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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1016/j.neurenf.2019.07.001" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.neurenf.2019.07.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Musicotherapy and narrative creations with an adolescent admitted to the pediatric hematology-oncology department
Publisher
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Neuropsychiatrie de l'Enfance et de l'Adolescence.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
adolescent; appendix; article; child; death; hematology; hospitalized adolescent; human; identity; injury; male; music therapy; Music therapy mediation; narrative; Narrative identity; oncology; Palliative care; palliative therapy; sound; symbolism; Symbolization; Trauma
Creator
An entity primarily responsible for making the resource
Viode C; Ledeuil E; Crinquand S; Lignier B
Description
An account of the resource
This groundbreaking study focuses on the link between music-therapy and narrativity in a pediatric hematology-oncology unit. The goal is to observe and analyse the psychic processes in this therapeutic mediation. We aim to study the creative processes through the narrative productions of a sick and hospitalized teenagers. The interest of this original work with regard to previous research is to focus on the internal mechanisms of the patient and his narrative identity rather than on the active ingredient and the therapeutic method itself or its effect on a particular symptom. Based on a clinical situation of a young man of 19 years followed in onco-hematology, authors show how the creation of a sound link and subsequent narration on this sound object can be used as a "cordage" for seriously ill adolescents to endure the trauma of announcing the disease and announcing an imminent promise of death. We wish to support the issues of therapeutic support in order to demonstrate their resources with which they can subjectively assume their traumatic and painful journey, in this very specific space-time. His text, reproduced in appendix, is the subject of a literary analysis then of a psychopathological discussion. Copyright © 2019 Elsevier Masson SAS
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.neurenf.2019.07.001" target="_blank" rel="noreferrer noopener">10.1016/j.neurenf.2019.07.001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adolescent
appendix
Article
Child
Crinquand S
Death
Hematology
hospitalized adolescent
Human
Identity
injury
Ledeuil E
Lignier B
Male
Music Therapy
Music therapy mediation
Narrative
Narrative identity
Neuropsychiatrie de l'Enfance et de l'Adolescence.
Oncology
Oncology 2019 List
Palliative Care
Palliative Therapy
Sound
Symbolism
Symbolization
Trauma
Viode C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2020 List
URL Address
<a href="https://pediatrics.aappublications.org/content/141/1_MeetingAbstract/391">https://pediatrics.aappublications.org/content/141/1_MeetingAbstract/391</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Use of electronic media in a pediatric palliative aquatics program: Legacy, teaching, research and caveats
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
awareness; brother; California; child; conference abstract; documentation; face; female; grief; hearing; heat; hot water; human; literature; male; memory; motion; palliative therapy; pediatrics; photography; physician; sound; teacher; teaching; touch; videorecording; voice
Creator
An entity primarily responsible for making the resource
Pyatt S; Fisher J M
Description
An account of the resource
Program Goals: Appropriate use of electronic media in a pediatric palliative care setting enhances a family's experience of care given to their child over time and assists in the grieving process. Here we explore multiple uses of electronic media in a pediatric palliative aquatics program operating within a pediatric palliative care facility in California. Evaluation: Electronic media has changed many facets of daily life, including providing palliative care to medically fragile children. Its use provides families with an "electronic biography" of their child and offers siblings a connection to a brother or sister who might have died before their birth. Oral histories are further supported with video data, thereby providing families with an enduring legacy. Loved ones unable to be present at events in "real time" can enjoy the electronic version of the child's experience. The legacy created in this manner exists beyond the grief of the present moment, extending into a time when painful memories become muted, allowing families to remember joyful events in the child's life. Families can photograph and video the child's responses to aquatic sessions, documenting movements and abilities virtually impossible for the child on land. Information can be shared with pediatric care practitioners using electronic media, providing them with detailed documentation of the patient's responses and enhanced abilities during warm water sessions. Consent is always obtained prior to facility use. As always, precautions against inappropriate use of electronic media during aquatics sessions must be assured. Public use of specific photos and film are sensitively screened for appropriateness. In researching program outcomes, the child ultimately becomes both subject and teacher during palliative aquatic sessions. Individual patient responses to sessions can be documented over time, allowing researchers opportunities to observe in slow motion subtle reactions of the patient to movement and touch. The aquatic practitioner-trainees' sense of touch, sight and hearing becomes more acute as s/he observes a child's facial and body reactions to movement, warmth, water pressure and sound. In our ongoing work of training new practitioners, appropriate use of electronic media and careful documentation of sessions has become one of our most valuable teaching tools.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Awareness
Brother
California
Child
conference abstract
Documentation
Face
February 2020 List
Female
Fisher J M
Grief
hearing
Heat
hot water
Human
literature
Male
Memory
motion
Palliative Therapy
Pediatrics
Photography
Physician
Pyatt S
Sound
Teacher
Teaching
touch
videorecording
Voice
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2018 List
URL Address
<a href="http://doi.org/10.1002/pbc.27455" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1002/pbc.27455</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Ethical dilemmas encountered by a palliative care team at a Pediatric cancer center in guatemala
Publisher
An entity responsible for making the resource available
Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
adolescent; poverty; intensive care; blood transfusion; palliative therapy; major clinical study; retrospective study; cancer patient; patient autonomy; sound; treatment withdrawal; religion; pregnancy; case study; physician; cancer therapy; childhood cancer; conference abstract; justice; medical record review; human; child; female; adult; patient care; surgery; drug withdrawal; multidisciplinary team; cancer center; Guatemala; bioethics; brain death; cancer surgery; substance abuse; treatment refusal
Creator
An entity primarily responsible for making the resource
Bustamante Tuchez LM; Rivas S; Paz G; Valverde P; Zaidi A; Close P
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.27455" target="_blank" rel="noreferrer noopener">10.1002/pbc.27455</a>
2018
Adolescent
Adult
Bioethics
Blood Transfusion
Brain Death
Bustamante Tuchez LM
cancer center
Cancer Patient
cancer surgery
Cancer Therapy
Case Study
Child
Childhood Cancer
Close P
conference abstract
Developing World 2018 List
Drug Withdrawal
Female
Guatemala
Human
Intensive Care
Justice
Major Clinical Study
Medical Record Review
Multidisciplinary team
Palliative Therapy
Patient Autonomy
Patient Care
Paz G
Pediatric Blood and Cancer
Physician
Poverty
Pregnancy
Religion
Retrospective Study
Rivas S
Sound
substance abuse
Surgery
Treatment Refusal
Treatment Withdrawal
Valverde P
Zaidi A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Publisher
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European Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Child Parent Relation; Family Life; Home Care; Palliative Therapy; Qualitative Research; Child; Clinical Article; Controlled Study; Human; Interview; Personal Experience; Sound; Symptom; Thematic Analysis
Creator
An entity primarily responsible for making the resource
Verberne LM; Kars MC; Schouten-Van Meeteren AYN; Bosman DK; Colenbrander DA; Grootenhuis MA; van Delden JJ
Description
An account of the resource
In paediatric palliative care (PPC), parents are confronted with increasing caregiving demands. More children are cared for at home, and the need for PPC of children is lengthened due to technical and medical improvements. Therefore, a clear understanding of the content of parental caregiving in PPC becomes increasingly important. The objective is to gain insight into parental caregiving based on the lived experience of parents with a child with a life-limiting disease. An interpretative qualitative study using thematic analysis was performed. Single or repeated interviews were undertaken with 42 parents of 24 children with a malignant or non-malignant disease, receiving PPC. Based on their ambition to be a 'good parent', parents caring for a child with a life-limiting disease strived for three aims: controlled symptoms and controlled disease, a life worth living for their ill child and family balance. These aims resulted in four tasks that parents performed: providing basic and complex care, organising good quality care and treatment, making sound decisions while managing risks and organising a good family life. Conclusion: Parents need early explanation from professionals about balancing between their aims and the related tasks to get a grip on their situation and to prevent becoming overburdened.(Table presented.) Copyright © 2017 The Author(s)
Identifier
An unambiguous reference to the resource within a given context
10.1007/s00431-016-2842-3
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Bosman DK
Child
Child Parent Relation
Clinical Article
Colenbrander DA
Controlled Study
European Journal of Pediatrics
Family Life
Grootenhuis MA
Home Care
Human
Interview
Kars MC
March 2017 List
Palliative Therapy
Personal Experience
Qualitative Research
Schouten-Van Meeteren AYN
Sound
Symptom
Thematic Analysis
van Delden JJ
Verberne LM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2017 List
Notes
<p>Using Smart Source Parsing<br />Date of Publication: 2017</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-life And Bereavement Care In Pediatric Intensive Care Units
Publisher
An entity responsible for making the resource available
Pediatric Clinics Of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement Support; Child Death; Family Interaction; Pediatric Intensive Care Unit; Child; Clinical Study; Doctor Patient Relation; Female; Health; Human; Male; Pain; Sound; Terminal Care; United States
Creator
An entity primarily responsible for making the resource
Suttle M; Jenkins T L; Tamburro R F
Description
An account of the resource
Most childhood deaths in the United States occur in hospitals. Pediatric intensive care clinicians must anticipate and effectively treat dying children's pain and suffering and support the psychosocial and spiritual needs of families. These actions may help family members adjust to their loss, particularly bereaved parents who often experience reduced mental and physical health. Candid and compassionate communication is paramount to successful end-of-life (EOL) care as is creating an environment that fosters meaningful family interaction. EOL care in the pediatric intensive care unit is associated with challenging ethical issues, of which clinicians must maintain a sound and working understanding.
Identifier
An unambiguous reference to the resource within a given context
10.1016/j.pcl.2017.06.012
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Bereavement Support
Child
Child Death
Clinical Study
Doctor Patient Relation
Family Interaction
Female
Health
Human
Jenkins T L
Male
October 2017 List
Pain
Pediatric Clinics of North America
Pediatric Intensive Care Unit
Sound
Suttle M
Tamburro R F
Terminal Care
United States