physicians' awareness of and willingness to provide general palliative care and refer to specialized palliative care are key elements for providing PPC. Objective: The aim of this study was to explore physicians' perceptions of PPC and the differences therein between nononcologists and oncologists. Design: A nationwide survey was conducted among physicians caring for children in 45 tertiary hospitals in South Korea. Measurements: A questionnaire was developed to identify the confidence in and need for PPC, appropriate timing for PPC referrals, and perceived barriers to PPC. Results: Overall, 141 physicians responded (response rate: 10.4%). Physicians' confidence in PPC was low, although most reported a high need for PPC. Lack of workforce and facilities specialized in PPC (60.2%) and patients' or caregivers' negative recognition (55.9%) were reported as the main barriers to PPC implementation. Specialized PPC services in children's hospitals were preferred as the model of care (84.2%). Compared with nononcologists, oncologists showed higher confidence levels in decision making and communication with patients and families with poor prognosis (p = 0.041) and education and providing end-of-life care (p < 0.001). Furthermore, oncologists preferred earlier referrals than did nononcologists. Conclusions: To promote PPC provision and improve the quality of life of pediatric patients and their families, it is important to introduce PPC early into disease-modifying treatment at any level of health care. Developing education and training curricula regarding PPC for health care providers caring for children with severe illnesses is crucial.
Identifier
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<a href="http://doi.org/10.1089/jpm.2018.0584" target="_blank" rel="noreferrer noopener">10.1089/jpm.2018.0584</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Article
care behavior
Caregiver
Child
Controlled Study
December 2019 List
Decision Making
Education
Human
Journal of Palliative Medicine
Kim CH
Kim MS
Moon YJ
Multicenter Study
Oncologist
Palliative Therapy
pediatric patient
Perception
Prognosis
Quality Of Life
Questionnaire
Shin HY
Song IG
South Korea
Terminal Care
tertiary care center
workforce
Yu J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2018 List
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2018 List
URL Address
<a href="http://doi.org/10.1080/2331205X.2017.1408251" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/2331205X.2017.1408251</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Publisher
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Cogent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
advance care planning; palliative therapy; South Korea; adult; child; conference abstract; death; deterioration; diagnosis; female; financial management; human; interview; life sustaining treatment; male; organization; perception; psychosocial care; questionnaire; tertiary care center
Creator
An entity primarily responsible for making the resource
Kim M S; Kim C H; Yu J; Song IG
Description
An account of the resource
Introduction: Despite significant advances in disease treatment, resources for the pediatric palliative care (PPC) for children with serious illnesses are limited in South Korea. The obstacles to provide optimal PPC include inadequate funding, shortage of specialized professionals, and healthcare system, but the perception of health professionals is also very important. Purpose: This study explored pediatric doctors' perception of end-of-life care and needs on PPC in Korea. Materials and Methods: The study survey was developed based on a review of the palliative care literature and sample physician interview. A questionnaire was sent via online survey and mail to the pediatric doctors with specialized boards working at 43 tertiary hospitals in South Korea. Results: A total of 118 doctors responded to the survey. The median age was 37 years, 53% were female and 76% answered they have own child. Eighty percent responded that, in the previous 2 years, they cared for more than one pediatric patient who died. When asked about appropriate age for terminal state disclosure, 6%, 30%, 42% and 14% answered that pediatric patients should be informed if they are aged over 4, 7, 12, and 15 years old respectively. As for the life-sustaining treatments (LSTs) decision, 24% answered that discussions should be started when a child is diagnosed with incurable diseases, and 48% said advance care planning is needed in a state of constant deterioration even though actual death is not expected. Although only 7% of pediatric doctors had personal desire for use of LSTs when their own disease is incurable and in the deteriorating state, more respondents (29%) showed preferences to LSTs for children in the same situation. More than half of the respondents answered that they are not confident about advance care planning including LST decisions. Most respondents reported experiencing difficulties in PPC areas such as symptom management, ethical problems, and psychosocial support more than once every six months. Pediatric doctors indicated to the barriers to pediatric palliative care implementation as follows: the attitude of parents who prefer aggressive treatment (19%), shortage of PPC professionals and organizations (18%), negative perception on PPC among health professionals (16%), lack of financial support for PPC (12%), inadequate linkage between curative and palliative care (12%), and difficulties to decide when to refer a patient to PPC (10%). Conclusion: Our study showed pediatric doctors in Korea have low preferences to LSTs for children in the terminal state and perceive the needs of PPC. The results will guide the health authorities to design PPC program in Korea.
Identifier
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<a href="http://doi.org/10.1080/2331205X.2017.1408251" target="_blank" rel="noreferrer noopener">10.1080/2331205X.2017.1408251</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adult
Advance Care Planning
Child
Cogent Medicine
conference abstract
Death
Deterioration
Diagnosis
Female
financial management
Human
Interview
June 2018 List
Kim C H
Kim M S
Life Sustaining Treatment
Male
Organization
Palliative Therapy
Perception
psychosocial care
Questionnaire
Song IG
South Korea
tertiary care center
Yu J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2018 List
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2018 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2017.03.024" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2017.03.024</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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International Children's Palliative Care Network: A Global Action Network for Children With Life-Limiting Conditions
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
palliative therapy; article; child; education; female; human; human experiment; major clinical study; male; organization; social welfare; South Korea
Creator
An entity primarily responsible for making the resource
Marston J; Boucher S; Downing J
Description
An account of the resource
The International Children's Palliative Care Network (ICPCN) is a global network of individuals and organizations working together to reach the estimated 21 million children with life-limiting conditions and life-threatening illnesses. The drive to establish the ICPCN was born from the recognition of the gaps in service provision for children's palliative care and the need to collaborate, network, and share resources. Established in 2005 during a meeting in Seoul, South Korea, the ICPCN has developed over the years into an established network with a global membership. The history of the organization is described, including some of the key events since its inception. Working in collaboration with others, ICPCN has five key focus areas: Communication; Advocacy; Research; Education; and Strategic development, and is the only international charity working globally for the rights of children with palliative care needs. Activities in these areas are discussed, along with the inter-connection between the five areas. Without the ICPCN, palliative care for children would not have developed as far as it has over the years and the organization is committed to ongoing work in this area until all children requiring palliative care have access to quality services, wherever they live around the world.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2017.03.024" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2017.03.024</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Article
Boucher S
Child
Downing J
Education
Female
Human
Human Experiment
Journal of Pain and Symptom Management
June 2018 List
Major Clinical Study
Male
Marston J
Organization
Palliative Therapy
Social Welfare
South Korea
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Place Of Death Of Children With Complex Chronic Conditions: Cross-national Study Of 11 Countries
Publisher
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European Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Cause Of Death; Palliative Therapy; Adolescent; Belgium; Cancer Epidemiology; Child; Controlled Study; Cultural Value; Death Certificate; Female; Girl; Human; Logistic Regression Analysis; Major Clinical Study; Male; Malignant Neoplastic Disease; Mexico; Neuromuscular Disease; South Korea; Sweden
Creator
An entity primarily responsible for making the resource
Hakanson C; Ohlen J; Kreicbergs U; Cardenas-Turanzas M; Wilson DM; Loucka M; Frache S; Giovannetti L; Naylor W; Rhee Y; Ramos MR; Teno J; Beernaert K; Deliens L; Houttekier D; Cohen H
Description
An account of the resource
Cross-national understanding of place of death is crucial for health service systems for their provision of efficient and equal access to paediatric palliative care. The objectives of this population-level study were to examine where children with complex chronic conditions (CCC) die and to investigate associations between places of death and sex, cause of death and country. The study used death certificate data of all deceased 1- to 17-year-old children (n = 40,624) who died in 2008, in 11 European and non-European countries. Multivariable logistic regression was performed to determine associations between place of death and other factors. Between 24.4 and 75.3% of all children 1-17 years in the countries died of CCC. Of these, between 6.7 and 42.4% died at home. In Belgium and the USA, all deaths caused by CCC other than malignancies were less likely to occur at home, whereas in Mexico and South Korea, deaths caused by neuromuscular diseases were more likely to occur at home than malignancies. In Mexico (OR = 0.91, 95% CI: 0.83-1.00) and Sweden (OR = 0.35, 95% CI: 0.15-0.83), girls had a significantly lower chance of dying at home than boys. Conclusion: This study shows large cross-national variations in place of death. These variations may relate to health system-related infrastructures and policies, and differences in cultural values related to place of death, although this needs further investigation. The patterns found in this study can inform the development of paediatric palliative care programs internationally.(Table presented.) Copyright © 2017 Springer-Verlag Berlin Heidelberg
Identifier
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10.1007/s00431-016-2837-0
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adolescent
Beernaert K
Belgium
Cancer Epidemiology
Cardenas-Turanzas M
Cause Of Death
Child
Cohen H
Controlled Study
Cultural Value
Death Certificate
Deliens L
European Journal of Pediatrics
Female
Frache S
Giovannetti L
Girl
Hakanson C
Houttekier D
Human
Kreicbergs U
Logistic Regression Analysis
Loucka M
Major Clinical Study
Male
Malignant Neoplastic Disease
March 2017 List
Mexico
Naylor W
Neuromuscular Disease
Ohlen J
Palliative Therapy
Ramos MR
Rhee Y
South Korea
Sweden
Teno J
Wilson DM