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Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
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URL Address
<a href="http://doi.org/10.1016/j.sleep.2013.09.019" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.sleep.2013.09.019</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The development and psychometric assessment of a questionnaire to assess sleep and daily troubles in parents of children and young adults with severe psychomotor impairment
Publisher
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Sleep Medicine
Date
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2014
Subject
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caregivers; Validity; Screening; disability; behavior; Neurosciences & Neurology; disturbances; cerebral-palsy; test-retest reliability; instrument; validation; Children with severe psychomotor; HOST; impairment; maternal sleep; Parents' impairment; Parents' questionnaire; quality index; Sleep disturbances; sleep disturbance/disorders; unclear Q3 conditions; Q3 conditions; trajectory; characteristics; tool development; scale development
Creator
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Tietze A L; Zernikow B; Otto M; Hirschfeld G; Michel E; Koh M; Blankenburg M
Description
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Background: Children with severe psychomotor impairment (SPMI) often experience sleep disturbances that severely distress both the child and his or her parents. Validated questionnaires for the assessment of parents' distress related to their child's sleep disturbances are lacking. Methods: We developed and validated a new questionnaire, the HOST (holistic assessment of sleep and daily troubles in parents of children with SPMI) to assess the effect of the sleep disturbances in children with SPMI on their parents. The questionnaire was developed based on published data and expert opinion, and it was refined via direct consultation with affected parents. Its psychometric characteristics were assessed in a sample of parents of 214 children with SPMI. It was retested using a random subsample of the participants. Results: Explorative factor analysis revealed that the HOST was composed of four scales. Fit indices, item analysis, and convergent validity (coherence with preexisting instruments of sleep disturbances and health status) were adequate. Retest analysis (n = 62) revealed high stability of the HOST questionnaire and adequate replication validity. Conclusion: Sleep-related difficulties significantly impact the sociomedical characteristics of the parents of children with complex neurologic diseases. Typically, parents are severely affected in various aspects of daily life (i.e., medical health, social life, professional life). The HOST proved to be a valid, reliable and economical assessment tool of sleep-related difficulties in parents and relatives of children with SPMI. The HOST is capable of identifying individuals and specific areas requiring intervention. (C) 2013 Elsevier B.V. All rights reserved.
Identifier
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<a href="http://doi.org/10.1016/j.sleep.2013.09.019" target="_blank" rel="noreferrer noopener">10.1016/j.sleep.2013.09.019</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2014
Behavior
Blankenburg M
Caregivers
cerebral-palsy
characteristics
Children with severe psychomotor
Disability
disturbances
Hirschfeld G
HOST
impairment
instrument
Koh M
maternal sleep
Michel E
Neurosciences & Neurology
Otto M
Parents' impairment
Parents' questionnaire
Q3 conditions
quality index
scale development
Screening
sleep disturbance/disorders
Sleep disturbances
Sleep Medicine
test-retest reliability
Tietze A L
tool development
Trajectory
unclear Q3 conditions
VALIDATION
Validity
Zernikow B