An overview of contemporary social work practice in palliative care.
Female; Male; Palliative Care; Canada; Education; Aged; Social Values; Hospices; Social Work; Patient Advocacy; Role; Research; psychosocial; PPC Book Chapter 2011 (Kim Widger); decision making; knowledge; Support; Adolescence; Collaboration; Evaluation; reflection; Access to Information; 80 and over; Commitment; Communities; Goals and Objectives; Health Care Delivery; Multidisciplinary Care Team; Patient Care Plans
2010
Cadell S; Johnston M; Bosma H; Wainright W
Progress In Palliative Care
2010
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
The assessment of values in laryngeal cancer: reliability of measurement methods
Female; Humans; Male; Adult; Attitude to Health; Aged; Middle Aged; Social Values; Time Factors; Non-U.S. Gov't; Research Support; Psychological; Evaluation Studies; Interview; Laryngeal Neoplasms/psychology/radiotherapy; Voice; Voice Quality
Although quantitative estimates of patients' attitudes toward the relative importance of different aspects of health are of great potential usefulness in medical decision making, there is little information about the stability of such values over time, particularly in patients whose clinical state is changing. To examine these questions, we selected a group of patients with laryngeal cancer undergoing treatment with radiotherapy. In this group of patients clinical problems are relatively circumscribed and related to the voice, and a temporary deterioration in voice-related symptoms and abilities is expected during treatment. Thirty patients were interviewed at the start and completion of a month's course of treatment. At each interview patients rated the quality of their own voices using a number of visual analogue scales and also provided both holistic and decomposed quantitative values for the importance of different aspects of voice function and sound. Although the analogue scales demonstrated the anticipated deterioration in the quality of the patients' voices, these changes in clinical state were not accompanied by any changes in the values the patients assigned to each aspect of voice sound and function. These results indicate that at least in the short term the values expressed by patients appear to be stable and uninfluenced by changes in their own clinical state. Longer term studies involving more systemic illnesses should now be carried out.
1984
Llewellyn-Thomas HA; Sutherland HJ; Ciampi A; Etezadi-Amoli J; Boyd NF; Till JE
Journal Of Chronic Diseases
1984
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/0021-9681(84)90136-x" target="_blank" rel="noreferrer">10.1016/0021-9681(84)90136-x</a>
Self-concepts, domain values, and self-esteem: relations and changes at early adolescence
Child; Humans; Adolescent Psychology; Interpersonal Relations; Self Concept; Social Values; Teaching; adolescent; Adolescent Transitions; Aptitude; Mathematics; Sports
We assessed how children's self-concepts of ability for mathematics, English, social, and physical skills activities, ratings of the importance of these activities, and general self-esteem change across the transition to junior high school. Three types of change were assessed: change in mean levels, change in stability, and change in relationships. Twice each year during the sixth and seventh grades, 1,450 children completed questionnaires. Mean levels of children's self-esteem were lowest immediately after the transition, but recovered during seventh grade. Self-concept of ability and importance ratings for math and sports activities showed linear declines. Self-concept of ability for social activities showed a cubic trend, but importance ratings for social activities declined in a linear fashion. Children's self-concepts of ability for math and English became less stable across the junior high transition, whereas beliefs about other activities and general self-esteem were more stable in seventh grade.
1989
Eccles JS; Wigfield A; Flanagan CA; Miller C; Reuman DA; Yee D
Journal Of Personality
1989
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1111/j.1467-6494.1989.tb00484.x" target="_blank" rel="noreferrer">10.1111/j.1467-6494.1989.tb00484.x</a>
Reconceptualization of the uncertainty in illness theory
Humans; Social Values; Cues; Adaptation; Psychological; Models; Psychological Theory; Disease/psychology; Anomie; Concept Formation
The theory of uncertainty in illness has its strongest support among subjects who are experiencing the acute phase of illness or are in a downward illness trajectory (mishel, 1988a). The theory has not addressed the experience of living with continual, constant uncertainty in either a chronic illness or in an illness with a treatable acute phase and possible eventual recurrence. Since uncertainty characterizes many, most prevalent, long-term illness conditions, there is a need to reconceptualize the theory of uncertainty to include the experience of living with continual uncertainty. A close examination of the theoretical statements and the empirical data reported by Mishel resulted in the identification of areas of the theory that could be expanded and reconceptualized. The reconceptualization effort was primarily fueled by questions about the outcome portion of the uncertainty theory. To provide a contest for the expansion and reconceptualization of uncertainty, applicable parts of the theory are summarized below.
1990
Mishel MH
Image--the Journal Of Nursing Scholarship
1990
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Journal Article
<a href="http://doi.org/10.1111/j.1547-5069.1990.tb00225.x" target="_blank" rel="noreferrer">10.1111/j.1547-5069.1990.tb00225.x</a>
Must patients always be given food and water?
Humans; United States; Withholding Treatment; Social Values; Euthanasia; Risk Assessment; Moral Obligations; Ethics; Parenteral Nutrition; Medical; Death and Euthanasia; Analytical Approach; RDF Project; Passive; Life Support Care/legislation & jurisprudence; Malpractice/legislation & jurisprudence; Philosophical Approach
KIE: The widespread consensus that withholding certain life-sustaining treatments, especially those entailing substantial suffering, is sometimes in a patient's best interest conflicts with our basic instincts when the treatments are food and water. Lynn and Childress examine the medical aspects of various nutritional options and the moral obligations pertinent to decision making. They conclude that, in certain limited cases, malnutrition and dehydration need not be corrected and that nutrition and hydration are not distinguishable morally from other life-sustaining treatments that may on occasion be withheld or withdrawn.
1983
Lynn J; Childress JF
The Hastings Center Report
1983
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.2307/3560572" target="_blank" rel="noreferrer">10.2307/3560572</a>
Ethical issues in the pediatric intensive care unit
Child; Humans; United States; Parental Consent; Pediatrics; Withholding Treatment; Social Values; Intensive Care; Minors; Tissue and Organ Procurement; Ethics; Uncertainty; Medical; adolescent; Preschool; Professional Patient Relationship; infant; ICU Decision Making; Critical Illness/psychology; Judicial Role; Value of Life
Advanced technology and better scientific understanding of mechanisms of disease now permit intensive care personnel to extend life beyond what some patients and families consider reasonable, leading, in part, to the "patients' rights" movement and the articulation of legal and moral guidelines for foregoing life support. In the case of pediatrics, commentaries on a few of the topics that have arisen most frequently or have provided the greatest challenge in the authors' experience are provided.
1994
Frader JE; Thompson A
Pediatric Clinics Of North America
1994
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Journal Article
<a href="http://doi.org/10.1016/s0031-3955(16)38879-4" target="_blank" rel="noreferrer">10.1016/s0031-3955(16)38879-4</a>
The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief
Humans; United States; Parent-Child Relations; Social Values; Self-Help Groups; bereavement; Parents/psychology; SSHRC CURA
A core dynamic by which grief is resolved by parents in Bereaved Parents, a self-help group, is a series of transformations of the inner representation of the dead child in the parent's inner world and in the parent's social world. As the reality of the child's death as well as the reality of the parent's continuing bond with the child are made part of the socially shared reality, the inner representation of the child can be transformed in the parent's psychic life. The end of grief is not severing the bond with the dead child, but integrating the child into the parent's life in a different way than when the child was alive. This article traces the course of the inner representation of the child in the parent's inner life and social world as the parent progresses through Bereaved Parents. It concludes with some comments on the differences that should be maintained between scholarly and popular understandings of phenomena in the continuing bonds survivors maintain with the dead.
1997
Klass D
Death Studies
1997
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Journal Article
<a href="http://doi.org/10.1080/074811897202056" target="_blank" rel="noreferrer">10.1080/074811897202056</a>
The sorcerer's broom: medicine's rampant technology
Humans; Attitude to Health; Attitude of Health Personnel; Social Values; Risk Assessment; Reproducibility of Results; Power (Psychology); Ethics; Uncertainty; Medical; Physicians/psychology; Diffusion of Innovation; Health Care and Public Health; Technology; science; Dehumanization
Discusses the impact of technology on the practice of medicine. Effect of technology to medical inflation; Influence of technology on the attempt to reform the health care system and on the redirection of the goals of health care system; Problems related to medical technology; Technological solutions to medical problems, Pitfalls of technology as it relates to medical practice.
1993
Cassell EJ
The Hastings Center Report
1993
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Journal Article
<a href="http://doi.org/10.2307/3562922" target="_blank" rel="noreferrer">10.2307/3562922</a>
Recognizing suffering
Humans; Social Values; Esthetics; Personhood; Professional Patient Relationship; Psychological; Stress; Patients/psychology; Disease/psychology; Virtues
Implies that the profession of medicine must pursue the relief of suffering. Definition of suffering; Wholeness, person, and self-identity; Purpose; Knowing the suffering of others; Knowledge of others as individuals; Aesthetics.
1991
Cassell EJ
The Hastings Center Report
1991
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.2307/3563319" target="_blank" rel="noreferrer">10.2307/3563319</a>
Clinical incoherence about persons: the problem of the persistent vegetative state
Humans; Attitude of Health Personnel; Social Values; Attitude to Death; Tissue and Organ Procurement; Uncertainty; Professional Patient Relationship; Death and Euthanasia; decision making; Physicians/psychology; Persistent Vegetative State
1996
Cassell EJ
Annals Of Internal Medicine
1996
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Journal Article
<a href="http://doi.org/10.7326/0003-4819-125-2-199607150-00014" target="_blank" rel="noreferrer">10.7326/0003-4819-125-2-199607150-00014</a>