1
40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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July 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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July 2018 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2018-315002" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2018-315002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Management of dystonia in paediatric palliative care
Publisher
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Archives of Disease in Childhood
Date
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2018
Creator
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Slater T; Hughes G; Lumsden DE; Laddie J
Identifier
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<a href="http://doi.org/10.1136/archdischild-2018-315002" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2018-315002</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
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Dystonia is a challenging neurological symptom found in paediatric palliative care (PPC).1 While well defined as a movement disorder characterised by sustained or intermittent muscle contractions associated with abnormal movement and posturing, dystonia is less well recognised and identified by clinicians.2 A wide range of therapies exist but consensus is often lacking regarding choice of treatment. No studies to date have analysed differences in management of dystonia between palliative care and neurology services. We performed a survey of practice of the PPC database at Evelina London Children’s Hospital, a non-malignant caseload covering southeast England. Specifically with regard to dystonia, documentation over 12 months (preceding July 2017) was retrospectively reviewed to assess …
2018
Archives of Disease in Childhood
Hughes G
July 2018 List
Laddie J
Lumsden DE
Slater T
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1111/dmcn.13622" target="_blank" rel="noreferrer">http://doi.org/10.1111/dmcn.13622</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Prevalence and management of dystonia in a paediatric palliative care cohort
Publisher
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Developmental Medicine And Child Neurology
Date
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2017
Subject
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dystonia; palliative therapy; prevalence; 302-17-0 (chloral hydrate); 4205-90-7 (clonidine); 4205-91-8 (clonidine); 57066-25-8 (clonidine); benzodiazepine derivative; Child; chloral hydrate; Clinical Article; clonidine; cohort analysis; cross-sectional study; Diagnosis; documentation; England; Female; Human; joint; Male; neurology; precancer; preschool child; seizure
Creator
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Slater T; Laddie J; Hughes G; Lumsden DE
Description
An account of the resource
Objectives: Dystonia and seizures can be common, unpredictable and distressing neurological symptoms in paediatric palliative care. Emergency seizure management is increasingly under joint neurology and palliative care, often incorporated into "passport type" individual plans, as advocated by the Royal College of Paediatrics and Child Health. This is rarer in dystonia. We evaluated the comparative frequency of dystonia and seizures in a cohort of children receiving paediatric palliative care and examined how emergency plans differ between neurology, palliative care and in collaboration. Methods: We performed a cross-sectional analysis of the palliative care database at Evelina London Children's Hospital, a non-malignant caseload covering southeast England. Documentation over 12 months (preceding July 2017) was reviewed to assess the frequency of patients with dystonia and seizures, current relevant therapies and proposed emergency management. Results: In a cohort of 109 children with a complex range of diagnoses (mean age = 6.0 years), 37% (n=40) suffered from seizures, 27% (n=29) from dystonia and 43% (n=47) from both. Emergency dystonia plans were identified in 51.7% (15/29) of patients: 7 by palliative care and 8 by neurology. No collaborative plans were found. Emergency seizure plans were identified in 80% (32/40) of patients: 11 by palliative care, 9 by neurology and 12 in collaboration. Conclusions: Dystonia is almost as common as seizures in children with non-malignant conditions receiving palliative care. Individualised seizures plans were commonly documented, but less for prolonged dystonic episodes. Dystonia management was more often led by neurology, in contrast to clear evidence of joint working in patients with seizures. Medications differed for dystonia: palliative care promoted conservative measures and benzodiazepines, whereas clonidine hydrochloride and chloral hydrate were favoured by neurology. Paediatric palliative care is playing an increasing role in life-limiting and life-threatening neurological conditions. However, increased collaborative working is essential to ensure consistent patient-focussed management.
2017
Identifier
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<a href="http://doi.org/10.1111/dmcn.13622" target="_blank" rel="noreferrer">10.1111/dmcn.13622</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
302-17-0 (chloral hydrate)
4205-90-7 (clonidine)
4205-91-8 (clonidine)
57066-25-8 (clonidine)
benzodiazepine derivative
Child
chloral hydrate
Clinical Article
clonidine
Cohort Analysis
Cross-sectional Study
Developmental Medicine and Child Neurology
Diagnosis
Documentation
Dystonia
England
Female
Hughes G
Human
joint
Laddie J
Lumsden DE
Male
March 2018 List
Neurology
Palliative Therapy
precancer
Preschool Child
Prevalence
Seizure
Slater T