Browse Items (161 total)
- Tags: Social Support
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Perceptions Of Palliative Care In The Nicu.
The American Academy of Pediatrics supports palliative care (PC) for all children with life-threatening illnesses. Thus, many neonatal intensive care unit (NICU) patients and their families could benefit from PC. Our study…
Tags: 2016, Advances in Neonatal Care, Communication, Continuity Of Patient Care, Emotions, Falck AJ, Female, Humans, Hussey-Gardner B, Infant Newborn, Intensive Care Units Neonatal, Interviews As Topic, Male, May 2016 List, Moorthy S, Mothers/psychology, Palliative Care/utilization, Privacy, Qualitative Research, Social Support
Palliative Care In The Nicu And Why Education Matters
Tags: 2017, Discenza D, Emotional Intelligence, Humans, Infant Newborn, Intensive Care Units Neonatal/og [organization & Administration], Neonatal Network - Journal of Neonatal Nursing, Palliative Care, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents, Parents/ed [education], Parents/px [psychology], September 2017 List, Social Support
Single-center Experience Providing Palliative Care To Pediatric Patients With End-stage Renal Disease
Tags: 2017, Article, Child, Clinical Article, Consultation, Emotional Stress, End Stage Renal Disease, Female, Human, Interdisciplinary Communication, Journal of Palliative Medicine, Keefer P, Khang E, Lehmann K, Luckritz K, Male, Medical Record Review, October 2017 List, Palliative Therapy, Parent, Saul D, Shanley M, Social Support, Woloszyk T
Grief reactions of couples to perinatal loss: a one-year prospective follow-up
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Tags: 2012, Adaptation, Adult, Attitude To Health, Cadell S, Caregivers, Child, Female, Focus Groups, Hemsworth D, Humans, Journal of Social Work in End-of-Life & Palliative Care, Kennedy K, Male, Middle Aged, Palliative Care, Parent-child Relations, Parents, Professional-family Relations, Psychological, Social Support, Social Work, Stress, Terminal Care
"His ears are so soft!" Animal-assisted interventions in oncology settings: Implications for oncology social work practice
Tags: 2016, 50-56-6 (oxytocin), 51-61-6 (dopamine), 54577-94-5 (oxytocin), 60118-07-2 (endorphin), 62-31-7 (dopamine), Adult, Animal Experiment, Animal Model, anxiety, Bach C, Blood Pressure, Cancer Patient, Cancer Therapy, Cerebrovascular Accident, Clinical Practice, Distress Syndrome, Dog, Dopamine, Ear, Endogenous Compound, Endorphin, Family Study, Female, Gene Expression, Happiness, Heart Rate, Hospice, Hospital Patient, Human, Human Versus Animal Comparison, Infusion, Journal Of Psychosocial Oncology, Male, Narrative, Nonhuman, Oncology, Oncology 2017 List, Oxytocin, Pain, Palliative Therapy, Pet Therapy, Program Development, Recreation, Skill, Social Support, Social Work Practice, Storytelling, Symptom, Total Quality Management, Trust, Volunteer, Waiting Room
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Human suffering: the need for relationship-based research in pediatric end-of-life care
Tags: 2004, Adaptation, Child, Coldsmith A, Health Services Needs And Demand, Hellsten MB, Humans, Interpersonal Relations, Journal Of Pediatric Oncology Nursing, Kane JR, Neoplasms/co [complications], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Psychological, Psychological/et [etiology], Psychological/nu [nursing], Psychological/px [psychology], Psychology, Quality Of Life, Sick Role, Social Support, Spirituality, Stress, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Spirituality in patients with advanced illness: The role of symptom control, resilience and social network
Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult
Supporting the family after the death of a child.
Tags: 2012, Adolescent, AIM, Backlog, Child, Chronic Disease, Counseling, Death, Disabled Children, Grief, Guidelines As Topic, Guilt, HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY, Humans, IM, Infant, Journal Article, Mortality, Parenting, Parents, Pediatrics, Physician's Role, Premature, Preschool, Professional-family Relations, sibling bereavement, Siblings, Social Support, Substance-Related Disorders, Sudden, Sudden Infant Death, Suicide, Wender E
Peer relationships of bereaved siblings and comparison classmates after a child's death from cancer
Tags: 2012, Adolescent, Age Factors, Backlog, Barrera M, Bereavement, Child, Compas BE, Davies B, Fairclough DL, Female, Foster TL, Gerhardt CA, Gilmer MJ, Grossenbacher JC, Hogan NS, Humans, Interpersonal Relations, Journal Article, Journal of Pediatric Psychology, Male, Neoplasms, Peer Group, Schools, Sex Factors, sibling bereavement, Siblings, Social Behavior, Social Support, Vannatta K
Indicators of family resilience after the death of a child
Tags: 2011, Adaptation, Adult, Anecdotes as Topic, Attitude To Death, Backlog, Belgium, Child, Female, Greeff AP, Grief, Herbiest T, Humans, Infant, Journal Article, Male, Middle Aged, Newborn, Object Attachment, Omega, Parent-child Relations, Parents, Preschool, Psychological, Resilience, Self Concept, Self-Help Groups, sibling bereavement, Social Adjustment, Social Support, Survivors, Vansteenwegen A
Parental assessment of pain coping in individuals with intellectual and developmental disabilities
Tags: 2011, Adaptation, Adolescent, Adult, Backlog, Breau LM, Burkitt CC, Child, Developmental Disabilities/complications/psychology, Female, Humans, Intellectual Disability/complications/psychology, Journal Article, Male, Pain Measurement, Pain/complications/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Research in Developmental Disabilities, Social Support, Young Adult, Zabalia M
Palliative care in adolescents and young adults with cancer
Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology
Tags: 1999, Ablin AR, Anxiety/prevention & control, Attitude To Death, Backlog, Bereavement, Chesler MA, Child, Child Care, Counseling, D'Angio GJ, Eden T, Family Health, Fear/psychology, Female, Human, Jankovic M, Journal Article, Male, Martins AG, Masera G, Medical & Pediatric Oncology, Mulhern RK, Neoplasms/psychology/therapy, Oppenheim D, Pain/prevention & control, Palliative Care, Parent-child Relations, Preschool, Professional-family Relations, Professional-patient Relations, Quality Of Life, Social Support, Spinetta J, Terminal Care, Topf R, Van Dongen-Melman J
The WHO objectives for palliative care: to what extent are we achieving them?
Tags: 1995, Abraham C, Backlog, Health Priorities, Health Services Research, Holistic Health, Hospices/standards, Human, Johnston G, Journal Article, Non-U.S. Gov't, Organizational Objectives, Outcome Assessment (health Care), Palliative Care/standards, Palliative Medicine, Pastoral Care, Professional-family Relations, Social Support, Support, Terminal Care/methods, World Health Organization
Care of terminally ill children with cancer
Tags: 2000, Adolescent, Adult, Attitude To Death, Backlog, Child, Communication, Foster P, Hospice Care, Human, Huszti H, Journal Article, Medical & Pediatric Oncology, Meyer WH, Neoplasms/psychology/therapy, Nitschke R, Palliative Care, Parent-child Relations, Parkhurst JB, Patient Participation, Physician-patient Relations, Preschool, Sexauer CL, Social Support, Terminal Care, Terminally Ill/psychology
Risk factors in the adjustment of siblings of children with cancer
Tags: 1996, Adaptation, Adolescent, Backlog, Central Nervous System Neoplasms/psychology, Child, Child Behavior Disorders/diagnosis, Child Behavior Disorders/psychology, Female, Humans, Journal Article, Journal Of Child Psychology And Psychiatry, And Allied Disciplines, Leukemia/psychology, Lymphoma/psychology, Male, Neoplasms/psychology, Parent-child Relations, Personality Assessment, Psychological, Self Concept, sibling bereavement, Sibling Relations, Sick Role, Sloper P, Social Support, While D
Community resources for children with special healthcare needs
Tags: 1997, Backlog, Blasco PA, Child, Chronic Disease, Community Health Services, Family/psychology, Health Services Needs And Demand, Humans, Information Services, Johnson CP, Journal Article, Pediatric Annals, Pediatrics/organization & Administration, Physician's Role, Social Support, United States
Grandma's hands: parental perceptions of the importance of grandparents as secondary caregivers in families of children with disabilities
Tags: 2001, Adult, Aged, Attitude To Health, Backlog, Caregivers/psychology, Child, Disabled Children/psychology, Family Relations, Florida, Green SE, Home Nursing/manpower/psychology, Humans, Intergenerational Relations, International Journal Of Aging & Human Development, Journal Article, Middle Aged, Parent caregivers, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Social Support, Socioeconomic Factors
Treasure Weekend: supporting bereaved siblings
Not ready for hospice: characteristics of patients in a pre-hospice program
Tags: 2001, 80 And Over, Adaptation, Age Factors, Aged, Backlog, Comparative Study, Decision Making, Denial (Psychology), Female, Hayley DC, Health/statistics & numerical data, Hospice Care/organization & administration/psychology, Hougham G, Humans, Illinois, Insurance, Journal Article, Male, Middle Aged, Muir JC, Non-U.S. Gov't, Patient Acceptance of Health Care/psychology/statistics & numerical data, Patient Selection, Patient Transfer/statistics & numerical data, Psychological, Research Support, Retrospective Studies, Sachs G, Social Support, Stocking C, The American Journal of Hospice & Palliative Care
The death of a twin
Things that help and hinder adolescent sibling bereavement
Tags: 1994, Adaptation, Adolescent, Adolescent Psychology, Backlog, Bereavement, Classification, Death, DeSantis L, Family, Female, Hogan NS, Humans, Interpersonal Relations, Journal Article, Male, Nursing Methodology Research, Psychological, Questionnaires, Sampling Studies, sibling bereavement, Sibling Relations, Social Support, Western Journal of Nursing Research
Stress, social support, and sense of coherence
Tags: 1999, Adaptation, Adult, Age Factors, Attitude To Health, Backlog, Canada, Child, Female, Health Status, Health Surveys, Humans, Internal-External Control, Journal Article, Life Change Events, Male, Middle Aged, Models, Motivation, Predictive Value of Tests, Psychological, Psychological/prevention & control/psychology, Questionnaires, Ratner PA, Social Support, Socioeconomic Factors, Stress, Western Journal of Nursing Research, Wolff AC
Cornerstone care for families of children with life-threatening illness.
Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H
Effects of sudden infant death on bereaved siblings: a comparative study
Tags: 1994, Adaptation, Backlog, Bereavement, Bradley BS, Child, Child Behavior Disorders, Female, Grief, Humans, Hutton CJ, Infant, Internal-External Control, Journal Article, Journal Of Child Psychology And Psychiatry, And Allied Disciplines, Male, Mothers, Preschool, Psychological, sibling bereavement, Sibling Relations, Social Adjustment, Social Support, Sudden Infant Death
Support as a crucial predictor of good compliance of adolescents with a chronic disease
Tags: 2001, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology/statistics & numerical data, Adolescent Transitions, Arthritis, Asthma/prevention & control/psychology, Backlog, Chronic Disease/psychology/therapy, Diabetes Mellitus, Epilepsy/prevention & control/psychology, Family/psychology, Female, Finland, Humans, Interpersonal Relations, Journal Article, Journal of Clinical Nursing, Juvenile Rheumatoid/prevention & control/psychology, Kyngas H, Logistic Models, Male, Motivation, Nurse-patient Relations, Patient Compliance/psychology/statistics & numerical data, Physician-patient Relations, Predictive Value of Tests, Questionnaires, Rissanen M, Social Support, Type 1/prevention & control/psychology
"The one thing you can never take away"
End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: research to evidence-based practice guidelines
Tags: 2001, Adolescent, Backlog, Cancer Nursing, Death and Euthanasia, Decision Making, Empirical Approach, Female, Foppiano P, Furman W, Hinds PS, Humans, Journal Article, Male, Neoplasms/nursing/psychology/therapy, Oakes L, Olson MS, Practice Guidelines As Topic, Professional Patient Relationship, Professional-family Relations, Quargnenti A, Social Support, Srivastava DK, Terminal Care
Bereavement care in the critical care setting
Predictors of distress in parents of children with cancer: a prospective study.
Tags: 2000, Adaptation, Adolescent, Backlog, Child, Cost Of Illness, Depression/diagnosis/drug therapy/psychology, Female, Humans, Internal-External Control, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Neoplasms, Non-U.S. Gov't, Parent-child Relations, Parents/psychology, Prospective Studies, Psychological, Psychological/psychology, Questionnaires, Research Support, Sloper P, Social Adjustment, Social Support, Stress
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.
Tags: 1999, Adolescent, Adult, Advance Directives, Artificial, Backlog, Bereavement, Child, Continuity Of Patient Care, DNAR, Female, Humans, Journal Article, Journal of Paediatrics and Child Health, Maddocks I, Male, Muscular Atrophy, Muscular Dystrophies/th [Therapy], Needs Assessment, Nuclear Family, Palliative Care/og [Organization & Administration], Parents/px [psychology], Parker D, Respiration, Social Support, South Australia, Spinal/th [Therapy], Stern LM, Terminal Care/st [standards]