1
40
2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1016/j.pedn.2017.11.004" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pedn.2017.11.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Metasynthesis: Uncovering What Is Known About the Experiences of Families With Children Who Have Life-limiting and Life-threatening Illnesses
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
hope; life-limiting illness; Life-threatening illness; Metasynthesis; Parent experiences
Creator
An entity primarily responsible for making the resource
Bally JMG; Smith NR; Holtslander L; Duncan V; Hodgson-Viden H; Mpofu C; Zimmer M
Description
An account of the resource
PURPOSE: To conduct a metasynthesis of qualitative research exploring parents' psychosocial experiences during complex and traumatic life transitions related to caring for a child with a life-limiting (LLI) or life-threatening illness (LTI). BACKGROUND: Parents' experiences of caring for a child impacted by an LLI or LTI are not clearly understood, and holistic, comprehensive pediatric nursing care for parents who have children with LLI and LTIs continues to be developed as treatment improves and survival is extended. REVIEW METHODS: Predetermined inclusion and exclusion criteria were used to review qualitative studies. Those included were appraised, classified, and synthesized using systematic procedures guided by Sandelowski and Barroso (2006). DATA SOURCES: A systematic search of qualitative research was conducted by an experienced librarian to identify and retrieve studies from 10 databases. RESULTS: Of the 3515 studies screened, 23 were included. A synthesis of the findings demonstrated that parents experience profound and pervasive uncertainty, leading to their own illness experience being described as a dual reality in which fighting for survival and recognizing the threat of their child's death were daily challenges. Three key processes emerged: the devastation of living with uncertainty, the emergence of hope, and moving forward. CONCLUSION: The integration of findings adds to the current body of knowledge by highlighting the very complex experiences that parents undergo. These findings can support a more comprehensive pediatric nursing plan of care that accounts for the intricacies of the parental experience and the importance of hope.
2018-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pedn.2017.11.004" target="_blank" rel="noreferrer">10.1016/j.pedn.2017.11.004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Bally JMG
Duncan V
Hodgson-Viden H
Holtslander L
Hope
Journal of Pediatric Nursing
life-limiting illness
Life-threatening illness
March 2018 List
Metasynthesis
Mpofu C
Parent Experiences
Smith NR
Zimmer M
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
February 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2019 List
URL Address
<a href="http://doi.org/10.1111/jspn.12226" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1111/jspn.12226</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study
Publisher
An entity responsible for making the resource available
Journal for specialists in pediatric nursing : JSPN
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
feasibility study; major clinical study; nurse; social worker; basic needs; caregiver; human experiment; physician; pediatrics; human; article; child; female; male; diagnosis; self care; consensus; theoretical study; Delphi study; family nursing
Creator
An entity primarily responsible for making the resource
Smith NR; Bally JMG; Holtslander L; Peacock S; Spurr S; Hodgson-Viden H; Mpofu C; Zimmer M
Description
An account of the resource
BACKGROUND: The impact of a child s life-limiting or life-threatening illness is significant on parents who experience a great deal of emotional, physical, and spiritual upheaval. Hope has been identified as an important inner resource for parental caregivers. Specifically, parental hope has been described as having four subproceses including Accepting Reality, Establishing Control, Restructuring Hope, and Purposive Positive Thinking. PURPOSE: The purpose of this Delphi study was to gather expert opinions from parents and formal care providers about the four subproceses essential to parental hope, to increase understanding of parental caregivers current support needs. As Phase one of a three-phase study, the findings provided direction in the development of a theory-based hope intervention. DESIGN AND METHODS: A Delphi study consisting of three rounds of survey questions and controlled feedback to experts was employed. Experts suggested strategies for each subprocess and ranked them in order of highest to lowest according to feasibility and effectiveness.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/jspn.12226" target="_blank" rel="noreferrer noopener">10.1111/jspn.12226</a>
2018
Article
Bally JMG
Basic Needs
Caregiver
Child
Consensus
Delphi Study
Diagnosis
Family Nursing
Feasibility Study
February 2019 List
Female
Hodgson-Viden H
Holtslander L
Human
Human Experiment
Journal for specialists in pediatric nursing : JSPN
Major Clinical Study
Male
Mpofu C
Nurse
Peacock S
Pediatrics
Physician
Self Care
Smith NR
Social Worker
Spurr S
theoretical study
Zimmer M