Browse Items (161 total)
- Tags: Social Support
Children's experiences of cystic fibrosis: a systematic review of qualitative studies
Tags: 2014, Activities of Daily Living, Adaptation, Adolescent, Backlog, Child, Cost Of Illness, Craig JC, Cystic Fibrosis, Defense Mechanisms, Disability Evaluation, Fitzgerald D, Hanson CS, Health Services Needs And Demand, Hope, Humans, Internal-External Control, Jamieson N, Journal Article, Pediatrics, Power (psychology), Preschool, Prognosis, Psychological, Qualitative Research, Quality Of Life, Resilience, Self Care, Sick Role, Singh-Grewal D, Social Adjustment, Social Isolation, Social Support, Tong A, Young Adult
Because statistics don't tell the whole story: a call for comprehensive care for children with cancer
Tags: 2014, Adaptation, Backlog, Ca: A Cancer Journal For Clinicians, Cullen J, Data Interpretation, Decision Making, Delivery of Health Care, Grief, Humans, Integrated, Journal Article, Neoplasms, Palliative Care, Pediatrics, Professional-family Relations, Psychological, Quality Of Life, Social Support, statistical
Meeting the needs of siblings of children with life-limiting illnesses
A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions
Bereaved Parents' Perspectives on Informal Social Support: “What Worked for You?”
A New Approach to Explain the Link between Social Support and Depression in a 2-years Arthritis Rheumatoid Sample. Is there any Moderation Effect of Acceptance?
Palliative care in neonatal neurology: robust support for infants, families and clinicians
Tags: 2015, Bidegain M, Boss RD, Clinical Decision-Making/es [Ethics], Diseases, Diseases/px [Psychology], Diseases/th [Therapy], Humans, Infant, Intensive Care Units, Journal Of Perinatology, Lemmon ME, March 2018 List, Neonatal/og [Organization & Administration], Nervous System Diseases, Nervous System Diseases/px [Psychology], Nervous System Diseases/th [Therapy], Neurology/mt [Methods], Newborn, Palliative Care, Palliative Care/es [Ethics], Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Social Support
Close to home
Referring a patient and family to high-quality palliative care at the close of life: "We met a new personality... with this level of compassion and empathy"
Tags: 2009, Backlog, Connor SR, Empathy, Family Relations, Hospices, Humans, Journal Article, Journal Of The American Medical Association, Male, Middle Aged, Neoplasms, Palliative Care/standards, Patient Care Team, Primary Health Care, Quality Of Health Care, Referral And Consultation, Social Support, Teno JM
Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial
Tags: 2009, Adaptation, Affect, Aged, Ahles TA, Backlog, Bakitas M, Balan S, Brokaw FC, Byock IR, Emergency Service, Female, Health Services/utilization, Hegel MT, Hospital/utilization, Hospitalization/statistics & numerical data, Hull JG, Humans, Intensive Care Units/utilization, Intervention, Interventions, JAMA, Journal Article, Kaplan-Meiers Estimate, Length Of Stay, Li Z, Lyons KD, Male, Middle Aged, Neoplasms/mortality/nursing/psychology/therapy, Outcomes, Palliative Care/methods, Patient Care Team, Patient Education as Topic, Patient Participation, Psychological, Quality Of Life, Seville J, Sickness Impact Profile, Social Support, Terminally Ill/psychology, Tosteson TD, Treatment Outcome
Parental perceived value of a diagnosis for intellectual disability (ID): a qualitative comparison of families with and without a diagnosis for their child's ID
Tags: 2009, Adult, American Journal Of Medical Genetics.Part A, Backlog, Birch PH, Child, Exploratory Behavior, Family, Female, Friedman JM, Humans, Intellectual Disability, Intellectual Disability/diagnosis/therapy, Journal Article, Makela NL, Male, Marra CA, Middle Aged, Parent caregivers, Parents, Perception, Prenatal Diagnosis, Reproducibility of Results, Social Support
Symptoms in the palliative phase of children with cancer
Tags: 2007, Adolescent, Age Factors, Anorexia, Attitude To Death, Backlog, Brain Neoplasms, Caregivers, Child, Emotions, Fatigue, Fear, Female, Gastrointestinal Diseases, Hoogerbrugge PM, Humans, Infant, Journal Article, Leukemia, Male, Mobility Limitation, Neoplasms, Pain, Pain Management, Palliative Care, Parent-child Relations, Parents, Pediatric Blood & Cancer, Physician-patient Relations, Preschool, Prins JB, Professional-family Relations, Psychological, Questionnaires, Retrospective Studies, Social Support, Stress, Terminal Care, Theunissen JMJ, Treatment Failure, van Achterberg T, van den Ende CHM, Vernooij-Dassen M
Factors associated with congruence between preferred and actual place of death
Palliative care for the family carrying a fetus with a life-limiting diagnosis
Tags: 2007, Attitude To Death, Backlog, Chromosomes, Decision Making, Family/psychology, Female, Fetal Diseases/diagnosis, Human, Humans, Journal Article, Leuthner SR, Munson D, Pair 18/genetics, Palliative Care/methods, Pediatric Clinics of North America, Pregnancy, Prenatal Care, Prenatal Diagnosis, Social Support, Trisomy
Providing care in chronic disease: the ever-changing balance of integrating palliative and restorative medicine
Withdrawal of mechanical ventilation in pediatric and neonatal intensive care units
Tags: 2007, Artificial, Backlog, Child, Diseases, Empathy, Humans, Infant, Intensive Care Units, Journal Article, Munson D, Neonatal, Newborn, Pediatric Clinics of North America, Premature, Professional-family Relations, Respiration, Social Support, United States, Withholding Treatment/legislation & jurisprudence
Psychosocial and spiritual needs of children living with a life-limiting illness
Tags: 2007, Activities of Daily Living, Backlog, Carroll JM, Child, Chronic Disease, Expressed Emotion, Health Services Needs And Demand, Humans, Interdisciplinary Communication, Journal Article, Kang T, Kehoe K, McSherry M, Pain/psychology/therapy, Palliative Care/methods, Patient Care Team, Pediatric Clinics of North America, Psychology, Rourke MT, Sibling Relations, Social Support, Spirituality
Family support in pediatric palliative care: how are families impacted by their children's illnesses?
Tags: 2010, Adaptation, Adolescent, Adult, Backlog, Child, Cross-sectional Studies, Curtis CM, Female, Florida, Health Care Surveys, Humans, Infant, Journal Article, Journal of Palliative Medicine, Knapp CA, Madden VL, Male, Multivariate Analysis, Palliative Care/organization & Administration, Parent-child Relations, Pediatrics/organization & Administration, Preschool, Professional-family Relations, Program Evaluation, Psychological, Psychometrics, Quality Of Life, Regression Analysis, Shenkman EA, Sloyer P, Social Support, Telephone, Young Adult
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
Tags: 2007, Aoun S, Backlog, Child, Community Health Nursing/organization & administration/standards, Critical Illness, Family Health, Humans, Journal Article, Kristjanson LJ, Monterosso L, Palliative Care/organization & administration/psychology/standards, Palliative Medicine, Parents/psychology, Patient Care Team, Phillips MB, Q3 Scoping Review Results, Quality of Health Care/organization & administration/standards, Social Support, Terminally Ill, Western Australia
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-Limiting Illness, In Process and In Retrospect
Tags: 2007, Adaptation, Adult, Attitude To Death, Backlog, Caregivers/psychology, Child, Chronic Disease/psychology, Clinical Child Psychology And Psychiatry, father experience, Father-child Relations, Fathers/psychology, Female, Gender Identity, Grief, Home Nursing/psychology, Humans, Interview, Journal Article, Life Change Events, Male, Marriage/psychology, Palliative Care/psychology, Professional-family Relations, Psychological, Raval H, Social Support, Terminal Care/psychology, Ware J
What we know (and do not know) about raising children with complex continuing care needs
Tags: 2008, Backlog, Carnevale FA, Child Care, Cost Of Illness, Disabled Children, Health Services Needs And Demand, Healthcare Disparities, Home Nursing, Humans, Journal Article, Journal Of Child Health Care, Kirk S, Life Support Care, Long-Term Care, McKeever P, Parents, Patient Care Team, Pediatric Nursing, Rehm RS, Social Support, Special
Predictors of good adherence of adolescents with diabetes (insulin-dependent diabetes mellitus)
Tags: 2007, Adolescent, Adolescent Behavior/psychology, Adolescent Transitions, Attitude To Health, Backlog, Chronic Disease, Chronic Illness, Diabetes Mellitus, Female, Humans, Journal Article, Kyngas HA, Logistic Models, Male, Nurse-patient Relations, Patient Compliance/psychology, Physician-patient Relations, Questionnaires, Self Care/psychology, Social Support, Type 1/psychology/therapy
The reflections you get': an exploration of body image and cachexia.
Tags: 2007, 80 And Over, Adaptation, Aged, Attitude To Health, Backlog, Body Image, Cachexia/et [Etiology], Cachexia/px [Psychology], England, Female, Health Services Needs And Demand, Hinsley R, Holistic Health, Hughes R, Humans, International Journal of Palliative Nursing, Interpersonal Relations, Journal Article, Male, Middle Aged, N, Narration, Neoplasms/co [complications], Nursing Methodology Research, Palliative Care/mt [methods], Palliative Care/px [psychology], Prognosis, Psychological, Qualitative Research, Quality Of Life/px [psychology], Questionnaires, Social Behavior, Social Isolation, Social Support, Spirituality, Terminally Ill/px [Psychology]
Posttraumatic growth in former Vietnam prisoners of war
Tags: 2008, Age Factors, Aged, Alonso A, Ameli R, Backlog, Buchholz KR, Charney DS, Feder A, Goetz RR, Hain R, Humans, Journal Article, Male, Moore J, Post-traumatic, Prisoners, Psychiatric Status Rating Scales, Psychiatry, Psychological Tests, Regression Analysis, Smith BW, Social Adjustment, Social Support, Southwick SM, Stress Disorders, Vietnam Conflict, Vythilingam M, Waldeck T, Wang Y
Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: a clinical practice guideline from the American College of Physicians
Tags: 2008, Advance Care Planning/standards, Annals Of Internal Medicine, Assessment Subcommittee of the American College of Physicians Clinical Efficacy, Backlog, Caregivers/psychology, Casey DE, Continuity of Patient Care/standards, Cross JT, Dallas P, Depression/therapy, Dolan NC, Dyspnea/therapy, Forciea MA, Halasyamani L, Hopkins RH, Humans, Intervention, Interventions, Journal Article, Owens DK, Pain/therapy, Palliative Care/standards, Patient Care Team/standards, Qaseem A, Referral And Consultation, Shekelle PG, Snow V, Social Support
Evidence for improving palliative care at the end of life: a systematic review
Tags: 2008, Advance Care Planning/standards, Annals Of Internal Medicine, Backlog, Caregivers/psychology, Continuity of Patient Care/standards, Depression/therapy, Dy SM, Dyspnea/therapy, Hilton LK, Hughes RG, Humans, Journal Article, Lorenz KA, Lynn J, Maglione M, Morton SC, Mularski RA, Pain/therapy, Palliative Care/standards, Patient Care Team/standards, RDF Project, Referral And Consultation, Rhodes SL, Rolon C, Shekelle PG, Shugarman LR, Social Support, Sun VC, Wilkinson A
Depression and anxiety in rheumatoid arthritis: the role of perceived social support
Tags: 2006, Anxiety Disorders, Arthritis, Backlog, Depressive Disorder, Dinan TG, Female, Gallagher C, Humans, Ireland, Irish Journal Of Medical Science, Journal Article, Kelly BD, Male, McCarthy C, Middle Aged, Molloy MG, Rheumatoid, Sheehan J, Sick Role, Social Perception, Social Support, Social Support and Chronic Pain, Zyrianova Y
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Mothers' recollections of the Paediatric Intensive Care Unit: associations with psychopathology and views on follow up
Tags: 2006, Acute/diagnosis/prevention & control/psychology, Adult, Aftercare/organization & administration/psychology, Attitude To Health, Backlog, Child, Colville GA, Communication, Cross-sectional Studies, Female, Gracey D, Health Services Needs And Demand, Hospitalized, Humans, ICU Decision Making, Infant, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, Male, Mass Screening, Mothers/psychology, Nursing Methodology Research, Pediatric/organization & Administration, Preschool, Professional-family Relations, Psychiatric Status Rating Scales, Questionnaires, Retrospective Studies, Risk Factors, Severity Of Illness Index, Social Support, Stress Disorders, Traumatic
Coping with chronic pain
Tags: 2005, Adaptation, Adult, Aged, Attitude To Health, Backlog, Chronic Disease, Depression, Dysvik Elin, Eikeland Ole-Johan, Emotions, Female, Humans, International Journal Of Nursing Studies, Journal Article, Lindstrøm TC, Male, Middle Aged, Models, Multivariate Analysis, Natvig GK, Norway, Nurse's Role, Nursing Methodology Research, Pain, Predictive Value of Tests, Problem Solving, Psychiatric Status Rating Scales, Psychological, Questionnaires, Regression Analysis, Self Concept, Social Support, Stress
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
Psychological Distress and the Impact of Social Support on Fathers and Mothers of Pediatric Cancer Patients: Long-Term Prospective Results
Tags: 2005, Adult, Backlog, Child, Depression/diagnosis/psychology, Fathers/psychology, Follow-up Studies, Hoekstra-Weebers JE, Humans, Journal Article, Journal of Pediatric Psychology, Kamps WA, Klip EC, Mothers/psychology, Neoplasms, Parent caregivers, PedPal Lit, Prospective Studies, Questionnaires, Social Support, Wijnberg-Williams BJ
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Factors influencing death at home in terminally ill patients with cancer: systematic review
Tags: 2006, Attitude To Death, Backlog, Bmj (clinical Research Ed.), Death, Gomes B, Health Services Accessibility, Higginson IJ, Home Care Services/standards/statistics & numerical data/utilization, Hospitalization/statistics & numerical data, House Calls, Humans, Journal Article, Location Of Death, Neoplasms/psychology/therapy, Patient Satisfaction, Residence Characteristics, Risk Factors, Social Support, Terminal Care/psychology/statistics & numerical data/utilization, Terminally Ill/statistics & numerical data, Time Factors
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France
Tags: 2006, Adaptation, Attitude to Health/ethnology, Backlog, Canoui P, Carnevale FA, Child, Clinical Competence, Communication, Decision Making, Doussau A, Farrell C, Grief, Guilt, Health Services Needs And Demand, Hospitalized/psychology, Hospitals, Hubert P, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/psychology, Journal Article, Journal Of Child Health Care, Lacroix J, Leclerc F, Life Support Care/psychology, Morals, Nursing Methodology Research, Parental Consent/psychology, Parents/education/psychology, Paris, Pediatric, Physician's Role/psychology, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Seguin MJ, Social Support
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health
Tags: 2006, Adaptation, Adult, Backlog, Bmc Medical Research Methodology, Caregivers/psychology/statistics & numerical data, Cerebral Palsy, Child, Cross-sectional Studies, Disabled Children, Family/psychology, Female, Health Status, Humans, Journal Article, Linear Models, Logistic Models, Male, Ontario, Psychological, Questionnaires, Raina P, Rosenbaum P, Russell DJ, Self Concept, Social Support, Socioeconomic Factors, Telemeres, Walter SD, Zhu B
Bereavement support for families following the death of a child from cancer: experience of bereaved parents
Tags: 2006, Aoun S, Backlog, Bereavement, Child, Dadd G, Death, deCinque N, Hospital, Humans, Intensive Care Units, Journal Article, Journal Of Psychosocial Oncology, Macpherson R, Monterosso L, Neoplasms, Parents, Parents/psychology, Pediatric, Personnel, Professional-family Relations, sibling bereavement, Siblings, Siblings/psychology, Sidhu R, Social Support, SSHRC CURA
The health and well-being of caregivers of children with cerebral palsy.
Tags: 2005, Adaptation, Adult, Backlog, Brehaut J, Caregivers/psychology, Cerebral Palsy/psychology, Child, Child Behavior Disorders/etiology, Cohort Studies, Disabled Children, Family Health, Female, Foster Home Care, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Models, O'Donnell M, Ontario, Parent-child Relations, Parents, Pediatrics, Professional-patient Relations, Psychological, Psychological/epidemiology/etiology, Questionnaires, Raina P, Rosenbaum P, Russell D, Self Concept, Severity Of Illness Index, Social Support, Stress, Swinton M, Theoretical, Walter SD, Wood E, Zhu Bin