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40
6
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2009.00944.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2009.00944.x</a>
Dublin Core
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Title
A name given to the resource
The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability
Publisher
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Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Socioeconomic Factors; Sibling Relations; Psychometrics; adolescent; Preschool; Adaptation; Psychological; infant; Chronic disease; Parents/psychology; Child Development Disorders; Developmental Disabilities/psychology; Siblings/psychology; Pervasive/psychology
Creator
An entity primarily responsible for making the resource
Kao B; Plante W; Lobato D
Description
An account of the resource
OBJECTIVE: This study evaluated the Impact on Sibling scale, a six-item measure of parents' perception of the effects of a child's illness on healthy siblings. METHODS: Participants were 122 parents of a child with chronic illness, developmental disability, or autism spectrum disorder, and a well sibling aged 4-13 years. Parents completed the Impact on Sibling scale and the Child Behavior Checklist about the sibling, and completed the revised Impact on Family scale and the Brief Symptom Inventory about themselves. RESULTS: The Impact on Sibling score was correlated with measures of sibling, parent and family functioning. The internal consistency of the Impact on Sibling scale was higher for families with children with chronic illness compared with the other two diagnostic groups. CONCLUSION: The Impact on Sibling scale is a brief set of items that can help identify siblings who are negatively affected by a brother/sister's illness. Findings support further research on the Impact on Sibling scale, particularly with families of children with chronic illnesses.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2009.00944.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2009.00944.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Adolescent
Backlog
Child
Child Development Disorders
Child: Care, Health and Development
Chronic Disease
Developmental Disabilities/psychology
Female
Humans
Infant
Journal Article
Kao B
Lobato D
Male
Parents/psychology
Pervasive/psychology
Plante W
Preschool
Psychological
Psychometrics
Sibling Relations
Siblings/psychology
Socioeconomic Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2006.00591.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2006.00591.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Longitudinal Studies; Evidence-Based Medicine; Family Health; Adaptation; Psychological; Parents/psychology; Children W/SNI; Mental Disorders/etiology; Meta-Analysis; Literature review; Chronic Disease/psychology/rehabilitation; Siblings/psychology
Creator
An entity primarily responsible for making the resource
Barlow JH; Ellard DR
Description
An account of the resource
BACKGROUND: Chronic disease of childhood may have implications for the psychosocial well-being of children and their families. The purpose of this paper is to provide an overview of the current literature regarding the psychosocial well-being of children with chronic disease, their parents and siblings. METHODS: Electronic searches were conducted using AMED, CINAHL, Cochrane Database, DARE, HTA, MEDLINE, NHS EED, PsycLIT, PsycINFO and PubMED (1990 to week 24, 2004). Inclusion criteria were systematic reviews, meta-analyses and overviews based on traditional reviews of published literature. The titles of papers were reviewed, abstracts were obtained and reviewed, and full copies of selected papers were obtained. RESULTS: Six reviews of the psychosocial well-being of children were identified: three on chronic disease in general, one on asthma, one on juvenile idiopathic arthritis and one on sickle cell disease. Two reviews of psychosocial well-being among parents and two reviews of sibling psychosocial well-being were identified. Evidence from meta-analyses shows that children were at slightly elevated risk of psychosocial distress, although only a minority experience clinical symptomatology. The proportion that experience distress remains to be clarified, as do contributory risk factors. Few conclusions can be drawn from the two reviews of parents. However, a meta-analysis of siblings showed that they are at risk from a number of negative effects. CONCLUSION: This overview has highlighted the need to extend the evidence base for psychosocial well-being of children, parents and siblings.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2006.00591.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2006.00591.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Backlog
Barlow JH
Child
Child: Care, Health and Development
Children W/SNI
Chronic Disease/psychology/rehabilitation
Ellard DR
Evidence-based Medicine
Family Health
Humans
Journal Article
Literature review
Longitudinal Studies
Mental Disorders/etiology
Meta-Analysis
Parents/psychology
Psychological
Siblings/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/J077v24n02_05" target="_blank" rel="noreferrer">http://doi.org/10.1300/J077v24n02_05</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Bereavement support for families following the death of a child from cancer: experience of bereaved parents
Publisher
An entity responsible for making the resource available
Journal Of Psychosocial Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Intensive Care Units; bereavement; Death; Neoplasms; Parents; Siblings; Professional-Family Relations; Death; social support; Pediatric; bereavement; Parents/psychology; Neoplasms; social support; sibling bereavement; Hospital; SSHRC CURA; Personnel; Siblings/psychology
Creator
An entity primarily responsible for making the resource
deCinque N; Monterosso L; Dadd G; Sidhu R; Macpherson R; Aoun S
Description
An account of the resource
This study explored the experiences and needs of nine parents who had received hospital-based bereavement support following the death of their child from cancer, in Western Australia. Six prominent themes emerged from thematic data analysis: personal grief, personal coping, concern for siblings of the deceased child, hospital bereavement support, community supports and unmet needs. Parents identified the need for more supportive contact from hospital staff during the palliative phase and following the child's death, early provision of information on how to practically and emotionally prepare for the death of their child, contact with other bereaved parents, and formal grief support for siblings. Areas for future research include exploration of parents' wish to become involved in activities to help others, bereavement support for siblings, the level of contact with the hospital unit that may be therapeutically beneficial, and parental behaviors associated with accessing both hospital and community-based bereavement supports.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/J077v24n02_05" target="_blank" rel="noreferrer">10.1300/J077v24n02_05</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Aoun S
Backlog
Bereavement
Child
Dadd G
Death
deCinque N
Hospital
Humans
Intensive Care Units
Journal Article
Journal Of Psychosocial Oncology
Macpherson R
Monterosso L
Neoplasms
Parents
Parents/psychology
Pediatric
Personnel
Professional-family Relations
sibling bereavement
Siblings
Siblings/psychology
Sidhu R
Social Support
SSHRC CURA
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=med5&AN=17004367" target="_blank" rel="noreferrer">http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=med5&AN=17004367</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Sibling bereavement and continuing bonds.
Publisher
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Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Adult; Interpersonal Relations; adolescent; Adaptation; Psychological; bereavement; sibling bereavement; SSHRC CURA; Siblings/psychology; T
Creator
An entity primarily responsible for making the resource
Packman W; Horsley H; Davies B; Kramer R
Description
An account of the resource
Historically, from a Freudian and medical model perspective, emotional disengagement from the deceased was seen as essential to the successful adaptation of bereavement. A major shift in the bereavement literature has occurred and it is now generally accepted that despite the permanence of physical separation, the bereaved remains involved and connected to the deceased and can be emotionally sustained through continuing bonds. The majority of literature has focused on adults and on the nature of continuing bonds following the death of a spouse. In this article, the authors demonstrate how the continuing bonds concept applies to the sibling relationship. We describe the unique continued relationship formed by bereaved children and adolescents following a sibling loss, highlight the factors that influence the siblings continuing bonds expressions, and offer clinical interventions. In our view, mental health professionals can play an important role in helping parents encourage activities that may facilitate the creation and maintenance of continuing bonds in their children.
2006-11
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Adolescent
Adult
Backlog
Bereavement
Child
Davies B
Death studies
Horsley H
Humans
Interpersonal Relations
Journal Article
Kramer R
Packman W
Psychological
sibling bereavement
Siblings/psychology
SSHRC CURA
T
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://doi.org/10.1016/j.jpainsymman.2011.10.017" target="_blank" rel="noreferrer">https://doi.org/10.1016/j.jpainsymman.2011.10.017</a>
Notes
<p>1873-6513<br />Gilmer, Mary Jo<br />Foster, Terrah L<br />Vannatta, Kathryn<br />Barrera, Maru<br />Davies, Betty<br />Dietrich, Mary S<br />Fairclough, Diane L<br />Grollman, Jamie<br />Gerhardt, Cynthia A<br />R01 CA098217/CA/NCI NIH HHS/United States<br />R01 CA98217/CA/NCI NIH HHS/United States<br />Journal Article<br />Research Support, N.I.H., Extramural<br />United States<br />J Pain Symptom Manage. 2012 Oct;44(4):572-82. doi: 10.1016/j.jpainsymman.2011.10.017. Epub 2012 Jul 10.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Title
A name given to the resource
Changes In Parents After The Death Of A Child From Cancer
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Subject
The topic of the resource
Adaptation Psychological; Bereavement; Death; Adult; Canada; Child; Emotions; Family/ Psychology; Female; Humans; Male; Parents/ Psychology; Siblings/psychology; United States
Creator
An entity primarily responsible for making the resource
Gilmer MJ; Foster TL; Vannatta K; Barrera M; Davies B; Dietrich MS; Fairclough DL; Grollman J; Gerhardt CA
Description
An account of the resource
CONTEXT: Few studies have compared multiple perspectives of changes experienced by parents after a child's death. OBJECTIVES: This study used interviews with bereaved parents and siblings to examine changes in parents during the first year after the death of a child from cancer. METHODS: Mothers (n=36), fathers (n=24), and siblings (n=39) from 40 families were recruited from three hospitals in the U.S. and Canada three to 12 months after the death (M=10.7, SD=3.5). Semistructured interviews with open-ended questions were conducted in the home with each participating parent and sibling separately. Content analysis identified emerging themes, and frequencies were compared between each paired set of reports (mother vs. sibling, father vs. sibling, and mother vs. father). RESULTS: Parents and siblings identified two major categories of change experienced by bereaved parents. These changes occurred in their personal lives (e.g., emotions, perspectives and priorities, physical state, work habits, coping/behaviors, spiritual beliefs, and feeling something is missing) and relationships (e.g., family, others). Ninety-four percent of the mothers, 87% of the fathers, and 69% of the siblings reported parental changes in at least one of these categories. Parents were more likely to report changes in priorities, whereas siblings reported more sadness in parents after the death. CONCLUSION: Positive and negative changes in parents after the death of a child from cancer occur in both personal and relational domains. Additional research is needed to determine the impact of a child's death on bereaved parents over time and to develop strategies to promote healthy adjustment.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1016/j.jpainsymman.2011.10.017" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2011.10.017</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2012
Adaptation Psychological
Adult
Barrera M
Bereavement
Canada
Changes In Parents After The Death Of A Child From Cancer
Child
Davies B
Death
Dietrich MS
Emotions
Fairclough DL
Family/ Psychology
Female
Foster TL
Gerhardt CA
Gilmer MJ
Grollman J
Humans
Journal of Pain and Symptom Management
Male
Parents/ Psychology
Siblings/psychology
United States
Vannatta K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/enhancing-quality-of-life-in-children-with-cystic-fibrosis-through-holistic-nursing-aop-ncyp.2016.e753" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/enhancing-quality-of-life-in-children-with-cystic-fibrosis-through-holistic-nursing-aop-ncyp.2016.e753</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
How holistic nursing can enhance the quality of life of children with cystic fibrosis
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Child Health; Cystic Fibrosis; Cystic Fibrosis/ Nursing/psychology; Family/psychology; Female; Holistic Nursing/ Methods; Humans; Life-limiting Illness; Paediatrics; Quality Of Life; Respiratory System; Siblings/psychology; Well-being
Creator
An entity primarily responsible for making the resource
Tointon K; Hunt J
Description
An account of the resource
Cystic fibrosis (CF) is one of the most common life-limiting genetic conditions. Ellen Bolton (not her real name) is a teenager with one of the rarer presentations of CF. This case study explores the experiences of Ellen and her family. It discusses the effects of CF on the patient and her family, and how it affects their quality of life (QoL) and well-being.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://dx.doi.org/10.7748/ncyp.2016.e753" target="_blank" rel="noreferrer"><span>http://dx.doi.org/</span><span>10.7748</span><span>/</span><span>ncyp</span><span>.</span><span>2016</span><span>.</span><span>e753</span></a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
August 2017 List
Child Health
Cystic Fibrosis
Cystic Fibrosis/ Nursing/psychology
Family/psychology
Female
Holistic Nursing/ Methods
Humans
Hunt J
life-limiting illness
Nursing Children and Young People
Paediatrics
Quality Of Life
Respiratory System
Siblings/psychology
Tointon K
Well-being