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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Oncology List
Text
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Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1002/pbc.27771" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.27771</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Utilization of palliative care consultations in pediatric oncology phase I clinical trials
Publisher
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Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
palliative care; pediatric oncology; phase I trial; quality of life; symptom management
Creator
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Cuviello A; Boss R; Shah N; Battles H; Beri A; Wiener L
Description
An account of the resource
Pediatric phase I clinical oncology trials represent a unique cohort of patients who have not responded to standard therapies and remain highly vulnerable to treatment toxicity and/or disease burden. Incorporating a palliative care consultation into the care plan for those with relapsed/refractory cancer where chance of cure is limited is generally recommended. A retrospective chart review of pediatric phase I trials revealed that palliative care was consulted in <20% of patients, most often for symptom management. Efforts to increase the use of palliative services in this population may enhance quality of life for children and families enrolled in phase I studies.
Identifier
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<a href="http://doi.org/10.1002/pbc.27771" target="_blank" rel="noreferrer noopener">10.1002/pbc.27771</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Battles H
Beri A
Boss R
Cuviello A
Oncology 2019 List
Palliative Care
Pediatric Blood and Cancer
Pediatric Oncology
phase I trial
Quality Of Life
Shah N
Symptom Management
Wiener L
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1111/j.1365-2133.2008.08507.x" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/j.1365-2133.2008.08507.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Gastrointestinal complications of epidermolysis bullosa in children
Publisher
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British Journal of Dermatology
Date
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2008
Subject
The topic of the resource
constipation; epidermolysis bullosa; acquisita; alpha-6-beta-4; balloon-dilatation; colitis; colon interposition; crohns-disease; Dermatology; esophageal strictures; expression; gastro-oesophageal reflux; gastrointestinal; manifestations; oesophageal strictures; pyloric atresia; vii collagen; feeding difficulties; trajectory; characteristics; GI problems; gastrointestinal problems
Creator
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Freeman E B; Koglmeier J; Martinez A E; Mellerio J E; Haynes L; Sebire N J; Lindley K J; Shah N
Description
An account of the resource
Background Epidermolysis bullosa (EB) is a group of inherited disorders characterized by skin and mucous membrane fragility. Gastrointestinal (GI) complications have been described in many types of EB and are responsible for significant morbidity. Objectives To delineate the nature and frequency of GI complications in a large cohort of paediatric patients with EB and to postulate why some complications occur more commonly in some specific subtypes. Methods The case notes of 223 children with EB seen at a national referral centre were examined retrospectively for the presence of GI symptoms, investigations and interventions. Results GI complications were present in 130/223 (58%) of all patients. In EB simplex, constipation and gastro-oesophageal reflux (GOR) were frequently observed. In junctional EB, failure to thrive and protein-losing enteropathy (PLE) were the prominent GI manifestations. Constipation was common in patients with dystrophic EB (DEB) requiring laxatives and in some cases fibre supplementation. GOR affected three-quarters of those with recessive DEB, two-thirds also having significant oesophageal strictures. Over half of patients with recessive DEB required gastrostomy insertion. Diarrhoea affected a small but significant proportion of children with recessive DEB with macroscopic and/or microscopic changes of colitis in the majority. Conclusion GI problems in EB are very common with subtype specificity for some of these complications. The occurrence of diarrhoea, PLE and colitis in the context of EB has not been highlighted previously, and may arise secondarily to antigenic exposure in the gut lumen as a result of mucosal fragility.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2133.2008.08507.x" target="_blank" rel="noreferrer noopener">10.1111/j.1365-2133.2008.08507.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2008
acquisita
alpha-6-beta-4
balloon-dilatation
British Journal of Dermatology
characteristics
colitis
colon interposition
Constipation
crohns-disease
Dermatology
epidermolysis bullosa
Esophageal strictures
expression
feeding difficulties
Freeman E B
gastro-oesophageal reflux
gastrointestinal
gastrointestinal problems
GI problems
Haynes L
Koglmeier J
Lindley K J
manifestations
Martinez A E
Mellerio J E
oesophageal strictures
pyloric atresia
Sebire N J
Shah N
Trajectory
vii collagen