Browse Items (98 total)
- Tags: Severity Of Illness Index
A clinical rating scale for Batten disease Reliable and relevant for clinical trials
Tags: 2005, Adams H, Adolescent, Adult, Backlog, Child, Children W/SNI, Clinical Trials/standards, de Blieck EA, DeYoung J, Disease Progression, Dure L, Female, Humans, Journal Article, Levy Erika, Longitudinal Studies, Male, Marshall FJ, McDonough T, Messing S, Mink JW, Neurologic Examination/methods/standards, Neurology, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology/psychology, Neuropsychological Tests/standards, others, Personality Tests/standards, Predictive Value of Tests, Preschool, Prognosis, Rothberg PG, Severity Of Illness Index, Treatment Outcome
A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care
Tags: 1998, Adaptation, Backlog, Caregivers/psychology, Child, Community Mental Health Services, Family/psychology, Female, Harris M, Hoare P, Humans, Jackson P, Journal Article, Journal Of Intellectual Disability Research, Kerley S, Male, Mental Retardation/diagnosis, Parent caregivers, Psychological, Psychological/psychology, Questionnaires, Respite Care, Severity Of Illness Index, Social Adjustment, Stress
A modified Hammersmith functional motor scale for use in multi-center research on spinal muscular atrophy
Tags: 2006, Child Preschool, Contracture/di [Diagnosis], Contracture/pp [Physiopathology], Crawford T O, Disability Evaluation, HFMS, Humans, Infant, Krosschell K J, Maczulski J A, Male, Neuromuscular Disorders, Observer Variation, Reproducibility of Results, scale development, Scott C, Severity Of Illness Index, SMA1, Spinal Muscular Atrophies of Childhood/di [Diagnosis], Spinal Muscular Atrophies of Childhood/pp [Physiopathology], Swoboda K J, tone and motor problems, tool development, Videotape Recording
A report of four cases of acute, severe pulmonary hemorrhage in infancy and support with extracorporeal membrane oxygenation
Pulmonary hemorrhage is an uncommon event in infants. It has been described most commonly in the sick premature neonate, older child, or adolescent with chronic cardiopulmonary disease. Acute idiopathic pulmonary hemorrhage in…
Tags: 1994, Acute Disease, Artificial, Backlog, Extracorporeal Membrane Oxygenation, Female, Hemorrhage/complications/therapy, Humans, Infant, Journal Article, Lung Diseases/complications/therapy, Male, Moler FW, Pediatric Pulmonology, Respiration, Respiratory Insufficiency/etiology/therapy, Sanders GM, Severity Of Illness Index, Siden HB
Acute and chronic paediatric intensive care patients: current trends and perspectives on resource utilization
Tags: 2004, Acute Disease/mortality/therapy, Adolescent, Analysis of Variance, Artificial/methods, Backlog, Briassoulis G, Child, Chronic Disease/mortality/therapy, Female, Filippou O, Greece, Hatzis T, Health Resources/trends/utilization, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length Of Stay, Male, Mavrikiou M, Monthly Journal Of The Association Of Physicians, Natsi L, Newborn, Pediatric/utilization, Preschool, Prospective Studies, Respiration, Severity Of Illness Index
Advance care planning in adolescents with cystic fibrosis: A quality improvement project
Tags: 2016, Adolescent, Advance Care Planning, Advance Directives, Attitude To Health, Cystic Fibrosis/pp [physiopathology], Cystic Fibrosis/th [therapy], December 2017 List, Female, Forced Expiratory Volume, Humans, Kazmerski TM, Lerch W, Male, Matisko J, Maurer SH, May C, Noninvasive Ventilation, Oxygen Inhalation Therapy, Patient Care Planning, Pediatric Pulmonology, Proxy, Quality Improvement, Schachner D, Severity Of Illness Index, Surveys And Questionnaires, Terminal Care, Weiner DJ, Young Adult
Advanced illness index: Predictive modeling to stratify elders using self-report data
Advice seeking and appropriate use of a pediatric emergency department
Tags: 1993, Adolescent, Age Factors, algorithms, American Journal Of Diseases Of Children, Backlog, Birth Order, Child, Counseling/statistics & numerical data, Cross-sectional Studies, Dougherty GE, Emergency Service, Female, Health Services Misuse/statistics & numerical data, Health Services Research, Hospital/utilization, Hospitals, Humans, Infant, Journal Article, Male, Newborn, Oberlander T, Parents/education/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Pediatric/utilization, Pless IB, Preschool, Quebec, Questionnaires, Severity Of Illness Index, Sex Factors, Teaching/utilization
Anorexia/cachexia-related quality of life for children with cancer
Tags: 2005, Adolescent, Age Distribution, Anorexia/diagnosis/epidemiology/psychology/therapy, Backlog, Barocas J, Cachexia/diagnosis/epidemiology/psychology/therapy, Cancer, Cella D, Child, Comparative Study, Cross-sectional Studies, Female, Goldman S, Humans, Incidence, Journal Article, Lai JS, Male, Neoplasms/diagnosis/epidemiology/psychology, Non-U.S. Gov't, Nutritional Failure, Peterman A, Prognosis, Psychometrics, Quality Of Life, Questionnaires, Research Support, Risk Assessment, Severity Of Illness Index, Sex Distribution, Sickness Impact Profile
Assessing the clinical importance of symptomatic improvements. An illustration in rheumatology
Tags: 1993, 80 And Over, Activities of Daily Living, Adult, Age Factors, Aged, Archives Of Internal Medicine, Arthritis, Arthritis/physiopathology, Attitude To Health, Backlog, Female, Health Status, Health Status Indicators, Humans, Journal Article, Lorig K, Male, Middle Aged, Osteoarthritis/physiopathology, Quality Of Life, Redelmeier DA, Rheumatoid/physiopathology, Self-Assessment, Severity Of Illness Index
Behavioral aspects of Lesch-Nyhan disease and its variants
Tags: 2005, Adolescent, Adult, Aggression, alertness, anxiety, behavioral problems, characteristics, Child, Depression, Developmental Medicine and Child Neurology, distractibility, Female, Harris J C, Humans, Jinnah H A, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/px [Psychology], Male, Meyer S M, Nyhan W L, Puig J G, Schretlen D J, Self-Injurious behavior, self-injury, Severity Of Illness Index, Trajectory, Ward J, Yun J
Characteristics and Outcomes of Critical Illness in Children With Feeding and Respiratory Technology Dependence
Tags: 2019, Adolescent, Artificial/adverse effects/*statistics & numerical data, Berg R A, Biomedical Technology, Carcillo J, Case-Control Studies, Child, Critical Care/*methods, Critical Illness/therapy, Dalton H, Dean J M, Health Care/*statistics & numerical data, Heneghan J A, Humans, Infant, Intensive Care Units, July 2020 List, Meert K L, Newborn, Newth C J L, outcome assessment, Parenteral Nutrition, Pediatric Critical Care Medicine, Pediatric/statistics & Numerical Data, Pollack M M, Preschool, Prospective Studies, Reeder R W, Respiration, Severity Of Illness Index, Tamburro R, Total/adverse effects/*statistics & numerical data
Chronic abdominal pain in children: an update
Tags: 2006, Abdominal Pain/diagnosis/epidemiology/therapy, Adolescent, Backlog, Child, Chronic Disease, Combined Modality Therapy, Continuing, Education, Female, Friesen CA, Gastrointestinal Diseases/diagnosis/epidemiology/therapy, Humans, Journal Article, Male, Medical, Missouri Medicine, Missouri/epidemiology, Pain Measurement, PedPal Lit, Preschool, Prevalence, Prognosis, Psychology, Risk Assessment, Schurman JV, Severity Of Illness Index, Socioeconomic Factors
Classification and definition of disorders causing hypertonia in childhood
Tags: 2003, Backlog, Child, Delgado MR, Diagnosis, Differential, Dystonia/complications/diagnosis, Gaebler-Spira D, Hallett M, Humans, Infant, Journal Article, Mink JW, Muscle Hypertonia/classification/etiology/physiopathology, Muscle Rigidity/complications/diagnosis, Muscle Spasticity/complications/diagnosis, Pediatrics, Preschool, Reproducibility of Results, Sanger TD, Severity Of Illness Index, Task Force on Childhood Motor Disorders
Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study
Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G
Clinician predictions of intensive care unit mortality
Tags: 2004, APACHE, Artificial, Backlog, Canadian Critical Care Trials Group, Chi-Square Distribution, Clinical Competence/standards, Cook D, Critical Care Medicine, Critical Illness/mortality/therapy, Dodek P, Female, Finfer S, Guyatt G, Heyland D, Hospital Mortality, Hospital/standards, Humans, Intensive Care Units/statistics & numerical data, Journal Article, Kirby A, Level of Care Study Investigators, Levy M, Likelihood Functions, Male, Marshall J, McDonald E, Medical Staff, Middle Aged, Multiple Organ Failure/classification/mortality, Nursing Assessment/standards, Nursing Staff, Predictive Value of Tests, Prognosis, Proportional Hazards Models, Prospective Studies, Respiration, Risk Factors, Rocker G, Severity Of Illness Index, Sjokvist P, Survival Analysis, Weaver B
Comparison of continuous subcutaneous and intravenous hydromorphone infusions for management of cancer pain
Tags: 1991, Aged, Backlog, Bouquillon AI, Comparative Study, Double-Blind Method, Evaluation Studies, Female, Humans, Hydromorphone/administration & dosage/adverse effects/blood/therapeutic use, Implantable, Infusion Pumps, Infusions, Intravenous, Journal Article, Kreeft JH, Lancet, Male, Middle Aged, Moulin DE, Murray-Parsons N, Neoplasms/blood/physiopathology, Non-U.S. Gov't, Pain/blood/drug therapy/etiology, Palliative Care/methods, Parenteral/methods, Research Support, Severity Of Illness Index, Time Factors
Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy
Tags: 2006, Adaptation, Adolescent, Adult, Backlog, Camfield CS, Camfield PR, Caregivers/psychology, Child, Chronic Disease, Developmental Medicine and Child Neurology, Epilepsy/nursing/psychology, Family Health, Female, Humans, Journal Article, Male, Middle Aged, Nolan KJ, Parent-child Relations, Parents/psychology, Preschool, Psychological, Psychological/psychology, Q3 Scoping Review Results, Seizures/nursing/psychology, Severity Of Illness Index, Social Isolation, Social Support, Stress, Syndrome
Coping, self-efficacy and psychiatric history in patients with both chronic widespread pain and chronic fatigue
Tags: 2009, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Attitude To Health, Backlog, Buchwald D, Chronic, Chronic Disease, Comorbidity, Depressive Disorder, Emotions, Fatigue, Fatigue Syndrome, Female, Fibromyalgia, General Hospital Psychiatry, Humans, Journal Article, Major, Male, Middle Aged, Pain, Post-traumatic, Problem Solving, Psychological, Questionnaires, Regression Analysis, Self Efficacy, Severity Of Illness Index, Smith WR, Strachan ED, Stress Disorders, Young Adult
COVID-19 Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection in children and adolescents: a systematic review of critically unwell children and the association with underlying comorbidities
Tags: 2021, Adolescent, Agrawal P, April 2021 List, Child, Comorbidities, Comorbidity, Cook J, COVID-19, COVID-19/diagnosis/epidemiology, Critical Illness, Critically unwell, European Journal of Pediatrics, Global Health, Gupta A, Harman K, Humans, Paediatric, Prognosis, Radia T, Risk Factors, Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), Severity Of Illness Index, Williams N
Decisions to forgo life-sustaining therapy in ICU patients independently predict hospital death
Tags: 2003, 80 And Over, Adrie C, Aged, Analysis of Variance, APACHE, Azoulay E, Backlog, Cohen Y, Comorbidity, Critical Care/statistics & numerical data, Death and Euthanasia, Decision Making, deLassence A, Empirical Approach, Female, Garrouste-Orgeas M, Hospital Mortality, Hospitals, Humans, ICU Decision Making, Intensive Care Medicine, Intensive Care Units/statistics & numerical data, Journal Article, Life Support Care/statistics & numerical data, Male, Middle Aged, Montesino L, Moreau D, Outcomerea Study Group, Paris/epidemiology, Pochard F, Predictive Value of Tests, Proportional Hazards Models, Prospective Studies, Resuscitation Orders, Risk Factors, Severity Of Illness Index, Survival Analysis, Teaching, Timsit JF, Withholding Treatment/statistics & Numerical Data
Determinants of sleep disturbances in Rett syndrome: Novel findings in relation to genotype
Tags: 0 (Methyl-CpG-Binding Protein 2), 2016, Adolescent, Adult, American Journal of Medical Genetics Part A, Anderson B, Boban S, characteristics, Child, Child Preschool, Downs J, Epilepsy/di [diagnosis], Epilepsy/ge [Genetics], Epstein A, Genetic Association Studies, Genotype, Humans, Infant, Infant Newborn, Leonard H, Methyl-CpG-Binding Protein 2/ge [Genetics], Middle Aged, Murphy N, Mutation, Phenotype, Rett syndrome, Rett Syndrome/di [Diagnosis], Rett Syndrome/ge [Genetics], Rett Syndrome/pp [Physiopathology], Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ge [Genetics], Trajectory, Wong K, Young Adult
Development of global rating instruments for pediatric patients with ataxia telangiectasia
Tags: 2016, Adolescent, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], Ataxia Telangiectasia/ep [Epidemiology], Ben-Zeev B, Borgohain R, Brief Ataxia Rating Scale, Child, Child Preschool, D'Agnano D, European Journal of Paediatric Neurology, Female, Hegde A U, Humans, ICARS, Leuzzi V, Male, Micheli R, Molinaro A, Mridula K R, Nissenkorn A, Pediatrics/mt [methods], SARA, scale development, Severity Of Illness Index, tone and motor problems, tool development, Yareeda S
Diagnostic evaluation using whole-body technetium bone scan in children with cerebral palsy and pain.
Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods
Differences in pediatric ICU mortality risk over time
Tags: 1998, Age Distribution, Age Factors, Backlog, Child, Critical Care Medicine, Fiser DH, Health Care, Hospital Bed Capacity, Hospital Mortality/trends, Hospitals, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/standards/trends, Journal Article, Lensing S, Logistic Models, Pediatric, Pediatric/standards/statistics & numerical data/trends, Predictive Value of Tests, Prospective Studies, Quality Assurance, Reproducibility of Results, Risk Assessment, Roberson PK, Severity Of Illness Index, Tilford JM, United States/epidemiology, University
Direct measurement of intracranial pressure at high altitude and correlation of ventricular size with acute mountain sickness: Brian Cummins' results from the 1985 Kishtwar expedition
Tags: 2008, Acute Disease, Adolescent, Adult, Altitude Sickness/diagnosis/etiology/physiopathology, Backlog, Brain/complications/physiopathology, Cerebral Ventricles/physiopathology, Expeditions, Experimental, Headache/etiology, Humans, Hypoxia, Implants, India, Intracranial Hypertension/diagnosis/etiology, Intracranial Pressure, Journal Article, Male, Middle Aged, Milledge J, Neurosurgery, Physical Exertion, Severity Of Illness Index, Telemetry/instrumentation, Tomography, Wilson MH, X-Ray Computed, Young Adult
Disease severity in children and adults with Pompe disease related to age and disease duration
Tags: 2005, 80 And Over, Activities of Daily Living, Adolescent, Adult, Age Factors, Age of Onset, Aged, Artificial/statistics & numerical data, Backlog, Child, Cross-sectional Studies, Disease Progression, Female, Glycogen Storage Disease Type II/diagnosis/epidemiology/physiopathology, Hagemans ML, Hop WC, Humans, Infant, Journal Article, Male, Middle Aged, Muscle, Neurology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Respiration, Respiratory Insufficiency/epidemiology/etiology/therapy, Reuser AJ, Severity Of Illness Index, Skeletal/physiopathology, Van der Ploeg AT, Van Doorn PA, Wheelchairs/statistics & numerical data, Winkel LP
Disorders of Upper Limb Movements in Ataxia-Telangiectasia
Tags: 2013, abnormal involuntary movements, accelerometry, Adolescent, Adult, Age Factors, ataxia telangiectasia, Ataxia Telangiectasia/pp [Physiopathology], Biomechanical Phenomena, characteristics, Child, Child Preschool, Crawford T O, Cross-sectional Studies, Female, Humans, kinetic tremor, Lederman H M, Male, Mandir A S, Motor Activity, Motor Activity/ph [Physiology], Movement, Movement Disorders/pp [Physiopathology], Movement/ph [Physiology], Periodicity, PLoS One, postural tremor, Posture/ph [Physiology], resting tremor, Severity Of Illness Index, Shaikh A G, tone and motor problems, Trajectory, Tremor/pp [Physiopathology], Upper Extremity, Upper Extremity/pp [Physiopathology], Young Adult, Zee D S
Driscoll Children's Hospital respiratory syncytial virus database: risk factors, treatment and hospital course in 3308 infants and young children, 1991 to 2002
Tags: 2004, Antiviral Agents/therapeutic use, Backlog, Databases, Factual, Fergie J, Hospitalization, Human, Humans, Infant, Intensive Care Units, Journal Article, Length Of Stay, Mechanical, Medical Records, Newborn, Pediatrics, Premature, Purcell K, Respiratory Syncytial Virus, Respiratory Syncytial Virus Infections/drug therapy/physiopathology/virology, Respiratory Tract Infections/drug therapy/physiopathology/virology, Ribavirin/therapeutic use, Risk Factors, Severity Of Illness Index, The Pediatric Infectious Disease Journal, Ventilators
Duration and morbidity of newly diagnosed idiopathic thrombocytopenic purpura in children: A prospective Nordic study of an unselected cohort
Tags: 2003, Adolescent, Backlog, Child, Cohort Studies, Elinder G, Female, Hedlund-Treutiger I, Hemorrhage/diagnosis/etiology/therapy, Henter JI, Humans, Idiopathic/complications/diagnosis/therapy, Infant, Jonsson OG, Journal Article, Male, Newborn, NOPHOITP Working Group, Platelet Count, Preschool, Prospective Studies, Purpura, Rajantie J, Risk Assessment, Rosthoj S, Scandinavia, Severity Of Illness Index, The Journal Of Pediatrics, Thrombocytopenic, Time Factors, Wesenberg F, Zeller B
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH
Ethical Dilemmas In Postnatal Treatment Of Severe Congenital Hydrocephalus.
Tags: 2016, Cambridge Quarterly of Healthcare Ethics, Children, Decision Making/ethics, Ethics Medical, Female, Humans, Hydrocephalus, Hydrocephalus/diagnosis, Hydrocephalus/therapy, Infant, Infant Premature, Intensive Care Neonatal/ethics, Male, May 2016 List, Medical Ethics, Medical Futility, Medical Futility/ethics, Neonatal Intensive Care Unit, Postnatal Care/ethics, Quality Of Life, Severity Of Illness Index, Ventriculoperitoneal Shunt/ethics, Wilkinson D, Withdrawing Treatment, Withholding Treatment/ethics
Factors influencing family participation in a longitudinal study: comparison of pediatric and healthy samples.
Tags: 1997, Analysis of Variance, Backlog, Case-Control Studies, Chi-Square Distribution, Congenital/psychology, Cystic Fibrosis/psychology, Family Health, Goldberg S, Heart Defects, Humans, Infant, Janus M, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Parents/psychology, Patient Dropouts/statistics & numerical data, Patient Participation/statistics & numerical data, Regression Analysis, Research/statistics & numerical data, Severity Of Illness Index
Functional electrical stimulation therapy for recovery of reaching and grasping in severe chronic pediatric stroke patients
Tags: 2014, Articular, Backlog, Bernstein J, Child, Chronic, Chronic Disease, Disability Evaluation, Electric Stimulation Therapy, Female, functional electrical stimulation therapy, grasping, Hand Strength, Humans, Journal Article, Journal of Child Neurology, Kapadia Naaz M, Male, Nagai MK, Pediatrics, Popovic MR, Psychomotor Performance, Range of Motion, Recovery of Function, Rumney P, severe, Severity Of Illness Index, Stroke, Treatment Outcome, Upper Extremity, Woodhouse J, Zivanovic V
Gabapentin Successfully Manages Chronic Unexplained Irritability in Children With Severe Neurologic Impairment
Tags: 2007, Adolescent, Adult, Amines/therapeutic use, Analgesics/therapeutic use, Backlog, Charnas L, Child, Chronic Disease, Cyclohexanecarboxylic Acids/therapeutic use, Female, gamma-Aminobutyric Acid/therapeutic use, Hauer JM, Humans, Infant, Irritable Mood/drug effects, Journal Article, Male, Nervous System Diseases/complications, Pediatrics, Preschool, Remission Induction, Retrospective Studies, Severity Of Illness Index, Wical BS
Health and sleep problems in Cornelia de Lange Syndrome: a case control study
Tags: 2008, Adolescent, Arron K, behavioral problems, Case-Control Studies, characteristics, Comorbidity, De Lange syndrome, De Lange Syndrome/epidemiology/psychology, Ear Diseases/epidemiology/psychology, Eye Diseases/epidemiology/psychology, Female, Gastrointestinal Diseases/epidemiology/psychology, Hall S, Health Status, Hernia/epidemiology/psychology, Humans, Intellectual Disability/epidemiology/psychology, Journal Of Intellectual Disability Research, Male, Oliver C, Prevalence, Self-Injurious Behavior/epidemiology/psychology, self-injury, Severity Of Illness Index, Skin Diseases/epidemiology/psychology, sleep disturbance, Sleep Wake Disorders/epidemiology, Sloneem J, Stomatognathic Diseases/epidemiology/psychology, Surveys And Questionnaires, Trajectory
Health care resource utilization in adults with congenital heart disease
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Distribution, Aged, Ambulatory Care/utilization, Backlog, Congenital/epidemiology/etiology/pathology/therapy, Databases, Emergency Service, Factual, Female, Health Resources/utilization, Heart Defects, Hospital/utilization, Hospitalization/statistics & numerical data, Humans, Ionescu-Ittu R, Journal Article, Length Of Stay, Mackie AS, Male, Marelli AJ, Middle Aged, Outcome Assessment (health Care), Patient Acceptance Of Health Care/statistics & Numerical Data, Pilote L, Quebec/epidemiology, Rahme E, Severity Of Illness Index, The American Journal Of Cardiology
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Identifying futility in a paediatric critical care setting: a prospective observational study
Tags: 2001, Archives of Disease in Childhood, Backlog, Child, Cost Control, Critical Illness/classification, Death and Euthanasia, Empirical Approach, Euthanasia, Female, Goh AY, Health Care and Public Health, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, London, Male, Medical Futility, Mok Q, Passive/statistics & numerical data, Patient Admission/statistics & numerical data, Pediatric/organization & Administration, Preschool, Prognosis, Prospective Studies, Quality Of Life, Severity Of Illness Index, Teaching
Impact of research participation on parents of seriously ill children.
Tags: 2014, Adolescent, Adult, Andrews GS, Biomedical Research, Cadell S, Charting the territory, Child, Child Health Services, Child Preschool, Feichtinger L, Female, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care, Parents/psychology, Severity Of Illness Index, Siden H, Smit QT, Steele R, Surveys And Questionnaires, Young Adult