1
40
15
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 4 - Parent Perspectives List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE4 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1111/jar.12804" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/jar.12804</a>
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Title
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"They just get it" an exploration of father's experiences and perceptions of a support group for men caring for children with disabilities and/or developmental delay
Publisher
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Journal of Applied Research in Intellectual Disabilities
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
Humans; Child; Female; Male; Qualitative Research; Perception; Fathers; Self-Help Groups; *Intellectual Disability; *Disabled Children
Creator
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Batchelor, Molly; Maguire, Sabine; Shearn, Julia
Description
An account of the resource
BACKGROUND: Support groups available to parents/carers of children with a disability or developmental delay (DDD) are predominately attended by women. Limited data exists reporting experiences of the few male-only support groups. This paper examines experiences of fathers of children with DDD attending a male-only support group from South Wales., METHOD: All fifteen members from a support group for fathers/male carers of children with DDD were invited to take part in qualitative interviews and seven participated. The data were analysed following Braun and Clarke's (Qualitative research in psychology, 2006, 3:77) thematic framework., RESULTS: Within the group, fathers felt understood by similarly situated men, and a sense of connectivity and belonging. Fathers perceived exclusion elsewhere, including mixed-gender groups. Fathers felt permission to talk in a way consistent with their male identities, and valued receiving, and giving, support., CONCLUSIONS: Mixed-gender support groups may not meet the needs of fathers, and there are potential benefits in providing male-only groups. Copyright � 2020 John Wiley & Sons Ltd.
Identifier
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<a href="http://doi.org/10.1111/jar.12804" target="_blank" rel="noreferrer noopener">10.1111/jar.12804</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
*Disabled Children
*Intellectual Disability
2021
2023 SE4 - Parent Perspectives
Batchelor, Molly
Child
Fathers
Female
Humans
Journal Of Applied Research In Intellectual Disabilities
Maguire, Sabine
Male
Perception
Qualitative Research
Self-Help Groups
Shearn, Julia
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.26046" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.26046</a>
Dublin Core
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Title
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Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
bereavement; Qualitative Research; Continuity of Patient Care; Counseling; Self-Help Groups; Grief; cancer
Creator
An entity primarily responsible for making the resource
Snaman JM; Kaye EC; Torres C; Gibson D; Baker JN
Description
An account of the resource
BACKGROUND: The death of a child is a devastating event that results in profound grief and significant psychosocial and physical morbidities in parents. The parental grief journey is a complex phenomenon necessitating the utilization of newer models of bereavement with a focus on relationships and exploration of parents' perceived meanings of the experience. OBJECTIVES: To further characterize the grief journey of parents whose child died from cancer in order to better identify parents who can benefit from additional bereavement support and design strategies to improve bereavement services for these parents. DESIGN: We conducted focus group sessions with 11 bereaved parents. The parents were given two prompts to describe their grief journey before and after their child's death, and their responses in a narrative form were audio-recorded. The responses were coded and studied independently by semantic content analysis. RESULTS: Collation and analysis of the coded responses to both prompts results in the emergence of four concepts from the parental narratives: (1) description of the grief trajectory and evolution of grief over time, (2) mechanisms of parental coping throughout the grief journey, (3) factors that exacerbate parental grief, and (4) sources of parental support throughout the grief journey. CONCLUSIONS: The narratives highlighted that parents whose child died of cancer experience a unique and evolving form of grief and they wish to continue their bond with the deceased child. We recommend that healthcare providers and institutions incorporate support systems into a comprehensive bereavement program for families of children who die from cancer.
2016-09
Identifier
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<a href="http://doi.org/10.1002/pbc.26046" target="_blank" rel="noreferrer">10.1002/pbc.26046</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2016
Backlog
Baker JN
Bereavement
Cancer
Continuity Of Patient Care
Counseling
Gibson D
Grief
Journal Article
Kaye EC
Pediatric Blood & Cancer
Qualitative Research
Self-Help Groups
Snaman JM
Torres C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/JCO.2014.59.0406" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2014.59.0406</a>
Dublin Core
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Title
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Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Publisher
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Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
adolescent; Child; Cross-Sectional Studies; Female; Humans; infant; Male; United States; Young Adult; Neoplasms; Adult; Parents; Middle Aged; Health Services Accessibility; cause of death; Age Factors; Psychotherapy; Patient Acceptance of Health Care; Time Factors; Self Report; Self-Help Groups; Preschool; Adaptation; Psychological; Grief; Mental Health Services; Minority Groups; Psychotropic Drugs
Creator
An entity primarily responsible for making the resource
Lichtenthal WG; Corner GW; Sweeney CR; Wiener L; Roberts KE; Baser RE; Li Y; Breitbart W; Kissane DW; Prigerson HG
Description
An account of the resource
PURPOSE: To examine bereavement mental health service use, barriers to use, and factors associated with use in parents bereaved by cancer. PATIENTS AND METHODS: A multicenter, cross-sectional study of 120 parents bereaved by cancer between 6 months and 6 years after their loss was performed. Parents completed self-report assessments of mental health service use and barriers, prolonged grief, depression, anxiety, attachment styles, and sense of meaning by phone, in person, or on their own. RESULTS: Forty-one percent of bereaved parents were currently using mental health services (talk therapy, psychotropic medication, and/or a support group), most commonly within the first 2 years after their loss. Talk therapy was the most frequently used service, although 36% of parents who discontinued therapy did so because it was not helpful. Forty percent of parents who wanted bereavement support reported they were not receiving services. The most common barriers to service use were that it was too painful to speak about the loss (64%) and too difficult to find help (60%). Factors associated with current mental health service use included more recent loss, prior mental health service use, subclinical/increased depression, insecure attachment styles, and a decreased sense of meaning. Minority parents were more likely to have unmet needs than nonminority parents. CONCLUSION: Parents appear to need, want, and often access bereavement mental health services, which could be offered in oncology settings. However, barriers to service use must be addressed, particularly for those with more debilitating grief symptoms and for minorities. High treatment dropout rates suggest the importance of improving retention, training providers, and developing effective grief interventions.
2015-07
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/JCO.2014.59.0406" target="_blank" rel="noreferrer">10.1200/JCO.2014.59.0406</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
Adaptation
Adolescent
Adult
Age Factors
Backlog
Baser RE
Breitbart W
Cause Of Death
Child
Corner GW
Cross-sectional Studies
Female
Grief
Health Services Accessibility
Humans
Infant
Journal Article
Journal Of Clinical Oncology
Kissane DW
Li Y
Lichtenthal WG
Male
Mental Health Services
Middle Aged
Minority Groups
Neoplasms
Parents
Patient Acceptance of Health Care
Preschool
Prigerson HG
Psychological
Psychotherapy
Psychotropic Drugs
Roberts KE
Self Report
Self-Help Groups
Sweeney CR
Time Factors
United States
Wiener L
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00005721-200511000-00007" target="_blank" rel="noreferrer">http://doi.org/10.1097/00005721-200511000-00007</a>
Dublin Core
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Title
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Evidence for healing interventions with perinatal bereavement
Publisher
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The American Journal Of Maternal Child Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Female; Humans; infant; Male; bereavement; Adult; Parents; Attitude to Death; Professional-Family Relations; Health Services Needs and Demand; social support; Age Factors; Nurse's Role; Child Psychology; Sex Factors; Funeral Rites; Helping Behavior; Spirituality; Evidence-Based Medicine; Nursing Evaluation Research; Self-Help Groups; Adaptation; Psychological; bereavement; Newborn; Parents/education/psychology; social support; Intervention; Interventions; sibling bereavement; Maternal-Child Nursing; Funeral Rites/psychology; Maternal-Child Nursing/organization & administration; Nurse's Role/psychology; Symbolism
Creator
An entity primarily responsible for making the resource
Capitulo KL
Description
An account of the resource
The purpose of this article is to explore the concept of perinatal grief and evidence-based healing interventions for it. The loss of a pregnancy or death of an infant causes profound grief, yet society has long minimized or ignored this grief, which is among the most painful of bereavement experiences. Throughout the last century, research on grief and the special needs of bereaved parents has changed the context of professional intervention from protective to supportive. The central focus of bereavement interventions is to assist families in healing by helping them make meaning of their losses. The use of symbols, spirituality, and rituals has been shown to help bring meaning. Research has shown that memories are key to healing, and that gender, age, and relationships bring different grief expressions and experiences. While children's understanding of loss and grief differs with developmental age, they should also be given the opportunity to participate in grief rituals and practices. Professionals who care for bereaved parents have a unique opportunity to offer support by validating their grief, facilitating rituals, providing mementos, and letting the bereaved tell their stories. While no intervention can bring back their beloved children, appropriate intervention can promote healing.
2005-12
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00005721-200511000-00007" target="_blank" rel="noreferrer">10.1097/00005721-200511000-00007</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adaptation
Adult
Age Factors
Attitude To Death
Backlog
Bereavement
Capitulo KL
Child
Child Psychology
Evidence-based Medicine
Female
Funeral Rites
Funeral Rites/psychology
Health Services Needs And Demand
Helping Behavior
Humans
Infant
Intervention
Interventions
Journal Article
Male
Maternal-Child Nursing
Maternal-Child Nursing/organization & administration
Newborn
Nurse's Role
Nurse's Role/psychology
Nursing Evaluation Research
Parents
Parents/education/psychology
Professional-family Relations
Psychological
Self-Help Groups
Sex Factors
sibling bereavement
Social Support
Spirituality
Symbolism
The American Journal Of Maternal Child Nursing
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/J077v23n01_06" target="_blank" rel="noreferrer">http://doi.org/10.1300/J077v23n01_06</a>
Dublin Core
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Title
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Siblings of pediatric cancer patients: the quantitative and qualitative nature of quality of life
Publisher
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Journal Of Psychosocial Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; bereavement; Neoplasms; Siblings; Sick Role; Sibling Relations; Personality Inventory; Self-Help Groups; quality of life; Adaptation; Psychological; sibling bereavement; Camping; Personality Assessment
Creator
An entity primarily responsible for making the resource
Packman W; Greenhalgh J; Chesterman B; Shaffer T; Fine J; Van Zutphen K; Golan R; Amylon Michael D
Description
An account of the resource
This study used both quantitative and qualitative methodologies to assess the pediatric health-related quality of life (HRQOL) in siblings (n = 77) of cancer patients attending summer camp. On quantitative measures (Pediatric Quality of Life Inventory (PedsQL) parent and child versions), siblings reported statistically significant improvements in HRQOL from pre-to post camp. The parent sample, as a whole, did not report a statistically significant improvement in the siblings' HRQOL; however, statistically significant improvements were found when the analysis controlled for the responses of bereaved parents. On the qualitative measures (Sibling Qualitative Interview and Camp Okizu Satisfaction Surveys), both children and parents described the positive impact of camp. Using grounded theory, we identified the major themes and found that the positive emotional and social experiences captured by the quotes were paralleled in the quantitative findings of improved HRQOL in psychosocial domains on the PedsQL. These findings suggest the beneficial effects of camp as a psychological intervention and illustrate the value of integrating quantitative and qualitative methodological approaches in research.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/J077v23n01_06" target="_blank" rel="noreferrer">10.1300/J077v23n01_06</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adaptation
Adolescent
Amylon Michael D
Backlog
Bereavement
Camping
Chesterman B
Child
Female
Fine J
Golan R
Greenhalgh J
Humans
Journal Article
Journal Of Psychosocial Oncology
Male
Neoplasms
Packman W
Personality Assessment
Personality Inventory
Psychological
Quality Of Life
Self-Help Groups
Shaffer T
sibling bereavement
Sibling Relations
Siblings
Sick Role
Van Zutphen K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1467-9566.2004.00393.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1467-9566.2004.00393.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A grief ignored: Narratives of pregnancy loss from a male perspective
Publisher
An entity responsible for making the resource available
Sociology Of Health & Illness
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Male; Grief; Pregnancy; Attitude; Nurses; Fathers; Role; Research; Self-Help Groups; bereavement; Interviews; narrative; Anger; Paper; Support; Meaning; emotion; male grief; pregnancy loss
Creator
An entity primarily responsible for making the resource
McCreight BS
Description
An account of the resource
This paper, utilising a narrative approach, aims to describe the experiences of men whose partner had experienced pregnancy loss, based on data from Northern Ireland. The methodology was based upon observation within pregnancy loss self-help groups and in-depth interviews with 14 men who attended the groups. The study also included interviews with 32 midwives and nurses, with the intention of examining attitudes within the medical context towards bereaved fathers. The impact of pregnancy loss on male partners has been largely overlooked in academic research. When a baby dies before birth the loss can be devastating for fathers yet, very often, the world that surrounds them tends to discount their loss, and emotional support and cultural rituals that are normally available to other bereaved individuals are often absent for this group of men. Previous research has shown that men are expected to be emotionally strong in order to support their partner. The present study will show that the perception that men have only a supportive role in pregnancy loss is unjustified, as it ignores the actual life-world experiences of the men, and the meanings they attach to their loss, in what may be a very personal emotional tragedy for them where they have limited support available. The study uncovered several recurring themes including self-blame; loss of identity; and the need to appear strong and hide feelings of grief and anger. There is consideration of the need for hospital staff and the wider community to acknowledge the male partner's grief as being a valid response to the bereavement suffered.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1467-9566.2004.00393.x" target="_blank" rel="noreferrer">10.1111/j.1467-9566.2004.00393.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Anger
Attitude
Backlog
Bereavement
Emotion
Fathers
Grief
Interviews
Journal Article
Male
male grief
McCreight BS
Meaning
Narrative
Nurses
Paper
Pregnancy
Pregnancy Loss
Research
Role
Self-Help Groups
Sociology of Health & Illness
Support
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/10598405030190040601" target="_blank" rel="noreferrer">http://doi.org/10.1177/10598405030190040601</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Facilitating children's grief
Publisher
An entity responsible for making the resource available
The Journal Of School Nursing: The Official Publication Of The National Association Of School Nurses
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
adolescent; Child; Humans; Death; Adult; Interpersonal Relations; Communication; Child Psychology; Counseling; School Nursing; Self-Help Groups; Grief; sibling bereavement
Creator
An entity primarily responsible for making the resource
Riely M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/10598405030190040601" target="_blank" rel="noreferrer">10.1177/10598405030190040601</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
A program of education and support is essential for children and their parent or adult caregivers when the children have experienced the death of a significant person. Children need guidance on how to deal with their profound feelings of grief. The purpose of this article is to give school nurses the ability to help children face the strange new world that follows the death experience. The review of literature defines commonly used terms, describes the mourning process experienced by children, and offers school nurses basic information about grief. The article presents the critical elements necessary for planning and implementing a 6-week grief education and support program that offers children and their parent or adult caregivers permission to grieve and the tools with which to process grief.
2003
Adolescent
Adult
Backlog
Child
Child Psychology
Communication
Counseling
Death
Grief
Humans
Interpersonal Relations
Journal Article
Riely M
School Nursing
Self-Help Groups
sibling bereavement
The Journal Of School Nursing: The Official Publication Of The National Association Of School Nurses
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0022-3476(76)80747-0" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0022-3476(76)80747-0</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
After the child dies
Publisher
An entity responsible for making the resource available
The Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
1976
Subject
The topic of the resource
Child; Female; Humans; Male; Parents; Emotions; Attitude to Death; Professional-Family Relations; Death; Self-Help Groups
Creator
An entity primarily responsible for making the resource
Fischhoff J; O'Brien N
Description
An account of the resource
The parents of a child who dies feel the emotions of shock, mourning, and confusion as they slowly come to accept the finality of the child's death. In contemporary America they frequently feel isolated and abandoned. The individuals and institutions that were sources of emotional support in the period immediately after the child's death are no longer available after a few weeks or months. This is due to several factors: (1) American society is very mobile and the nuclear family often does not have the emotional support of the stable, extended family. (2) Children die less frequently today than they did in the past. In fact, it is almost a unique event. As a consequence, the parents of the dead child have less opportunity to share their feelings with other adults and the community at large. (3) There appears to be a misconception held by the general population that the mourning process and emotional confusion terminate after an interval of a few weeks or months. These factors were influential in motivating a number of parents who had lost children to organize a group which meets bi-monthly. The group is open-ended and nothing said is out of place. The parents have been very helpful to each other in diminishing feelings of isolation, concerns about "strange" thoughts, and feelings of hopeless depression. Requests for information on how to form such a group have come from a number of communities in various parts of the country.
1976
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0022-3476(76)80747-0" target="_blank" rel="noreferrer">10.1016/s0022-3476(76)80747-0</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1976
Attitude To Death
Backlog
Child
Death
Emotions
Female
Fischhoff J
Humans
Journal Article
Male
O'Brien N
Parents
Professional-family Relations
Self-Help Groups
The Journal Of Pediatrics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1939-0025.1985.tb03422.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1939-0025.1985.tb03422.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The effects of self-help and psychotherapy intervention on child loss: the limits of recovery
Publisher
An entity responsible for making the resource available
The American Journal Of Orthopsychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
1985
Subject
The topic of the resource
Child; Female; Humans; Male; Grief; Social Adjustment; Self-Help Groups; Combined Modality Therapy; Non-U.S. Gov't; P.H.S.; Research Support; U.S. Gov't; Adaptation; Psychological; Parents/psychology; Intervention; Interventions; Adjustment Disorders/therapy; Psychotherapy/methods
Creator
An entity primarily responsible for making the resource
Videka-Sherman L; Lieberman M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1939-0025.1985.tb03422.x" target="_blank" rel="noreferrer">10.1111/j.1939-0025.1985.tb03422.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
Results of a longitudinal study of the effects of bereaved parents' participation in a self-help group and in psychotherapy are presented. Active self-help group participants evidenced unique changes in attitudes about bereavement. Reasons for lack of differences in mental health, marital, and parental roles are discussed.
1985
Adaptation
Adjustment Disorders/therapy
Backlog
Child
Combined Modality Therapy
Female
Grief
Humans
Intervention
Interventions
Journal Article
Lieberman M
Male
Non-U.S. Gov't
P.H.S.
Parents/psychology
Psychological
Psychotherapy/methods
Research Support
Self-Help Groups
Social Adjustment
The American Journal Of Orthopsychiatry
U.S. Gov't
Videka-Sherman L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/074811897202056" target="_blank" rel="noreferrer">http://doi.org/10.1080/074811897202056</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief
Publisher
An entity responsible for making the resource available
Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Humans; United States; Parent-Child Relations; Social Values; Self-Help Groups; bereavement; Parents/psychology; SSHRC CURA
Creator
An entity primarily responsible for making the resource
Klass D
Description
An account of the resource
A core dynamic by which grief is resolved by parents in Bereaved Parents, a self-help group, is a series of transformations of the inner representation of the dead child in the parent's inner world and in the parent's social world. As the reality of the child's death as well as the reality of the parent's continuing bond with the child are made part of the socially shared reality, the inner representation of the child can be transformed in the parent's psychic life. The end of grief is not severing the bond with the dead child, but integrating the child into the parent's life in a different way than when the child was alive. This article traces the course of the inner representation of the child in the parent's inner life and social world as the parent progresses through Bereaved Parents. It concludes with some comments on the differences that should be maintained between scholarly and popular understandings of phenomena in the continuing bonds survivors maintain with the dead.
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/074811897202056" target="_blank" rel="noreferrer">10.1080/074811897202056</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Backlog
Bereavement
Death studies
Humans
Journal Article
Klass D
Parent-child Relations
Parents/psychology
Self-Help Groups
Social Values
SSHRC CURA
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.73.1.77" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.73.1.77</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Behaviour in mucopolysaccharide disorders
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
1995
Subject
The topic of the resource
Child; Female; Humans; Male; Prevalence; Data Collection; Parents; Family Health; Self-Help Groups; Preschool; Q3 Literature Search; Mucopolysaccharidoses/complications; Mucopolysaccharidosis III/psychology; Aggression; Child Behavior Disorders/complications; Mucopolysaccharidosis II/psychology; Sleep Disorders/complications
Creator
An entity primarily responsible for making the resource
Bax MC; Colville GA
Description
An account of the resource
This paper reports a study of the nature and prevalence of behaviour problems in 258 children with mucopolysaccharide disorders. Questionnaire data obtained through the post was supplemented by home visits to 42 families in the sample and by regular discussions with families at meetings of the Society for Mucopolysaccharide Diseases. High rates of behaviour problems were found, particularly in children with Sanfilippo's and Hunter's disease aged 5 to 9 years. These included destructiveness, restlessness, and aggressiveness. Sleep problems were common across subtypes with an overall prevalence of 66%. Parents reported that they received little or no support in the management of these difficult behaviours. It is concluded that behaviour problems are a primary feature of the mucopolysaccharide disorders and place a major strain on families. Services to help families cope with these problems are urgently needed.
1995
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.73.1.77" target="_blank" rel="noreferrer">10.1136/adc.73.1.77</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1995
Aggression
Archives of Disease in Childhood
Backlog
Bax MC
Child
Child Behavior Disorders/complications
Colville GA
Data Collection
Family Health
Female
Humans
Journal Article
Male
Mucopolysaccharidoses/complications
Mucopolysaccharidosis II/psychology
Mucopolysaccharidosis III/psychology
Parents
Preschool
Prevalence
Q3 Scoping Review Results
Self-Help Groups
Sleep Disorders/complications
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/104990919501200509" target="_blank" rel="noreferrer">http://doi.org/10.1177/104990919501200509</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Children's descriptions of their feelings and what they found helpful during bereavement
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
1995
Subject
The topic of the resource
Child; Female; Humans; Male; bereavement; Child Psychology; Nursing Methodology Research; Self-Help Groups; Preschool; Anger; sibling bereavement; Art Therapy
Creator
An entity primarily responsible for making the resource
Lehna CR
Description
An account of the resource
Although clinicians have described the value of support groups in assisting children mourn the death of someone close, little is known about helping children with bereavement. By understanding what helps children mourn, nurses can better facilitate a healthy bereavement process. The purpose of this mini-ethnographic study, which used observation and participation procedures, was to identify what 16 children found helpful during their bereavement. Initially, the children's expressions of feelings were demonstrated both verbally and through art work. The patterns of the children's emotions were labeled as affective distress, somatic complaints, and for the boys, disruptive behavior. The children then described their mourning processes as being facilitated by out-of-door activity, yelling, and talking to others (e.g. God, mom, grandmother or grandfather).
1995-10
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/104990919501200509" target="_blank" rel="noreferrer">10.1177/104990919501200509</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1995
Anger
Art Therapy
Backlog
Bereavement
Child
Child Psychology
Female
Humans
Journal Article
Lehna CR
Male
Nursing Methodology Research
Preschool
Self-Help Groups
sibling bereavement
The American Journal of Hospice & Palliative Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1191/026921699668468396" target="_blank" rel="noreferrer">http://doi.org/10.1191/026921699668468396</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treasure Weekend: supporting bereaved siblings
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
adolescent; Child; Humans; infant; bereavement; Terminal Care; hospice care; social support; Program Evaluation; Sibling Relations; Self-Help Groups; Preschool; sibling bereavement
Creator
An entity primarily responsible for making the resource
Potts S; Farrell M; O'Toole J
Description
An account of the resource
The importance of allowing bereaved siblings the opportunity to be involved and mourn the loss of a sibling family member has gained increasing recognition. Child family members may need support in the same way that parents might need support to cope with a devastating loss. However, there are often few support services specifically focused to support bereaved children. Therefore, this article describes how a children's hospice provides specific support for bereaved siblings, by providing an opportunity for bereaved siblings to share a residential support weekend, known as the Treasure Weekend. The article describes the rationale, aims and the experience of the children's hospice, in facilitating this support service.
1999-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1191/026921699668468396" target="_blank" rel="noreferrer">10.1191/026921699668468396</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Adolescent
Backlog
Bereavement
Child
Farrell M
Hospice Care
Humans
Infant
Journal Article
O'Toole J
Palliative Medicine
Potts S
Preschool
Program Evaluation
Self-Help Groups
sibling bereavement
Sibling Relations
Social Support
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1207/s15326888chc2003_6" target="_blank" rel="noreferrer">http://doi.org/10.1207/s15326888chc2003_6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Publisher
An entity responsible for making the resource available
Children's Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
1991
Subject
The topic of the resource
Female; Humans; Male; Health Services Needs and Demand; Longitudinal Studies; Florida; Respite Care; Family Health; Counseling; Self-Help Groups; Interviews; Parents/psychology; Home Nursing/psychology; Patient Care Planning/standards
Creator
An entity primarily responsible for making the resource
Diehl SF; Moffitt KA; Wade SM
Description
An account of the resource
The purpose of this paper was to identify the needs of parents of children with medically complex needs from their own perception. In order to provide in-depth information, the focus group interview technique was used. Several strong recurrent themes were identified. The most persistent need was for a general organization or framework with which the care providers could operate. Along these same lines, the fragmentation of training, needs and services was consistently stated. A general lack of information in terms of home care and how to plan for the future was identified. Support groups were universally lauded for the invaluable services provided to the care parents.
1991
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1207/s15326888chc2003_6" target="_blank" rel="noreferrer">10.1207/s15326888chc2003_6</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1991
Backlog
Children's Health Care
Counseling
Diehl SF
Family Health
Female
Florida
Health Services Needs And Demand
Home Nursing/psychology
Humans
Interviews
Journal Article
Longitudinal Studies
Male
Moffitt KA
Parents/psychology
Patient Care Planning/standards
Respite Care
Self-Help Groups
Wade SM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.2190/om.63.4.c" target="_blank" rel="noreferrer">http://doi.org/10.2190/om.63.4.c</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Indicators of family resilience after the death of a child
Publisher
An entity responsible for making the resource available
Omega
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Adult; Parent-Child Relations; Parents; Anecdotes as Topic; Middle Aged; Self Concept; Attitude to Death; social support; Social Adjustment; Survivors; Self-Help Groups; Belgium; Preschool; Adaptation; Psychological; Newborn; Grief; sibling bereavement; Resilience; Object Attachment
Creator
An entity primarily responsible for making the resource
Greeff AP; Vansteenwegen A; Herbiest T
Description
An account of the resource
The aim of this study was to identify and describe resilience qualities in families after losing a child. Questionnaires, including an open-ended question, were utilized to collect data independently from the parents and siblings of the deceased in 89 Belgian families. The results indicate that family strengths in general, and commitment to the family in particular, helped the families' adaptation after the loss. In addition, the adaptation process after the loss was aided if the family members viewed the crisis as a challenge. Both the siblings and the parents indicated that the extent to which a family experienced support from the community was directly related to family adaptation after the loss. Redefining the situation and utilizing social support from friends and family were underlined as effective family coping strategies. The findings could be used in interventions to promote family resilience, thereby affirming the reparative potential of families.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2190/om.63.4.c" target="_blank" rel="noreferrer">10.2190/om.63.4.c</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adaptation
Adult
Anecdotes as Topic
Attitude To Death
Backlog
Belgium
Child
Female
Greeff AP
Grief
Herbiest T
Humans
Infant
Journal Article
Male
Middle Aged
Newborn
Object Attachment
Omega
Parent-child Relations
Parents
Preschool
Psychological
Resilience
Self Concept
Self-Help Groups
sibling bereavement
Social Adjustment
Social Support
Survivors
Vansteenwegen A