1
40
6
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2022 List
URL Address
<a href="http://doi.org/10.3389/fped.2022.887711">http://doi.org/10.3389/fped.2022.887711</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China
Publisher
An entity responsible for making the resource available
Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
death; neonatal; China; newborn; acceptance; emotional; social; analgesia; well-being; nurses; education; nurse; palliative; barriers; skill; human; article; female; male; adult; aged; therapy; scale; care; multicenter; attitude; Chinese; clinical; controlled; intensive; major; study; unit; decision; making; middle; facilitators; guidance; script; simplified; vocational
Creator
An entity primarily responsible for making the resource
Zhong Y; Black BP; Kain VJ; Song Y
Description
An account of the resource
Neonatal nurses in mainland China encounter various challenges when it comes to delivering palliative care to neonates. The aim of this study was to determine the barriers and facilitators of neonatal nurses' attitudes to palliative care for neonates in mainland China. A simplified Chinese version of the Neonatal Palliative Care Attitude Scale was piloted, administered, and analyzed using survey methods. Nurses in neonatal intensive care units in mainland China regardless of experience in the field were invited to take part in. Over a five-month period in 2019, we surveyed neonatal nurses from 40 hospitals in five provinces of China. The response rate was 92.5% (N = 550). This study identified eight facilitators and four barriers to neonatal palliative care implementation. In terms of nurses' attitudes on providing palliative care, younger and older nurses were more positive, whereas middle-aged nurses were less so. Nurses' emotional wellbeing was rarely impacted by neonatal death. They considered neonatal palliative care, particularly pain management, to be just as important as curative treatment. Parents were invited to participate in decision-making by nurses. Nurses reported having access to professional counseling and talking about their concerns with other healthcare professionals. The following barriers to neonatal palliative care were identified in this study that were not observed in the original English version scale research in 2009: a lack of clinicians, time, clinical skills, systematic education, neonatal palliative care experience, and social acceptance. Future research is required to investigate each barrier in order to improve the implementation of neonatal palliative care in mainland China. Copyright © 2022 Zhong, Black, Kain and Song.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2022.887711">10.3389/fped.2022.887711</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
acceptance
Adult
Aged
Analgesia
Article
Attitude
Barriers
Black BP
CARE
China
Chinese
Clinical
controlled
Death
decision
Education
emotional
Facilitators
Female
Frontiers in Pediatrics
guidance
Human
intensive
Kain VJ
Major
making
Male
middle
Multicenter
Neonatal
Newborn
Nurse
Nurses
October 2022 List
Palliative
Scale
script
simplified
Skill
Social
Song Y
study
Therapy
Unit
vocational
Well-being
Zhong Y
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221093145</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Inequalities in Access to Bereavement Support Before and During COVID-19: Findings from Voluntary and Community Sector Bereavement Services in the UK
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
bereavement; child; hospice; human; female; male; attention; bereavement; palliative; organization; gender; welfare; therapy; support; study; pandemic; disease; 2019; clinical; population; abstract; conference; controlled; major; social; and; ethnic; coronavirus; disadvantaged; group; media; minority; sexual
Creator
An entity primarily responsible for making the resource
Selman L; Sutton E; Medeiros Mirra R; Goss S; Longo M; Seddon K; Penny A; Wakefield D; Nelson A; Byrne A; Harrop E
Description
An account of the resource
Background/aims: The COVID-19 pandemic has resulted in global mass bereavement; in the UK alone there have been 140,000 deaths to date, with a disproportionate impact on Black, Asian or minoritized ethnic (BME) communities. Voluntary and community sector (VCS) bereavement services including hospices play an important role in bereavement support. We aimed to determine services' perspectives on access to their support.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
abstract
and
Attention
Bereavement
Byrne A
Child
Clinical
Conference
controlled
coronavirus
disadvantaged
Disease
ethnic
Female
Gender
Goss S
group
Harrop E
Hospice
Human
Longo M
Major
Male
Medeiros Mirra R
media
minority
Nelson A
Organization
Palliative
Palliative Medicine
Pandemic
Penny A
Population
Seddon K
Selman L
September 2022 List
Social
study
Support
Sutton E
Therapy
Wakefield D
welfare
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1016/j.rasd.2014.06.009" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.rasd.2014.06.009</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Comparing PECS and VOCA to promote communication opportunities and to reduce stereotyped behaviors by three girls with Rett syndrome
Publisher
An entity responsible for making the resource available
Research in Autism Spectrum Disorders
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Psychology; social; Rehabilitation; Quality of life; Education & Educational Research; Rett syndrome; autism; Psychiatry; spectrum disorders; developmental-disabilities; quality-of-life; disabilities; 2 boys; Augmentative and alternative communication; contact; Developmental; environmental stimuli; Indices of happiness; keyboard emulator; microswitch-based programs; motor disabilities; profound multiple disabilities; Stereotypies; tone and motor problems; physical intervention; Picture exchange communication systems; Vocal output communication aid
Creator
An entity primarily responsible for making the resource
Stasolla F; De Pace C; Damiani R; Di Leone A; Albano V; Perilli V
Description
An account of the resource
We compared PECS and VOCA intervention strategies to promote communication opportunities for three girls with Rett syndrome and severe to profound developmental disabilities. The first aim of the study was to assess the effectiveness of both aforementioned strategies by enhancing request and choices of preferred items by the participants involved to a caregiver. The second goal of the study was to assess the effects of the intervention program by reducing stereotyped behaviors (i.e. body rocking and hand movements). Finally, the third purpose was to carry out the indices of happiness and monitor quality of life concerning the participants exposed to the intervention program. The study was carried out according to an alternating treatments design with a final preference check phase for each participant. Results showed an increasing of independent requested and chosen items as well as of indices of happiness during intervention phases for all participants. Moreover, two of them chose VOCA strategy during preference checks phase, while the third one equally chose both strategies. Furthermore, a decreasing of stereotypies was observed during intervention phases for the three participants. Clinical, educational and psychological implications of the findings are discussed. (C) 2014 Elsevier Ltd. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.rasd.2014.06.009" target="_blank" rel="noreferrer noopener">10.1016/j.rasd.2014.06.009</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2 boys
2014
Albano V
Augmentative and alternative communication
Autism
contact
Damiani R
De Pace C
DEVELOPMENTAL
Developmental-disabilities
Di Leone A
Disabilities
Education & Educational Research
environmental stimuli
Indices of happiness
keyboard emulator
microswitch-based programs
motor disabilities
Perilli V
physical intervention
Picture exchange communication systems
profound multiple disabilities
Psychiatry
Psychology
Quality Of Life
quality-of-life
Rehabilitation
Research In Autism Spectrum Disorders
Rett syndrome
Social
spectrum disorders
Stasolla F
stereotypies
tone and motor problems
Vocal output communication aid
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1474-9726.2006.00247.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1474-9726.2006.00247.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Stress, social rank and leukocyte telomere length
Publisher
An entity responsible for making the resource available
Aging Cell
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; Social Class; Stress; Social; Telemeres; Telomere/genetics; Polymorphism; Aging/genetics; Cell Aging/genetics; Cell Cycle/genetics; Cell Death/genetics; Genetic/genetics; Hierarchy; Psychological/genetics; Stem Cells/cytology/physiology
Creator
An entity primarily responsible for making the resource
Lansdorp PM
Description
An account of the resource
Blood leukocytes are a heterogeneous mixture of cell types whose telomere lengths differ greatly, reflecting variation in stem cell turnover and recruitment, expansion and replacement of more mature cell types as well as variable telomere loss and telomere repair. These differences in cell and telomere length dynamics, together with the evidence that telomere length is influenced strongly by genetic polymorphisms, greatly complicate the interpretation of claims that socio-economic status modulates the rate of telomere attrition.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1474-9726.2006.00247.x" target="_blank" rel="noreferrer">10.1111/j.1474-9726.2006.00247.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Aging Cell
Aging/genetics
Backlog
Cell Aging/genetics
Cell Cycle/genetics
Cell Death/genetics
Genetic/genetics
Hierarchy
Humans
Journal Article
Lansdorp PM
Polymorphism
Psychological/genetics
Social
Social Class
Stem Cells/cytology/physiology
Stress
Telemeres
Telomere/genetics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0277-9536(01)00209-x" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0277-9536(01)00209-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space
Publisher
An entity responsible for making the resource available
Social Science & Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Hospitalization; Humans; Aged; Self Concept; Patient-Centered Care; Cost-Benefit Analysis; Social Environment; Geography; Psychology; Non-U.S. Gov't; Research Support; Caregivers/psychology; Home Nursing/economics/psychology; Delivery of Health Care/trends; Social; Social Change; Social Responsibility; Women/psychology
Creator
An entity primarily responsible for making the resource
Williams A
Description
An account of the resource
Changes in health care service delivery have resulted in the transfer of care from formal spaces such as hospitals and institutions towards informal settings such as home. Due to the degree of this transfer, it is increasingly important for geographers to explore the experience and meaning of these changing geographies of care in order to reveal and understand the impact and effect on particular individuals and places. Recognizing that the home environment not only designates a dwelling but also represents a multitude of meanings (such as personal identity, security and privacy) that likely vary according to class, ethnicity and family size (among other socio-demographic variables), it presents a complex site for study. This paper suggests research directions to further understand the role of caregiving in contributing to the experience and meaning of the home environment by informal caregivers, the majority of which are women. Using a political economy approach, this paper first reviews the reorganization of health care services and discusses how this is reshaping the experience of informal caregivers at home. A review of the place identity literature contextualizes the specific discussion of the literature on the meaning of home, both of which are then critically examined. Next, the concept of therapeutic landscapes is discussed as an idealized framework to explore the health-promoting properties of home on informal caregivers. Questions for research are outlined before conclusions highlight how research on home space can allow a better understanding of the impact and effect of caregiving on family caregivers and the places where they live. Such research can inform the changes and trends in health care service policy.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0277-9536(01)00209-x" target="_blank" rel="noreferrer">10.1016/s0277-9536(01)00209-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Aged
Backlog
Caregivers/psychology
Cost-Benefit Analysis
Delivery of Health Care/trends
Female
Geography
Home Nursing/economics/psychology
Hospitalization
Humans
Journal Article
Non-U.S. Gov't
Patient-centered Care
Psychology
Research Support
Self Concept
Social
Social Change
Social Environment
Social Responsibility
Social science & medicine
Williams A
Women/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9924595" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9924595</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Patient Satisfaction; Psychology; quality of life; Non-U.S. Gov't; Human; Support; Developed Countries; Social; patient care team; Neoplasms/therapy; Outcome Assessment (Health Care); Palliative Care/economics/organization & administration/utilization
Creator
An entity primarily responsible for making the resource
Hearn J; Higginson IJ
Description
An account of the resource
The objective of the study was to determine whether teams providing specialist palliative care improve the health outcomes of patients with advanced cancer and their families or carers when compared to conventional services. The study involved a systematic literature review of published research. The source of the data included studies identified from a systematic search of computerized databases (Medline, psychINFO, CINAHL and BIDS to the end of 1996), hand-searching specialist palliative care journals, and studying bibliographies and reference lists. The inclusion criteria for articles were that the study considered the use of specialist palliative care teams caring for patients with advanced cancer. Articles were assessed and data extracted and synthesized, with studies graded according to design. A variety of outcomes were considered by the authors. These addressed aspects of symptom control, patient and family or carer satisfaction, health care utilization and cost, place of death, psychosocial indices and quality of life. Overall, 18 relevant studies were identified, including five randomized controlled trials. Improved outcomes were seen in the amount of time spent at home by patients, satisfaction by both patients and their carers, symptom control, a reduction in the number of inpatient hospital days, a reduction in overall cost, and the patients' likelihood of dying where they wished to for those receiving specialist care from a multiprofessional palliative care team. It was concluded that all evaluations were of services considered to be leading the field, or were pioneering training and treatments. However, when compared to conventional care, there is evidence that specialist teams in palliative care improve satisfaction and identify and deal with more patient and family needs. Moreover, multiprofessional approaches to palliative care reduce the overall cost of care by reducing the amount of time patients spend in acute hospital settings.
1998
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Backlog
Developed Countries
Hearn J
Higginson IJ
Human
Journal Article
Neoplasms/therapy
Non-U.S. Gov't
Outcome Assessment (health Care)
Palliative Care/economics/organization & administration/utilization
Palliative Medicine
Patient Care Team
Patient Satisfaction
Psychology
Quality Of Life
Social
Support