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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2022 List
Text
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February 2022 List
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsab128" target="_blank" rel="noreferrer noopener">http://doi.org/10.1093/jpepsy/jsab128</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parent and Well-Sibling Communication in Families With a Child Who Has a Life-Limiting Condition: Quantitative Survey Data
Publisher
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Journal of Pediatric Psychology
Date
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2021
Subject
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child; communication; life-limiting condition; parent; sibling
Creator
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Jaaniste T; Chin WLA; Tan SC; Cuganesan A; Coombs S; Heaton M; Cowan S; Potter D; Aouad P; Smith PL; Trethewie S
Description
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OBJECTIVE: Living with a child with a life-limiting condition (LLC), for which there is no hope of cure and premature death is expected, places much stress on a family unit. Familial communication has the potential to serve as a buffer when children are faced with stressful situations. The overall aim of the study was to learn more about illness-related communication between parents and well-siblings, giving particular consideration to the amount of illness-related communication, and sibling satisfaction with familial communication. METHODS: Participants included 48 well-siblings (aged 6-21 years) of children with LLCs and their parents. Parents and well-siblings independently completed validated measures of familial communication and sibling functioning. Parents also provided demographic information and completed a questionnaire assessing amount of illness-related information provided to well-siblings. RESULTS: Parents reported that 47.8% of well-siblings never or rarely initiated conversations about their sibling's illness. Moreover, 52.2% of well-siblings never or rarely spoke about death. Amount of illness-related communication between parents and well-siblings was most strongly predicted by parental resilience and well-sibling age. Parents engaged in significantly more illness-related communication with girls than boys (t(44)=-2.28, p = .028). Well-siblings (p < .01) and parents (p < .05) rated satisfaction with familial communication significantly higher than published norms. The only significant predictor of well-sibling satisfaction with familial communication was greater familial cohesion. Family communication variables were not significantly correlated with measures of sibling functioning (all p's>.05). CONCLUSIONS: This study provides new information regarding parent and well-sibling communication in families who have a child with a LLC.
Identifier
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<a href="http://doi.org/10.1093/jpepsy/jsab128" target="_blank" rel="noreferrer noopener">10.1093/jpepsy/jsab128</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Aouad P
Child
Chin WLA
Communication
Coombs S
Cowan S
Cuganesan A
February 2022 List
Heaton M
Jaaniste T
Journal of Pediatric Psychology
Life-limiting Condition
Parent
Potter D
Sibling
Smith PL
Tan SC
Trethewie S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2022 List
URL Address
<a href="http://doi.org/10.1111/cch.12927" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/cch.12927</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Living with a child who has a life-limiting condition: The functioning of well-siblings and parents
Publisher
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Child: Care, Health and Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
child; sibling; life-limiting condition; functioning; parent
Creator
An entity primarily responsible for making the resource
Jaaniste T; Cuganesan A; Chin WLA; Tan SC; Coombs S; Heaton M; Cowan S; Aouad P; Potter D; Smith PL; Trethewie S
Description
An account of the resource
BACKGROUND: Living with a child who has a life-limiting condition (LLC) is likely to have a major impact on all family members. There is a need to have a clearer understanding of the nature and extent of this impact on parents and well-siblings. The current study aimed to investigate the psychosocial functioning of well-siblings and parents living with a child with an LLC. Further, the study aimed to assess the resilience resources of both well-siblings and parents, giving consideration to how these relate to psychosocial functioning. METHODS: Participants included 48 well-siblings (6-21 years) and 42 parents of children with LLCs. Parents and well-siblings independently completed validated measures of child and adult functioning and personal resilience. Parents provided demographic information about the patient and family. RESULTS: The emotional, social and school functioning of well-siblings in the current study was found to be significantly poorer than published norms (all p's < .01). Parental self-reported depression, anxiety and stress scores were also all significantly poorer than published norms (all p's < .01). There was negligible agreement between well-sibling self-reported functioning and parental proxy-report of the well-siblings functioning (all r's < .126, all p's > .464). Sibling self-reported resilience was positively correlated with each of the measures of psychosocial functioning (all r's > .318, p's < .05). Parental resilience was significantly negatively correlated with depressive symptoms (r = -.369, p < .05) and anxiety symptoms (r = -.473, p < .01) but not stress scores (r = -.074, p = .644). CONCLUSION: Family members living with a child who has an LLC were found to have significantly poorer psychosocial functioning than published norms. Although one cannot infer a causal direction from the current study, greater self-reported well-sibling and parental resilience were associated with aspects of better self-reported psychosocial functioning. Future studies should assess the impact of psychosocial interventions aimed at enhancing the resilience and functioning of both well-siblings and parents.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/cch.12927" target="_blank" rel="noreferrer noopener">10.1111/cch.12927</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Aouad P
Child
Child: Care, Health and Development
Chin WLA
Coombs S
Cowan S
Cuganesan A
functioning
Heaton M
Jaaniste T
January 2022 List
Life-limiting Condition
Parent
Potter D
Sibling
Smith PL
Tan SC
Trethewie S